Quote Of The Year

Timeless Quotes - Sadly The Late Paul Shetler - "Its not Your Health Record it's a Government Record Of Your Health Information"

or

H. L. Mencken - "For every complex problem there is an answer that is clear, simple, and wrong."

Saturday, September 05, 2009

Report and Resource Watch – Week of 31, August, 2009

Just an occasional post when I come upon a few interesting reports and resources that are worth a download or browse. This week we have a few.

First we have:

After the needless death of his father, the author, a business executive, began a personal exploration of a health-care industry that for years has delivered poor service and irregular quality at astonishingly high cost. It is a system, he argues, that is not worth preserving in anything like its current form. And the health-care reform now being contemplated will not fix it. Here’s a radical solution to an agonizing problem.

by David Goldhill

How American Health Care Killed My Father

Almost two years ago, my father was killed by a hospital-borne infection in the intensive-care unit of a well-regarded nonprofit hospital in New York City. Dad had just turned 83, and he had a variety of the ailments common to men of his age. But he was still working on the day he walked into the hospital with pneumonia. Within 36 hours, he had developed sepsis. Over the next five weeks in the ICU, a wave of secondary infections, also acquired in the hospital, overwhelmed his defenses. My dad became a statistic—merely one of the roughly 100,000 Americans whose deaths are caused or influenced by infections picked up in hospitals. One hundred thousand deaths: more than double the number of people killed in car crashes, five times the number killed in homicides, 20 times the total number of our armed forces killed in Iraq and Afghanistan. Another victim in a building American tragedy.

About a week after my father’s death, The New Yorker ran an article by Atul Gawande profiling the efforts of Dr. Peter Pronovost to reduce the incidence of fatal hospital-borne infections. Pronovost’s solution? A simple checklist of ICU protocols governing physician hand-washing and other basic sterilization procedures. Hospitals implementing Pronovost’s checklist had enjoyed almost instantaneous success, reducing hospital-infection rates by two-thirds within the first three months of its adoption. But many physicians rejected the checklist as an unnecessary and belittling bureaucratic intrusion, and many hospital executives were reluctant to push it on them. The story chronicled Pronovost’s travels around the country as he struggled to persuade hospitals to embrace his reform.

It was a heroic story, but to me, it was also deeply unsettling. How was it possible that Pronovost needed to beg hospitals to adopt an essentially cost-free idea that saved so many lives? Here’s an industry that loudly protests the high cost of liability insurance and the injustice of our tort system and yet needs extensive lobbying to embrace a simple technique to save up to 100,000 people.

And what about us—the patients? How does a nation that might close down a business for a single illness from a suspicious hamburger tolerate the carnage inflicted by our hospitals? And not just those 100,000 deaths. In April, a Wall Street Journal story suggested that blood clots following surgery or illness, the leading cause of preventable hospital deaths in the U.S., may kill nearly 200,000 patients per year. How did Americans learn to accept hundreds of thousands of deaths from minor medical mistakes as an inevitability?

My survivor’s grief has taken the form of an obsession with our health-care system. For more than a year, I’ve been reading as much as I can get my hands on, talking to doctors and patients, and asking a lot of questions.

Keeping Dad company in the hospital for five weeks had left me befuddled. How can a facility featuring state-of-the-art diagnostic equipment use less-sophisticated information technology than my local sushi bar? How can the ICU stress the importance of sterility when its trash is picked up once daily, and only after flowing onto the floor of a patient’s room? Considering the importance of a patient’s frame of mind to recovery, why are the rooms so cheerless and uncomfortable? In whose interest is the bizarre scheduling of hospital shifts, so that a five-week stay brings an endless string of new personnel assigned to a patient’s care? Why, in other words, has this technologically advanced hospital missed out on the revolution in quality control and customer service that has swept all other consumer-facing industries in the past two generations?

I’m a businessman, and in no sense a health-care expert. But the persistence of bad industry practices—from long lines at the doctor’s office to ever-rising prices to astonishing numbers of preventable deaths—seems beyond all normal logic, and must have an underlying cause. There needs to be a business reason why an industry, year in and year out, would be able to get away with poor customer service, unaffordable prices, and uneven results—a reason my father and so many others are unnecessarily killed.

Like every grieving family member, I looked for someone to blame for my father’s death. But my dad’s doctors weren’t incompetent—on the contrary, his hospital physicians were smart, thoughtful, and hard-working. Nor is he dead because of indifferent nursing—without exception, his nurses were dedicated and compassionate. Nor from financial limitations—he was a Medicare patient, and the issue of expense was never once raised. There were no greedy pharmaceutical companies, evil health insurers, or other popular villains in his particular tragedy.

Indeed, I suspect that our collective search for villains—for someone to blame—has distracted us and our political leaders from addressing the fundamental causes of our nation’s health-care crisis. All of the actors in health care—from doctors to insurers to pharmaceutical companies—work in a heavily regulated, massively subsidized industry full of structural distortions. They all want to serve patients well. But they also all behave rationally in response to the economic incentives those distortions create. Accidentally, but relentlessly, America has built a health-care system with incentives that inexorably generate terrible and perverse results. Incentives that emphasize health care over any other aspect of health and well-being. That emphasize treatment over prevention. That disguise true costs. That favor complexity, and discourage transparent competition based on price or quality. That result in a generational pyramid scheme rather than sustainable financing. And that—most important—remove consumers from our irreplaceable role as the ultimate ensurer of value.

These are the impersonal forces, I’ve come to believe, that explain why things have gone so badly wrong in health care, producing the national dilemma of runaway costs and poorly covered millions. The problems I’ve explored in the past year hardly count as breakthrough discoveries—health-care experts undoubtedly view all of them as old news. But some experts, it seems, have come to see many of these problems as inevitable in any health-care system—as conditions to be patched up, papered over, or worked around, but not problems to be solved.

Much, much more here:

http://www.theatlantic.com/doc/200909/health-care

Mandatory reading for those who want to understand the US health system and the amazing perverse incentives that are going to bankrupt the US unless fixed. (runs to over 20 pages but really worth the read!)

Second we have:

More than 50% of state CIOs working on HIT: report

By Joseph Conn / HITS staff writer

Posted: August 24, 2009 - 11:00 am EDT

Another indication that states—and not regions—may be the cornerstones of health information exchange is that so many state information technology officers are already involved in building exchanges within their jurisdictions, according to a professional association of state government IT officials.

The National Association of State Chief Information Officers, or NASCIO, in a recent report, “Profiles of Progress III: State Health IT Initiatives,” concluded that more than half of state CIOs “were involved at some level with state-driven health IT initiatives … even though financial resources were often uncertain at best.”

