Quote Of The Year

Timeless Quotes - Sadly The Late Paul Shetler - "Its not Your Health Record it's a Government Record Of Your Health Information"

or

H. L. Mencken - "For every complex problem there is an answer that is clear, simple, and wrong."

Thursday, February 19, 2009

International News Extras For the Week (19/02/2009).

Again there has been just a heap of stuff arrive this week.

First we have:

Why Clinical Groupware May Be the Next Big Thing in Health IT

By

What would you call health care software that:

  • Is Web-based and networkable, therefore highly scalable and inexpensive to purchase and use;
  • Provides a 'unified view' of a patient from multiple sources of data and information;
  • Is designed to be used interactively - by providers and patients alike - to coordinate care and create continuity;
  • Offers evidence-based guidance and coaching, personalized by access to a person's health data as it changes;
  • Collects, for analysis and reporting, quality and performance measures as the routine by-product of its normal daily use;
  • Aims to provide patients and their providers with a collaborative workflow platform for decision support; and
  • Creates a care plan for each individual and then monitors the progress of each patient and provider in meeting the goals of that plan?

I call this Clinical Groupware. The term captures the basic notion that the primary purpose for using these IT systems is to improve clinical care through communications and coordination involving a team of people, the patient included. And in a manner that fosters accountability in terms of quality and cost.

Clinical Groupware is a departure from the client-server and physician-centric EHR technology of the past 25 years, a fixed database technology that never really became popular. It is a substantially new and disruptive technology that offers lower price of purchase and use, greater convenience, and is capable of being used by less skilled customers across a broader range of settings than the technology it replaces.



As the name indicates, Clinical Groupware is intended for use by groups of people and not just independent practitioners or individuals. It is not the same thing as an electronic health record, but may share a number of features in common with EHRs, such as e-Prescribing, decision support, and charting of individual visits or encounters, both face-to-face and virtual. Neither is Clinical Groupware bloated with extra features and functions that most providers and patients don't need and, with good reason, don't want to pay for.

Some Clinical Groupware may look and feel like a web-based "EHR lite." But Clinical Groupware aims to create a unified view of the patient, assembling health data and information that may be stored in many different places and in several different organizations - including HealthVault or Google Health -- which most EHRs cannot do.

Clinical Groupware is an evolutionary approach to a shifting health economy in which doing more is not always equated with better care, and the physician or provider role is transforming from autonomous expert to advisor, partner, and guide. It is also an organic response to the reality that most health care data in electronic format is dispersed across numerous organizations and companies - e.g. hospitals, labs, pharmacies, and devices - and provides a means of accommodating patient demands for a more participatory practice of medicine.

A huge amount more here:

http://www.thehealthcareblog.com/the_health_care_blog/2009/02/why-clinical-groupware-may-be-the-next-big-thing-in-health-it.html

This is a fascinating blog post that has triggered a great deal of discussion – well worth a careful browse.

Second we have:

Achieving Meaningful EHR Use: Leveraging Community Structures

by Farzad Mostashari and Micky Tripathi

Widespread use of interoperable electronic health records is necessary for transforming how health care is delivered and will be a key enabler of health care reform.

The Health IT provisions of the American Recovery and Reinvestment Act seek to promote nearly universal EHR adoption over the next 10 years, largely through incentive payments to be paid following meaningful use of EHRs for improvements in health quality, efficiency, prevention and safety.

However, successful implementation of EHRs is challenging, especially among small practices where most primary care is delivered.

These practices generally lack expertise and resources to purchase, install and use information technology to work better and more efficiently. Furthermore, despite the requirements for standards and certification, uncoordinated EHR implementations are unlikely to result in functional interoperability between systems.

More here:

http://www.ihealthbeat.org/Perspectives/2009/Achieving-Meaningful-EHR-Use-Leveraging-Community-Structures.aspx

The article provides two references and some useful links.

[1] Blumenthal D, The Federal Role in Promoting Health Information Technology, The Commonwealth Fund, January 2009

2. Mostashari F, Tripathi M, Kendall M. Lessons Learned From Two Large Community Electronic Health Record (EHR) Extension Projects. Health Affairs 28(2). March 2009 Forthcoming

MORE ON THE WEB

A useful article and a valuable perspective on major Health IT projects. This one will be a real ‘biggie’.

Third we have:

Prescribing errors are the most common medication errors in primary care practices

Most of the medication errors in primary care practices are prescribing errors, and more than half of these errors reach patients, concludes a new study. Electronic tools are necessary to reduce the rate of errors and subsequent harm (adverse drug events or ADEs) to patients, suggest the study authors. Studies of medication errors have typically been conducted in hospitals, rather than in primary care settings. To understand the nature of medication errors in primary care settings, the American Academy of Family Physicians (AAFP) Research Network and the AAFP Robert Graham Policy Center looked at medication error reports from two studies conducted in the network.

The researchers combined reports of medication errors from a 20-week medical error study involving 42 family physicians at 42 practices with those from a 10-week study involving 401 clinicians and staff from 10 diverse family medicine offices. Of a total of 1,265 medical errors reported, 194 reports concerned errors in medication. Seventy percent of the medication error reports involved prescribing errors, 10 percent each involved medication administration or documentation errors, 7 percent involved errors in dispensing drugs, and 3 percent involved medication monitoring errors. In 41 percent of the reports, the errors were prevented and did not reach the patients, while 59 percent reached the patient 35 percent did not require monitoring. Monitoring was required in 8 percent of the reports, intervention in 13 percent, and hospitalization of affected patients in 3 percent). Although 16 percent of the medication errors were ADEs, none of the errors resulted in permanent harm or a patient's death.

Pharmacists were most likely to prevent the errors from reaching the patients (40 percent of intercepted medication errors), while physicians and patients were almost equally likely to intercept the medication error (19 percent and 17 percent of intercepted errors, respectively). The researchers determined that more widespread use of heath care information technology, such as electronic medical records or computer physician order entry systems, could have prevented as many as 57 percent of the medication errors. The study was funded in part by the Agency for Healthcare Research and Quality (HS11584 and HS14552).

More details are in "Medication errors reported by US family physicians and their office staff," by Grace M. Kuo, Pharm.D., M.P.H., Robert L. Phillips, M.D., M.S.P.H., Deborah Graham, M.S.P.H., and John M. Hickner, M.D., M.Sc., in Quality and Safety in Health Care 17, pp. 286-290, 2008.

Site is here:

http://www.ahrq.gov/research/feb09/0209RA5.htm

This is another brick in the wall of the evidence for CPOE being of value in preventing error.

Fourth we have:

At-home monitoring helps seniors living with heart failure

February 9, 2009 (Victoria, BC) – Some heart failure patients who live in the Greater Victoria area are now able to manage their health care in just a few minutes a day, from the comfort of their own homes, with the help of Telehomecare – an in-home monitoring system being launched by the Vancouver Island Health Authority (VIHA).

"Telehomecare enables rapid detection of problems, allows patients to self-manage their care and saves travel time for both patients and caregivers," said Health Services Minister George Abbott. "It is one way we are breaking down barriers to quality health care for British Columbians regardless of where people live."

Every day at a set time, an in-home monitoring device will greet the patient with a pre-recorded message to remind them to take their vital signs: blood pressure, pulse, oxygen saturation level and weight. This information is then automatically transmitted over the phone to a computer in VIHA’s Home and Community Care office where the data is reviewed.

