Useful and Interesting Health IT Links from the Last Week – 04/05/2008

Again, in the last week, I have come across a few reports and news items which are worth passing on.

These include first:

Brailer's Health Evolution Partners makes its first investment

By Bernie Monegain, Editor 04/28/08

Health Evolution Partners, the investment management firm founded by the nation's former national healthcare information technology chief, has made its first investment - an undisclosed amount - in e-prescribing company Prematics.

As a result of the funding, David J. Brailer, MD, will join Prematics board of directors.

Brailer, founded Health Evolution Partners in 2007 after he resigned from his post as national coordinator for healthcare information technology, appointed by President Bush.

Health Evolution Partners Innovation Network (HEPIN) led the Series B round of funding.

"The time is right for investing in electronic prescribing," Brailer said. "We looked at numerous ways for Health Evolution Partners to enter this market, and Prematics was by far the best choice. We have committed the financial resources and expertise that Prematics needs to be the nation's leading electronic prescribing company."

More here:

http://www.healthcareitnews.com/story.cms?id=9112

A report on the value and utility of e-prescribing is found here:

http://www.healthevolutionpartners.com/eprescribing_Outlook_0428.pdf

It is interesting to the Dr David Brailer invest in e-prescribing. He clearly thinks these approaches have a big future.

Second we have:

Patient identifier key to health system reform

29-Apr-2008

By Megan Howe

The development of a unique patient identifier is absolutely essential to achieve successful reform of the Australian health system, according to a peak lobby group, which claims the government’s e-health body is floundering.

Releasing three position papers calling for wide-ranging reform of the health system, the Australian Healthcare and Hospitals Association (AHHA) said a unique patient identifier was the “most important undertaking which underpins all other recommendations, requiring immediate implementation”.

AHHA policy project officer Ms Cydde Miller said privacy concerns about the patient identifier needed to be addressed, but without its introduction, reform was impossible.

“We can’t do large-scale population health analysis and find out what is going on with the health of Australians [without it],” she said.

“People are mobile and to have one national patient identifier will reduce the amount of work clinicians do because they can go into the system and get a full medical history from everyone.”

The association criticised the government body charged with developing the nation’s e-health system, the National E-Health Transition Authority (NEHTA).

“The AHHA is concerned that progress in Australia on improving information within and about the health system has been waylaid by a lack of focus and direction in the national work program led by NEHTA. Due to a range of impeding factors, this process is struggling to maintain the engagement of all necessary partners in such a significant undertaking,” it stated.

Continue reading here if you have access:

http://www.australiandoctor.com.au/articles/fb/0c055ffb.asp

It is good to see the professional press picking up some e-Health suggestions. The full documentation is found here:

http://www.aushealthcare.com.au/publications/publications_by_group.asp?id=3

Third we have:

Austin Health completes phase one of rollout under HealthSmart program

System currently used by 400 staff

Sandra Rossi 30/04/2008 12:29:56

Victorian health care provider, Austin Health, has just completed phase one of a HR rostering and payroll system that has reducing processing time by 70 per cent.

The workforce planning and management system, which was first piloted last year and is currently being used by 400 employees, is being rolled out under the Victoria government's HealthSmart program.

This system will be integrated with other HealthSmart systems across the state.

The standardised platform from Kronis Incorporated provides award interpretation, time and attendance, employee pay conditions and rostering.

In coming weeks Austin Health will begin the second phase of the project to automate roster generation.

The generation process will take into account both employee requests and skills to meet clinical and patient care requirements.

Austin Health's HR systems project manager, Leslie Bell, said the system reduces the amount of time taken by line managers to prepare and manage rosters and by payroll staff to process pay.

"The system has reduced the time required to enter the data for payroll processing by 70 per cent, and reduced the errors and warnings by delivering accuracy in excess of 99.5 per cent, which was unheard of previously," Bell said.

"All the payments made to employees in the pilot areas have been checked and verified, with the system exceeding expectations."

More here:

http://www.computerworld.com.au/index.php?id=1855751830&eid=-6787

It is good to see HealthSMART is having some success. Of course it is very early to claim success with only 400 staff being paid by the system – given the number of staff in the Victorian Health System. As an example there are 6,000 doctors and 30,000 nurses in the Vic Public Health System. Again, while important, we see success with administrative systems when what is really needed is clinical system success.

Fourthly we have:

Hospital worker 'sold celeb details'

From correspondents in Los Angeles

April 30, 2008 08:51am

Article from: Agence France-Presse

US federal prosecutors have charged a former employee of a Los Angeles hospital over selling information from celebrities' medical files to the media.

Lawanda Jackson, 49, was an administrator at UCLA Medical Centre, which recently announced it had taken action against several staff for peeking at the private records of singer Britney Spears and actress Farrah Fawcett.

She was indicted on April 9 for "accessing the private medical records of celebrity patients at the UCLA Medical Centre and selling information obtained from those files to a national media outlet," the prosecutor's office said.