The game has changed since the American Recovery and Reinvestment Act of 2009 was passed in February, according to the Lexington, Ky.-based association. The stimulus law provides an estimated $34 billion through Medicare and Medicaid for electronic health-record subsidies for office-based physicians and hospitals. It also appropriated $2 billion for use by HHS' Office of the National Coordinator for Health Information Technology to fund grants to promote IT adoption and information exchange.

More here:

http://www.modernhealthcare.com/article/20090824/REG/308249941

It is wonderful to see how billions motivate. Link to the report is in the text.

Third we have:

Twitter And Health Care -- Can A Tweet A Day Keep The Doctor Away?

ScienceDaily (Aug. 24, 2009) — Twitter, the increasingly popular social networking tool that was at first merely a convenient way to stay in touch with friends and family, is emerging as a potentially valuable means of real-time, on-the-go communication of healthcare information and medical alerts, as described in a feature article in the Medical Connectivity section of the latest issue of Telemedicine and e-Health.

Physician groups, hospitals, and healthcare organizations are discovering a range of beneficial applications for using Twitter to communicate timely information both within the medical community and to patients and the public. Short messages, or "tweets," delivered through Twitter go out from a sender to a group of recipients simultaneously, providing a fast and easy way to reach a lot of people in a short time. This has obvious advantages for sharing time-critical information such as disaster alerts and drug safety warnings, tracking disease outbreaks, or disseminating healthcare information. Twitter applications are available to help patients find out about clinical trials, for example, or to link brief news alerts from the Centers for Disease Control and Prevention (CDC) to reliable websites that provide more detailed information.

Much more here:

http://www.sciencedaily.com/releases/2009/08/090824141043.htm

Interesting article on where Twitter might fit..

The full article and a policy article on Telemedicine and US Health Reform are free on line here.

http://www.liebertonline.com/toc/tmj/15/6

Fourth we have:

Federal funding key to HIT acceleration: report

By Joseph Conn / HITS staff writer

Posted: August 25, 2009 - 11:00 am EDT

One of the key goals of the health information technology financial subsidy provisions of the American Recovery and Reinvestment Act of 2009 is to boost the adoption of electronic health-record systems, particularly at smaller hospitals where studies have shown adoption rates are lower than at larger hospitals.

Just as Congress calculated in larding the recovery legislation with financial incentives, it would appear that money talks.

The prospect of a massive infusion of federal dollars to subsidize EHR purchases—estimated at $34 billion through the Medicare and Medicaid programs alone—was cited as a key reason for an accelerated schedule of IT purchases planned by community hospitals, according to a survey of IT leaders and other community hospital officials conducted by Orem, Utah-based KLAS Enterprises, a market research firm.

And among IT system vendors, according to KLAS, those with a reputation for physician-friendliness are doing well in terms of “mind share” of prospective purchasers. That's because current recommendations for the “meaningful use” criteria that providers must meet to qualify for federal subsidies call for early implementation and some level of use of computerized physician order-entry systems, according to the firm. As a result, some vendors whose products are not typically associated with the small hospital market are at least being considered by community hospital buyers, the KLAS researchers said.

This 104-page report, Disruption in Community HIS Purchases: It's All About Physician Adoption, said it is “a compilation of data gathered from Web sites, healthcare industry reports, interviews with healthcare provider executives and managers, and interviews with vendor and consultant organizations.” (“HIS” is an acronym for hospital information systems.)

KLAS said the report is based on interviews with officials from 64 organizations with hospitals of fewer than 200 beds. About 70% of interviewees were chief information officers, 13% were IT directors, 8% were CEOs or chief financial officers and the remainder were healthcare officials who were “planning to evaluate and purchase” a health information system “within the next few years,” KLAS said. Nearly half plan to make a purchase decision in the next 12 months, the report said.

Much more here:

http://www.modernhealthcare.com/article/20090825/REG/308259981

The report can be purchased here:

http://www.klasresearch.com/Klas/site/Store/ReportDetail.aspx?ProductID=514

Fourth we have:

Personal view: Tim Benson

26 Aug 2009

Standards guru Tim Benson argues that understanding health interoperability, HL7 and SNOMED CT will become increasingly important in this taster of his new book.

When we look back over seven years of the National Programme for IT in the NHS, one of the greatest disappointments has been the failure of NHS Connecting for Health to deliver, implement and deploy the full suite of interoperability standards needed to deliver the right information at the right time and the right place, right across the health service.

Only a small subset of the stringent standards for interoperability called for by Derek Wanless in his report for the Treasury on the future funding needs of the NHS have been delivered; and these mainly consist of links to and from the central Spine. Where are the rest?

Look across the pond

Each of the ‘Clinical 5’ set out by the NHS Informatics Review in 2008 depends on standards to exchange information within and between provider organisations. The standards that are needed have not been agreed nationally, let alone implemented or deployed.

One of the priorities for our national health informatics strategy should be to mandate that all suppliers support nationally agreed interoperability standards for these and other use cases.

We should take note of what is happening in the USA. One of the first very first acts of the Obama administration was to establish by law a federal advisory committee to recommend standards to be used for electronic exchange and use of health information (see http//:healthit.hss.gov).

Understanding interoperability

The base standards of healthcare interoperability are HL7 and SNOMED CT, but these are base standards, not plug and play solutions out of the box. For each and every task, we have to set out and agree stringent specifications or “profiles”, based on the base standards. Each profile must be implemented and deployed in systems at both ends before any information can flow.

Confusingly, the term interoperability applies to three different skill sets; technical interoperability, computable semantic interoperability and process interoperability. Technical interoperability just gets data from A to B, reliably. This is now a commodity, as demonstrated by the Internet and the New NHS Network (N3).

Our immediate focus is computable semantic interoperability, which is to transfer data from system A to system B in a form that system B can process and use – not just display. Electronic data interchange (EDI) of this type typically involves a two-stage translation process.

The first translation is from system A’s local data structure and codes into an appropriate message standard typically using HL7 with SNOMED CT codes. The second translation is from the common standard into the codes and data structures used by system B.

Each message has to be translated twice, by a different set of computer programmers at each end. The avoidance of all error or misunderstanding at this stage is one of the greatest challenges. It is the main reason why interoperability is hard.

Process interoperability occurs when we re-engineer the business processes at each end to provide a much better service. This can only be done once the links are working, but it is the only way to realise the potential benefits of interoperability.

Lots more vital reading here:

http://www.e-health-insider.com/comment_and_analysis/501/personal_view:_tim_benson

This man is one of the global experts (a genuine guru) in the area:

Access his book while you still can.

The full text of Tim Benson’s new book on HL7 and SNOMED is available for download from his web-site - www.abies.co.uk – and will remain so until the book itself is published in November. Benson also runs courses on standards.

