Just think what information should be readily in the public domain regarding the #myHealthRecord and is being kept secret to avoid embarrassing the ADHA and the DOH on how poorly the system is performing in delivering real clinical benefit? We. the public, are spending a fortune on the #myHR and we should know how well it is working or not!
Case made for a much higher level of Government transparency I believe!
David.
Some information of interest was recently released from ADHA through FoI
ReplyDeletehttps://www.righttoknow.org.au/request/4942/response/15417/attach/5/FOI.1811002%20SBE%20full%20pack%20as%20at%2024.10.18%20FINAL%20Redacted.pdf
Re FOI 1811002, which was created in October 2018 and finally delivered in September 2019
ReplyDeleteThe FOI was about an application from someone called Julie for access to Australian Digital Health Agency information from a 2018 Senate Estimates hearing.
Here is an email trail.
https://www.righttoknow.org.au/request/senate_estimate_preparatoryrefer#incoming-15612
Page 86 of the response document is of some interest as it lays out ADHA's expectation about re-tendering for and replatforming the system.
Most of it is redacted but they intended beginning the process in 2017-2018.
The response document itself is only partially searchable for text. An initial search and scan shows no mention of meaningful use or download of content, any value obtained from the system, no mention of the removal of explicit consent.
They also make the statement on page 1 that "An independent review in 2013, found that there was overwhelming support for the MHR system, with the recommendation that the system move to a model of opt out participation"
IMHO that "overwhelming support" is a bit of a stretch.
If you look at the number of redactions in the document ADHA released, it explains why it took so long to see the light of day.
ReplyDeleteWhen it comes to Freedom of Information, the ADHA has adopted this government's approach.
Cathy Wilcox has nailed it:
https://twitter.com/cathywilcox1/status/1186382868605325313
Team, I have not published two rather pointed attacks on an individual at the ADHA on the grounds that we want policy and not personal criticism here. If their policy stinks say so and why but leave out the individual personal attacks.
ReplyDeleteAll the major steps involve way more that one guilty party!
David.
Have to agree with you, David. The policy (written down or not) stinks. Why the shadowy secrecy and why the very obvious snub of the freedom of information obligation all government entities adhere to?
ReplyDeleteEven the request is hardly earth-shattering. Leaves one bemused.