More here:

http://www.news.com.au/story/0,23599,23621512-23109,00.html

Good to see such behaviour is taken seriously in the US. We must be alert to make sure there are sufficient disincentives in place in Australia as well.

Fifth we have:

Cancer Council drops legal action

By Drew Cratchley and Rosemary Desmond

April 28, 2008 05:19pm

Article from: AAP

THE fight against cancer in Queensland is set to benefit after the Cancer Council Queensland and the State Government ended a dispute over access to case records.

The council announced today it was dropping a Supreme Court action it launched earlier this month against Queensland Health in which it sought routine access for researchers to statistics from the Queensland Cancer Registry.

The Council wanted better access for researchers to analyse data and assess the effectiveness of cancer screening and prevention programs. The Government had resisted the request due to concern over possible breaches of patient privacy.

But last week Queensland Health Minister Stephen Robertson said the Government had received updated legal advice that the release of the information would not breach the Public Health Act.

More here:

http://www.news.com.au/story/0,23599,23610935-29277,00.html

It is good to see this silliness resolved with sanity prevailing.

Sixth we have:

How Personal Health Records Could Make Care Less Efficient

Posted by Jacob Goldstein

High hopes are afoot for personal health records, online homes where patients can store their medical information to take from doctor to doctor and keep track of things like prescriptions and test results. Microsoft and Google, among others, are jumping in the patient-controlled record pool.

But on a visit to Health Blog HQ yesterday, Steve Leiber — who runs Healthcare Information and Management Systems Society, the trade group for health IT — pointed out a potential downside to the patient-centric records.

“Physicians aren’t going to trust it,” he said.

That could be trouble if patients opt for the personal records and try (because of privacy concerns, say) to keep their medical information off of a doctor or hospital’s electronic medical record.

Patients could show up and hand over their memory stick or a Internet address for the files, but doctors on the receiving end might be wary of believing what the records says. “It’s outside a protected chain,” Leiber says. “The second doctors are going to repeat those tests.”

Still, he said, there are potential benefits to the approach. Many trips to the emergency room would go much more smoothly if the patient or a family member could direct the ER staff to a record that lists a patient’s allergies and current meds.

And they could work as a complement to (rather than substitute for) electronic medical records kept by doctors and hospitals. “I see you’ve been seen for X,” a doctor might say to a patient after reviewing his or her personal electronic files, Lieber said. “May I contact this practitioner [to get your medical record]?”

Continue reading here:

http://blogs.wsj.com/health/2008/04/25/how-personal-health-records-could-make-care-less-efficient/?mod=WSJBlog

This blog triggered a useful set of comments that are well worth reading by those interested in the potential of the PHR.

Last we have:

Technology that saves children's lives

Teleconferencing paired with medical diagnostic equipment helps save children's lives worldwide

Mary K. Pratt 29/04/2008 09:38:24

Frank Brady expects to celebrate a significant milestone in June: His Medical Missions for Children charity will treat its 30,000th child that month.

That's an impressive record for the nine-year-old nonprofit organization, which connects leading US doctors with doctors and their pediatric patients all over the world.

MMC uses telecommunications technology and other IT tools to bridge gaps in knowledge, treatment and geography. The organization has created what it calls the Global Telemedicine & Teaching Network to enable US-based doctors to consult with foreign pediatric physicians through a distance-medicine network called the Telemedicine Outreach Program so they can help diagnose and treat children worldwide. Technology also has allowed MMC to expand its services to include educational content for health care providers and patients in multiple countries.

"MMC fulfills a host of health- related needs throughout the world," says Alberto Salamanca, the Mexico-based president of MMC's Latin America region. "Technology has proven to be the most important tool to carry the mission and vision of MMC."

In some ways, Brady, 65, has spent his whole life readying himself for this mission. After he contracted spinal meningitis as a 1-year-old, the doctors told his parents that their son had only three weeks to live. But a week later, they suggested trying penicillin -- at the time, an experimental drug that hadn't been tested on pediatric patients.

The treatment worked, convincing Brady's mother that the boy was spared so he could do something special with his life. Brady's path thereafter wasn't unusual. He spent most of his 35-year career working in international business.

More here:

http://www.computerworld.com.au/index.php?id=929483641&eid=-255

This is a heart-warming story to start the week with. Good to see some real successes with telemedicine and good to see how some initiative can have it happen. Well worth a read!

More next week.

David.

The Risks of the Cut and Paste!

This interesting editorial appeared in the recently.

Electronic records prone to error, docs write in New England Journal of Medicine

By Bernie Monegain, Editor 04/17/08

Electronic health records could be a tool for perpetuating errors, warn two Harvard physicians in an article published Thursday in the New England Journal of Medicine.

The physicians urge their colleagues to take an unvarnished look at EHRs even as they are championed by President Bush and companies like Microsoft and Google.

The article, written by Pamela Hartzband, MD, and Jerome Groupman, MD, who both work at Beth Israel Deaconess Medical Center in Boston and teach at Harvard Medical School, outlines the pitfalls of using electronic records. It is published along with other articles on EHRs.