Christine Gotzman, VIHA’s Home and Community Care’s Heart Failure Nurse, recognizes the impact that this new service will have on patients who live with heart failure. "Until now, my only communication with my patients has been in person or over the phone," she says. "This new Telehomecare service gives me the ability to remotely ‘see’ how my patients are doing on a daily basis and deliver care proactively. Once the data is sent to my computer, I can quickly assess their condition and, if necessary, provide a targeted response to their changing health status."

The first phase of the Telehomecare program will measure the progress of approximately 100 patients living with heart failure chosen through VIHA’s Seniors At Risk Integrated Network, currently operating in the Greater Victoria area. The long-term goal is to provide Telehomecare services throughout Vancouver Island.

"This innovative program offers many direct benefits to our patients," said VIHA’s Board Chair Jac Kreut, "including improved access to care, a reduction in emergency room visits, shorter hospital stays and fewer hospital admissions."

The Telehomecare program is being delivered as part of a larger provincial Telehealth strategy that includes VIHA and Interior Health, with a combined budget of $836,000. Interior Health initially launched its Telehomecare program in 2006, and recently expanded its program last fall to include patients in the East Kootenays.

More here:

http://www.infoway-inforoute.ca/lang-en/about-infoway/news/news-releases/392-at-home-monitoring-helps-seniors-living-with-heart-failure

Another interesting study in the area of remote monitoring.

Fifth we have:

Teaching old docs new e-health tricks proves difficult

Younger physicians are more likely to gravitate to automated systems

Lucas Mearian

February 9, 2009 (Computerworld) Before the rollout an all-electronic health records (EHR) system about a year ago, only about half of the doctors and nurses in West Virginia's state hospitals were familiar with medical computer systems. So when technology rolled in, staffers pushed back.

"We actually had some nurses who were completely computer-illiterate. They didn't use a computer at work, and they had no use for it at home," said Jerry Luck, director of facilities systems administration at the West Virginia Department of Health and Human Resources.

West Virginia is not alone. Hospitals across the country are feeling pressure to implement more efficient IT systems in light of President Barack Obama's plan to establish a nationwide EHR system in the next five years. Under the Health Information Technology for Economic and Clinical Health Act (HITECH), physicians would be eligible for between $40,000 and $65,000 if they show they are using IT to improve the quality of care.

EHR systems are expected to streamline health care workflow, improve the quality of care and cut costs, according to experts. But medical facilities could also find themselves at loggerheads with some of their own staffers, which are far more familiar with pen and paper than a keyboard or tablet PC. Adding to the problem: the bulk of HITECH money will be awarded beginning in 2011, according to current legislation pending in the House. That doesn't give hospitals much time to prepare, and organizations that aren't ready won't receive funds.

West Virginia is a rarity: Its state government health care system has an all-electronic record-keeping system spread across seven medical facilities.

Lots more here:

http://www.computerworld.com/action/article.do?command=viewArticleBasic&taxonomyName=knowledge_center&articleId=9127549&taxonomyId=1&intsrc=kc_top

This is a useful summary of the issues encountered in an EHR roll-out and how they were addressed – a good read.

Users of prescription drugs being tracked in Arizona

by Ginger Rough - Feb. 9, 2009 12:00 AM

The Arizona Republic

Have you taken the painkillers OxyContin or Vicodin in the past 10 months? How about the sleep aid Ambien or the stimulant Ritalin?

If you have and you obtained the drug legally, your prescription information is likely being stored in a centralized, state-managed database that can be accessed by doctors and pharmacists around Arizona.

The program, which debuted in December and is overseen by the Arizona State Board of Pharmacy, is designed to cut down on the persistent problem of prescription-drug abuse. But it also has raised concerns among privacy-rights groups that fear computer hackers or unscrupulous health workers will access patients' personal information. State health officials who pushed for the program say they know of no breach of any similar database in another state.

The system, they say, allows physicians and pharmacists to more easily identify "doctor shoppers," people who visit various doctors to obtain drugs that are potentially addictive.

Doctors and pharmacists who learn of a patient's overuse through the system can stop providing him or her the drug, alert other doctors and pharmacists treating the patient, counsel the patient or even contact law-enforcement agencies.

"I am so excited that we are finally getting this for our state," said Dr. Stephen Borowsky, an anesthesiologist and pain-management specialist.

"It's absolutely necessary. . . . These medicines have such great potential for addiction."

The first prescription-monitoring database in the country was set up 13 years ago in Nevada. Now, more than 30 states have authorized or created such lists after deciding that the potential benefits outweigh privacy concerns.

More here:

http://www.azcentral.com/news/articles/2009/02/09/20090209pharmacydrugs0209.html

Clearly this is a useful initiative. The description of how the system works makes interesting reading and deserves consideration as one model of controlling prescription drug abuse.

Seventh we have:

New Devices Track Patients Who Wander

By PHILIP SHISHKIN

When an autistic child or an adult with dementia wanders off and gets lost, finding them quickly sometimes can make a difference between life and death.

As the market for search-and-rescue technology expands, LoJack Corp., the maker of wireless devices that allow cops to find stolen cars, is announcing Tuesday the launch of a radio-based product designed to locate people.

Several companies already offer devices that use wristband radio transmitters to help police locate people quickly. But advocates for the elderly and disabled say there's a large and unmet need for more such services.

An estimated 18,000 people are already using wristband radio-tracking devices made either by Care Trak International, a LoJack competitor, or by Locator Systems, a Canadian company acquired by LoJack last year. Some of them are distributed by police departments. On average, they cost about $25 to $30 a month to use, though in cases of need, they may be provided free.

There are an estimated 5.2 million Americans with Alzheimer's, and more than half of those affected sometimes go on random and dangerous walks, according to the National Alzheimer's Association. Wandering is considered among the most life-threatening behaviors associated with the illness.

More here:

http://online.wsj.com/article/SB123423274308166263.html

This seems like a useful innovation that has now been brought to market.

Eighth we have:

http://www.e-health-insider.com/news/4564/cerner_gets_green_light_in_london

Cerner gets green light in London

11 Feb 2009

NHS London and the NHS London Programme for IT have given the green light to further Cerner deployments in the capital.

The decision comes despite a the fact a programme of work to fix 22 known problems is running late and has yet to be completed. Royal Free reports that although good progress has been made it will not be possible to judge until March whether the fixes require work.

All further implementations of Cerner were shelved in October and an emergency ‘recovery plan’ instituted by LPfIT, BT and Cerner after serious problems with the Cerner Millennium software came to light at Barts and the London and Royal Free.

In January board papers, Andrew Way, chief executive of Royal Free Hampstead NHS Trust, reported good progress had been made, though the 90 day rescue project had been extended by agreement. The trust’s project board will monitor progress and “test the views of clinical and administrative staff in early March to assess the degree of improvement”.

EHI understands that a decision to restart Cerner implementations in London was taken at the beginning of February.

In December, NHS chief executive David Nicholson told the Commons health Select Committee that no more Cerner implementations would occur until known problems were resolved: “We’ve got some serious issues around the Cerner system, particularly in London at the Royal Free, and what we’ve said to Cerner and BT is that they’ve got to solve that problem at the Royal Free before we think about rolling it out across the rest of the NHS.”

