Quote Of The Year

Timeless Quotes - Sadly The Late Paul Shetler - "Its not Your Health Record it's a Government Record Of Your Health Information"

or

H. L. Mencken - "For every complex problem there is an answer that is clear, simple, and wrong."

Thursday, August 25, 2016

We Need To Retain Some Healthy Scepticism As More Clinical Apps Come To A Phone Near You!

This appeared last week.
  • August 19 2016 - 1:08PM

Doctors warn over diagnosis apps amid Ada launch

Julia Medew

It is marketed as being "smarter than human doctors" and the "world's most accurate health diagnosis service".
It is a medical app on your smartphone that invites you to put in a list of symptoms to find the most likely explanation. According to the company that created Ada, the app includes 10,000 symptoms and diseases and was developed by 100 doctors, making it more knowledgeable than any human brain.  
But for all its promises, leading Australian GPs are urging consumers to be wary of it and other apps that make similar claims. Both the Australian Medical Association and Royal Australian College of GPs said they were concerned about the accuracy of the Ada system, and its potential to either falsely reassure people about their health or alarm them unnecessarily.
Despite a booming market for health apps, including ones that aim to diagnose, research suggests they may not be as reliable as they appear.  
Nathan Pinskier, chairman of the College of GPs' e-health and technology committee, said while many doctors were starting to use apps to support their clinical decision making and were directing patients towards some for their own health needs, research on such apps showed they were not always accurate and could be dangerous.
"There's still a lot of work to be done in this space," the GP said. "It's fair to say that clinicians can't remember everything and you do need access to support tools. The question is, how standardised are those support tools and if you enter the same information into different products will you end up with similar outcomes and guidance? The evidence says no at the moment."
Last year, three studies published in BMC Medicine found that health apps designed to help people calculate insulin dosages, educate them about asthma and perform other important functions were methodologically weak. The researchers also found that many apps lacked reliable privacy and security settings, with one sharing personally identifying data about users that should have been kept anonymous.
President of the College of GPs Frank Jones said that while he did not mind people Googling their symptoms before seeing a GP, he was concerned about the accuracy of an app that suggested it could diagnose people. He said users risked misinterpreting their symptoms without a physical examination while using the app. 
More here:
 I have nothing to add other than to point out that the routine criteria that are used to assess value and effectiveness need to be applied to these various app innovations. Only if we do that will we be clear as to what works and what does not!
David.

Wednesday, August 24, 2016

The Government Clearly Wants To Use Your Health Data For Things They Have Not Told You About. Who Benefits?

Spotted this the other day showing the sort of events now being run around the country:

My Health Record Secondary Use - Workshop 10 - Perth WA

Event Details

In June 2016 HealthConsult was engaged to assist the Australian Government in developing a framework for the secondary use of data in the My Health Record system for research, policy, system use, quality improvement, and evaluation activities.
Under the My Health Records Act 2012, health information in My Health Record may be collected, used and disclosed “for any purpose” with the consent of the healthcare recipient.  In addition, one of the functions of the System Operator (the Australian Digital Health Agency) is “to prepare and provide de-identified data for research and public health purposes.”  Before these provisions of the Act will be implemented, a framework for secondary use of My Health Record system data must be established.  
HealthConsult’s role is to develop a draft Framework and associated draft Implementation Plan that will facilitate the secondary uses of My Health Record system data.  HealthConsult is committed to working with stakeholders including the broader community to shape the development of the Framework.
There are 14 workshops scheduled across the country, of which this is one.  At each workshop, there will be a short presentation of the Public Consultation Paper, followed by a question and answer session, through which stakeholders can provide input. 
Here is the link:
There are a range of issues I see that need to be resolved here:
First, given the myHR is presently a large pile of documents (many .pdfs) just how is the data to be extracted and made useable? (an example I know of is that many of the PBS records use trade names rather than standardised names for comparability)
Second how certain can we be the records will be properly anonymised and not be re-linkable?
Third what will be the involvement of properly constituted ethics committees and data anonymization experts in allowing this data access?
Fourth will citizens be told if their data is being utilised and have the right to see the data before it is used so they can deny access if they are concerned.
Fifth, given NEHTA’s and DoH’s track record of ‘pseudo consultation’ where pretty much all input is just ignored what confidence can we all have what is done will be in accord with sensible requests.
To me the threshold question will be ‘Just who does this access and research ultimately benefit?’ If the answer is the patients or citizens there may be a case for this – otherwise I, for one, will be pretty sceptical!
David.