One of the major problems with EHRs, the authors say, is that they invite users to cut and paste information. While some information has to be repeated, and cutting and pasting can seem efficient, it also can compromise accuracy.

"Many times, physicians have clearly cut and pasted large blocks of text, or even complete notes, from other physicians; we have seen portions of our own notes inserted verbatim into another doctor's note," the authors write. "This is, in essence, a form of clinical plagiarism with potentially deleterious consequences for the patient. "

The impetus for this type of wholesale cutting and pasting into the record is usually to pass scrutiny for billing, they say.

More here:

http://www.healthcareitnews.com/story.cms?id=9081

On the basis that many readers will have access to the full text – the reference is as follows.

Off the Record — Avoiding the Pitfalls of Going Electronic. Pamela Hartzband, M.D., and Jerome Groopman, M.D. New England Journal of Medicine Volume 358:1656-1658 April 17, 2008 Number 16.

One really has to worry about some editorialists.

It seems pretty clear to me what their main concern is that some clinicians will use the technology to create unreliable and un-thought through clinical notes.

Well I have some news for them. In the old days of written records there was widespread use of both clinical note templates – of the type being cited here - and the widespread use of abbreviations and shortcuts to minimise the effort of note taking and record keeping. It was just as possible then as now to keep the mind in neutral.

There is nothing new under the sun as the saying goes.

As an example, it was always a toss-up as to whether the widely used abbreviation N.A.D. meant No Abnormality Detected or Not Actually Done!

The solution here, as it is in so many other situations, is education combined with basic common sense and a recognition that in-accurate documentation is a risk to both the patient and the clinician’s career.

This editorial would have been greatly improved by an emphasis on clinical responsibility in record keeping rather than being a whinge about the misuse of ‘cut and paste’!

David.

A Few of the Wrinkles of the Shared Electronic Health Record.

A really interesting article and more than one useful comment came to my attention a few days ago. The topic was an issue close the heart of your blogger – just how complex and hard it might be to make a shared EHR actually work in the real world.

Does Lorenzo mean the end of GP electronic patient records?

15 Apr 2008

GP computing has been one of the great success stories in patient care and the use of IT in the NHS.

Since its earnest start in the early 1980s, GP records have gone from paper based narratives held in A5 Lloyd George envelopes to fully interactive records, capable of handling the complexities of modern patient care, including the Quality and Outcome Framework (QoF) used for performance related pay and its central reporting mechanism, Quality Management and Analysis System (QMAS).

Without the universal use of electronic GP records throughout the UK, neither the targets introduced in 1990, nor the 2003 new General Medical Services contract, would have been achievable.

In the North, Midlands and East (NME), the area where Computer Sciences Corporation (CSC) is the Local Service Provider (LSP) under the National Program for IT (NPfIT), CSC is planning to introduce Lorenzo, which is understood to incorporate GP records, by 2010.

At present, CSC are supporting TPP SystemOne as their official alternative GP solution, with a view to incorporating it fully into Lorenzo by 2010.

Managing shared records

A great deal has been written about access to medical records held centrally, including the Summary Care Record (SCR) and the risks of unauthorised access. However, as far as I am aware, little or no attention has been paid to the management of the record itself. Has full consideration been given to the management of how such shared records should be arranged?

Lorenzo is planned as an early manifestation of the SSEPR (Single Shared Electronic Patient Record), defined as “a single electronic patient record for each individual patient used by, and contributed to by, all the organisations caring for that patient”, and scheduled to be introduced within two years.

Regardless of the access controls (and who controls access permissions), there are problems in managing a SSEPR which should concern everyone – and for which at present, I believe, no-one is claiming responsibility.

According to board minutes, Yorkshire and the Humber SHA is currently introducing a new shared record system to local NHS organisations, using a GP system with an integrated community module. The approach used within the TPP SystmOne SSEPR is understood to only let records be amended by whoever made the original entry.

The rationale for this is that the record also belongs to the organisations outside the general practice and only the organisation making the entry can change it: GPs can alter GP entries, community can change community entries and so on.

But using shared records that can only be amended by the service that made the original entry may present some worrying hazards.

Take the example of the patient who is sent to chiropody and returns with a diagnosis of diabetes mellitus, which the GP knows to be wrong; the entry on the records can then only be amended by the service that made the wrong diagnosis originally.

Currently Diabetes Mellitus gets picked up quickly thanks to the searches developed for QOF, and it is expected that patients with the diagnosis have the disease and should be managed appropriately.

Much more (and at least 8 comments) here:

http://www.ehiprimarycare.com/comment_and_analysis/309/does_lorenzo_mean_the_end_of_gp_electronic_patient_records_tcq

This is really a very important discussion as it raises the complexities and questions that sit beside the choice to develop a Shared EHR.

Among these questions are:

1. Does it make sense to deploy a Single Shared EHR (SSEHR) with all the patient information held in a single record – or is it more sensible to share just extracts as envisaged in HealthConnect? As soon as you go down the latter path you face the question of what data you hold where and how access to the detail is controlled.

