These appeared
during the week:
Govt pushes ahead with real-time pathology data sharing plan
Brandon How
Reporter
17 October 2024
New laws that will force health providers to upload
pathology and diagnostic imaging to My Health Record by default or forgo
Medicare payments will be introduced to Parliament next month.
In a speech on Thursday, Health minister Mark Butler said
“near real-time access will be the new standard” on My Health Record,
confirming the government will remove the rule that patients must wait seven
days before being given access to their imaging reports.
However, “in some cases a clinically appropriate delay may
remain if appropriate”, which will go some way to appeasing medical
professional associations, which have argued a blanket change to the rule would
create
misinformation and stress out patients.
The government had initially hoped default sharing of
pathology and diagnostic imaging reports would be
implemented from June 30, 2024 but is now targeting mid-2025.
Mr Butler announced the proposed changes in May 2023 and
consultations took place between September and October 2023. Last year’s
federal Budget earmarked $13 million over two-years for work on the ‘share by
default’ framework.
The seven-day delay on granting patients access to pathology
results was introduced in 2014 to give follow up healthcare providers
sufficient time to review results and discuss them with patients before the
reports are available on My Health Record.
However, as
at the start of this year, the delay has been removed for a handful of
tests including COVID-19 and 13 other respiratory pathogens.
While the ‘sharing by default’ framework has yet to be
finalised, Mr Butler said that pathology and diagnostic imaging companies that
don’t upload the data to My Health Record “will not get a Medicare benefit for
that test or scan”.
“Before agreeing an approach, I will consider advice from
the Clinical Reference Group, co-chaired by former AMA President Dr Steve
Hambleton and Conjoint Associate Professor Carolyn Hullick, the Chief Medical
Officer at the Commission on Safety and Quality in Health,” Mr Butler told the
Victorian Healthcare Week conference.
The Australian Medical Association is among
the professional groups opposed to a blanket removal of the seven-day delay
for patient access to pathology and diagnostic imaging reports, although they
have not raised concerns regarding mandatory uploads.
Since announcing plans to implement ‘sharing by deafult’,
the number of diagnostic imaging reports uploaded to My Health Record has
increased from one in five to one in three.
Now, more than 10 million pathology and nearly one million
diagnostic imaging reports are uploaded monthly.
“While this is an improvement, it is still too low and too
slow,” Mr Butler said.
All state and territory governments are sharing pathology
and diagnostic imaging reports, “with most uploading more than 75 per cent of
all tests and scans, and most on track to share 100 per cent of them in coming
months”.
The number of private radiology clinics connected to My
Health Record has doubled, with Australia’s largest private radiology providers
among those that have pre-emptively made the switch to default sharing of
reports with the My Health Record.
“Australia’s largest private radiology provider, I-MED has
started sharing by default from all their Western Sydney clinics,” Mr Butler
said.
“In the ACT and southern New South Wales, Capital Pathology
is sharing by default from every one of their clinics. The third largest
private radiology provider, Lumus, is the first to share by default
nationally.”
Mr Butler also confirmed that the CSIRO-led Sparked
consortium – which has led recent work to develop
a national set of data and exchange standards – has turned its attention to
digitising “Chronic Condition Management Plans, capture the reason a patient
presents for healthcare, and develop the additional data-sharing attributes”.
The Department of Health and Aged Care is also looking
working on a framework for rolling out electronic medication charts beyond the
aged care sector, which has seen 80 per cent uptake, according to Mr Butler.
Here is the link:
https://www.innovationaus.com/govt-pushes-ahead-with-real-time-pathology-data-sharing-plan
Also we have
Butler hopes to introduce ‘sharing by default’ laws next month, warns
penalties may apply
17 October 2024
By Kate McDonald
The Australian government will introduce legislation to
Parliament next month to support its ‘sharing by default’ policy, which will
mandate the sharing of key health information with consumers starting with
pathology and diagnostic imaging report uploads to their My Health Record.
Health Minister Mark Butler told the Victorian Healthcare
Week conference today that penalties may apply to healthcare providers that
refuse to upload results, which will see them lose out on Medicare benefits.
The mandate to share pathology and imaging reports in near
real time is expected to see the elimination of the seven-day rule for test
result uploads to My Health Record, although this element is still up for
consultation.