Tuesday, August 23, 2016

The Press Seems To Be Taking A Rather Negative Tone On The MyHR At Present.

These two quite long articles appeared this week.
First we had:

My Health Record: Medics speak up

By Marie Sansom on August 15, 2016
My Health Record: Medics speak up
As the new trials of the My Health Record roll out in Queensland, NSW, WA and Victoria, Government News asks clinicians what might help – or hinder – the progress of the revamped national individual electronic health record.
A bit of history
The idea of a national individual electronic health record has been around for decades, routinely popping up in report recommendations from government health agencies.
It was an idea former Prime Minister John Howard helped spread and one the National Electronic Health Transition Authority (NEHTA) was set up to drive in 2005.
Labour introduced the Personally Controlled Electronic Health Record (PCEHR) in 2012 after two years of GP trials.
But from its inception, the electronic health record has been dogged with problems and fraught with complexities and it still has not had the uptake needed to fulfil the vision of a concise patient record available in an emergency.
Academic Dr Helen Cripps compared the Australian e-health experience to that of Slovenia in her 2011 research paper The Implementation of electronic health records: a two country comparison, and found Australia was making much slower progress.
In it, she lists a whole host of reasons for Australia’s sluggish progress in e-health: the country’s complex health care system, with state and federal involvement and a large private health sector; uneven adoption by clinicians;  problems securely sharing data electronically between GPs and other clinicians; the proliferation of different electronic health record formats and systems; fears about data protection and patient privacy; a lack of national direction; the cost of infrastructure, maintenance and training and a disconnect between government-led implementation and software vendors.
The new Australian Digital Health Agency opened its doors on July 1, and appointed ts first CEO UK digital whizz Tim Kelsey. It is a clear sign that e-health is seriously back on the government’s agenda but what about the clinicians the government is relying on to make the record valuable?
Both Dr Nathan Pinskier, Chair of the Royal Australian College of General Practitioners (RACGP) and Dr Tony Bartone, Vice President of the Australian Medical Association (AMA), have weathered the vicissitudes of the electronic health record over the years.
They spoke to Government News about what pitfalls should be avoided this time around and where the road to success lies.
Dr Pinskier, who chairs the RACGPs expert committee on e-health and practice systems, says there is no question that individuals should have access to their own healthcare data but he believes that basic things need fixing first, such as making it easier for GPs to refer patients.
At the moment, when doctors want to refer patients, for example to specialists, physios and hospitals, they must wrestle with a number of different electronic systems (including Argus, HealthLink and MEDrefer), as well as using fax machines, scanners, emails and letters.
He says the technology was built by software vendors and NEHTA but has been gathering dust over the last few years and there is still no one secure, integrated system of referring people electronically.
“You start electronically, you finish electronically and everything in between is a mish-mash. You change the business model and then it’s really easy to send data to a national repository.”
Prescription for change  
Data quality
Both clinicians say that the value of My Health Record will not be fully realised until there is decent data quality and coverage so that health providers can feel confident using the information.
Dr Pinskier says there are currently eight sources of data within the My Health Record and patients can also add their own data. Instead, he suggests homing in on the most vital pieces of information: bad reactions to medicines, current medications and allergies.
He recalls a hospital doctor searching through a jumble of sometimes conflicting records to find out what medication an out-of-town patient was on. The doctor eventually gave up and phoned the patient’s pharmacist.
“What’s the value if you have all these lists for providers to spend hours trawling through the records?” he asks.
Dr Pinskier says it is worth looking at alternatives, citing international examples such as Boston Open Notes, where local records of healthcare providers are made available to consumers. The patient sees exactly what the healthcare provider sees, which can also help reinforce medical advice, for example about how to take medication.
Lots more here:
Second we had this rather strongly put article:

My Health Record 'dumb and useless': Australian Privacy Foundation

Forget last week's Census debacle. Far more has been spent on an e-health system with little clinical value and fewer than 17 percent of Australians on board.
By Stilgherrian for The Full Tilt | August 19, 2016 -- 04:59 GMT (14:59 AEST) |
"My Health Record (MHR) is not yet a f*** up because hardly anybody's using it, [but] it's a f*** up in terms of how much money the government has spent, and how little they've got for that expenditure," Dr Bernard Robertson-Dunn, who chairs the health committee of the Australian Privacy Foundation (APF), said.
"It's cost AU$2 billion so far, it's costing over AU$400 million every year, but the government has never told us how it has improved health care or reduced health costs. All it is doing is putting patient data at risk."
With the Census, the Australian Bureau of Statistics (ABS) was trying to do the right thing, but got it "somewhat wrong", Robertson-Dunn told ZDNet earlier this week. However, the Australian Digital Health Agency (ADHA) is trying to make access to MHR easier, the data is far more intrusive, and it's continually collecting data, as opposed to the Census' five-year cycle.
Established in 2012 as the "personally controlled e-health record system" (PCEHR), MHR is billed as a "secure online summary of your health information". Its 2015-16 Budget allocation alone was AU$485 million.
But as of August 7, 2016, only 4,029,386 individuals have accounts. That is to say, fewer than 17 percent of Australians have registered.
Apart from 332 million Medicare documents and 4.5 million pharmaceuticals documents, which would have been created automatically, the system contains fewer than 1 million clinical or user-generated documents.
That's a mere 0.25 documents per registered user.
After four years of operation, the vast majority of Australians haven't registered for My Health Record, and the vast majority of registered users aren't using it.
And as Robertson-Dunn said, MHR isn't useful anyway.
"They've built a glorified document management system. It's not really a health records system ... The data is contained mostly in PDFs, which are documents. It's difficult to search them."
If a health record system is to be useful in clinical care, it needs to be complete. That means the notes and data from every visit to a doctor, the results of every diagnostic test, and much more. Outdated information needs to be deleted, and medical data can go stale within hours.
MHR has none of these features. Indeed, MHR's own website warns medical practitioners that they can't rely on its data.
"Clinical information you find within your patient's My Health Record should be interpreted in much the same way as other sources of health information. It is safest to assume the information in a patient's My Health Record is not a complete record of a patient's clinical history, so information should be verified from other sources and ideally, with the patient," says the site's FAQ.
As the APF background paper put it, "[My Health Record] is a dumb and useless repository of badly managed documents with no clinical value."
Useless now, MHR is unlikely to get better.
"The sort of stuff that does go into health records, I believe, is going to change in the future, and that pure document management systems like [MHR] is just totally useless, from any perspective," Robertson-Dunn said.
"You could accuse this government of building this system because they want to literally gather data on people to monitor them."
Lots more here:
There is really little to add to all this – other than to point out that there does seem to be a concern from a number of quarters that the myHR might not be the most useful and worthwhile system ever conceived.
One tiny hope is that once they have settled in, and have got their executive organised, that the ADHA might conduct a strategic review of the system to form a view as to the probability of the myHR ever delivering on expectations and whether there may be alternative approaches that might actually contribute more to the quality and safely of care!
There would be a national sigh of relief if this was done properly and the e-Health ducks in Australia could be better aligned with need and potential benefit.
David.

Monday, August 22, 2016

Weekly Australian Health IT Links – 22nd August, 2016.

Here are a few I have come across the last week or so.
Note: Each link is followed by a title and a few paragraphs. For the full article click on the link above title of the article. Note also that full access to some links may require site registration or subscription payment.