At least one London trust reports having been told in the last few days that it should now “re-engage with Cerner”.

More here:

Cerner must be breathing more easily now the roll-out is progressing. One fears it still may be a bit of a poison chalice.

Ninth we have:

SafeMed changes name to Anvita Health, debuts Google application for mobile viewing

February 06, 2009 | Eric Wicklund, Managing Editor

SAN DIEGO – SafeMed is venturing into new territory, with a new name and some new products designed to push the company's healthcare footprint into new areas.

The San Diego-based healthcare analytics company - it provided the analytics engine for Google Health - announced this week that it will now be known as Anvita Health. In addition, the company launched a new mobile viewer for Google Health that allows users to gain access to their personal health records at any time and from any place.

"We see Google Health as a vital tool in allowing consumers to take a more active role in their own healthcare and the care of their families," said Ahmed Ghouri, Anvita Health's co-founder and chief medical officer, in a press release. "The Anvita Mobile Viewer builds a bridge between the home and the doctor's office and allows Google Health users to realize the full worth of their PHR data by taking it to where critical medical decisions are made."

Full article here:

http://www.healthcareitnews.com/news/safemed-changes-name-anvita-health-debuts-google-application-mobile-viewing

This is an interesting evolutionary direction for access to one’s PHR.

Tenth we have:

How Electronic Medical Records Can Be Used To Test Drug Efficacy

ScienceDaily (Feb. 9, 2009) — For years controversy has surrounded whether electronic medical records (EMR) would lead to increased patient safety, cut medical errors, and reduce healthcare costs. Now, researchers at the University of Pennsylvania School of Medicine have discovered a way to get another bonus from the implementation of electronic medical records: testing the efficacy of treatments for disease.

In the first study of its kind, Richard Tannen, M.D., Professor of Medicine at the University of Pennsylvania School of Medicine, led a team of researchers to find out if patient data, as captured by EMR databases, could be used to obtain vital information as effectively as randomized clinical trials, when evaluating drug therapies. The study recentlly appeared online in the British Medical Journal.

“Our findings show that if you do studies using EMR databases and you conduct analyses using new biostatistical methods we developed, we get results that are valid,” Tannen says. “That’s the real message of our paper — this can work.”

More here:

http://www.sciencedaily.com/releases/2009/02/090206135313.htm

This is really interesting and important stuff – and adds another arm to the value proposition for EHRs. (See abstract in the report post for the week).

Eleventh we have:

New QRISK2 for heart disease launched

09 Feb 2009

A new version of the QRISK software which identifies patients most at risk of developing cardiovascular disease (CVD) has been released for clinical use.

QRISK2 uses a new CVD equation to estimate an individual’s risk of developing heart disease over the next ten years, drawing on analysis of primary care data from practices using the EMIS GP computer system.

Its creators argue that it provides an accurate and fairer assessment of CVD risk than the widely-used Framingham risk equation, taking into account the higher risk of developing CVD to patients from deprived areas and from certain ethnic groups. It also considers other risk factors including whether the patient already suffers from a pre-existing condition such as diabetes.

Last year the National Institute for Health and Clinical Excellence (NICE) made a draft recommendation that the QRISK formula should replace the Framingham risk score currently used but later reversed its decision.

More here:

http://www.ehiprimarycare.com/news/4553/new_qrisk2_for_heart_disease_launched

This is very important work as it will assist in identifying – before the event – those who need preventive cardiovascular treatment and hopefully avoid both suffering and cost!

Twelfth for the week we have:

Patient privacy is not a 'black vs. white' issue

Posted: February 12, 2009 - 5:59 am EDT

In response to Jean DerGurahian's “HIPAA privacy rule not enough to protect info: IOM":

The current debate over the security and privacy of health records has generated many hardened “black vs. white” positions. As I read them, most of these positions are based on the fear of the writer that something important to them will be impeded by whatever rules they imagine coming out of the debate. There is a simple solution to the problem, one which can address every need, if we accept a few principles.

  • We must agree that the patient must be able to control the use of their personally identifiable health information, or PHI. The HIPAA regulations got this right! This first principle has a social benefit policy corollary: Information derived from my record, but which cannot be used to identify me, is not under my control. Rather it is under the control of any provider I have granted access, and they can authorize its use for research and public health purposes under appropriate safeguards.
  • We need to acknowledge that no medical provider can properly care for a patient unless they have access to the full health records of the patient.
  • We need to recognize that a person who seeks care from a provider must allow that provider to access their complete health record.
  • We need to acknowledge that designated emergency providers, when presented with a patient that they can identify, must have access to that patient's records. This situation is equivalent to a self-referral since we presume that a patient unable to give consent for treatment gives it implicitly unless they have explicitly denied permission.
  • When a patient allows a provider currently caring for them to consult with, or to refer them to, another provider, they also grant that provider access to their records, and grant the referring provider the right to pass on the access rights they hold. This the central principle that makes the solution work.
  • Finally, we must provide, on behalf of the patient, assurance that no other person, provider or not, can see their PHI.

More here:

http://www.modernhealthcare.com/article/20090212/REG/302129988/1031/FREE

This article strikes me as a nice succinct statement of principles.

Second last for the week we have:

Reporter's Notebook: TEPR a show to be remembered

By Joseph Conn / HITS staff writer

Posted: February 11, 2009 - 5:59 am EDT

If, as C. Peter Waegemann has said, last week's Towards an Electronic Patient Record conference and exhibition was to be the last TEPR, it’s an appropriate time to salute Waegemann and the folks at his Medical Records Institute, who have produced the show for a quarter of a century.

Trade shows are what you make of them. The time and effort you spend plotting and sailing your course through the schedule of keynote speeches, presentations and vendor exhibition hall visits and the attitude you bring to those encounters has a direct bearing on the benefit you derive from the experience.

The show Feb. 1-5 in Palm Springs, Calif., this year was something on the order of my eighth TEPR, and I’ve enjoyed every one of them.

What I’d always found about TEPR, in comparison to its major competitor, the Healthcare Information and Management Systems Society show, was that TEPR was on a more human scale, more approachable. If TEPR was vaudeville, HIMSS was the Greatest Show on Earth.

During a TEPR session, you could always get a question asked and answered as it came up, and afterward, grab a word or two with a speaker or panelist and swap business cards without waiting in line behind two dozen other people.

I remember one of the great thrills of the TEPR shows of yesteryear was the notorious TEPR Challenge.

Electronic health-record system vendors, often fretful and sweating, would demonstrate their software on stage during documentations of a mock patient encounter. The vendors had 10 minutes to complete the patient record. Live shots of their systems were projected onto huge screens for viewing by an audience of many hundreds of potential customers and competitors.

More here:

http://www.modernhealthcare.com/article/20090211/REG/302119960/1029/FREE

This is a sad announcement with TEPR shutting up shop after so many years. The discussion of ‘foilware’ that was so prevalent in this space a few years I found especially amusing. Live demonstrations are certainly a valuable way to sort the wheat from the chaff.

Last for this week we have:

Infoway launches new certification service for health information technology vendors

Certification of consumer health platforms now available

February 12, 2009 (Toronto, ON) - Health information technology vendors entering the Canadian consumer health solution market can now apply for pre-implementation certification for their consumer health platforms from Canada Health Infoway (Infoway).

The e-Health Certification Services, launched today, will be broadened in the coming months to include consumer health applications.