It will be followed by other mandates on sharing information
such as medication events, prescriptions, dispense records, and the
administration of medicines in care settings.
Mr Butler said the government’s investments in digital
health, along with a collaborative engagement with clinicians and software
providers, were driving an upgrade to My Health Record that will improve
patient care and shift provider behaviour.
He said that My Health Record was in “dire need” of an
upgrade when his government was elected in May 2022.
“It was still using the old PDF format that Labor installed
when we were last in government,” Mr Butler said. “It was cutting edge then,
but it is beyond clunky now. For almost 10 years, nothing was done to upgrade
the technology that underpinned it.
$1.1 billion in new funding was announced in the May 2023
federal budget to modernise the digital health infrastructure and upgrade My
Health Record to a data rich platform, he said.
“A bit over one year on, and Australia is seeing the most
substantial digital health reforms in more than a decade, across three major
areas: standards, medicines, tests and scans.”
He listed the development of the Sparked initiative, led by
the CSIRO, to deliver a national set of data and exchange standards based on
FHIR.
“The first goal was to develop standards for core patient
health information covering procedures, allergies, medicines, problems,
immunisations and results,” he said. “In just 10 months, that goal was
achieved.
“In June this year, Australia’s first ever national
information sharing standard was published and can now be built into clinical
systems.
This represents more progress in 10 months than in all of
the previous 10 years, combined.”
The Sparked accelerator is now looking at how to digitise
chronic disease management plans, “capture the reason a patient presents for
healthcare, and develop the additional data-sharing attributes needed for a
national patient summary record”, he said.
Work has also been done on medicines, including the
transition to a single national delivery service for prescriptions, along with
the expansion of electronic prescriptions from GPs and the community into
public hospitals.
He also mentioned the roll out of electronic medication
charts to aged care, where nearly 80 per cent of facilities have received a
grant to adopt them.
But he said perhaps the biggest revolution underway in
digital health is in the availability of scans and tests in My Health Record.
“All states and territories are now sharing pathology and
diagnostic imaging reports to My Health Record, with most uploading more than
75 per cent of all tests and scans, and most on track to share 100 per cent of
them in coming months,” he said.
“By the end of the year, for the first time, client support
plans will be able to be shared from My Aged Care to My Health Record.
“Patients expect their diagnostic scans and pathology tests
to be uploaded. This only happens by exception. It is not the rule.”
The government now plans to make it the rule, he said. “Over
10 million pathology and nearly one million diagnostic imaging reports are
being uploaded each month.
“In May last year, just one in five diagnostic imaging
reports were being sent to My Health Record. A year later, and one in three
reports are now being uploaded.
“While this is an improvement, it is still too low and too
slow, which is why I will soon introduce legislation that will mandate sharing
by default for all tests and scans in near real-time.
“To enable faster access, I am looking to remove the
seven-day delay that prevents patients from seeing their results sooner. While
near real-time access will be the new standard, in some cases a clinically
appropriate delay may remain if appropriate.”
A clinical reference group, co-chaired by former AMA
president Steve Hambleton and chief medical officer at the Commission on Safety
and Quality in HealthCare, Carolyn Hullick.
Mr Butler was particularly critical of an unexplained
decision by pathology provider Healius to cease uploading reports to My Health
Record last September – which he said meant an estimated 10 million test
results were missing from My Health Record and would never be able to be
uploaded – although the company has since resumed uploads.
“Test results and scans belong to patients, not providers,
and they need to be shared to a patients’ My Health Record,” he said.
“To show that we’re serious, the laws will include
consequences for companies that do not share.”
This will include a withholding of a Medicare payment if the
patient’s results are withheld, he said, as the “sharing by default framework
will ensure that pathology and diagnostic imaging companies that do not upload
the results of a test or scan will not get a Medicare benefit for that test or
scan”.
“Withhold a patient’s results and we will withhold the
Medicare payment.”
Mr Butler said this would benefit healthcare providers as it
would reduce spending on needless or duplicate tests or scans, along with
productivity benefits.
“Every minute a GP doesn’t spend searching through My Health
Record for a result that may or may not be stuffed into the PDF shoebox, is a
minute they can spend with a patient,” he said.
“Every minute a practice nurse doesn’t have to spend
manually entering a patient’s data into their My Health Record, is a minute
that they could be administering a childhood vaccination.