Fifth we have:

Pediatrics has unique EMR and HIT needs

August 27, 2009 — 1:15pm ET | By Neil Versel

What works for adults may not be so suitable for children. That's the lesson of a new report on health IT for pediatric care from two California research organizations.

"Children have different health needs, are often served by different caregivers and in different care settings, and in some cases require HIT with different functionality than adults," says the report, a joint effort of the Health Technology Center and The Children's Partnership.

.....

More here:

http://www.fierceemr.com/story/pediatrics-has-unique-emr-and-hit-needs/2009-08-27

For more:

- check out this Healthcare IT News story

- download the report

An obvious truth – but worth raising sooner rather than later.

Sixth we have:

An Effective, If Odd, E-Health Tool

Posted by Mitch Wagner on August 25, 2009 10:46 AM

I admit to having a twisted sense of humor, so I got a lot of laughs out of the CDC's page of e-cards for all occasions--so long as the occasions are celebrated by hypochondriacs.

I especially enjoyed this card to remind people to get prostate cancer exams. And when I say "enjoyed," I mean, of course, "laughed like an 11-year-old at a Three Stooges festival." I mean, for what occasion do you send a prostate exam e-card? Do I even want to know?

More here:

http://www.informationweek.com/blog/main/archives/2009/08/an_effective_if.html;jsessionid=M3EAXIAV0S1NNQE1GHOSKHWATMY32JVN

Other cards you can send include:

"Mammograms Save Lives"

Flu prevention cards

STD cards and text messages

I suppose this is a good idea?

Lastly we have:

Tuesday, August 25, 2009

Work Groups Favor Phasing in Health IT Standards

Once the U.S. health care system completes the transition to digital record keeping, privacy advocates say patients should control where their medical information goes.

That, ultimately, may become standard procedure, but the country's not ready to go there yet, according to the privacy and security work group of the federal Health IT Standards Committee.

"The consent management portion of this is really the nub of the issue," said Steve Findlay, co-chair of the nine-member work group. "We discussed this quite a bit, and we came to the conclusion that measures of consent management are just not ready for prime time. We have to kick that can down the road for a time," Findlay said last week as part of his work group's report to the full Health IT Standards Committee. Findlay represents Consumers Union on the panel.

Like many of the recommendations by other Standards Committee work groups, the privacy and security work group said movement toward ultimate goals would have to be incremental.

"This is a journey with short-term and long-term goals," John Halamka, vice chair of the Standards Committee, said, adding, "Security and privacy are foundational to everything we do, but like other groups, there will be changing goals as our capabilities change."

In updating earlier recommendations on how electronic health records could comply with HIPAA privacy and security rules, the privacy and security work group spelled out some details, but also at times used broad terms to allow for many possibilities.

For instance, some of the work group's recommendations dealing with encryption intentionally avoided offering specific possibilities such as flash drives or other devices.

"Integrity of data is absolutely essential," said Dixie Baker, co-chair of the privacy and security work group. "Some of our most detailed discussion was in the area of encryption. What we finally agreed upon was to phrase it in such a way to force (EHR users) to think through what was possible," Baker said. Baker represents Science Applications International Corporation on the Standards Committee.

Quality, Data Standards To Be Phased In

Two other work groups -- clinical quality and clinical operations -- also recommended phasing in standards for EHRs as called for in the American Recovery and Reinvestment Act. The records would start simply, using a variety of coding techniques and eventually grow more detailed using one set of codes only.

Much more here:

http://www.ihealthbeat.org/Features/2009/Work-Groups-Favor-Phasing-in-Health-IT-Standards.aspx

MORE ON THE WEB

These 3 PowerPoint presentations reflect US progress with very important stuff we should be watching closely here in Australia. None of these issues is unique to the US at all. The concept of ‘meaningful use’ linked to funding seems to be mobilising all sorts of good things so far.

Well worth the downloads.

Enough goodies for one week!

Enjoy!

David.

Friday, September 04, 2009

International News Extras For the Week (31/08/2009).

Again there has been just a heap of stuff arrive this week.

First we have:

Demo shows IT critical to improving care of patients with chronic diseases

August 21, 2009 | Kyle Hardy, Community Editor

ANN ARBOR, MI and DANVILLE, PA – A five-year ongoing study involving 10 large physician practices across the country has so far shown improved quality of care for chronic disease patients from the use of health information technology.

The study, named the Medicare Physician Group Practice Demonstration, was launched by the Center for Medicare and Medicaid Services to enable physician practices to demonstrate that proactive and coordinated care has the potential for larger revenue savings. It is the first Pay-for-Performance project to work directly with physician practices.

The clinics that are taking part in this study include Billings Clinic, Billings, Mont; Dartmouth-Hitchcock Clinic, Bedford, N.H; The Everett Clinic, Everett, Wash.; Forsyth Medical Group, Winston-Salem, N.C; Geisinger Clinic, Danville, Pa.; Marshfield Clinic, Marshfield, Wis.; Middlesex Health System, Middletown, Conn.; Park Nicollet Health Services, St. Louis Park, Minn.; St. John's Health System, Springfield, Mo.: and the University of Michigan Family Group practice in Ann Arbor, Mich..

Of these 10 physician practices, the Geisinger Clinic and the University of Michigan Family Practice Group were two that showed improvements in a least 29 of the 32 quality measures tracked in the third year of the project.

"We focused on hardwiring reminders and alerts into the electronic health record to enhance care consistency and reliability particularly related to diabetes and coronary care as well as ensuring adults receive preventative health screenings," said Frederick Bloom, MD, assistant chief qualify officer, Geisinger Health System.

The Geisinger Health System, which encompasses 40 community practices in central and northeast Pennsylvania, has experienced improved quality of care while lowering the cost to patient from participation in the project. Through the use of their EHR system, the clinic was able to improve care on all 32 categories that include continuing programs for diabetes and coronary artery disease, adult preventative care, and hypertension.

"By participating in this project, we're able to develop more effective ways of consistently bringing quality and value to all our patients, not just the Medicare beneficiaries who are the focus of the demonstration project," continued Bloom.

Results were similar with the University of Michigan Family practice group. Of the 32 measured categories, the UM Family practice group improved care on 29 fronts. Care improvements were made in areas that included diabetes, congestive heart failure, coronary artery disease, hypertension, and breast and colorectal cancer screenings.

"The UM Faculty Group Practice invested significant time and resources in this project because it provided the opportunity to develop and test potential interventions that could improve clinical outcomes and reduce costs for patients with chronic disease," says David Spahlinger, M.D., senior associate dean for clinical affairs. "Our investments have enabled better coordination of care."

Much more here:

http://www.healthcareitnews.com/news/demo-shows-it-critical-improving-care-patients-chronic-diseases

This is an important study –as help for the chronically ill is an area where there is increasing evidence e-Health can make a real difference and save money.