2. Who is the owner of the record given it is built up from the contributions of many? This then leads on to all the questions about who can edit, change etc and how much trust can be placed in the record. There are also real medico-legal issues that arise as soon as any actual editing of the record becomes possible – if indeed it is permitted.

3.What access should each professional class have to the information in the record. Is there any value in having the pharmacist know about an abortion that was carried out 30 years ago?

4. Who has full access to the record – sealed containers and all. The GP, the patient, relevant specialists or who?

5. What access is the patient to have to the record and under what circumstances should information be held but not disclosed to the patient.

6. If sealed containers are to be permitted – are they totally invisible to others – or are they flagged as existing with a note to contact the individual authorised to open them? This goes to the issue of trust in the completeness of the record.

7. With virtually all EHR’s having considerable amounts of free text, how can highly sensitive, but un-coded information, be properly protected with any consistency.

8. Is there a good benefits case for sharing any more than a basic Continuity of Care record – at the very least in the first instance. Seems to me it makes sense to learn to walk before on tries to run!

These and many other issues are raised in the article and the comments. All worth a very careful read.

Until sound workable policy and work practices can be developed to address ALL these issues we need to hasten slowly down this road in my view. The time to address these issues is earlier than later in the Shared EHR development process. NEHTA are you listening?

David.

Personal Health Records (PHR) hitting the Big Time!

There is a sudden burst of activity it seems on the PHR front!

We have first:

Empowering consumers with their health records

Canada to take a close look at PHRs

April 17, 2008 - As the Internet has enabled consumers to manage important aspects of their personal lives from the relative comfort of their home, it is no surprise that Canadians are becoming increasingly intrigued by the prospect of being able to view and manage their health information using emerging personal health records (PHR) technologies.

Recent announcements by major players in the IT industry suggest such capabilities are just around the corner. Recognizing developments in this area are moving quickly, Canada's federal, provincial and territorial health ministries have expressed support for Canada Health Infoway's (Infoway) plan to discuss personal health record solutions with interested vendors and to explore how these technologies could be made available to Canadians in a secure manner.

"Providing Canadians and their health care providers with appropriate and secure access to their health information has been our goal from the onset," said Richard Alvarez, President and CEO of Canada Health Infoway, the federally-funded, independent, not-for-profit organization that is leading the adoption of electronic health records across Canada. "The prospect of seeing consumer health solutions in the Canadian marketplace is an exciting development indeed. It is also critical that we ensure these offerings provide the appropriate level of trust, protecting the privacy and security of Canadians' health information."

"The Government of Canada, through its funding of Infoway, is investing in the national transition from paper to electronic health records," said the Honourable Tony Clement, Federal Minister of Health. "I am pleased that personal health record solutions will complement and leverage our investments to date in e-health solutions. With the appropriate ground work in place, PHRs will ultimately deliver greater value to Canadian patients."

"Canadians are taking increasingly active roles in managing their chronic diseases and preventing illness from setting in," said Chris d'Entremont, Minister of Health for Nova Scotia, who serves as the liaison minister between Infoway and federal, provincial and territorial health ministers. "Our investments in the implementation of electronic health records are crucial to our goal of ensuring Canadians have access to the information and tools they need to manage their care. The onset of personal health record solutions can accelerate our desire to enable patients to have these capabilities."

A number of technology vendors have expressed interest in creating solutions that will equip Canadians with the technology they need to view their medical data. Working with Infoway and its partners will help ensure the solutions available to Canadians will leverage the progress made in implementing electronic health record projects across Canada. Using technology solutions that are compatible with Infoway's blueprint will ensure patient privacy and security provisions are adhered to.

More here:

http://www.infoway-inforoute.ca/en/News-Events/InTheNews_long.aspx?UID=313

And

Warning on Storage of Health Records

By STEVE LOHR

In an article in The New England Journal of Medicine, two leading researchers warn that the entry of big companies like Microsoft and Google into the field of personal health records could drastically alter the practice of clinical research and raise new challenges to the privacy of patient records.

The authors, Dr. Kenneth D. Mandl and Dr. Isaac S. Kohane, are longtime proponents of the benefits of electronic patient records to improve care and help individuals make smarter health decisions.

But their concern, stated in the article published Wednesday and in an interview, is that the medical profession and policy makers have not begun to grapple with the implications of companies like Microsoft and Google becoming the hosts for vast stores of patient information.

The arrival of these new corporate entrants, the authors write, promises to bring “a seismic change” in the control and stewardship of patient information.

Today, most patient records remain within the health system — in doctors’ offices, hospitals, clinics, health maintenance organizations and pharmacy networks. Federal regulations govern how personal information can be shared among health institutions and insurers, and the rules restrict how such information can be mined for medical research. One requirement is that researchers have no access to individual patients’ identities.

…..

The authors say that consumer control of personal data under the new, unregulated Web systems could open the door to all kinds of marketing and false advertising from parties eager for valuable patient information.