General Comment

Seems like the recurrent theme is Government IT and the various problems it is having all over the place. The Department of Human Services and Health seem to have pretty frequent issues. The hope is the better governance from ADHA might help.
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My Health Record: Medics speak up

By Marie Sansom on August 15, 2016
My Health Record: Medics speak up
As the new trials of the My Health Record roll out in Queensland, NSW, WA and Victoria, Government News asks clinicians what might help – or hinder – the progress of the revamped national individual electronic health record.
A bit of history
The idea of a national individual electronic health record has been around for decades, routinely popping up in report recommendations from government health agencies.
It was an idea former Prime Minister John Howard helped spread and one the National Electronic Health Transition Authority (NEHTA) was set up to drive in 2005.
Labour introduced the Personally Controlled Electronic Health Record (PCEHR) in 2012 after two years of GP trials.
But from its inception, the electronic health record has been dogged with problems and fraught with complexities and it still has not had the uptake needed to fulfil the vision of a concise patient record available in an emergency.
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My Health Record 'dumb and useless': Australian Privacy Foundation

Forget last week's Census debacle. Far more has been spent on an e-health system with little clinical value and fewer than 17 percent of Australians on board.
By Stilgherrian for The Full Tilt | August 19, 2016 -- 04:59 GMT (14:59 AEST) | Topic: Security
"My Health Record (MHR) is not yet a f*** up because hardly anybody's using it, [but] it's a f*** up in terms of how much money the government has spent, and how little they've got for that expenditure," Dr Bernard Robertson-Dunn, who chairs the health committee of the Australian Privacy Foundation (APF), said.
"It's cost AU$2 billion so far, it's costing over AU$400 million every year, but the government has never told us how it has improved health care or reduced health costs. All it is doing is putting patient data at risk."
With the Census, the Australian Bureau of Statistics (ABS) was trying to do the right thing, but got it "somewhat wrong", Robertson-Dunn told ZDNet earlier this week. However, the Australian Digital Health Agency (ADHA) is trying to make access to MHR easier, the data is far more intrusive, and it's continually collecting data, as opposed to the Census' five-year cycle.
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Porter questions repairs to NDIS bungle

  • The Australian
  • 12:00AM August 20, 2016

Michael Owen

Social Services Minister Christian Porter has criticised the ­National ­Disability Insurance Agency’s handling of a technology bungle that has dented confidence in the government’s ability to smoothly roll out a landmark scheme for the most vulnerable.
This comes as audit firm PwC, hired by the Turnbull government for about $350,000, works to complete a review of the new MyPlace payment portal used by the N­DIA.
The IT system, designed and built in-house by the Department of Human Services, is blamed for some providers being left unpaid and some people being ­unable to access services, sending the $22 billion National Disability Insurance Scheme into disarray.
Mr Porter yesterday said he had commissioned a “short, sharp report” and The Weekend Aus­tralian understands its interim findings suggest the main problems appear to be around communication from the NDIA providing the right information to providers and participants, and offering sufficient help.
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GP gives MyAgedCare's two-calls policy a fail

Antony Scholefield | 19 August, 2016 | 
MyAgedCare staff always ring twice, but only twice, according to a GP who says the call centre’s “two attempts” policy for contacting elderly patients is inadequate.
The MyAgedCare system was lauched last year to improve access to support services for some of Australia's most vulnerable patients.
However, it has been mired in controversy, with claims that web referrals by GPs often go missing, resulting in delays in patients being assessed for the care they need.
It has now emerged that staff make only two attempts to contact each elderly client after a GP referral from an aged care assessment.
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A little more detail could vastly improve health summaries

15 August 2016
MEDICAL specialists, hospital staff­ and others who receive referrals and health summaries from GPs complain that the list of medicines often contains some that the patient is no longer using, and that the indication for each medicine is not stated.
The health summaries produced by most clinical software packages list current medicines alphabetically, which is probably the least useful order, and don’t enable users to include medicines that have been tried or used previously. The Best Practice software package allows past prescriptions to be inserted, but this is a simple chronological list of every occasion on which each of those past medicines was prescribed or re-prescribed, and it does not include medicines for which no prescription was generated within the practice.
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Is this the e-health game-changer GPs are looking for?