Second we have:

Study Warns of Errors in Australia's Electronic Prescribing

Computer-generated prescriptions were completed with an 11.6 percent error rate at a large Brisbane hospital, twice the 5 percent error rate computed for handwritten prescriptions by the same staff employees, it found.

  • Aug 21, 2009

A new study warns the Australian government's plan to use electronic prescribing in hospitals by July 2012 could increase medication errors unless staffers receive enough training. The study, done at a Brisbane hospital and selected acute wards in Queensland, was conducted for the Australian Commission on Safety and Quality in Health Care. The study found computer-generated prescriptions were completed with an 11.6 percent error rate at the hospital, twice the 5 percent error rate computed for handwritten prescriptions by the same staff employees, Sydney Morning Herald health reporter Louise Hall reported Aug. 20. The Queensland trial was halted early, she added.

The review was published in the journal Australia and New Zealand Health Policy, which has announced it will cease publication in December 2009. The study identified "poorly designed software that automatically filled out scripts to the maximum dose and ordered unnecessary repeat courses," Hall wrote.

The commission's CEO, Chris Baggoley, said electronic prescribing can reduce medication errors and adverse events, but "there is a risk of introducing new errors if the systems are not correctly planned, implemented, and integrated into all the other systems of information operating in a hospital," according to Hall's report in the newspaper.

More here:

http://ohsonline.com/articles/2009/08/21/study-warns-of-errors.aspx

This just shows how misinformation published in the so-called mainstream press can just plain mislead people all over the globe.

See here for a discussion of what rubbish this article is:

http://aushealthit.blogspot.com/2009/08/useful-and-interesting-health-it-news_23.html

Third we have:

HHS to electronically collect hospital bed data for H1N1 flu season

By Mary Mosquera
Saturday, August 22, 2009

The Health and Human Services Department needs updates on a continuous basis on the number of available hospital beds available during the H1N1 flu season starting in the fall.

HHS consequently wants to collect data electronically through an online system called HAvBED, which it already uses in an emergency preparedness program to determine the bed capacity of the nation’s 6,000 hospitals.

During the H1N1 response earlier this year, HHS did not have an adequate understanding of the severity of the outbreak or the resources needed to respond to the crisis, such as ventilators and intensive care unit beds, HHS said in a notice in the Aug. 20 Federal Register.

A number of countries in the southern hemisphere have recently experienced a surge in seriously ill patients, leading U.S. federal health officials to anticipate a similar situation here in the next few months.

Reporting continues here:

http://www.govhealthit.com/newsitem.aspx?nid=72006

An obvious and important part of preparing for the US flu season.

Fourth we have:

HHS to industry: Help assess health IT networks

RFI asks vendors to submit ideas by Oct. 1

The Health and Human Services Department wants industry help to identify the current scope of health information exchanges and how best to foster a nationwide exchange for quality and outcome reporting.

The Centers for Medicare and Medicaid Services (CMS) on Aug. 20 published a request for information for the National Gap Analysis and Readiness Assessment for the Health Information Technology Infrastructure. The project is an outgrowth of the economic stimulus law, which provided HHS with $45 billion to be distributed to doctors and hospitals that buy and "meaningfully use" electronic medical records.

According to the RFI, vendors are invited to submit ideas by Oct. 1 on how to conduct a national scan of existing health IT infrastructures and how to “generate an initial national strategic framework for a national health information infrastructure,” according to the synopsis on the Federal Business Opportunities Web site. There is no guarantee of a procurement, the notice states.

The project’s goal is to support the adoption of electronic health records in the near term and lay the groundwork for broad exchange of patient data.

The entities to be included in the gap analysis and scan are federal agencies, such as CMS, the Health Resources and Services Administration, the Centers for Disease Control and Prevention, state Medicaid agencies, state public health departments, health information exchanges and networks and health providers.

More here:

http://fcw.com/Articles/2009/08/21/HHS-asks-industry-for-help-in-assessing-health-IT-networks.aspx

It is important to evaluate and analyse as you go along if you are going to be successful at the end of the day.

Fifth we have:

Websites Diagnose/Treat Mental Health

Assessing the Reliability of Medical Advice

By anya weimann

August 23rd, 2009 - 08:11 pm PT

While the Web is now a major resource for mental health information, many users and health experts are wondering about the quality of these e-resources when it comes to treating depression and preventing suicide.

From medical e-dictionaries and scientific online journals to virtual counselors and interactive message-boards, e-health sites focus on the exchange of information via email, the use of chat groups and the provision of 24/7 anonymous peer-group support under professional supervision.

According to the World Health Organization, depression will be second largest killer after heart disease by 2020 with studies showing that depression is already the second largest cause of death for those 15 to 44, for both sexes. The current credit crunch has exacerbated work pressures and family strain resulting in more people being diagnosed with some form of mental illness.

In Australia, independent health professionals and the Australian Department of Health and Aging increasingly direct attention to interactive, monitored communication forums, including BeyondBlue.com.au, depressionservices.org.au or webmd.com.

Much more here (registration required):

http://www.orato.com/health-science/websites-diagnosetreat-mental-health

Good to see there is some positive reporting on these excellent Australian efforts.

CDC Readies Internet Barrage To Combat Swine Flu

The U.S. Centers for Disease Control uses a range of Internet services, including Twitter, YouTube, and even games, to help spread flu-protection messages.

By Mitch Wagner, InformationWeek

Aug. 24, 2009

The Centers for Disease Control is preparing several electronic remedies to head off the spread of the H1N1 flu virus. The agency is planning to make use of Twitter, YouTube videos, and text messaging, as well as more traditional tools like e-mail blasts and Web pages. The goal is to saturate the Internet with information about how people can protect themselves against the flu.

The CDC is gearing up its efforts with the approach of autumn, and the flu season, and the possibility of a resurgence of the swine flu virus.

Central to the campaign is putting information on other Web sites, rather than requiring people to come to CDC.gov for information, said Janice Nall, director of the CDC's e-health marketing division. "We're trying to reach people where they are, not necessarily expecting them to come to us," she said. "All of our distribution is on channels that people are already using."

The agency has had some good experience with this approach, Nall said. H1N1 videos on CDC.gov have gotten about 100,000 page views, but the same videos on YouTube got 2.01 million views.

People look for videos on YouTube but not necessarily on the CDC.gov site. The videos are "nothing fancy," Nall said, some are just talking heads. "It's not like they're exciting, sexy videos," she said. "We're just trying to get the content out in video format."

More here:

http://www.informationweek.com/news/healthcare/patient/showArticle.jhtml?articleID=219401216

This is interesting inasmuch as the CDC is planning for their next winter in high summer. Looks like they will be able to make a difference.

Seventh we have:

Depressed people should get online counselling, study says

People suffering from depression should get counselling online to avoid long waiting times to see a doctor, according to new research.