“Every minute a practice manager isn’t held up on a phone
call with a patient chasing up their results, is a minute that another patient
doesn’t have to wait on hold to make an appointment.”
He said the “sharing by default” legislation will be
introduced to Parliament next month, and he’d like the laws to be passed and in
place by the middle of next year.
Here is the link:
https://www.pulseit.news/australian-digital-health/butler-to-introduce-sharing-by-default-next-month-warns-penalties-may-apply/
And we have:
17 October 2024
By
Laura Woodrow
The health minister announced he would withhold pathology
companies’ Medicare rebates if they don’t upload patients’ results to the
electronic health record.
The federal government will withhold Medicare rebates from
pathology services that do not comply with legislation for mandatory My Health
Record uploading, says health minister Mark Butler.
Last year, Mr Butler announced plans to implement mandatory uploading of pathology and
diagnostic imaging reports to MHR and to void the seven-day delay on report
availability for patients.
Opening day two of Victorian Healthcare Week’s digital
healthcare convention in Melbourne this morning, Mr Butler said laws to be
introduced next month would include consequences for companies which did not
comply.
“The sharing by default framework will ensure that pathology
and diagnostic imaging companies that do not upload the results of a test or
scan will not get a Medicare benefit for that test or scan,” he told
delegates.
“It’s that simple. Withhold a patient’s results and we will
withhold the Medicare payment.
“It’s not a drastic position for a government to
take.
“In the United States, for example, the 21st Century
Cures Act requires the portability of health records with open access to
consumers to their own health information.
“Under that legislation, providers that do not have modern,
cloud-based systems in place to enable this sharing can be sent to jail, which
is not something we’re considering.”
Mr Butler acknowledged a heckle of “yet” from the
audience.
“Our health systems are obviously different to America’s,”
he said.
“[But] since the US laws were introduced eight years ago,
study after study has shown a range of benefits to consumers and health
providers after the removal of delays to patients viewing their own
results.”
The Department of Health and Aged Care did not respond to The
Medical Republic’s request for information on how the legislation would
affect rebates to patients for non-bulk-billed services.
While near real-time access would be “the new standard”, Mr
Butler said he would consult with the Clinical Reference Group about “clinically appropriate”
cases where the delay may remain.
By the end of the year, client support plans will be able to
be shared between My Aged Care and My Health Record, added Mr Butler.
Since the announcement of the plans last year, all states
and territories were now sharing imaging reports to MHR, with most uploading
over 75% and “on track” to share 100% in the coming months, he said.
“Since [the] announcement … the number of private radiology
clinics connected to MHR has more than doubled.”
While the needle is shifting, progress remains “still far
too low and far too slow”, said Mr Butler.
“It’s clear that we cannot leave patients to rely on the
benevolence of private providers,” he said.
Healius – Australia’s second largest private pathology
provider, which received almost a billion dollars in Medicare benefits in the
2022/23 financial year – was named and shamed.
“In August of that year, Healius was uploading over 800,000
pathology reports a week to MHR,” said Mr Butler.
“No sooner had we released [the] proposal for public
consultation, that very same day, Healius wrote to DoHAC to say that it would
imminently suspend the upload of pathology reports.”
Despite resuming 12 weeks later, approximately 10 million
test results were not uploaded during the boycott.
“Companies that have built their business model on
channeling and control of a patient’s health data will have to find a new way
to drive profit margins for shareholders,” said Mr Butler.
Mr Butler said he hoped the laws would be passed and in
place by mid-next year.
The federal government’s $1.1 billion digital upgrade
promises to revolutionise the “shoebox of PDFs” that is the MHR.
“By the time Medicare reaches its next milestone birthday,
we can confidently expect that the humble fax machine will no longer clutter
the offices of health settings,” he said.
“Like the Sony Walkman or Apple Macintosh, the fax machine
will finally become little more than a museum relic.”
Here is the
link:
https://www.medicalrepublic.com.au/no-rebate-for-you-butler-threatens-path-labs-if-they-dont-upload-results/111763
It is going
to be interesting to see how this all works out – as it will also be interesting
to see if any obvious benefits flow from all this, and of course that no harm
is caused with patients spooked by results they don’t understand.
The theory
is great – I hope it works out as hoped when implemented. There has to be a
good chance this will be the case…..I am still waiting to have any of my
results mailed to me for my files, despite repeated requests!!!!
David.