Antony Scholefield | 16 August, 2016 |
The Holy Grail of software development for years has been to allow doctors to easily share information between healthcare facilities and systems.
The government has tried to solve the problem with its MyHealth Record scheme, which uses a standardised language called the SNOMED Clinical Terms – Australia (SNOMED CT-AU).  
But another solution is to map existing software interfaces to SNOMED, so doctors can stick with their current software, but still download patient information that was uploaded on different software, with SNOMED acting as a digital translator.
Now MedicalDirector has pledged to map SNOMED onto its next generation practice system software, called Helix.
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  • August 19 2016 - 1:08PM

Doctors warn over diagnosis apps amid Ada launch

Julia Medew

It is marketed as being "smarter than human doctors" and the "world's most accurate health diagnosis service".
It is a medical app on your smartphone that invites you to put in a list of symptoms to find the most likely explanation. According to the company that created Ada, the app includes 10,000 symptoms and diseases and was developed by 100 doctors, making it more knowledgeable than any human brain.  
But for all its promises, leading Australian GPs are urging consumers to be wary of it and other apps that make similar claims. Both the Australian Medical Association and Royal Australian College of GPs said they were concerned about the accuracy of the Ada system, and its potential to either falsely reassure people about their health or alarm them unnecessarily.
Despite a booming market for health apps, including ones that aim to diagnose, research suggests they may not be as reliable as they appear.  
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Talking about the next generation

15 August, 2016 
Posted by julie lambert
Healthcare technologies that seamlessly connect devices and data in secure networks are closer than we think
China, Apple, Google and the most plugged-in patients in history are racing towards a new day where medical devices can speak to one another in an “internet of things”, pick up clinical errors and feed data into health records.
Doctors and health IT experts are also looking forward to a better time – one where someone comes up with a plan for assuring the safety and security of the data-driven, interconnected, tech-heavy health system we have today.
Todd Cooper, an international authority on health IT, says rapid advances in connectivity are being driven by pressure from manufacturers in China and India, plus a surge of activity in Big Data and analytics, with IBM, Apple and others entering the fray.
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Australia to play role in IBM cognitive eye health project

By Ry Crozier on Aug 19, 2016 6:56AM

Interns recruited into global effort.

Researchers at IBM Australia will play a role in building a “cognitive assistant” the IT giant hopes will help ophthalmologists diagnose eye conditions from medical image data.
The company recruited a batch of research interns to lend their expertise to the project via the IBM Australia research lab in Melbourne. The interns were slated to begin work last month.
“IBM research is building the next generation cognitive assistant with advanced multi-media capability for early detection and management of diseases that can affect both the eyes and overall health of a person,” the firm said in a now closed advertisement.
“We are building the image-guided informatics system that acts as a filter to extract the essential clinical information ophthalmologists need to know about a patient for diagnosis and treatment planning.
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  • Updated Aug 19 2016 at 6:17 PM

He makes 3D skull and bone implants but now he's in pain

A pioneering maker of 3D printed skull and bone implants held up as a beacon of innovation by Prime Minister Malcolm Turnbull says the government's actions don't match its rhetoric and are blocking his company's growth.
Melbourne neurosurgeon Paul d'Urso founded Anatomics 20 years ago to make customised 3D print cranial implants. With the advent of new, stronger materials such as powdered titanium Anatomics he has expanded the range to load bearing spinal, heel and ribcage implants, hips and shoulders. 
The company now exports to 30 countries. It made a custom sternum and ribcage for a cancer patient in Salamanca, Spain, last year and created a heel implant to save the leg of a cancer patient. Its implants are distributed in Germany by B Braun. 
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ResMed launches app for CPAP users to track sleep apnea treatment