Published: 7:00AM BST 21 Aug 2009

A study of almost 300 patients found that those given cognitive behavioural therapy (CBT) were two-and-a-half times more likely to recover from their mental health problems that those who received standard care from a GP.

One in six adults suffer from depression or chronic anxiety, and online CBT may offer an alternative to the growing problem.

Dr David Kessler, a senior primary care researcher at the University of Bristol and a part time GP, said: "The patients get up to ten one hour appointments which are carried out online by instant messenger.

"Maybe it is the writing things down that helps so much because you have to think more when you do this. It is like being in a chat room with your therapist.

"It would greatly improve access to therapists for people who are disabled, housebound or living in remote locations.

"And you don't have to be some whizzy computer geek to use it. Some of our patients were in their seventies although the average age of people with depression is surprisingly young – around the 30s and 40s mark."

In the study, patients aged from eighteen into their 70s were recruited from Bristol, London and Warwickshire and 149 were given online CBT along with the usual care while 148 got the customary GP sessions.

More here:

http://www.telegraph.co.uk/health/healthnews/6062089/Depressed-people-should-get-online-counselling-study-says.html

Another positive report on e-Health and Mental Illness support

Eighth we have:

ONC, Medicaid, to partner on state info exchange

By Paul McCloskey
Thursday, August 20, 2009

The Office of the National Coordinator’s Federal Health Architecture office is developing a version of its "Connect" software that would help expand health information sharing between Medicaid and other state health offices, as well as with federal and commercial health service agencies.

The project is a collaboration between FHA and the Center for Medicare and Medicaid Services’ Division of State Systems to produce a version of Connect that is enabled for the Medicaid Information Technology Architecture (MITA). MITA is a technology and business roadmap for Medicaid system modernization.

The joint-effort was announced at the Medicaid Management Information Systems conference in Chicago this week.

Leaders of the project envision that Connect could help turn legacy state Medicaid Management Information Systems (MMIS) into engines of health information sharing across states, where health and social services agencies have traditionally been disconnected from one another.

Connect is a software pipe designed by 20 federal health care agencies that allows organizations to exchange health information according to standards for the National Health Information Network.

Full article here:

http://govhealthit.com/newsitem.aspx?nid=71990

This work is gradually sending its tentacles out to all sorts of different areas of the US health sector.

Ninth we have:

Chemists to receive barcoded prescriptions

BARCODES are being added to all prescription forms issued by GPs in a bid to improve safety.

It is hoped that the two-dimensional barcodes will make it safer for patients as community pharmacists dispense prescribed medicines.

More than 1.5 million prescription items are processed each week by pharmacists.

The barcodes will help to eliminate errors that can occur when information is keyed into a computer from a traditional paper prescription.

GP practices across Wales will issue prescriptions containing a barcode, which stores the patient’s prescription information.

This can then be scanned – like a tin of beans in a supermarket – when the patient hands in the prescription to their local community pharmacy.

Information held in the barcode is then entered automatically into the community pharmacy’s dispensing system.

The barcode contains all the prescription information as well as the unique drug codes for each of the medications or preparations prescribed.

Each barcode can hold information for up to four prescription items.

Much more here:

http://www.walesonline.co.uk/news/wales-news/2009/08/24/chemists-to-receive-barcoded-prescriptions-91466-24513189/

Good to see Wales pushing ahead in this important area.

Tenth we have:

Clearinghouse Offers HIEs Free Platform

HDM Breaking News, August 25, 2009

As the nation moves toward a national health information network, some claims clearinghouses have noted that such a national infrastructure--the electronic data interchange networks for routing claims and related transactions--already exists.

Now, clearinghouse vendor NaviNet is making an overt pitch for state- and regional-level health information exchanges and regional health information organizations to use its network--for free--to transmit clinical transactions.

The Cambridge, Mass.-based vendor has sent a letter to the governors of all 50 states offering to make its NaviNet Health Information Exchange network available at no cost. The company would generate revenue via transaction fees paid by HIE users. The platform also would be free to regional HIEs and RHIOs that are state-designated entities. "If I'm the state, I don't need to build the toll road," explains Kendra Obrist, chief marketing officer at NaviNet. "The toll road is in place."

Each letter explains the company, its scope of business in the state and an estimate of annual savings generated in the state by use of the NaviNet network. The letter to California Gov. Arnold Schwarzenegger, for instance, notes 67,637 providers in the state are NaviNet users and saved an estimated $45 million during the past year through the efficiencies of electronic communications.

"Yet, while the benefits of establishing health information exchanges are clear, so are the challenges. In the last 20 years, we have seen community health information networks and regional health information organizations fail due to expensive and complex technologies, lack of funding and poor adoption," the letter states. "By utilizing NaviNet at no cost, California has an immediate opportunity to improve healthcare services for all of your citizens, reduce cost and create a better, more efficient healthcare system."

More here:

http://www.healthdatamanagement.com/news/NHIN-38876-1.html?ET=healthdatamanagement:e983:100325a:&st=email

This can’t be a bad thing!

Eleventh for the week we have:

VA glitch leads vets to false Lou Gehrig's diagnosis

By Jennifer Lubell / HITS staff writer

Posted: August 25, 2009 - 11:00 am EDT

A computer glitch mistakenly led more than 1,200 veterans to believe they had a fatal illness. According to the National Gulf War Resource Center, the Veterans Affairs Department erroneously sent out letters to veterans telling them they had “a diagnosis of amyotrophic lateral sclerosis,” or ALS, otherwise known as Lou Gehrig's disease.

As a result, the Gulf War veterans group was barraged by phone calls from veterans concerned that they had a terminal illness. “Many of these veterans went to private clinicians to get a second opinion. This second opinion outside of the VA is very expensive and can range from $1,000 to $3,000 or more,” the center said in a written statement on its Web site.

More here (registration required):

http://www.modernhealthcare.com/article/20090825/REG/308259979

Not a good look at all – more care definitely needed!

Twelfth we have:

HHS explains regional centers funding plan

By Joseph Conn / HITS staff writer

Posted: August 28, 2009 - 5:59 am EDT

The HHS officials in charge of setting up a national extension service to aid office-based physicians and other providers in the deployment and “meaningful use” of health information technology fleshed out details of the $694 million program during a Web-and-telephone conference Thursday.

As many as 1,250 participants logged- or dialed-in to hear and ask questions about the ground rules to apply for $643 million in grant money to be awarded over a four-year period to about 70 not-for-profit organizations that will run the regional extension centers.

The bulk of the money, $598 million, will be spent in the initial two years, beginning in 2010, getting the regional centers up and running. During that startup period, an estimated 90% of the funding for the regional extension program will come from federal dollars, with the balance coming from state or local matching government funds, foundation grants or fees the centers will be allowed to charge providers for their services.

