Again an anon. reader has called out the fraudulent ADHA. Quote from the comment in italics
“The measure of ADHA success is clear in the national strategy (or the let’s rationale our overblown budgets).
Extract from online version
Almost five million Australians now have a record (20% of the population)[7] and, with opt-out participation arrangements due to be implemented from 2018, an estimated 98% of the population will then have a My Health Record. In 2018, Australia will have the highest participation rate in a national health record system in the world. For the first time, members of healthcare teams will have ready access to key health information for their patients.
Well it really seems that did not work out well at all with 2.5 Million citizens actively choosing to opt out and that number reflecting anything up to 20% of the population who had the capability to do so
We can also use the odd use of the internet and connectivity statistics to model the actual expected level of persons likely to be informed.
Careful study that shows there are more Medicare card holders than the actual population just reflects the level of spin needed to get a number of less than 10% let alone 2%!
There is also this extract that ADHA would like to be measured against
The benefits of the My Health Record system will be realised through the delivery of three strategic objectives:
1- Increase consumer participation through the delivery of national opt-out arrangements coupled with coordinated awareness activities.
2- Increase core clinical content of the My Health Record system through improved system functionality and integration with existing clinical workflows.
3- Achieve extensive adoption by healthcare providers across the industry, through national education and support, national peak body engagement and local education and support primarily using primary health networks (PHNs) as delivery partners.
To these goals we had the following comments
The first one it might be too early as conscription and participation are to completely different measures. I am sure we will see lots of well-meaning stories that are uncoordinated and continue to be forgettable.
The second one the ADHA has clearly demonstrated that they are willing to allow flawed software to continue for years even though it prevents clinical data entering the system – per the Guardian stories of the last week or so!
The third it seems evident at present this has actually been further eroded through repurposing the narrative toward consumers and pharmacies and away from GP, it is clear the target for emergencies and Ambo’s has not played out well (another Twitter length analysis by Timmy)
And from the poll from the MJA I posted a week or two ago in the Useful Commentaries blog it is clear many more than 70% of GPs are not wanting a bar of the thing – other than to do the minimum to receive the Government bribe (ePIP)
And let’s not mention the Health Care Homes raging success story.
Another shining light of the success of the Government approach of compulsion.
There was reports coming out of NT that Tim’s mis-directed marketing campaign resulted in a noticeable number of NT residents opting out of the NT EHR.
This is new to me – does anyone have further information of the truth of this claim.
I look eagerly to further comments of this quality!
David.
On the NT EHR, I recall seeing that somewhere but can’t recall if it was mainstream news or a comment or twitter., if I come across it I will post unless others do. In regards to the software negligence the spin they are putting on this is not exactly comforting. I think they need to be called out, if this report had not been leaked it is quite evident based on the ADHA track record that it would have continued to remain a clinical risk. However risked life and limb deserves a medal IMHO.
ReplyDeleteDoes make you question the relevance and currency of this national strategy when it seems to be ignore so quickly after it release by those closest to it.
ReplyDelete10% of a significant leap from 2%, what other “stretching” of facts the ADHA might be making? How secure is the software bug suffering system of theirs?
Let’s not forget it was the same senate not Evan a year ago that Tim was telling that in the UK's national data opt-out project the rate was 2.7%, and in Austria it was Around 3%
ReplyDeleteProbably warrrents a visit from Peter Dutton, sounds like a breach of visa requirements to me.
MyHR says
ReplyDeleteYou can indicate whether you would like a My Health Record created for your newborn as part of your child's Medicare registration. This includes after the opt-out period ends on 31 January 2019.
Why can't MyHR scoop up newborns for automatic inclusion at birth, or at registration for Medicare?
@10:06 AM are you advocating the removal of choice? What if the parents do not want a GovHR and would prefer to use other alternatives to recording and storing their child’s life journey. The government solution is only one of many options. To block other market offerings is manipulating the free market.
ReplyDeleteRe enrolling neonates, it looks like MyHR is opt-in at the start of life's journey, which seems to be conflict with the opt-out provision for adults. So, in terms of gaining more information about choices that will determine outcomes in the distant future, something essential for population health, MyHR is ambivalent. How'd it be, for example, if comprehensive data suggested that the children of mothers who consumed alcohol had poorer outcomes?
ReplyDeleteIt may be, on this, that MyHR is deliberately slanted to enable consumer choice at the other end of life, when people are lining up for bariatric surgery, knee replacements, vascular procedures, dialysis and insulin pumps - the incidences of all those being affected by early lifestyle choices.
I'm much in favour of collecting data that will make it easier and cheaper for citizens to have corrective interventions for conditions that have little or nothing to do with the eating habits of children. For example, early cataract surgery and cardiac ultrasound early in treatment of hypertension. On the former, my optometrist gave me a jolt a few years ago. "Early cataract, any worse and your licence will be endorsed." Now, I'd noticed the deterioration, but put it down to "ageing" and needing only the right prescriptions for specs. I'm pretty sure that was a "nudge" because I don't think, even today, that adverse eye-test data can be pushed into a mandatory endorsement of a driver license. In view of all the misadventures resulting from poor vision, the Govt needs all the help it can to make cataract surgery more available, even though some of us are happy to pay out-of-pocket on top of our private insurance.
