Here are the results of the poll.
Overall, What Do You Think Of The ADHA's Draft Framework For Action (2018-2022) - The Implementation Plan For Their Strategy?
Great 2% (3)
OK 5% (8)
Neutral 19% (29)
Not Much Good 44% (68)
Poor Or Worse 30% (47)
I Have No Idea 1% (1)
Total votes: 156
This is an interesting poll finding the ADHA’s Implementation plan is seen by a clear majority as being not much good or worse (74%). Essentially it really isn’t a plan but a marketing glossy in my view! Only 7% thought the plan was OK or better!
Any insights welcome as a comment, as usual.
A really, really great turnout of votes!
It must have been an easy question with just 1 not sure what the appropriate answer was.
Again, many, many thanks to all those that voted!
David.
17 comments:
Just a list of stuff, there is little evidence any depth of understanding of how a complicated system of systems can be orchestrated at a national level. I see some clinical leadership in ADHA, but no complementary technical leadership. But then I guess we have witnessed the ADHA dislike of technical folk, be it the software vendors or their own resources.
That can't be so "ADHA dislike of technical folk, be it the software vendors". The MSIA President speaks highly of the ADHA and her organisation represents a lot of software vendors does it not?
everyone likes ADHA and ADHA loves everyone, friends with incentives. The ADHA is subject to the Human Synergistics culture re-education program. This usually results in a lot of ability to hide the truth.
Excellent 2:51 PM. So ADHA is on the ball and doing a great job then and MSIA and all the peak medical bodies are 100% behind it. If they weren't surely they'd say something to the contrary.... wouldn't they?
... or it's a case of the bind leading the blind.
@3:30 PM that's a stupid response. It's not a case of the blind leading the blind. It's a classic example of either naive people accepting the status quo or lacking the courage to speak up and say what needs to be said. If the former then stop complaining about the ADHA and the MyHR and start supporting it.
Human Synergistics? Please tell me you are joking? The method had some value when it first came out. It has since like so many others become distorted and badly implemented. It is a cult thing. I went through this in NZ, it was not pretty to watch.
We are where we are with digital health today because kowtowing, fads and hubris have been the order of the day for far too long. 4:29 PM is spot on the mark .... naive people have been prepared to accept the status quo and lacked the courage to speak up and say what needs to be said.
March 18, 2018 6:40 PM. That is not entirely true. There were who voiced their caution and advised alternative pathways. This was met with bullying, harassment and finally excited. Along with that many many collective years of knowledge and ability. I do agree though some are happy to beat the drum and fight over scraps, some perhaps hoping to influence change in thinking, or simply waiting for reality to burst the bubble of wishful thinking.
"I do agree though some are happy to beat the drum and fight over scraps, some perhaps hoping to influence change in thinking, or simply waiting for reality to burst the bubble of wishful thinking."
That equates to complacency. That is why digital health a la ADHA is now in such a mess. While complacency remains the 'norm' nothing will change. Have a look in the mirror.
There is nothing complacent about this - https://www.digitalhealth.gov.au/news-and-events/news/media-release-first-my-health-record-connected-town-in-australia
The ADHA is unstoppable in its efforts to meet the needs of rural folk
Another way of looking at this is that almost half the population of Berrigan have decided not to have a myhr. All the aged care people will have been "given" one, which will be really useful when they go traveling or see another GP.
ADHA seems desperate to try and solve problems that a) don't exist or b) which could be solved in other, cheaper and better ways.
Also worth noting that it is simply the town of Berrigan, not the Shire. I am not sure what the message here is all about. This should be an easy study to test the benefit claims.
"...people in rural and remote areas of Australia need to be able to have their important health information when they receive care"
And their GP doesn't have the patient's data? And the hospital doesn't have the patient's data?
And the GPs and hospital can't see each other's data? Probably not, but should.
And where do you suppose all the data in myhr comes from? GP and hospital systems.
And let's be generous and suppose a patient from Berrigan goes to see a specialist in a capital city. The referring doctor sends a referral. When the patient returns form having treatment, the specialist sends a note to the GP. Let's suppose for some strange reason the specialist doesn't send the GP a note, but puts an event summary into the myhr. What does the GP do? Downloads the event summary from myhr.
Where is the majority of patient data? With their GP.
Will GPs and the hospital scrap their existing systems in favour of myhr? In ADHA's dreams.
Suppose myhr didn't exists, would the data still flow. Yes. Has the myhr made anything easier? No. Has the myhr increased the GP's work load. Yes.
Has the risk of a data breach been increased? Yes.
As Cory Doctorow says:
"The best way to secure data is never to collect it in the first place. Data that is collected is likely to leak. Data that is collected and retained is certain to leak."
http://locusmag.com/2016/09/cory-doctorowthe-privacy-wars-are-about-to-get-a-whole-lot-worse/
Sharing your data with health professionals is a good thing. Giving it to the government isn't.
The government says "You won’t need to worry about having to remember and repeat your health history like medicines, details of chronic conditions, and dates of recent tests with different or new healthcare providers."
https://myhealthrecord.gov.au/internet/mhr/publishing.nsf/Content/find-out-benefits
Here's a typical hospital admission form:
http://mns.org.au/wps/wcm/connect/mns/assets/documents/patients-and-visitors/patient-health-summary
Do you suppose anyone at ADHA has actually looked to see if the data in myhr reliably covers all (or even most, or even some) of the data required for hospital admission?
IMHO, the biggest problem with the data in myhr is it is not a positive affirmation of the state of a patient's health or of their past problems/treatment.
For example, this question from teh admission form: "Do you take or have you taken steroids, chemotherapy, immunosuppressants?"
If your myhr does not say that you are taking or have taken any of these medications, does that mean
a) No, you have not, or
b) Yes you do/have but haven't put that data into myhr?
In other words when it comes to hospital admissions (and other similar situations that require positive affirmation) myhr is useless.
In fact the myhealthrecord.gov.au website says that the data in myhr is not to be relied on and should be confirmed with the patient.
This all means that the government's claims that "You won’t need to worry about having to remember and repeat your health history like medicines, details of chronic conditions" is unjustified.
When do you suppose ADHA will realise this?
When do you suppose they will tell the good folk of Berrigan who have signed up for a myhr?
I went to an after-hours clinic yesterday. Filled out the one-page form with bare minimum of detail, and with nothing about significant past events, since they weren't relevant to the acute complaint. Except for one, so I asked the GP if she could access the Eastern Health records. No. Though the sign out the front displays the Eastern Health logo. The thought of asking her about the MyHR passed by, fleetingly.
The receptionist was typing into their EHR from the form I filled out.
There are good arguments *for* a centralised EHR in this little vignette, but any data in it would have to be presented so that it could be useful, rather than, at best, incomplete, and at worst a distraction.
I look forward to the day when the after-hours GP can say to her device "Alexa, find all of Trevor's health data and tell me about the things I need to know for this episode of care."
The relationship between patient and doctor is as old as medicine itself. I logged into a computer and checked my symptoms, did I feel any better, no. I went to my GP and we discussed things, a couple of things I never thought to ask, somehow I left I’ll but somehow feeling better and at least a little more cared about.
Despite advances in drugs, surgery and scans, the process of getting better always starts with a conversation.
As a patient I think I will come better prepared with questions and some notes on the experience of my condition so as to better contribute and help the doctor. That is if through the MyHR we are still permitted to have a conversation.
Sometimes it is better to be treated than tweeted
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