The government estimates its subsidies of the centers will shrink to $45 million during the second, two-year period, as the centers move to self-sustainability and obtain 90% of their funding from local sources and fees. After four years, the regional centers will be on their own, expected to continue operations on whatever revenue streams they can muster without federal support.

A formal set of instructions on how to apply for the regional extension service grants and a separate summary of the program were published last week on the Web site of the Office of the National Coordinator for Health Information Technology at HHS.

Another $50 million has been allocated to a National Health Information Technology Research Center, which will serve as a resource for the regional program.

More here (registration required):

http://www.modernhealthcare.com/article/20090828/REG/308289957

The details seem to be coming quite quickly and attracting interest as expected.

Thirteenth we have:

Sen. Kennedy's absence leaves health IT void

By Matthew DoBias / HITS staff writer

Posted: August 27, 2009 - 11:00 am EDT

Sen. Edward Kennedy, who championed healthcare information technology legislation during his nearly 50 years on Capitol Hill, died Tuesday night at his home on Cape Cod after a year-long battle with brain cancer. He was 77.

“He will long be remembered as a champion for the causes he believed in. He leaves behind a long list of bipartisan legislative accomplishments, the impact of which will continue to be felt for generations to come,” said Sen. Mike Enzi (R-Wyo.), Kennedy's co-sponsor on the Wired for Healthcare Quality Act.

The wide-ranging health information technology bill, even though it passed preliminary legislative hurdles, ultimately died over privacy and other concerns.

The healthcare IT industry as well as the U.S. insurance market were profoundly influenced by Kennedy's legislative work.

Kennedy teamed with former Sen. Nancy Kassebaum (R-Kan.), who, as healthcare historian Paul Starr recounts, Kennedy referred to as “the kinder and gentler” senator from Kansas, in co-sponsoring a piece of bipartisan health reform legislation in 1996, then known as the Kennedy-Kassebaum bill. (Republican Bob Dole was the senior senator from Kansas at the time.)

More here (registration required):

http://www.modernhealthcare.com/article/20090827/REG/308279988

Senator Kennedy certainly did some important stuff in the Health IT domain. Vale Edward M. Kennedy.

Fourteenth we have:

Thursday, August 27, 2009

Electronic Decision Support for Medical Imaging Advances National Goals

by Scott Cowsill and Liz Quam

The Imaging e-Ordering Coalition's goal is to promote electronic ordering of diagnostic imaging services through the use of computerized clinical decision-support tools (e-Ordering). These physician-friendly tools help guide clinicians to order the most appropriate diagnostic test: the right test (evidenced-based) every time. Additionally, the process electronically documents the appropriateness of each order, providing value-assurance to the patient and measurable, comparable data to the payer (insurer).

e-Ordering Benefits

We believe that robust and swift health provider adoption of e-ordering for diagnostic imaging services is a key method to achieving the continuous quality improvement, cost savings, patient safety and care coordination goals of the Obama administration. Therefore, we are advocating that Congress move to include e-Ordering for Medicare beneficiaries in the final health reform package.

Further, there is currently an opportunity to incorporate a strong and more timely provision to promote electronic ordering of imaging studies with real-time clinical decision-support and with tracking and reporting functions into the administration’s definition of “meaningful use" of electronic health records. The members of the Imaging e-Ordering Coalition firmly believe that continuously improved care, with cost reduction for imaging services, can be achieved through the use of computerized order entry that includes an evidence-based electronic decision-support tool with a reporting function, and the ability to facilitate appropriate consultation with a board certified radiologist. These capabilities can and should be included in both ambulatory and inpatient EHR systems.

The e-Ordering tools are available for real-time support, derived from best-practices guidelines developed by the American College of Radiology, the American College of Cardiology, the American College of Physicians and other significant groups focused on clinical appropriateness. Such real-time, electronic tools must be able to attach the decision-support feedback regarding appropriateness to the claim and the record, thereby allowing quality reporting and measurement. Additionally, these tools can and must facilitate the ability of the ordering physician to undertake a collaborative discussion, when appropriate, with an expert radiologist to help guide the ordering decision.

Much more here:

http://www.ihealthbeat.org/Perspectives/2009/Electronic-Decision-Support-for-Medical-Imaging-Advances-National-Goals.aspx

Interesting stuff and clearly important.

Fifteenth we have:

Bradford plans Lorenzo expansion

28 Aug 2009

Bradford Teaching Hospitals NHS Foundation Trust is due to take Lorenzo live in a ward environment in the middle of September.

The trust initially deployed the electronic patient record system from iSoft in a weekly joint replacement clinic in April.

In a statement for E-Health Insider, the trust said: “The use of Lorenzo in our consultant clinics continues to go well, and further roll-out work continues to accelerate.

“The go-live data for ward-based requesting is scheduled for mid-September, enabling us to take advantage of a new software release that allows the system to be upgraded without any downtime. It also coincides with the arrival of our new intake of junior doctors.”

More here (registration required):

http://www.e-health-insider.com/news/5157/bradford_plans_lorenzo_expansion

Good to see Lorenzo is making steady headway.

Fifth last we have:

Pharmaceutical industry funding will help fight meth labs in Missouri, Kansas

By JOE LAMBE
The Kansas City Star

In Kansas and Missouri, new laws say a methamphetamine cook shouldn’t be able to get enough of his key ingredient to make a good-size batch.

Except that neither state can afford to fund the laws, which are intended to link pharmacy records and prevent multiple purchases of cold medicine.

As a result, a meth cook can go from one store to another, buying the legal maximum of cold medicine — a source of the key meth ingredient — at each store until he has all he needs.

That should change with the pharmaceutical industry’s offer to fund a linked database in Kansas and Missouri.

It is a move designed to better combat meth labs, and also could fend off attempts to legislate cold medicine into a prescription drug.

Final touches are being put on public-private agreements with the Consumer Healthcare Products Association.

More here:

http://www.kansascity.com/news/politics/story/1407865.html

Seems like industry trying to do something really useful with technology

Fourth last we have:

Assessing Demand for EHRs

HDM Breaking News, August 28, 2009

The Medicare and Medicaid incentives for adopting electronic health records will lead to a gradual build in demand for the software, rather than a surge, one investment analyst says. “That’s because some portion of the market will want to wait to see the final rules,” says Raymond Falci, managing director of Cain Brothers & Co., New York, who tracks public health care I.T. firms.

On Aug. 20, David Blumenthal, M.D., national coordinator for health information technology, predicted that the final definition of the “meaningful use” of electronic health records that will be used to determine eligibility for incentive payments under the economic stimulus program will not be available until the middle or end of spring 2010. The preliminary definition of meaningful use requirements will be issued by the end of this year, followed by a 60-day comment period, Blumenthal said.