Infoway’s new certification service will help health information technology vendors develop solutions that leverage the considerable progress Canada is making in setting standards and deploying interoperable electronic health records throughout the health care system,” said Richard Alvarez, President and CEO, Canada Health Infoway. “Interest in consumer health solutions is growing, and ensuring these solutions are interoperable with the technologies clinicians are using to store Canadians’ health data is central to maximizing their potential.”

Certification will ensure consumer health solutions comply with Infoway’s privacy, security, interoperability and management standards and complement and leverage Canada’s investments in electronic health records. It will also provide vendors with an opportunity to demonstrate compliance with pan-Canadian standards.

Organizations investing in certified solutions can expect a higher degree of confidence that the products they purchase are reliable, interoperable, private and secure.

Vendors whose solutions achieve certification will be authorized to apply the “Infoway Certified” certification mark to their product and related marketing materials.

More here:

Again OZ is behind the US and Canada. I hope NEHTA’s plans in this area see the light of day soon so the painful process of catching up can begin.

There is an amazing amount happening (lots of stuff left out). Enjoy!

David.

E-Health to Assist Ill and Disabled Young Australians Communicate and Interact.

The following was released today – and I felt it was worth a post. Sounds like a great idea to me!

New Livewire Online Community Connects Young Australians Living With A Serious Illness, Chronic Health Condition Or Disability

The Hon. Senator Conroy, Minister for Broadband, Communications and the Digital Economy, today launched Livewire, a new online community which is the first of its kind in Australia, to help improve the emotional and social wellbeing of children and young people aged over 10 and under 21, living with a serious illness, chronic health condition or disability.

A wholly owned subsidiary of the Starlight Children’s Foundation, and co-funded by the Australian Government’s Clever Networks program, Livewire is designed to provide a free, safe and supportive online community for children and young people to hang out, connect, share experiences, creatively express themselves and know that they are not alone in their situation.

An estimated 450,000¹ young Australians aged between 10 and 21 are currently living with a serious illness, chronic health condition or disability. These conditions can profoundly impact their everyday lives, leading to frequent absences from school, sport and other social activities. The internet provides an innovative way to reach and connect these young people through a supportive online community.

“Connecting and supporting young people with a serious illness, chronic health condition or disability through a safe online community has been a vision of the Starlight team for many years,” said Jill Weekes, CEO of the Starlight Children’s Foundation. “Livewire helps to distract that young person from their pain, helps them better understand their illness and connects young people facing similar challenges so that no one feels alone.”

Unlike other social networks, Livewire is a secure, moderated community tailored to the needs of its private members.

“By combining the latest in online and mobile technologies with a safe and secure approach, we are developing a great online community for young people who are also dealing with a disability, chronic condition or serious illness,” said Omar Khalifa, Managing Director of Livewire. “With video, music and games, Livewire is a fun place to check out. However, it’s the young people who create blogs, chat and interact that will shape Livewire, keep it relevant and a make it a really great place to hang out.”

The Hon. Senator Stephen Conroy, Minister for Broadband, Communications and the Digital Economy, said “The Livewire online community is a great example of broadband and digital technology assisting the support and well-being of people whose lives have been disrupted by chronic illness or disability. Livewire helps young people to stay in touch with those they love and to connect to gain support from others who may be sharing a similar situation.”

Livewire aims to have a significant impact on the social and emotional wellbeing of its members, to help relieve stress and anxiety, alleviate boredom and to help empower them to develop new life skills and make new friends.

Prominent child and adolescent psychologist, Dr Michael Carr-Gregg commented, “Too often, it goes unrecognised that young people with chronic illness or disability can be affected by anxiety disorders, mood disorders, self harm and even suicidal tendencies, and that these go hand in hand with their situation.

“Livewire is wonderful because you have 24 hour a day, immediate connection with a community of people feeling exactly the same way. This can instantly reduce their sense of isolation and put them in touch with someone who understands,” he concluded.

Livewire complies with strict safety measures to ensure the safety and security of its members. Each member’s parent or guardian is contacted personally to verify their identity before joining the community. What’s more, chat hosts trained by the Australian Federal Police are present seven days a week to moderate discussions.

The program is made possible by an investment of $7.2 million from the Australian Government’s Clever Networks program, and support from its launch partners. This funding has enabled Livewire to develop a long lasting, sustainable program that will support, inspire and encourage its members.

Livewire aims to connect 20,000 young people, siblings and parents by the end of 2009, and will work with and through other Not For Profit organisations, such as The Spastic Centre and Diabetes Australia to provide access to Livewire to its eligible members.

The next phase of Livewire will be the launch of Livewire Mobile which will enable young Australians to access the site and its community via their mobile phone. Livewire on Wheels, a bedside access program, has already rolled out at Canberra Hospital and The Sydney Children’s Hospital at Randwick. Throughout 2009, the program will aim to target an additional seven hospitals right throughout Australia, including The Children’s Hospital at Westmead, John Hunter Hospital in Newcastle, Princess Margaret Hospital for Children in Perth, Mater Hospital in Brisbane, Royal Brisbane and Women’s Hospital, and Royal Children’s Hospital in Melbourne.

This will be followed by the creation of dedicated Livewire sites for both parents and siblings of young people with a serious illness, chronic health condition or disability, enabling them to share experiences with others who understand what they are going through, and a research program which examines the therapeutic benefits of Livewire services and the impacts of Internet use on members’ social and emotional well-being.

Any young Australian aged over 10 and under 21, who is currently living with a serious illness, chronic health condition or disability who wishes to join Livewire or find out more information should visit http://www.livewire.org.au or contact member.services@livewire.org.au.

----- End Release.

Great idea – I hope it really helps!

David.

Wednesday, February 18, 2009

Does the National Health And Hospital Reform Commission (NHHRC) Know What it is Talking About in e-Health?

I have been reflecting for the last couple of days on the NHHRC comments in the e-Health area.

To me what seems to be the core of what they have said we have:

“Finally, in our Interim Report we argue that creating a robust and integrated primary health care service will require the implementation of a person-controlled electronic personal health record. Across Australia’s range of community- and hospital-based health care settings the sharing of information is limited, fragmented or non-existent. This results in high dissatisfaction from patients, exasperation from clinicians, adverse events and sub-optimal care.

An electronic health record that can be accessed – with the person’s agreement – by all health professionals and across all settings is arguably the single most important enabler of truly person centred care. It is one of the most important systemic opportunities to improve the quality and safety of health care in Australia. We will explore the prerequisites and incentives to allow us to reach this goal in our final report.”

(See Page 8)

As previously noted the full report and broken down sections of the report are available from the NHHRC website.

Close reading of this suggests there is some confusion between two possible ways forward and that the thinking on the various options is, right now, quite muddied.

By “person-controlled electronic personal health record” I assume they are taking about an electronic health record for an individual that that individual has control and ownership of and which the individual decides who – and who not – is permitted access to the record. This seems to me to be describing a form of record as already offered (for free) by Microsoft Vault, Google Health and a host of smaller providers. This seems to be talking about a classic Personal Health Record (PHR).

While such records have now been available for a good few months there does not seem to be any information presently available on their use in Australia

It needs to be noted that the benefits profile and utility of PHRs is still to be clarified – although it makes intuitive sense there are situations where value will be easily demonstrable. What is seriously up for discussion at this time is just how the patient held and controlled record should interact with the clinician held ‘professional’ record.