Despite their warnings, Dr. Mandl and Dr. Kohane are enthusiastic about the potential benefits of Web-based personal health records, including a patient population of better-informed, more personally responsible health consumers.

…..

Peter Neupert, the vice president in charge of Microsoft’s health group, said that he admired the authors and that they raised some important issues. But he resisted the suggestion of extending Hipaa to newcomers like Microsoft and Google.

“Philosophically and politically, I am skeptical of the concept of paternalism,” Mr. Neupert said in an e-mail response to the article, which he was sent, and to the authors’ comments. “It never turns out to be ‘limited.’ ”

…..

Dr. Mandl and Dr. Kohane are physicians and researchers at Children’s Hospital Boston, the primary pediatric teaching hospital of the Harvard Medical School.

Read the full article here:

http://www.nytimes.com/2008/04/17/business/17record.html?_r=2&scp=10&sq=health+care&st=nyt&oref=slogin&oref=slogin

And

Feds lay groundwork for PHR adoption

By Diana Manos, Senior Editor 04/16/08

Members of a federal healthcare IT advisory panel workgroup considered recommendations Tuesday from the Centers for Disease Control and Prevention on how best to push personal health records.

CDC is one of the few federal agencies making headway in using the Internet in all its various forms to promote health messages.

…..

Federal efforts to promote PHRs should include working with PHR providers to find out the current level of satisfaction, as well as gathering quantitative data on performance through formal user testing, Nall said.

In addition, the CDC recommended that AHIC should:

• conduct research to determine the health impact of PHRs;

• determine who is actually using PHRs;

• use social media, or interactive online methods, to engage existing and potential PHR users;

• test PHR promotion plans on blogs to find out public reaction;

• establish a panel of social media leaders, PHR providers and marketing leaders to work on the promotion plan;

• and engage stakeholders early in process.

Nall said she will run CDC's recommendations through several top healthcare blogs to get public feedback prior to the workgroup's next meeting.

Workgroup Co-Chairman Anne-Marie Robertson said the group is charged with encouraging the uptake of PHRs well into the future. She recognized there is "a huge amount of work going on as major players in the industry are engaging in building PHRs and trying to market them. " She was uncertain as to whether AHIC should conduct its own market research.

…..

Read full article here:

http://www.healthcareitnews.com/story.cms?id=9077

It seems clear from all this activity – with all this appearing in a single week – the idea of PHRs is really taking off and being actively discussed and thought through.

The 2020 Summit HealthBook proposal is a reasonable first thought – but more flesh is needed on these bones, and as I said recently we don’t want to reinvent any wheels here. There are a huge number of variations on the theme out there!

To me a core issue is how much PHR and how much social networking is the right mix in a HealtBook. Both technologies seem to have transformative capabilities – it will be interesting indeed to see how things evolve.

One of the things the 2020 Summit should have addressed is how the use Medicare Australia’s databases to start such things in Australia. I wonder did someone raise the idea?

David.

Healthbook - An Idea Whose Time has Come?

In an amazing co-incidence just a day or two after the 2020 Summit raised the idea of the Healthbook the following press release arrived.

Social Media's Challenge to Traditional Health Care

Patients, Providers, Researchers, and Advocates Forge Online Connections

April 22, 2008

Social media on the Internet are empowering, engaging, and educating health care consumers and providers, according to a new report, The Wisdom of Patients: Health Care Meets Online Social Media, published by the California HealthCare Foundation (CHCF). "Innovative collaborations online among groups of patients, medical professionals, and other health care players are challenging the notion that health care happens only between a single patient and doctor in an exam room," said report author Jane Sarasohn-Kahn, M.A., M.H.S.A., a health economist, management consultant, and health blogger. "This movement is known as Health 2.0."

The Emerging Role of the Internet in Health Care

"The Internet plays a central role in finding health information," said Veenu Aulakh, M.P.H., CHCF senior program officer. "More consumers now go online for health information and support than consult their physicians. The Web is also becoming a platform for convening people with shared concerns and creating health information that is more relevant to consumers. CHCF is exploring the use of social media as a tool to help people manage chronic conditions." Social media include online communities, blogs, videos, wikis, and other formats for sharing information.

The role of the Web has evolved from the information-retrieval of "Web 1.0" to "Web 2.0," which allows people who are not necessarily technologically savvy to generate content. At the same time, social networks ranging from MySpace to specific disease-oriented sites are blossoming. According to the report, social networks in health are proliferating so rapidly that new services are already under development to help health consumers navigate through them.

"Consumers are well ahead of other health stakeholders in adopting social media in health," said Sarasohn-Kahn. "People with chronic conditions are sharing their stories with each other, not just for emotional support, but for the clinical knowledge they gain in an online community. Doctors are meeting online to share quandaries about challenging cases and solutions that work. And researchers are coming together with patients to learn about side effects in real-time to improve therapeutic regimens."