This timing for defining meaningful use, which is later than many expected, may mean demand for EHRs will ramp up more gradually than if the details were known sooner, Falci says. Regardless, health care organizations are dividing into two camps: Those that are moving forward with plans to qualify for federal electronic health records incentive payments and those that are waiting for the final regulations on incentives, he says.

“A lot of hospital CIOs and group practice administrators have told me that they need to get started now” to ensure they qualify for maximum incentives by having a qualifying EHR in place by 2011, the analyst says.

Falci speculates that the federal government might wind up pushing back all the deadlines called for under the American Recovery and Reinvestment Act, much as it did when creating the rules to carry out HIPAA. “My guess is, in the big picture of what the government is trying to accomplish, they’re going to have to modify the timeline.”

Lots more here :

http://www.healthdatamanagement.com/news/ARRA-38893-1.html

I suspect the comments that demand will build only reasonably slowly will prove to be true.

Third last we have:

Law Firm Spells Out HHS Breach Rule

HDM Breaking News, August 27, 2009

The law firm Nixon Peabody LLP recently sent to clients an article explaining provisions of the Department of Health and Human Services' recent rule governing breaches of unsecured protected health information. Health Data Management received permission from the firm to publish the article. The firm emphasizes that the article is intended as an information source and readers should not act upon the information without professional counsel. Linn Freedman, a partner and head of the firm's health information technology division, is the author. The following is the article:

HHS issues breach notification requirements for covered entities and business associates

On August 19, 2009, the Department of Health and Human Services (HHS) Office for Civil Rights (OCR) issued an interim final rule ("the Rule") related to the Health Information Technology for Economic and Clinical Health Act (HITECH) requiring covered entities under the Health Insurance Portability and Accountability Act of 1996 (HIPAA) and their business associates to provide notification to individuals of breaches of unsecured protected health information to unauthorized individuals. In addition, HHS issued an update to its guidance specifying the technologies and methodologies that render protected health information (PHI) unusable, unreadable, or indecipherable. Section 13402 of HITECH, enacted on February 17, 2009, requires HIPAA covered entities and their business associates that "access, maintain, retain, modify, record, store, destroy, or otherwise hold, use, or disclose unsecured protected health information" to notify the affected individual and the Secretary of HHS following the discovery of a breach of unsecured PHI. In addition, in some instances, HITECH requires notification of a breach to the media. Covered entities must provide the Secretary of HHS with a log of breaches on an annual basis, and the Secretary of HHS will post the list of entities that experienced breaches of unsecured PHI involving more than 500 individuals on the HHS website.

Much more here:

http://www.healthdatamanagement.com/news/breach-38892-1.html

This is a useful discussion of the issues around data breaches in the US Health System environment of personal health information. There are ideas here we might consider.

Second last we have:

Online Patient Data May Open New Doors In Medical Research

Aug 25, 2009

"Since the Internet's earliest days, patients have used the Web to share experiences and learn about diseases and treatments. But now [advocates say] online communities have the potential to transform medical research," the New York Times reports. The latest development was spurred in part by patient groups like the LAM Treatment Alliance, which hopes to speed research on the fatal respiratory disease that afflicts young women. The group created "LAMsight, a Web site that allows patients to report information about their health, then turns those reports into databases that can be mined for observations about the disease."

More here:

http://www.kaiserhealthnews.org/Daily-Reports/2009/August/25/Online-data.aspx

This is a trend worth keeping an eye on – especially for the more unusual diseases it seems to me.

Last, and very usefully, we have:

Are Personal Health Records the Right Path?

Carrie Vaughan, for HealthLeaders Media, August 25, 2009

This past week, Vanguard Health Systems, which operates 15 hospitals in four states, joined a growing list of healthcare organizations and employers that plan to offer personal health records to patients or employees. Vanguard joined the Dossia Consortium of employers that have pledged to implement PHR software for their employees.

I wrote about whether personal health records would be a temporary fix or here for the long haul in the August 2009 issue of HealthLeaders magazine PHRs: Worth the Effort.

Given the emphasis on personal health records in the "meaningful use" recommendations by the HIT Policy Committee, it seems that PHRs are here to stay, which I, for one, believe is a good thing.

However, not everyone is convinced that PHRs are the right path for healthcare to take. Some physicians are concerned that the "art" of medicine is being replaced by templates and checklists and that electronic health records along with PHRs could suffer from the quality of data that is entered and exchanged. Other executives believe that the patient web portal may be the better solution.

That is the route Group Health Cooperative in Seattle took when it implemented its patient Web portal. Its philosophy is that the medical record should be a shared document between patients and caregivers that provides the same data to both of them, says Ernie Hood, vice president and chief information officer. The patient view of the information does include some additional definitions and health management information, he explains.

The challenge of PHRs is that until a large number of providers are interfacing with PHR products their use will be for the patients only--and a relatively small number of people currently maintain and actively use them, Hood says. Still, he acknowledges that PHRs will play an important role in the continuity of patient information as patients move between providers.

Much more here:

http://www.healthleadersmedia.com/content/237939/topic/WS_HLM2_TEC/Are-Personal-Health-Records-the-Right-Path.html

This and the link in the text are well worth browsing. Good perspectives on PHRs.

There is an amazing amount happening. Enjoy!

David.

Thursday, September 03, 2009

It Seems the Confusion Regarding PHRs and EHRs has Spread.

The following articles have appeared recently. Since the Conservatives are very likely to win the next general election what they are saying is very important for e-health in the UK. Do read on – there is some Australian relevance as well!

Conservatives pledge to ‘halt’ LSP deals

10 Aug 2009

The Conservative party has pledged to scrap the NHS Spine and halt and re-negotiate the two main contracts with BT and Computer Sciences Corporation in order to revamp NHS IT.

The promises came as the Conservative’s endorsed the findings of an independent review of the £12.7 billion NHS National Programme for IT, which has called for the five-year old project to be radically rewritten and the local service provider contracts to be “halted and re-negotiated”.

The role of the centre should also be confined to standard setting and catalogue procurement centrally “The catalogue should encourage smaller providers to innovate and develop solutions that better meet the needs of patients and the clinicians providing their care.”

The Conservative-endorsed review says the national NHS infrastructure, including the NHS spine, should be broken up; the LSP contracts held by BT and CSC halted and rewritten; and nationally procured systems replaced by a wider range of accredited systems chosen locally.

It concludes “the National Programme must not be abandoned”, and calls for an immediate freeze and renegotiation of the NPfIT local service provider (LSP) contracts. “Subject to any applicable constraints, halt and renegotiate the Local Service Provider contracts to save further inefficiencies with regard to cost and delivery”.