August 18, 2016
For those who wear continuous positive airway pressure (CPAP) masks -- which help people with sleep apnea maintain steady, regular breathing while asleep – a new app is designed to help support device users and improve adherence. With myAir, an offering from medical device company ResMed, CPAP users can now track their treatment via an iOS app, giving users access to their daily sleep patterns and coaching tips.
The app provides contextual information-based coaching on how to improve their therapy through videos, emails and encouragement along the way. A user would put on the CPAP mask at night, then log in to the app the next morning to get their “myAir score”, based on a scale of one to 100, that comprises different elements of therapy – how long they slept on CPAP, how many apneas (pauses in breathing) they had per hour and how well their CPAP mask fit.
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19 Aug 2016 - 5:40pm

No halt to Medicare outsource work issued

No action has been taken to stop a Medicare outsourcing project, the health department has revealed in reply to a freedom-of-information request.
Source:  AAP 19 Aug 2016 - 5:40 PM  UPDATED YESTERDAY 5:40 PM
A private firm has not been told to stop work on a $5 million taxpayer-funded contract to manage the outsourcing of the Medicare payments system.
Labor leader Bill Shorten campaigned heavily during the election on the issue of Turnbull government plans to "privatise" Medicare.
Labor's claim was based on several factors, including a contract given to PriceWaterhouseCoopers (PWC) to oversee the outsourcing of the $50 billion-a-year payments system.
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Digital Advisory Board replaces National Health IT Board

Ministry of Health creates Digital Advisory Board
The Ministry of Health has scrapped it National Health IT Board, replacing it with a Digital Advisory Board.
The NHITB web site says the DAB held its first meeting on 12 August, where governance arrangements, terms of reference and the future of the advisory groups that currently support the NHITB were among the items considered.
The DAB will provide strategic direction, monitor the overall portfolio of sector IT investments, review significant business cases and assess new technologies.
“We will be updating the NHITB website to reflect our new direction. In the interim, we will continue using this website to provide updates and information on the Ministry’s digital health work programme and the single electronic health record,” the site said.
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Digital lives of older Australians

4 August 2016
Source: 
Owning Institution: 
This research snapshot aims to explore the levels of online engagement of older Australians (those aged 65 and over). It examines various measures of digital engagement, including internet access, frequency and location of internet use, as well as the devices used to access the internet and the activities undertaken online. This snapshot also discusses differences in demographic profiles of older internet users and non-users.
The importance of the digital literacy of older Australians has been recognised by the Australian Government. The Government has committed to invest $50 million to ensure that senior Australians will be equipped with the skills and knowledge to improve their safety online and allow them to participate in the modern digital economy.
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15 August 2016

Privacy is for doctors too

Authored by Dr Aniello Iannuzzi
PRIVACY is a paradox of modern society, which is immersed in more information than ever before.
While millions of us appear to be addicted to sharing personal information online, the concept of privacy is still closely guarded. Technology and the law have had to erect privacy walls to protect us from ourselves. There are even international conferences on privacy.
Three topics in our professional lives brought home to me how important privacy has become for practising doctors.
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17 August, 2016

Communication as medicine

Posted by Julie Lambert
A US trial of sharing notes online with patients has evolved into a national movement
US experiment in doctors sharing visit notes with patients via an online portal suggests transparency is very good medicine – and not just for well-informed, tech-savvy white folks.
Like many Australian GPs eyeing the arrival of patient-controlled electronic health records, the American primary-care doctors participating in the OpenNotes program had a host of reservations, mainly about the impact on work flow.
But while their misgivings were borne out in just a handful of cases, the benefits were consistently strong, according to Dr Sigall Bell, the program’s director of discovery and patient safety, who presented the findings at last month’s Health Informatics Conference in Melbourne.
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Govt releases billion-line 'de-identified' health dataset

By Paris Cowan on Aug 15, 2016 12:26PM

Medicare claims dating back to 1984 available online.