Examples of Health 2.0 Sites

Among the Health 2.0 sites discussed in the CHCF report is DiabetesMine, a blog started by a journalist with adult-onset Type 1 diabetes. Her target audience is people with diabetes, caregivers, providers, payers, and the health care industry. Another site is PatientsLikeMe, a social health network and online forum. The target audience is patients with ALS (amyotrophic lateral sclerosis), multiple sclerosis, Parkinson's disease, or HIV/AIDS, as well as related caregivers, providers, and researchers. People share personal data on prescription drug histories, side effects, and what works in managing their conditions. Its patient-reported dataset has been presented at scientific meetings and used in peer-reviewed research. Another site, WEGO Health, is a social health network and wiki. The target audience is "prosumers" (expert consumers) who want to dig deeper and with more specificity into health topics. For example, someone could search for videos about diet and lifestyle changes among African Americans with Type 2 diabetes.

In addition to specialized sites, more than 500 groups meet on Facebook to discuss diabetes; more than 2,000 chemotherapy-related photos are posted on Flickr; and some 36,000 YouTube pages are devoted to some aspect of surgery. And that is just a sample of the kind of interactive media related to health that exist for patients online.

Can the Sites Be Trusted?

The CHCF report examines the benefits and concerns regarding Health 2.0. While privacy concerns may prevent potential users from getting involved, the report notes that people in search of health information and support are often willing to trade off aspects of their privacy in exchange for valuable services, as long as the sites clearly state how personal health information is used. The report points out criticisms that content provided by non-expert individuals could lead to adverse effects or even death, while noting that social media proponents contend that misinformation doesn't remain posted for long, and that collective wisdom is, by its nature, self-correcting.

Are Social Media Sustainable and What Comes Next?

The report describes various Health 2.0 business models (such as data aggregation and sharing; information arbitrage; advertising; sponsorship; and integration into health care delivery systems) that offer the potential to make sites sustainable.

According to the report, the growing demand for transparency will drive the evolution of social media in health. Sarasohn-Kahn writes that "shining a light on the data by which payers and consumers make purchasing decisions can help drive more rational, cost-effective choices." She offers as examples new sites the combine consumer reviews, peer reviews, and empirical data on a doctor's quality. Another example is a new health plan model that claims to be the health equivalent of Travelocity. "Consumer-generated content in health has found a receptive audience in Web 2.0," said Sarasohn-Kahn. "Patient opinion leaders have emerged in many disease areas. They will become a key influence on other consumers and, increasingly, the organizations who serve them."

Additional Social Media and Health Resources

The report includes brief portraits of social media health pioneers. It also provides an extensive list of resources on Health 2.0, health social networks, health wikis, patient blogs, health podcasts, and health video-sharing sites.

Contact Information

Marcy Kates
California HealthCare Foundation

510.587.3162

The press release is found here:

http://www.chcf.org/press/view.cfm?itemID=133633

The full report can be downloaded from this page

The Wisdom of Patients: Health Care Meets Online Social Media

The full report is really well worth a download an browse – only being about 30 pages and having a useful bibliography and list of sites to visit.

The issue with the 2020 Healthbook proposal at this point is the lack of clarity with the proposal. All we have from the preliminary report is the following:

“Create a "Healthbook" (like Facebook) for Australians to take greater ownership of their health information and electronically share it with people they trust – for example their doctor, nurse or family members. Users could control their health “friends” and their level of access, share data as desired, and ask for real time advice on health issues. By 2020, this might include sharing your own genetic data with your doctor or family. This would put the individual squarely at the centre of the health system.”

Clearly the next step is to consider the various forms of social networking and the various forms of Personal Health Records and determine just what might be the best to keep the patient in the centre while involving the professionals and other more formal information sources e.g. Medicare Australia, Pathology labs and so on.

The issue could certainly, and should in my view, be considered as part of the development of the National E-Health Strategy.

Tomorrow a little more on the more standard PHRs.

David.

Useful and Interesting Health IT Links from the Last Week – 27/04/2008

Again, in the last week, I have come across a few reports and news items which are worth passing on.

These include first:

Lorenzo software almost ‘ready’ for use

21 Apr 2008

Senior NHS IT staff at two of the Lorenzo pilot sites have told E-Health Insider off the record that the initial version of the software looks promising and, subject to testing, is ready for use in the English NHS.

Following months of testing, senior NHS managers from two of the three initial Lorenzo sites, told EHI that after much configuration, the first limited R1 version of the software is now ready for use in the North, Midlands and East Programme for IT.

The R1 software, which is not spine compliant, is designed to offer trusts some initial clinical benefits. It is understood to offer requests and results reporting (though not requesting), some views of electronic patient records, and some elements of a patient administration system.

However, despite their positive assessment the contacts declined to discuss the software in detail or go on the record, telling EHI it would place them in breach of their contract with CSC. Similarly, CSC refused to comment.

The long-awaited software, developed by iSoft and delivered by the CSC Alliance, was first meant to be delivered by the end of 2004. The initial R1 version of the software is now promised by summer for initial limited delivery to four NHS organisations in three pilot sites: South Birmingham, Morecombe Bay, Bradford and Nottingham.