The focus for planning and decision making on IT systems should instead be passed back to local NHS trusts, with centre only retaining responsibility for essential infrastructure and standards.

The Conservatives and the review reaffirm the central objective of universal adoption of electronic patient records within the NHS, but say a new locally-based approach is needed to achieve this. To achieve this they say the two current two LSP-provided clinical systems, iSoft and Cerner, must be supplemented by a wider choice of accredited systems, through a framework catalogue.

Shadow Health Minister Stephen O’Brien said “The top-down bureaucratic National Programme has been plagued by delays and cost over-runs.” He said that without sight of the BT and CSC LSP contracts it was impossible to say how they could be changed, or how much had been spent or committed, but promised “there will be savings”.

Asked about the cost of re-negotiating the LSP deals, O’Brien said he was giving the firms advanced notice of a future Conservative government’s intentions and hoped to be able to work with them. But he also acknowledged getting out of current deals was unlikely to be cost free.

On the costs of a future re-negotiation he said: At the moment you have a lot of duplication, and have a lot of people trying to buy their own local systems and go outside the national contracts.”

The review says that personal health records – such as Google Health and Microsoft HealthVault – may have a useful role to play, but are no substitute for development of detailed local electronic patient records, which should remain the focus of NHS IT strategy. O’Brien said the Conservatives will launch a public consultation to find out how much control of their records people want.

More here:

http://www.e-health-insider.com/news/5109/conservatives_pledge_to_%E2%80%98halt%E2%80%99_lsp_deals

The reports and responses are here:

Links

Independent Review of NHS and Social Care IT (1.3Mb)

Conservative party response to the independent review

However on Page 3 of the second document they say the following.

3. PERSONAL OWNERSHIP OF HEALTH RECORDS

Governments across the world are introducing IT systems that enable greater personal control of health records.

France, Canada, the United States, Germany and Austria have all adopted IT programmes that include personal health records.

Patients in Canada and the United States have the option of storing health information on the web. In both cases, a local record is also held by the doctor overseeing a patient’s care.

Patients in France, Germany and Austria all hold electronic ‘smart cards’ through which they can access a record of their health information – data which is also held by the clinician in charge of their care, either on a central database or in local data stores.

We accept the Review’s recommendation that the NHS should consult with patients on how much control they want over their health records.

New technologies being developed by the private sector will enable individuals to maintain their own health records on a personal data platform, and to choose whether or not to share this information with third parties – all at little or no cost to the taxpayer.

Personal Health Records run by the private sector mean little or no cost to the taxpayer if they are procured in a fully developed form. Unlike the Government-run IT systems, which seem to be characterised by a tendency to let the taxpayer foot the bill for product design, the Conservatives would seek to purchase IT products that are ready for implementation. We would therefore save money and improve efficiency.

Greater personal control of health records can lead to significant benefits. It can empower patients, allowing them to share information with third parties if they choose to do so. Giving patients greater control of their data can also drive social and commercial innovation, and enable communities of patients to come together online and discuss their conditions and treatments.

In addition, personal control of health records can improve communications between patients and clinicians.

For example, patients can make comments on their records, adding details of additional medication being taken or other symptoms and conditions.

---- End Quote.

Yet again we have the implied suggestion that PHRs can replace provider systems. At least the review conducted by the professionals was clear that is not the case!

While on the UK I mentioned this a few days ago when discussion Shared Records.

Shared Record Professional Guidance (SRPG)

The purpose of the Shared Record Professional Guidance (SRPG) project was to develop a set of professionally led guidelines that would consider the governance, medico-legal and patient safety consequences of Shared Electronic Patient Record (SEPR) systems in primary care.

More here:

http://www.rcgp.org.uk/get_involved/informatics_group/shared_record_professional_guidance.aspx

The project report is presented in three documents:

SRPG final report (25 pages)

SRPG final reference report (140 pages)

SRPG quick reference guide (8 pages)

This discussion focuses on what is planned to be a detailed EHR which is made shareable – rather than the much simpler – but still tricky – sharing of a brief clinical summary. The most recent manifestations of the NEHTA IEHR seem to veer much towards the detailed rather than just a very limited summary. This would be a lot clearer if there was more information in the public domain!

These principles make it clear just how many issues need to be addressed to get it right. Read slowly and you will feel very tired indeed at the complexity of addressing all this! (Page 3 and 4 of the SHG) Note SEPR/sDCR stands for Shared Electronic Patient Record / Shared Detailed Clinical Record.

2. Principles for record sharing

Principle 1.

The success of SEPR/sDCR programmes should be measured alongside the operational characteristics of these programmes allowing evaluation of such systems in a wider context.

Principle 2.

Joint guidance on record sharing should be produced and maintained collaboratively by professional regulatory bodies and representative organisations to ensure a multiprofessional approach to record quality, consistency and clarity.

Principle 3.

A community using a SEPR/sDCR system should establish governance rules and processes that ensure the clear allocation of responsibility and define the rules and mechanisms for its transfer. The rules need to be clear on who has responsibility for content and for action based on the record content within and between organisations.

Principle 4.

SEPR/sDCR systems should be designed to support the governance principles outlined in Principle 3 (above).

Principle 5.

Health professionals should have a shared responsibility for maintaining and assuring data quality in SEPR/sDCR systems.

Principle 6.

Health professionals should be properly educated and trained to meet their legal, ethical and professional responsibilities for using and managing SEPR/sDCR systems. This should form part of their ongoing professional development.

Principle 7.

Semantic issues should be considered in the design and implementation of SEPR/sDCR systems so that meaning is preserved and must be sensitive to issues of language, interpretation and context.

Principle 8.

Governance arrangements should be in place to deal with errors and differences of opinion in SEPR/sDCR systems.

Principle 9.

Organisations should have the facility to update/correct erroneous information added to their DCRs from other sources, (with the original information retained in the audit trail).

Principle 10.

Content and provenance data should identify unambiguously the originator or editor of each entry in the SEPR/sDCR.

Principle 11.

SEPR/sDCR should to be able to store and present information in styles that meet the particular user’s needs.

Principle 12.

SEPR/sDCR systems should improve the quality and safety of care by facilitating communication and coordination between health professionals and informing best clinical practice.

Principle 13.

SEPR/sDCR systems should support structured communications between users (e.g. referrals).

Principle 14.

Health organisations should be able to explain to patients who will have access to their SEPR/sDCR and must make information available to patients about such disclosures.

Principle 15.

Health professionals should respect the wishes of those patients who object to particular information being shared with others providing care through a SEPR/sDCR system, except where disclosure is in the public interest or a legal requirement.

Principle 16.

There should be an organisational (or team) guardian with clinical and information governance responsibilities for that organisation’s shared and organisational DCRs, in order to assure best practice is followed.

As I said a few days ago, these are well worth the download!

David.