This appeared last week:
Mental health toolkit
This toolkit has been developed to ensure healthcare providers are equipped to assist their patients with clear and specific information to make an informed decision about the benefits of using My Health Record.
It explains the benefits of the system, and how to manage patient information securely, sensitively and privately, and provides guidance on:
- A provider’s obligations regarding privacy, security and consent when using the My Health Record system.
- How clinicians can register to the My Health Record system, including the registration process for providers, clinicians and responsible officers.
- Talking to patients about the benefits of the system and risks associated with not uploading information.
- How individuals can view, amend and upload information to their My Health Record and add privacy settings to further secure their information.
Download: Mental health toolkit
Further information and resources
· Social media kit
About the Mental Health Working Group
This toolkit was designed in collaboration with the Mental Health Working Group, established by the Agency, to provide ongoing advice on how digital health initiatives can be tailored to improve mental health outcomes.
Members of the Mental Health Working Group include the Royal Australian and New Zealand College of Psychiatrists, Australian Psychological Society, Queensland Health, Allied Health Professionals Australia, Australian College of Mental Health Nurses, Occupational Therapy Australia, Australian College of Rural and Remote Medicine, Dieticians Association of Australia, Mental Health Australia, National LGBTI Health Alliance, Headspace, National Mental Health Consumer and Carer Forum, Colours of Grey Matters and the Federation of Ethnic Communities’ Council of Australia.
Here is the link:
I was surprised by this appearing as if there is any are where the #myHR may face complex consent and usage issues it has to be Mental Health.
What I was expecting was a thoughtful review of these areas but what we have been given is a rather badly formatted 44 page set of instructions on how to use the #myHealthRecord with about 8 short case studies with some mental health aspects.
Looks to me like an opportunity missed to really see where the #myHR may be of value – if at all – with mental illness and rather concocted case studies.
What do others think?
David.
5 comments:
Definition of desultory
1 marked by lack of definite plan, regularity, or purpose
2 not connected with the main subject
3 disappointing in progress, performance, or quality
Rather says it all.
Here is the scenario in the eBook that worries me. Jenny has asked that her sensitive diagnosis and event summary information
is NOT uploaded to her My Health Record. The eBook says:
"Her psychiatrist also informs her that PBS
information relating to her antipsychotic medication
will appear in her My Health Record, so she may
need to delete this if she doesn’t want it to appear
on her records. She will also need to request that
the pharmacist does not upload the antipsychotic
medication to her dispense record."
If poor Jenny is not anxious enough, she now has to get online and keep checking to see when the related PBS claim automatically comes into her record (so she can delete it), and also remember to ask the pharmacist not to upload anything (Does she do this in the open pharmacy area where others are waiting in the queue?). As soon as her meds are dispensed, she needs to quickly get online (is there an app?) to keep checking for the PBS claim, which may not appear immediately, but may, for example be the result of an overnight batch file from the pharmacist to the Dept of Human Services computers.
All this assuming that Jenny has already managed to set up access to her record. Otherwise there may be an anxious wait while she gets through that hurdle.
While Jenny is accessing her record, she really ought to check any other documents like pathology results in there - like path results, DI results, GP summaries in case they mention her diagnosis and medications. If they do, she can delete these also.
Is it too much to ask Jenny to become a human data integrity controller? Would it be easier if she opted out of having a record, rather than having to keep checking and deleting, checking and deleting? Even if she manages to delete all the references, it may be misleading for the next clinician who is accessing her record. She has a record, but there is no mention at all of any medication or diagnosis...
None of that matters 2:53 PM. The main aim of this document is to project a message that all those groups that had voiced concerns have come together and because of ADHA have agreed the MyHR is awesome and all that is needed is some friendly guidance in its use.
The goal is listed in David’s post:
Members of the Mental Health Working Group include the Royal Australian and New Zealand College of Psychiatrists, Australian Psychological Society, Queensland Health, Allied Health Professionals Australia, Australian College of Mental Health Nurses, Occupational Therapy Australia, Australian College of Rural and Remote Medicine, Dieticians Association of Australia, Mental Health Australia, National LGBTI Health Alliance, Headspace, National Mental Health Consumer and Carer Forum, Colours of Grey Matters and the Federation of Ethnic Communities’ Council of Australia.
@August 14, 2019 2:53 PM
You obviously have a good working knowledge of myhr.
However, are you aware that:
re: deleting documents - such things cannot be deleted, only hidden (only complete records can be deleted).
re: Shared Health Summaries cannot even be hidden, neither can Personal Health Summaries.
If Jenny visited a psychiatrist, or had a pathology test and there was a Medicare payment, they would also show up.
And not all prescriptions show up. I have one that does not qualify for PBS benefits and that doesn't get recorded.
Very few people understand the full workings of myhr. I doubt that I do and I've made it my business to try and find out for myself - which is why I have one.
Anyone looking at it would get a totally false impression of my medical history.
Apart from there being nothing in it before I registered, there is nothing about a replacement of a recalled/faulty hip replacement which was paid for as part of a class action.
Which makes me think that any procedure that is paid for as part of workers compensation or other insurance scheme may not generate anything meaningful that ends up in myhr.
A Mostly Generic And Non-Specific Document On How To Use The myHealthRecord.
Sums things up quite well. We need to stop seeing ADHA as an “arms-length” enabler of digital health in Australia. One that guides the market through collaboration, standards setting, conformance and compliance, allowing a safe, secure, privacy by design eco-system where new entrants can enter and patients and providers are protected as others leave. A trusted environment where the harvesting of data is done ethically and for the benefits of stakeholder not shareholders. One where Australia can take a global leadership role in medical research and commercialise clinical outcomes.
What we have as this toolkit clearly shows is a commercial software entity that is fixated on pushing a product. More dangerous is the fact the we as a society have to fund it and 2.5 million and counting have said NO. That 2.5 million represents a large chuck of tax-payers.
Fortunately for ADHA the opposition parties are in disarray and the Health Minister is in hiding, only coming out under the protection of PBS announcements.
This is not good for anyone on any front.
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