However they then go on – in the same paragraph - to talk about the sharing of professional information between health care providers in hospitals and practices – somehow envisaging the person is also going to control this information as well. This is all very vague and muddy to me. This really conforms to no model I am aware of – except possibly in some UK practice management systems which can share information between the various clinicians associated with the practice while at the same time providing the patient with a view of the information held in the record on them as an individual. The record is controlled by the clinician but the patient has secure access to the same information.

In the next paragraph we have a description of what I would describe as a traditional Electronic Health Record (EHR) which is used by the clinician to manage and provide clinical care. It is this sort of record which has been evaluated so far in terms of making a positive difference to the quality and safety of patient care.

When the NHHRC says “We will explore the prerequisites and incentives to allow us to reach this goal in our final report.” I think there are a few things that it needs to do first – and given it has only five months until the final report it had better get going.

First it needs to assemble the evidence on what works and what does not work in the e-Health domain and how vital such technology is to health reform in general – taking into account overseas and local experience to date.

A useful source it might start from is found in my submission which can be found here:

http://www.nhhrc.org.au/internet/nhhrc/publishing.nsf/Content/113-moreassoc

Second it might like to consider the work done in the US on defining terms. If they see some value it might help discussions if they use language more precisely.

http://www.healthnewsdirect.com/?p=329

To the expert eye their words lack clarity and understanding at present.

Third it might then be an idea to define the strategic objectives and priorities the NHHRC has in the health record domain so that appropriate technical, security, privacy and so on architectures can be evolved and reviewed. Ultimately this work will inform what is delivered and what it will cost, as Government will certainly be keen to know!

I am sure NEHTA is keen to know if what the NHHRC is talking about is their IEHR of something different. If it is, it would be good if the NHHRC said so and defined how it envisaged it would work practically – given the dearth of detail so far from NEHTA.

This should then result in some sort of coherent set of suggestions as to what to do in this area.

To do this work the Commission will need some serious help, lots of it and soon!

Alternatively the Commission could review the Deloittes National e-Health Strategy developed a few months ago, conclude it is a useful way forward and endorse it (as Australian Health Ministers already have) as a way forward with any modifications it feels are vital after discussion with the authors and Booz who developed the NHHRC discussion paper on the issue.

The second approach is vastly to be preferred in my view, as it is not at all clear that if the Commission has not developed some clear, well articulated ideas by now, that it will in the next five months. Clarity and coherence of thought will be vital if any of these reforms are to succeed and e-Health will be a key enabler of that success.

David.

Personal Medical Devices are Linked to Personal Health Records

The following release appeared a few days ago.

IBM Teams With Google and Continua Health Alliance to Move Data From Remote Personal Medical Devices Into Google Health and Other PHRs

Efforts Expand the Content and Value of Personal Health Records

February 05, 2009: 12:01 AM ET

IBM (NYSE: IBM), in collaboration with Google and the Continua Health Alliance, today announced new software that will enable personal medical devices used for patient monitoring, screening and routine evaluation to automatically stream data results into a patient's Google Health Account or other personal health record (PHR). This breakthrough extends the value of PHRs to consumers and also helps to ensure that such records are current and accurate at all times. Once stored in a PHR, the data can also be shared with physicians and other members of the extended care network at a user's discretion.

Using IBM software to connect personal medical devices to Google Health and other health-record systems will allow patients to exchange vital health information with their doctors and other health services professionals more easily, and in real-time. As a result, health professionals can provide more timely feedback to patients on their conditions, suggest treatments, and help improve overall quality of life. In a world where chronic diseases like diabetes afflict more than 600 million(1), where more than one billion are overweight(2), and where the number of people older than 60 years will reach 1.2 billion by 2025(3), the IBM software solution can also help advance personalized healthcare.

For example, a busy mom can receive daily electronic updates on the health status of an aging parent who lives alone, is suffering from high blood pressure, and is on multiple medications. A traveling businessperson, who is diabetic and training for a marathon, can have a real-time discussion about her blood sugar levels and heart rate with her coach hundreds of miles away.

Google Health allows users to store, manage, and share their medical records and personal health information securely online. Google Health was officially launched last May, and is free to users and available online at www.google.com/health.

"Our partnership with IBM will help both providers and users gain access to their device data in a highly simplified and automated fashion," said Sameer Samat, Director for Google Health. "IBM has taken an important step in providing software that enables device manufacturers and hospitals to easily upload recorded data into a PHR platform, such as Google Health."

IBM integrated the capabilities of Information Management, Business Intelligence and the WebSphere Premises Server sensor event platform with Google Health. The new IBM solution will be able to:

· Support a wide variety of use cases, including chronic disease management, health and wellness, and elderly care, both in the United States as well as in countries and health-services enterprises around the world.

· Leverage the power of Services-Oriented Architectures, so that the partners can quickly build increasing volumes of flexible solutions for healthcare consumers and services providers based on modular components.

· Support the rapid growth of open standards through the power of the Continua Alliance, which is dedicated to enabling interoperable healthcare products and solutions.

· Support the development of solutions using the Google Health open platform.

"By harnessing the rapidly growing use of remote patient monitoring across every part of the healthcare services industry, our new IBM solution greatly increases the real-time value of PHRs for consumers everywhere," said Dan Pelino, General Manager, IBM Healthcare & Life Sciences Industry. "Open standards-based systems and technologies -- freely available to anyone interested in using them -- are key to fueling the development of systems that can share and exchange vital healthcare information on a timely basis, whenever and wherever it's needed."

IBM developed the software based on guidelines from Continua Health Alliance, a globally recognized organization dedicated to enabling interoperable personal healthcare products and solutions. It is also based in part on key open-source software available now from Eclipse and Open Health Tools, which are open-source communities dedicated to supporting advancements in healthcare.

"With close to a quarter of the world's population overweight, more than 600 million people with some form of chronic disease, and millions more reaching retirement age, the time for greater personal health management is now," said Dave Whitlinger, Continua Health Alliance President. "Continua member companies like IBM and Google are working on real solutions that will empower consumers and healthcare professionals to access and share information quickly and easily through connected products and solutions. Together, we can create a new marketplace, improve health and quality of life, and advance personal telehealth worldwide."

The technology behind this open, interoperable advance in PHR function was demonstrated successfully in October at the Partners Connected Health Symposium in Boston, MA, by IBM and Google, with the support of Continua Health Alliance.

(1) World Health Organization. (2005) Ten Facts About Chronic Disease

(2) World Health Organization. (2003). Obesity and Overweight: Dr. P. Puska, Dr. C. Nishida, Mr. D. Porter

(3) World Health Organization. (2006, February 13). The world is fast ageing - have we noticed?

About IBM:

For more information about IBM, please visit www.ibm.com.

The release is found here:

http://money.cnn.com/news/newsfeeds/articles/marketwire/0471635.htm

This is an important release in my view as it shows the work being done to have information flow on patient information flow directly into their PHRs so the information can then be assessed and acted upon. With the evidence strengthening as to the value and effectiveness of remote monitoring the implications for disease management programs seems to be enormous.

I predict a day a few years down the track when virtually all patients with chronic cardiovascular and respiratory disease, as well as diabetes, will be using devices of this type to assess and monitor their progress.