More here:

http://www.e-health-insider.com/news/3671/lorenzo_software_almost_%E2%80%98ready%E2%80%99_for_use.

If true, this is really good news for the NHS. Time will tell I am sure!

Second we have:

State seeking e-health damages

Sean Parnell | April 22, 2008

THE Queensland Government has raised the stakes in its legal row with developer TrakHealth and is seeking almost $100 million in compensation for a failed e-health contract.

When Queensland Health scrapped a $30 million hospital software contract with TrakHealth three years ago, the company took Supreme Court action to recoup $18 million in losses and unspecified damages.

TrakHealth, which was to supply a patient administration system and a clinical information system, accused the government of compromising the project and damaging its reputation.

"Queensland Health's behaviour was unreasonable and unconscionable," a TrakHealth spokesman argued at the time, as the company sought work elsewhere.

In its defence, Queensland Health involved US-based InterSystems, which now owns TrakHealth, and database pioneer Terry Ragon, filing reams of documents in the Brisbane Supreme Court to demand $21.5 million in compensation.

Queensland Health argued that TrakHealth misrepresented itself and its product, MedTrak, ahead of an order being placed in 2003, while Mr Ragon, the founder of US-based InterSystems, failed to intervene to limit Queensland Health's losses.

Earlier this month, Queensland Health amended its defence and counterclaim to seek $98.2 million in compensation to cover the increased cost of delivering such software in the current market.

Continue reading here:

http://www.australianit.news.com.au/story/0,24897,23576350-15306,00.html

This is a real mess. It will make a riveting story when it reaches the courts and we hear the ‘facts’ both sides put to defend themselves and try and win some damages. Stay tuned!

Third we have:

Healthbook could be online soon: expert

April 21, 2008 - 2:57PM

A national healthcare website proposed at the Australia 2020 summit could be set up by next year.

The proposed website, named Healthbook, would allow individuals to store their own health information electronically and share it with doctors, nurses or family members.

University of New South Wales (UNSW) researcher Professor Enrico Coiera said such a system could be in place by next year.

"This is exactly the sort of thing we are very keen to try and build," he said.

Professor Coiera and his team was currently working on a prototype website that assists people searching for health-related information and sharing it with others.

"We want to use smart search technologies to help everyone get the most relevant health information and make it Australian specific," he said.

"We also want to use the Facebook model to allow people to share it with each other."

More here:

http://news.smh.com.au/healthbook-could-be-online-soon-expert/20080421-27jy.html

It is good to see there is some work already underway in Australia. I guess we do, however, need to be careful not to ‘re-invent the wheel’. What is under discussion her is essentially a Personal Health Record with some Health 2.0 attributes and there are a wide range of models for this already developed both here and overseas. A blog later will address this is more detail.

Fourthly we have:

Cancer Council, Government make deal on cancer data

Article from the Courier Mail.

Janelle Miles

April 21, 2008 12:00am

THE State Government has backed down over its refusal to provide life-saving data to Cancer Council Queensland scientists who had been preparing for court.

Urgent talks at the weekend between Cancer Council chief executive Jeff Dunn and Queensland Health officials appear to have resolved the issue, which has hindered research for two years.

Health Minister Stephen Robertson yesterday said the council would no longer need Queensland Health approval to obtain and distribute information from the state's cancer registry to researchers.

The move came after examples of George Street's determination to hide details from the public were highlighted in Parliament.

The Courier-Mail on Saturday revealed 40 secrets the Government wants to keep, undermining Premier Anna Bligh's claims of being open and accountable.

However Ms Bligh, in Canberra yesterday, again claimed to be "at the national forefront of promoting continuing new standards of open and accountable government" when she spruiked the review under way into Queensland's freedom of information regime.

More here:

http://www.news.com.au/couriermail/story/0,23739,23569069-3102,00.html

I note it took about 24 hours for the Health Minister to have his Department find a way to work in a more timely way with the Cancer Council – and a good thing too!

I must say the 40 secrets the Government wants to keep makes great reading – and some of them are genuinely ridiculous.

Fifth we have:

Health privacy 'at risk'

Article from: Sunday Herald Sun

Peter Rolfe

April 20, 2008 12:00am

THE Brumby Government has admitted its $323 million computer system for public hospitals may not protect patient confidentiality, a whistleblower doctor says.

The Melbourne physician says patient privacy is compromised in the overdue HealthSMART project.

He believes it will reveal intimate information "to literally anyone in the world".

Dr Peter Lazzari said personal records about abortions, suicide attempts and diseases could become public information under the system, to be launched in May next year, two years behind schedule.

Dr Lazzari was one of several doctors briefed on the project by the Department of Human Services late last year.

He said doctors had been told confidentiality problems were "under consideration" but were unlikely to be resolved.

Physicians, worried that patients' intimate details could be accessible to thousands of Victorians, had quizzed the Government about potential breaches of privacy. They were told it was not a priority.

