Wednesday, May 29, 2019

I Reckon This Approach Is A Highhanded Outrage - What Do You Think?

This appeared a little while ago.

My Health Record

What is My Health Record?

My Health Record is an online summary of your key health information. When you have a My Health Record, your health information can be viewed securely online, from anywhere at any time and it includes information such as:
  • Allergies
  • Medical conditions
  • Treatments
  • Medicines
  • Test and scan results (such as blood tests and x-rays).
Perth Children’s Hospital contributes to Australia’s My Health Record system and is currently uploading information from five clinical applications: 
  • Patient Administration System (webPAS)
  • Notifications and Clinical Summaries (NaCS)
  • iSoft Clinical Manager (iCM)
  • eReferral
  • Allergy and Dietary Advice (ADA). 
These applications upload:
  • discharge summaries
  • shared health summaries
  • specialist letters
  • event summaries 
  • prescription and dispensary records  
  • pathology results
  • diagnostic imaging reports
  • referral information for consumers.  
For a list of benefits of having a My Health Record, please refer to the My Health Record website
If you have a My Health Record these documents will be automatically uploaded, if you do not want this to occur you need to inform us at every attendance. Please ask us for a Change of Consent to Upload Documents to My Health Record form.

For parents

Parents or guardians (who are linked to their child via the Medicare system) are automatically added as an authorised representative to view or delete their child’s record. When the child turns 14, this access will be automatically removed. Read more here

For under 14 years

If you are the parent or guardian of a child or dependent under 14, you can opt your child out of a My Health Record if you don’t want them to have one. More information is available here.

For 14-17 year olds

If you are 14 years or over, it is your choice whether you have a My Health Record or not. You can also give a parent or guardian or other trusted person access to your record, adding them as a nominated representative. If you choose to delete your record, you can do so online or via the My Health Record help line on 1800 723 471. You will need to be able to verify your identity with your Medicare card as well as a current drivers licence/learners drivers licence, Immicard or Passport.
More information can be found here.

Contact us

For more information on My Health Record, please visit myhealthrecord.gov.au.
If you have any questions or concerns about how your child’s My Health Record is being managed by Perth Children’s Hospital, please contact the Child and Family Engagement Service.  
Here is the link:
I feel The PCH is being a bit high handed just sending data to the myHR without allowing individuals (or their parents)  to say stop it until I give you permission again.
Just because you have been opted-in should not mean you have to remember on each visit to tell them to stop it and not upload willy nilly.
There can be a lot of sensitive things happening to children they may wish not to be widely shared and putting the onus on them to remember to say no each time is unfair and violates the idea of patient consent I feel. I believe this approach needs a re-think.
What do others think?
David.

6 comments:

  1. Bernard Robertson-DunnMay 29, 2019 6:00 PM

    What's a hospital doing uploading a Shared Health Summary, overwriting any existing one?

    Talk about scope creep. It used to be that only your nominated service provider (defined as your GP or a registered nurse) could upload your SHS.

    No wonder they have hidden the ConOp, the system looks nothing like what it was originally intended to be.

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  2. Worth noting the opt out did not work out as planned. That is why the stats are hand crafted. After the leaked document regarding records being rejected there has been flurry of activities purging systems of emails and documents.

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  3. I thought this My Health Record thing was meant to be patient controlled. How can that be when I have to remember each and every time to tell them if I don't want the hospital to upload my information. Most of the time I wouldn"t even know they were going to do so .... how would I? This whole MHR thing is a complete fu-- up.

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  4. Long Live T.38May 29, 2019 8:53 PM

    I think they lost control of their patience. There does seem to be some unanswered question here.

    Can the ADHA prove that an organisation blindly sending files to the My Hunt Record is not artificially creating records?

    What happens if they send files on me and I do not have a MyHR? alternatively, if they are sending files to the MyHR to people with a record, are they informed if the upload was successful or not? Does the sender then login and check that the sent files have be recovered and appropriately index into the correct health record?

    What happens if a patient record is not populated and no checks and balances were undertaken and that patient dies as a result of incorrect information in the myHR?

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  5. May 29, 2019 6:37 PM.

    What worried me the most about your comment is that it has a probability. When you get a sense that an organisation is that incompetent that such a claim seems - "Well yes that sounds like something the ADHA would do" things really are out of control.

    You really want to risk it Mr Hunt?

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  6. Long Live t.38 - That is simple, they establish a committee with some ill-define terms of reference, conduct a review, which allows enough time to pass that a new stuff-up happens and we forget about the previous.
    And rearrange the deck chairs, stab a few backs, and repeat.

    ReplyDelete