David.

Tuesday, February 17, 2009

Congress Approves Obama Giving Health IT more than $US20 Billion.

Well what can one say? The House and the Senate have decided and Health IT has become a national priority in the US. Of the $800 Billion in the package that is 2.5% of the whole plan.

The bills are ready for the President’s signature on Monday.

If Mr Rudd and Ms Roxon had a clue that would be $A1.05 B here on a proportional basis. That is more than enough to fund the first three years of implementation of the Deloittes National E-Health Strategy (with change!)

Details of the Health IT spend are found here:

Health IT funding spigot will open with stimulus bill

Congress was set today to pass a 1,071-page economic stimulus bill that includes more than $20 billion for health information technology and lays out new rules to protect the privacy of patients’ health information.

President Barack Obama has been urging Congress to act on the bill, and he is expected to sign it Feb. 16, if all goes as planned.

The bulk of the funding will go to Medicare and Medicaid providers — both individuals, such as doctors, and hospitals and other organizations — as substantial incentives to use e-medical records, beginning in 2011.The providers will be penalized if they do not adopt EMRs by 2014 or 2015.

The incentives are spelled out in technical language in a 63-page section of the bill. It appeared there had been few changes in the provisions that would give hospitals as much as $11 million and doctors between $44,000 and $64,000 for using e-medical records.

.....

Nearly one-tenth of the bill’s pages are devoted to health IT. Notable provisions include:

  • Privacy rules under the Health Insurance Portability and Accountability Act of 1996 are strengthened, and their applicability is extended to more individuals and organizations that have access to patients’ health records.
  • ONC is required to appoint a chief privacy officer to advise the national coordinator on privacy and security issues.
  • New health IT policy and standards committees would be established as federal advisory committees.
  • Although the bill sets a goal of having e-health records for every American by 2014, the bill specifies that patients are not required to have EHRs.
  • Health care providers and insurers that contract with the federal government must use standards-compliant health IT systems and products.
  • The National Institute of Standards and Technology would test health IT standards.
  • Organizations and individuals that have patients’ health records would be required to report breaches of that data.
  • Sales of health records would be restricted largely, making the data available to researchers and public health authorities but few others.
  • In a controversial provision that persisted into the final bill, state attorneys general could sue individuals to enforce HIPAA privacy and security standards.

The full article is found here:

http://govhealthit.com/articles/2009/02/13/health-it-funding-stimulus-bill.aspx

There is a staggering amount of commentary and discussion on all this.

The best I can do is suggest you use the following link and browse until you get tired of it!

http://www.google.com/news?hl=en&ned=us&q=%22Health+IT%22+%22stimulus+package%22&btnG=Search+News

A slightly different set of articles is found using this:

http://www.google.com/news?hl=en&ned=us&nolr=1&q=%22e-Health%22+%22stimulus+package%22&btnG=Search

The range of views is really diverse –as is the pathetic scare campaign being run by a Republican rump.

What is quite interesting – and relevant in OZ – is the key role Health IT is seen as playing in the overall Obama health reform agenda. It gets most of the Health spend it would seem.

Obama team sees stimulus advancing health reform

WASHINGTON (AP) — The Obama administration is using the economic stimulus package to show it has made serious progress on the president's health agenda, perhaps softening the blow if Congress fails to comprehensively address the issue this year.

In the legislation passed late Friday, Congress approved spending about $19 billion over the coming years on electronic health records and an additional $1.1 billion on research comparing which treatments work best for a particular disease.

Also, the bill sets aside about $1 billion for a "prevention and wellness fund." About $300 million of that money would provide additional immunizations. Most of the rest of that money will go to state and communities to help them tackle smoking, obesity and various preventable health problems.

"This represents the beginning steps of the president's health reform vision," said Jenny Backus, a spokeswoman for the Health and Human Services Department. "It's designed to get relief to people who need it most and to do everything we can to bring down the cost of health care, and improve access and quality."

Some Republicans took exception to that vision on Friday. They focused their criticism on a new federal council that will coordinate what's called comparative-effectiveness research — when doctors and statisticians sift medical records to determine which treatments work best for a particular disease.

The government already spends hundreds of millions of dollars on such research. Democrats will greatly boost that spending, but they also establish a 15-member council whose members will annually report on the state of comparative effectiveness research and make recommendations.

Republican lawmakers claim the council will become a "government rationing board" that will make life-and-death decisions about which treatments doctors will be able to use.

"Congressional Democrats are using the cover of an economic crisis to advance an agenda that will destroy the doctor-patient relationship and set us on a course for government-administered health care," said Rep. Tom Price, R-Ga., a doctor.

Drug makers and medical-device manufacturers are wary that the council would cut demand for some of their products if they are found not to be any more effective than cheaper alternatives. They fear any recommendation made could be used by Medicare to say it won't pay for a particular treatment, a decision that likely would be echoed by private insurers.

"The goal of this board is to conduct research that will allow the federal government to deny needed health care," said Rep. Wally Herger, R-Calif.

More here:

http://www.google.com/hostednews/ap/article/ALeqM5i5l6XyoVxqyli-VkTOiQHJJPyiCwD96B8LIG0

Well – we will have to wait and see what the NHHRC will recommend in June - given it likes the idea of Health IT but needs more time to figure out the detail!

David.

Monday, February 16, 2009

National Health and Hospital Reform Commission. Interim Report Feb 16 2009

In this blog our focus is in the e-Health domain. Others can address the rest of the report.

First to note the report is available from the NHHRC website.

Under the third key element of the proposals called:

Connecting care: comprehensive care for people over their lifetime

And under the subheading:

Creating strong primary health care services for everyone

We find the following. (Page 8)

“Finally, in our Interim Report we argue that creating a robust and integrated primary health care service will require the implementation of a person-controlled electronic personal health record. Across Australia’s range of community- and hospital-based health care settings the sharing of information is limited, fragmented or non-existent. This results in high dissatisfaction from patients, exasperation from clinicians, adverse events and sub-optimal care.

An electronic health record that can be accessed – with the person’s agreement – by all health professionals and across all settings is arguably the single most important enabler of truly person centred care. It is one of the most important systemic opportunities to improve the quality and safety of health care in Australia. We will explore the prerequisites and incentives to allow us to reach this goal in our final report.”

Under the subheading:

Restoring people to better health and independent living

Under this we don’t seem to have anything on Telehealth

Under the heading:

Facing inequities: recognise and tackle the causes and impacts of health inequities

And the subheading:

Delivering better health outcomes for remote and rural communities

We have the following (Page 16):

“Here we highlight two:

  • Telehealth and telemedicine are used in Australia as an avenue for bringing health care to people in remote and rural areas, but they are not being used to their full potential. With limited exceptions, current Medicare arrangements require that the patient be present for a consultation and that only one provider can bill for a service with the same patient at the same time. Under these arrangements, if a telehealth consultation with a metropolitan specialist is arranged and the rural specialist or general practitioner accompanies the patient, only one of the doctors can bill for this service. These outmoded funding arrangements need to be changed.

  • All state and territory governments provide a patient travel and accommodation assistance scheme to help people in remote and rural areas to access specialist medical appointments and treatment. But there are significant differences among the jurisdictions in eligibility and operation. We propose that a patient travel and accommodation assistance scheme be funded at a level that takes better account of the out-of-pocket costs of patients and their families and facilitates timely treatment and care.”