The Department of Health has released a huge tranche of de-identified Medicare and PBS claims dating back to 1984, in an effort to help researchers identify pain points in the public health system.
The dataset, which is made up of 1 billion lines of historical data dating back over 30 years, records claims made for visits to doctors, pathologists, imaging services and allied health professionals, and covers about 10 percent of the national population (3 million people).
It is now available to download from the data.gov.au website.
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Medicare, PBS data release a healthy step says Consumers Health Forum

16 August 2016Media release
The release of de-identified health data offers great potential to advance research showing how Australia can deliver better health care more cost effectively, the Consumers Health Forum says.
The Department of Health has released one billion items of Medicare and Pharmaceutical Benefits Scheme records which will facilitate research into the performance of the health system.  The release will enable researchers to study linkages between Medicare and PBS claims for a random 10 per cent sample of Australians.
“The data recorded by Medicare and the PBS represent a treasure trove of information that has previously been difficult for researchers to access.   When these de-identified records of both medical services and medicine prescriptions are linked they can yield a population-wide picture of what care has been delivered, patterns of service provision and  the relationship between medical services provided and medication utilisation,’’ the CEO of the Consumers Health Forum, Leanne Wells said.
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19 August, 2016

One billion lines of historical health data released

Posted by Felicity Nelson
The Department of Health’s release of a billion lines of de-identified historical health records has generated much excitement but also some concern within the medical profession
The records, released online on 1 August, include linked, individual Medicare and PBS claims relating to approximately three million Australians.
The data has been drawn from a random sample of 10% of Australians and date from 1984 to 2014 for Medicare data and 2003 to 2014 for PBS data.
The linked data will allow researchers to track the drugs obtained by individuals and follow medical services accessed by those same individuals over time.

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You could be Qld Health's first-ever digital strategy chief

By Allie Coyne on Aug 17, 2016 4:46PM

Two new deputies to report into CIO.

The technology arm of Queensland's Health department has put out the call for its first-ever chief digital strategy officer, one of two new deputies that will report into acting CIO Mal Thatcher.
The new eHealth Queensland executive will "drive and optimise digital strategy" and will be responsible for "enterprise information assets," according to a job ad.
"eHealth Queensland is going through significant organisational change. This is a new role and one that will be drawing together functions from across the organisation," it said in a job ad.
"The CDO champions the use of digital solutions in business model design, and all aspects of the business to create business success."
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Why this year’s Census might still be a privacy nightmare

The Australian 2016 Census has sparked consternation among privacy advocates
Nikolai Hampton (Computerworld) 12 August, 2016 09:39
The 2016 Census has made headlines this week for all the wrong reasons. But the inability of the Australian Bureau of Statistics and its tech partner, IBM, to keep the website online is not the only controversy surrounding this year's Census, explains security researcher Nikolai Hampton.
The Australian 2016 Census has sparked much debate and consternation among privacy advocates and security professionals alike. At the core of these concerns is a move by the Australian Bureau of Statistics (the ABS) to link census records to other data.
The mechanism proposed for linking records and data is a 'random looking' Statistical Linkage Key. We have been told that the linkage key is secure and will be 'hashed' to make it irreversible — but what exactly does that mean, and how does it secure your data?
Statistical Linkage Keys or SLKs have been used frequently by people doing data research, it provides some very basic anonymity, and a sanity check on the data while retaining a way of identifying an individual throughout a study.
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Far reaching consequences of ABS/IBM census debacle: analysts

16 August 2016
Source: 
Owning Institution: 
Investigations are continuing into what went wrong at the Australian Bureau of Statistics over the botched online census. But there's fresh scrutiny of the computer giant IBM, which has been blamed for failing to take adequate pre-emptive steps to deal with the denial of service attack. IT industry analysts say the fallout from the census debacle will be far reaching, and could open up the field for tech providers vying for lucrative government contracts.
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  • August 16 2016 - 7:17AM

Virtual reality trip inside cancer cells can help design better chemotherapy drugs

Marcus Strom
Gaming technology is allowing cancer researchers to imagine – and interact with – cells in a mind-blowing new way.
In a fantastic voyage to the scale of a single cell, scientists can now observe the virtual interaction of therapeutic drugs as they penetrate the very membranes of those cells.
"As well as the obvious educational role this can play, it has the potential to allow cancer researchers to see their data in a new way, which can help them design better nanotherapies," said John McGhee​ at the University of NSW.
Dr McGhee is director of the 3D Visualisation Aesthetics Lab at UNSW's school of art and design in Paddington. He has harnessed the data from a high-resolution scan of a breast cancer cell to construct a virtual world using technology straight from the gaming industry. He took the data from a University of Queensland scan and built it into a 3D mesh where designers in his lab added colour, lighting, texture and animation.
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  • August 16 2016 - 7:53AM