"They had no answer to the concerns," Dr Lazzari said.

More here:

http://www.news.com.au/heraldsun/story/0,21985,23565228-2862,00.html

I suspect this may be a bit of a beat-up, but if not, it is a considerable worry. It is clearly vital that there are clear and appropriate privacy guidelines in place to guide all system implementations. On a related matter I hear there is a privacy review regarding the NSW Healthelink project following some of the recommendations from the Australian Law Reform Commission recently. Does anyone know anything about this?

Sixth we have:

Audit Report Unduly Harsh: Analyst

A report into the $323 million Victoria’s HealthSMART project found the project was already $34.8 million over budget, a figure disputed by the government and Health Department

Sue Bushell 24 April, 2008 12:10:23

A Victorian Auditor-General's report that claimed lack of a detailed business case had led to project delays and budget blow-outs in Victoria's HealthSMART project has been criticized as being unduly harsh.

The report into the $323 million project, "the most far-reaching ICT change program ever undertaken by the Victorian Public Health System (VPHS)", found the project was already $34.8 million over budget, a figure disputed by the government and Health Department.

And Auditor-General Des Pearson said the project had been let down by the lack of a detailed business case, which in turn led to difficulties attracting skilled staff and in ensuring vendors performed and their contractual obligations.

He said the Department of Human Services needed a concerted focus on outcomes and benefits to ensure the state's investment in process engineering by harnessing technology is realized as planned.

Ovum public sector research director Dr Steve Hodgkinson defended the HealthSMART project team against the claim that it had failed to develop a business case

Continue reading here:

http://www.cio.com.au/index.php?id=262489251&eid=-601

This is interesting to see someone put the view that being over budget and late is OK for a project. Everyone recognises how hard these projects are to deliver, but the way they are planned should take that fact into account – not say ‘oops’ four to five years into it!

Last we have:

Study points to need for 40,000 more healthcare IT professionals

Healthcare IT News

By Bernie Monegain, Editor 04/18/08

WASHINGTON - As the nation's healthcare system moves toward automation, the need for healthcare information technology professionals in the workforce is growing. The need is deemed to be at almost 40 percent more - or 40,000 additional IT employees at U.S. hospitals, according to a new study.

William Hersh, MD, professor and chairman of the Department of Medical Informatics & Clinical Epidemiology at Oregon Health & Science University, presented the findings Thursday at a meeting of the Steering Committee on Telehealth and Healthcare Informatics on Capitol Hill.

U.S. Rep. David Wu (D-Ore. ) moderated the meeting. Wu authored a bill (H.R. 1467) addressing the need to train more healthcare IT professionals, which the House passed recently. The bill is awaiting Senate action.

More here:

http://www.healthcareitnews.com/story.cms?id=9087

If the usual multiplier applies (the US is about 20 times the size of OZ), then this means we are short 2,000 in Australia. Time for a few proper courses and some proper career structures to be developed I think.

More next week.

David.

SA Health Reveals E-Health Plan!

Good news it would seem!

While browsing for another project I happened to find a site-map for the South Australian careconnect.sa program web site.

In looking around I found the documents I have been asking for to help understand the SA Health Department's plans. Funnily the page is not accessible, as best I can see, other than via the site-map (i.e. the navigation bar does not seem to point to it).

Anyway - now found - we have 2 very useful documents.

The first is a 2006-2010 IM&T Strategy - dated end 2005 and the second is a costed implementation plan dated about a month ago.

Both can be found here:

http://www.careconnect.sa.gov.au/Default.aspx?tabid=191

It would be good if these two were made a little easier to find and making them easier to find would certainly help in stopping me complaining about their absence!

No matter - my fault - I missed them - me culpa!

David.

Your Blogger Works to Make a Contribution.

A National Health Policy Roundtable, which was hosted by the Australian Healthcare and Hospitals Association (AHHA) on Monday 21 April, delivered three comprehensive position papers to the Federal Minister of Health & Ageing's office, recommending a broad range of reforms across the spectrum of the health system.

"The three position papers covered the following critical areas for the future of our health system:

Data and Benchmarking;

Information Management; and

Service Integration.

"The event was a great success and achieved the overall goal of developing practical policy options that will make the health system safer, more efficient and more transparent to consumers," said Ms Prue Power, AHHA Executive Director.”

The important paper, from the perspective of the this blog is the Information Management paper.

Your blogger worked with Dr Michael Legg and Mr Richard Dixon-Hughes to draft this submission – assisted by a great number of excellent contributions from all sorts of experts – all listed in the document.

This all took days of voluntary non-paid effort on the part of all – and they all deserve a decent amount of thanks for the free contribution that was made.

A good read to see what I, and others, think we should be doing in e-Health in short term. The exception is the last recommendation, which was not discussed with the drafting group, and which I think needs a bit more thought.

The joint AHHA, HISA document can be found on the page identified here

http://www.aushealthcare.com.au/publications/publications_by_group.asp?id=3

Enjoy.

David.