Interestingly, in the Next Steps section we find the following (Page 27):

“Some of our proposals are less advanced than others. Our work in the key areas of e-health and workforce, for example, needs further development for our final report. In other reform areas we have presented options, seeking discussion of possible approaches.”

Under the major section:

Reform Directions

We find:

2.9 We support the development of a person-controlled electronic personal health record. We will explore the prerequisites and incentives to allow us to reach this goal in our final report.

And:

4.6 T o improve quality, data on quality and safety should be collated, compared and provided back to hospitals, clinical units and clinicians in a timely fashion to expedite quality and quality improvement cycles. Hospitals should also be required to report on their strategies to improve safety and quality of care and actions taken in response to identified safety issues. (Pages 31 and 33)

And:

5.6 We recognise the vital role of equipment, aids and other devices, in helping people to improve health functioning and to live as independently as possible in the community. Ensuring affordable access to such equipment will be considered under reform direction 13.4 that foreshadows further work on the development of integrated safety nets. (Page 34)

Finally we see right at the end of the introductory papers:

“This is an Interim Report and remains a work in progress. We recognise that we are further advanced in some areas of focus than others. Our work in the key areas of e-health and workforce, for example, will be further developed in our final report. We are also yet to fully explore the opportunities and challenges that new technologies may present, and their influence on health care and our world in the future. In some instances, we have presented options and our work to date will benefit from further discussion.” (Page 45)

The ideas summarised above are further developed in Pages 99-100.

On Page 350 we also find:

“The call for better data linkages would of course be unnecessary if all patients had an electronic information record which could be readily ‘mined’ for information on diagnoses, care pathways, treatment and health outcomes. The plea to ‘get going’ with electronic, patient-centred information records, as a rich source of research information and as a pivot for better coordination of safe and high quality care, was heard loud and long:

And my completely earth shattering idea is not very surprisingly the speedy and effective deployment of electronic health records into the community. So that we can start reaping the benefits of the measurement of health outcomes and the efficiencies the workforce would enjoy from being able to message each other instead of having to send pieces of paper round and download x-rays instead of having patients sitting around and all that sort of stuff.40

Our health system really is centred not on patients or individuals, it’s centred around the practitioners and the providers, and that’s just the way it’s evolved historically. So we really don’t have a patient-centred system. So it’s a huge change to get a system to turn around to be focused on the consumer. I think that means that, for instance, a patient-centred system would mean that we should have a patient-centred information record, so that each person can know that there is a record that contains all of the things that are related to their health, and they’re all brought together electronically in the one place, so every person with an interest in their health can access it. So a GP’s interventions, a speech therapist’s work, a medical specialist of one kind or another, a home care worker, could all see the whole story of what’s going on in the person’s life. And we just don’t have that. At the moment, every practitioner keeps their own records in their own filing cabinet, and no-one else can see them. No collaboration can take place – hopeless.41

The complex and controversial subject of e-health, personal health records and information management is one which we have chosen to defer for further exploration in our final report. The vast number of options suggested to expedite a patient-centred electronic record, and leverage the investment required to roll-out and sustain it in practice, require further deliberation.“

So what do we have here? A few general reactions are as follows.

First there is no mention or citation I can find of the Deloittes National E-Health Strategy. This has the left and right hand being clueless about the other feel to it. And why no comment on their implementation roadmap?

Second e-Health seems to have been just too hard – and so consideration has been largely deferred until the final report – due in about six months. One really wonders what they hope to learn in that period having already being operating for 12 months or so.

Third there is just no clarity at all about what a ‘Personal Health Record’ is and absolutely no pathway described as to how we might get there if we think it is a good idea. It is odd they talk about the need for information flows and linkages but then fail to say we get this happening so the PHR can be then evolved a little later.

Fourth one wonders what is behind use of the phrase “The complex and controversial subject of e-health, personal health records and information management”. Is this reflecting a bureaucratic mindset that does quite ‘get it’ or is afraid of it given the stuff ups to date? Complex I agree – controversial – well not really in the rest of the world.

Fifth it is not clear that the Commission recognises how many of its ambitions will be frustrated without an improved e-health infrastructure. “Connected health” is just a phrase without a real e-health upgrade.

Sixth there is a worrying feel that the NHHRC is going to have a go at developing another e-Health Strategy and set of recommendations. That will mean we will potentially have NEHTA, Deloittes and the NHHRC all heading in non-coordinated directions. A prescription for policy paralysis if ever there was one.

Seventh one wonders if deferring consideration of e-health reflects a view as to the importance of the area – and its key role in Health Reform. Hardly what national leaders in the rest of the world believe as far as I can tell.

There is some useful work in this report. However as far as e-Health is concerned it is really pretty hopeless. In summary the NHHRC is saying “we think this might be important but we can’t get out head around it!” Pretty sad really.

David.

Sunday, February 15, 2009

Report Watch – Week of 9th February, 2009

Just an occasional post when I come upon a few interesting reports that are worth a download. This week we have a few.

First we have:

New Best Practice Report on Post Implementation Released

MTC/NEHI engaged CSC (formerly the First Consulting Group) to conduct a national survey of hospitals facing the operational challenges of newly implemented CPOE systems. The specific issues that are covered include:

  • Ongoing Support
  • Optimizing CPOE
  • Ongoing Management of Order Sets and CDS
  • CPOE and Medication Reconciliation
  • Downtime Procedures

The report includes a combination of onsite and telephone interviews with community hospitals that have a large number of physicians using CPOE. The report will be released in early February and distributed to all Massachusetts hospitals and available on our website at www.masstech.org/ehealth.

Access the full report is here:

http://web3.streamhoster.com/mtc/cpoe2009.pdf

This is a useful review of lessons learnt on the operational issues faced in CPOE Implementation. Very useful indeed.

Second we have:

PHRs are operating systems

Posted by Dana Blankenhorn @ 9:07 am

User Centric has a white paper out comparing the usability of Google Health and Microsoft HealthVault. (Picture from Tecni-Blog, a Spanish-language tech blog.)

The news is not good. Both rated poorly in terms of user experience. User Centric has followed up with a set of recommendations.

It occurs to me all this misses a rather important point, namely that Personal Health Record software is not really an application.

It’s more like an operating system.

A PHR has to do many different things for many people. It must be able to take in data cleanly and seamlessly, sometimes automatically. That requires interfaces with hospital records, and with a host of consumer devices. It may also require taking input from alternative therapists, like chiropractors.

Full article here:

http://healthcare.zdnet.com/?p=1742

The paper, "How to Select an Electronic Health Record System the Healthcare Professionals Can Use," is available at usercentric.com.

Third we have:

AHIMA Calls for Data Stewardship

The American Health Information Management Association is calling for establishment of a National Health Data Stewardship Entity. Supporting the exchange of health information, the entity would promote standards for uniform and consistent data.

"This NHDSE would coordinate the bodies that support the life cycle and collection of data exchanged over electronic and other health information exchange systems and the data stored in a variety of repositories or registries," according to a statement from Chicago-based AHIMA.

.....

More here:

http://www.healthdatamanagement.com/news/standards27667-1.html?ET=healthdatamanagement:e754:100325a:&st=email&channel=information_exchange

For the complete AHIMA statement, which covers principals and guidelines; data access, use and control; and recommendations, click here.