In the media today:
ReplyDeleteThese are the 10 healthiest countries in the world in 2019
https://www.businessinsider.com.au/the-10-healthiest-countries-in-the-world-2019-2?op=1&r=US&IR=T
At #1 Spain, jumped five places
At #7 Australia, dropped two places
Lets have a look at what Spain has been doing
From 2012:
21st Century Healthcare: From E-health to Personalized Medicine
http://icex.technologyreview.com/articles/2011/12/ehealth-and-personalized-medicine/
Remember, that was in 2012, when the PCEHR was released.
Here's a quote:
"According to Rivero, the key to Spain's success has been the integration of clinicians into all levels of planning: "It's most important to involve health professionals from the very beginning. It's not a 100 percent technological project; it's a change in the process of how health care is delivered."
Madrid-based Oesia has developed specialized software for hospitals and regional and federal health-care administrations, and is moving into the realm of artificial intelligence with a computerized clinical guide. As the doctor types information about a particular patient's condition, for instance, the guide may suggest that a certain scan is not necessary, based on the experiences of other patients. The doctor can then accept that decision, or override it and explain why, leading the system to learn a new pattern.
Among other tasks, the software will be able to synthesize the data from existing patient records, and point out why a particular medication may conflict with the patient's other medications. "The doctor still has the final say," says Arnaud Marivain, director of the Oesia health business unit. "But in an emergency, or perhaps if someone is tired, there can be mistakes. This will help ensure the security of the patient."
This product has been in development for the past year and should be out by the end of 2012."
What Spain has delivered makes myhr look like a child's toy.
And Tim thinks Australia leads the world in Digital Health.
Have the new records been created yet?
ReplyDeleteWe know that the data quality is likely not too good, especially some of the PBS/MBS stuff that will come through from the Medicare data. If people are not happy with poor data quality they find in their newly minted records, then we might see more bad press, and then more people will likely cancel or delete their records.
David, your description of the ADHA as being "disingenuous" is spot on.
ReplyDeleteTheir overall objective is to displace all medical record software vendors with the ultimate goal of having one only medical record for each Australian.
Targeting, and putting each medical record software supplier out of business is the end game.
It may cost well over $5 billion and take a long time but that is acceptable to the bureaucracy.
Duplicitous sums up quite well the government's and the ADHA's unspoken policy.
"Their overall objective is to displace all medical record software vendors with the ultimate goal of having one only medical record for each Australian. " ?
ReplyDeleteI am not so sure. Perhaps it is not so much the government, but rather another savvy software vendor that will benefit - the vendor that provides and operates the national Myhealthrecords system for the goverment . They have a guaranteed source of ongoing funding, as now the national system is business as usual, and politically the government won't just switch it off.
There are rumours that the government will go to tender for a new re-platformed national system. But it might be very difficult for any other vendor to compete with the incumbent vendor - it would all need to be built again and cost a lot more. Not to mention data migration and handover of knowledge.
@ 9:17PM "There are rumours that the government will go to tender for a new re-platformed national system."
ReplyDeleteRumours? Don't mean much.
A new re-platformed national system means to me ..... a whole new system, starting from scratch. Please correct me if I am wrong.
on the subject of re-platforming, to my knowledge this is the only details in writing in public: http://www.healthintersections.com.au/?p=2765. (The January mentioned there was Jan 2018, and it didn't happen). But there's also my senate submission - see http://www.healthintersections.com.au/?p=2850.
ReplyDeleteIn terms of the operator... the contract to run the MyHR (NIO - National Infrastructure Operator) expires 2020. At some stage, the government must re-tender for the NIO contract.
How those things relate - re-contracting and re-platforming - to each other, and what the scope of re-platforming is... that's not yet determined/published, so far as I know
Further on mandatory enrolment of neonates in MyHR (or its successor) in longterm consequences of trauma in childhood.
ReplyDeleteIn the 20 years since, scientists have built on the research, replicating the findings and digging into the “why.” In the simplest terms, traumatic events trigger surges in cortisol, the “stress” hormone. When those surges go unchecked for sustained periods, they can disrupt a child’s brain development, damage the cardiovascular system and cause chronic inflammation that messes with the body’s immune system.
Since (1) families in distressed circumstances are more likely not to connect with opt-in systems, and, (2) it would be impossible to conduct RDBCTs to investigate the hypotheses, it seems logical to accumulate as much data as possible in order to challenge the current status of MyHR for neonates (opt-in).
do you really think that the pathetic amount and quality of data in My Health Record will ever be of use in medical research?
ReplyDeleteIf you do, you are sadly mistaken.
I am convinced it will be used to secure research funds. For a fee many will make up whatever you want.
ReplyDelete