Putting a computer in your brain is no longer science fiction

Elizabeth Dwoskin

Like many in Silicon Valley, technology entrepreneur Bryan Johnson sees a future in which intelligent machines can do things like drive cars on their own and anticipate our needs before we ask.
What's uncommon is how Johnson wants to respond: Find a way to supercharge the human brain so that we can keep up with the machines.
KerNEL's chip will work by predicting the memory recall function a healthy brain would make and replicating it inside a damaged or diseased brain. 
From an unassuming office in Venice Beach, his science-fiction-meets-science start-up, KerNEL, is building a tiny chip that can be implanted in the brain to help people suffering from neurological damage caused by strokes, Alzheimer's, or concussions. The team of top neuroscientists building the chip — they call it a neuroprosthetic — hope that in the longer term, it will be able to boost intelligence, memory, and other cognitive tasks.
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Enjoy!
David.

Sunday, August 21, 2016

Why Is The Government So Hopeless In IT Delivery? Wish I Knew….

This popped up in my scans yesterday.

NQ Primary Health Update

My Health Record latest news

Did you know that an individual needs to have a myGov account to access My Health Record? People can either log in via their existing account and link their My Health Record to their myGov, or they can take a few moments and create their own MyGov account.
There is a simple step by step guide at www.myhealthrecord.gov.au/stepbystep to support people to register or access their My Health Record for the first time.
Even though there are several Government services are on myGov, such as Medicare and the Australian Tax Office, it is only registered healthcare providers involved in a patient’s care who can access the My Health Record system.
For GPs who are using Best Practice and Medical Director software, we have been aware that they are undergoing some upgrades which is resulting in some error messages when accessing the My Health Record system. If you are receiving error messages, please contact your clinical software provider for assistance.
There is a huge amount extra found here:
I noted two things – First, from August this year, it does still seem myHR integration with GP practice systems is having a few issues.
Second, while reading I noticed the comment on MyGov. This prompted me to recount the silliness I encountered just yesterday trying help here to use MyGov to claim a small Medicare refund.
She was not enrolled in MyGov so the process of signing up was its usual intrusive self.
Once in we linked Medicare and found a range of extra details were needed including my birthday etc. as my name is the first entry on our family Medicare Card.
Once finally in we started the process to claim back our $50.
We entered the various details (Provider Number, Date of Service, Amount Paid, Medicare Item No etc.) thinking we must be getting close given we had provided all the banking details for the deposit etc.
We were also told to scan the bill, as we would need to upload the .pdf etc. (What do you do if you don’t have a scanner etc.?)
We hit complete and were then told that for this item number we could not claim via MyGov but had to use the Express Plus Medicare Billing App.
Here is the website for these marvels.
Well talk about customer hostile nonsense. Just what do you do if you don’t have a smartphone or can’t seemingly get it installed as the phone is demanding an Apple ID and password that my wife never uses and has probably been lost!
You are told to call a number and hope for a better outcome!
So the bottom line is the Medicare Offices have basically gone and the replacement assumes you have a smartphone and know all about how to use the App Store etc. etc.
What a massive fail at so many levels. Who would voluntarily get a myHR if you had experienced the Census or this sort of nonsense!
David.

AusHealthIT Poll Number 332 – Results – 21st August, 2016.

Here are the results of the poll.

Should The Patient Be Required To Review And Approve A Discharge Summary Before It Is Uploaded To The myHR?

Yes 76% (68)

No 15% (13)

I Have No Idea 9% (8)

Total votes: 89

It seems the great majority do not support the current practice with discharge summaries just being tossed into the huge myHR abyss.

A great turnout of votes.

Again, many, many thanks to all those that voted!

David.