A useful working document that should help consideration of similar matters here in OZ.

Fourth we have:

Ontario’s eHealth Strategy

On February 5, 2009, eHealth Ontario published Ontario’s three year eHealth Strategy. It is a working draft created by eHealth Ontario’s leadership and Board of Directors with input from the healthcare sector.

From February 5-19, we invite you to provide feedback to the Strategy, which will be used to finalize the plan that will:

  • Guide investments and operations during the Strategy time frame of 2009-2012
  • Enable/fulfill the government’s strategic healthcare priorities
  • Provide a framework for measuring and reporting progress and results

More here:

http://www.ehealthontario.on.ca/news/strategy_consultation.asp

Download the Draft Strategy here:

http://www.ehealthontario.on.ca/pdfs/News/Ontario_eHealthStrategy.pdf

A very useful document – note the similarity to many aspect of the Deloittes Strategy. The lessons learnt section – pages 6-10 – is well done and spot on!

Fifth we have:

Call for co-ordination on ID card security

04 Feb 2009

ENISA, the EU agency and responsible for assessing Europe’s digital security, has published a position paper highlighting problems with current and planned European electronic ID card schemes.

ENISA (The European Network and Information Security Agency), based in Heraklion, Crete, describes itself as Europe’s centre of expertise for information security, with the mission of ‘defending the future’. The centre operates as a hub for exchange of information and best practices in the field of Information Security.

The new EHISA paper gives the first overview of the differences between privacy features in eID cards across Europe.

There are currently ten national electronic ID card schemes already in use across the EU, with thirteen more in the pipeline.

Electronic ID cards and health smart cards form a key part of the e-health initiatives in European countries including Germany, Austria and France.

More here:

http://www.ehealtheurope.net/news/4541/call_for_co-ordination_on_id_card_security

The report can be found here:

www.enisa.europa.eu/doc/pdf/deliverables/enisa_privacy_features_eID.pdf

It is useful to have a discussion of card security and privacy protection for these cards given the level of penetration of these cards around the world.

Sixth we have:

HIPAA Privacy Rule Fails to Adequately Protect Patient Privacy and Hampers

Health Research; A New Approach to Privacy Protection Is Needed in Research

WASHINGTON -- The Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule does not adequately protect the privacy of people's personal health information and hinders important health research discoveries, concludes a new report from the Institute of Medicine.

Congress should authorize the development of an entirely new approach to protecting personal health information in research, separate from the HIPAA Privacy Rule, said the committee that wrote the report. This new approach should apply privacy, data security, and accountability standards uniformly to information used in all health-related research regardless of who funds or conducts the research.

If policymakers decide to continue relying on the current rule to protect privacy in health research, the committee recommends a series of changes to improve the rule and the guidance that the U.S. Department of Health and Human Services (HHS) gives on how to comply with it.

In addition, the report urges all institutions conducting health research to strengthen their data protection. Security breaches are a growing problem for health information databases. Among the measures that should be taken, encryption should be required for all laptops, flash drives, and other portable media containing such data given the potential for these items to be lost or stolen.

The committee's recommendations recognize the valuable societal benefits that both ethically conducted health research and privacy protections provide. Without such research, society would lose the benefit of new therapies, improved diagnostics, and more effective ways to prevent illness and deliver care. Privacy helps protect individuals from harm, such as discrimination and identity theft, and permits research and public health activities to be carried out in ways that preserve their dignity.

"We believe there is synergy between the goals of safeguarding privacy and enhancing health research and that it is critically important to our nation's health to strengthen privacy protections and still facilitate research," said committee chair Lawrence O. Gostin, professor of law and director, O'Neill Institute for National and Global Health Law, Georgetown University Law Center, Washington, D.C. "Our recommendations aim to boost regulations and practices that effectively protect personally identifiable health information, while changing provisions of the HIPAA Privacy Rule or its interpretations that have proved to be ineffective."

The HIPAA Privacy Rule regulates what uses and disclosures of personally identifiable health information are permitted by health plans, health care providers, and other entities covered by the regulation. The goal is to ensure that individuals' health information is properly protected while allowing the flow of data needed to promote high-quality health care and health-related research.

However, the HIPAA Privacy Rule is difficult to reconcile with other federal regulations governing research involving people and their personally identifiable information. Moreover, organizations that collect and use health data vary greatly in how they interpret and follow the rule, and the rule does not apply uniformly to all health research. The committee's review of published reports, testimony from patient and privacy advocates and the health research community, and other sources of information led it to conclude that the way the rule is currently interpreted does not adequately protect privacy and impedes important health research.

HHS and other federal agencies should develop a new approach to regulation that focuses on best practices in privacy, security, and transparency, the report says. The new framework should facilitate use of health data in which personally identifiable information is removed and should provide legal sanctions against unauthorized re-identification of individuals. It should provide ethical oversight of research in which use of personally identifiable information without individual consent is necessary. This oversight could be accomplished by local ethical review boards that assess proposed projects on a case-by-case basis, or institutions could be certified at the federal level to carry out this kind of research, having proved they have policies and practices in place to protect data privacy and ensure security.

If the current HIPAA Privacy Rule continues to be the means for safeguarding privacy in health-related research, the committee recommended several ways to revise the rule and its guidance on compliance. For example, HHS should make it clear that people can grant permission in advance that samples or data collected from them for one research project can be used in future research. And the agency should simplify and clarify the criteria for making decisions about waiving requirements to obtain permission from every patient whose personal health information will be used in study.

The study was sponsored by the U.S. Department of Health and Human Services, Robert Wood Johnson Foundation, American Cancer Society, American Heart Association/American Stroke Association, American Society for Clinical Oncology, Burroughs Wellcome Fund, and C-Change. Established in 1970 under the charter of the National Academy of Sciences, the Institute of Medicine provides independent, objective, evidence-based advice to policymakers, health professionals, the private sector, and the public. The National Academy of Sciences, National Academy of Engineering, Institute of Medicine, and National Research Council make up the National Academies. A committee roster follows.

Pre-publication copies of Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research are available from the National Academies Press; tel. 202-334-3313 or 1-800-624-6242 or on the Internet at http://www.nap.edu. Additional information on the report can be found at http://www.iom.edu/hipaa. Reporters may obtain a copy from the Office of News and Public Information (contacts listed above).

More here:

http://www8.nationalacademies.org/onpinews/newsitem.aspx?RecordID=12458

The report information is found here:

http://www.nap.edu/catalog.php?record_id=12458

A free summary of the 300 page report is found here:

http://www.iom.edu/Object.File/Master/61/836/HIPAA%20report%20brief%20FINAL.pdf

Well worth a browse.

Last we have a useful link to a range of EU Reports on e-Health.

This page will get you started.

http://ec.europa.eu/information_society/activities/health/downloads/index_en.htm

All sorts of interesting material to browse.

Here is a list of the most recent

2009-02 Study report eHealth in Action - Good Practice in European Countries

2009-01 Project report Semantic Interoperability for Better Health and Safer Healthcare

2008-12 Study Robotics for Healthcare report and Robotics for Healthcare leaflet

2008-12 Conference ICT-BIO 2008 Report

2008-12 Conference WHIT2008 EC Procurement workshop report

2008-11 Communication Telemedicine for the benefit of patient, healthcare systems and society

All these reports and associated materials are worth a close look.

David.