Quote Of The Year

Timeless Quotes - Sadly The Late Paul Shetler - "Its not Your Health Record it's a Government Record Of Your Health Information"

or

H. L. Mencken - "For every complex problem there is an answer that is clear, simple, and wrong."

Saturday, July 21, 2012

Weekly Overseas Health IT Links - 21st July, 2012.

Note: Each link is followed by a title and few paragraphs. For the full article click on the link above title of the article. Note also that full access to some links may require site registration or subscription payment.
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HL7 to Explain CDA and CCD Standards in Stage 2

JUL 11, 2012 5:34pm ET
Standards development organization Health Level Seven International on July 13 will host a free Web seminar on the Clinical Documentation Architect Release 2.0 (CDA) and the Continuity of Care Document (CCD).
Both standards are proposed for use in Stage 2 of the electronic health records meaningful use program. CDA is HL7’s standard for exchanging clinical documents, such as discharge summaries, imaging reports, admission and physical forms, and pathology reports, among others.
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Thursday, July 12, 2012

Supreme Court Decision: What We've Learned and Where We're Headed

On June 28, the Supreme Court ruled 5-4 to uphold most of the Patient Protection and Affordable Care Act, President Obama's health care reform law. The opinion upheld the individual mandate requiring most U.S. residents to have health insurance, while striking down the government's threat of withholding existing Medicaid payments to states that choose not to participate in the expanded Medicaid program called for by the ACA. The decision is a landmark one, and now with a final ruling that the law is constitutional, the health care sector can move forward with more clarity.
I've been thinking about the ACA and how it will affect health IT. Although the ruling did not directly touch on IT, it will define the health care landscape and the amount of money spent on improving it in the future. With that backdrop, I've identified key takeaways from the decision and where I see health IT moving forward post-Supreme Court decision.
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Health technology and patient-centered principles shown to improve care

A review of studies suggests the two strategies may be mutually dependent.

By Emily Berry, amednews staff. Posted July 9, 2012.
Using both patient-centered care principles and health information technology improves care, according to the bulk of evidence published during the last 14 years.
Researchers at the Johns Hopkins University Evidence-Based Practice Center reviewed 327 published articles examining results of health IT tools used in implementing patient-centered care. The studies looked at health outcomes for patients with a range of health conditions, including diabetes, heart disease, depression and cancer. The review was limited to research published in 1998 or later.
 “Substantial evidence exists confirming that health IT applications with patient-centered care-related components have a positive effect on health care outcomes,” researchers wrote in a report published June 14 by the Agency for Healthcare Research and Quality.
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New technology could reduce intensive care mortality rates

By PAM ADAMS
Posted Jul 11, 2012 @ 09:39 PM
Last update Jul 11, 2012 @ 10:58 PM
PEORIA —
For now, the basement of OSF Healthcare's corporate headquarters is home to the newest technology in intensive care units, not just for OSF Saint Francis Medical Center, but for OSF Healthcare hospitals in four other cities.
From the ground floor remote location, two nurses - or as one physician referred to them, eRNs, for electronic registered nurses - monitor dozens of ICU patients as if they were just a few steps away.
One of the six computer screens shows patients' electronic medical records. Another monitors vital signs alerting nurses and doctors to potential crises. A third allows the nurses to do virtual rounds on as many as 40 patients. Still another is a virtual ICU version of Skype, allowing two-way audio visual communication between nurses and doctors in ICUs and nurses and doctors in the cramped, ground floor eICU a block from St. Francis.
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Florida Retirement Community Adopts Telehealth as Linchpin of ACO

July 12, 2012
Online care to extend healthcare into the homes of retirees to improve chronic disease management, decrease hospitalizations
 “Picture it: Florida, 2012. An elderly diabetic woman turns on her computer and has an online visit with her doctor to check on her blood glucose readings.” Sophia Petrillo, Estelle Getty’s character on Golden Girls, probably would have never fathomed telling this story; however, this story, unlike many of her native Sicilian tall tales, will be coming true. The Villages, the country’s largest senior residential community in the U.S., in partnership with University of South Florida (USF) Health and Boston, Mass.-based American Well, have launched an e-visit telehealth platform to begin its journey toward accountable and patient-centered care.
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Montefiore Hospital Tackles Worrisome Computer Physician Order Entries

Researchers devise tool to track CPOE snafus, such as prescribing drugs for the wrong patient, and suggest ways to reduce potentially life-threatening mistakes.
Amid growing national concern over the errors that health IT systems may cause, a recent study in the Journal of the American Medical Informatics Association shows how to measure and reduce a marker for a common type of error in computerized physician order entry (CPOE).
The researchers at Montefiore Medical Center in New York wanted to find a way to detect wrong-patient orders in their CPOE system. Since clinician reports were unreliable, they looked at a marker for these errors: the retraction of orders within 10 minutes of placement, followed by reorders 10 minutes later. AdTech Ad
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Personal Tech-Wielding Docs Challenge IT Leaders

Scott Mace, for HealthLeaders Media , July 12, 2012

This article appears in the June 2012 issue of HealthLeaders magazine.
Healthcare leaders are facing the challenge—and opportunity—presented by physicians and clinicians bringing ever more of their own technology with them to work.
Two years after the iPad's debut, the devices are making inroads in all aspects of society, and healthcare is no exception.
Those who are benefiting now had a virtual desktop strategy already in place. Tablets and other larger-screen devices are often able to fit into the IT picture with relatively little work.
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9 ways future EHRs need to support ACOs

By Michelle McNickle, New Media Producer
Created 07/11/2012
Just a few years ago, the industry saw most vendors touting their support for meaningful use. Today, that focus is slowly shifting to the "ready for ACO" mentality. But unlike meaningful use, said Shahid Shah, software analyst and author of the blog, The Health IT Guy, the technology required for ACOs isn't as well defined, leaving most vendors' claims "untestable."
"Don’t be fooled into buying health IT applications that promote an 'ACO in a box' solution," said Shah. "There is no such technology, and there really can’t be. ACOs are not a technology problem; they are a business model problem first, and until the business side has decided how it will identify savings – and share those savings – any purchase will likely be useless.
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Living with Imperfect Data

JUL 11, 2012 10:49am ET
In a keynote at our MDM & Data Governance conference in Toronto a couple weeks ago, an executive from a large analytical software company said something interesting that stuck with me. I am paraphrasing from memory, but it was very much to the effect of, “Sometimes it’s better to have everyone agreeing on numbers that aren’t entirely accurate than having everyone off doing their own numbers.”
Let that sink in for a moment.
After I did, the very idea of this comment struck me at a few levels. It might have the same effect on you.
In one sense, admitting there is an acceptable level of shared inaccuracy is anathema to the way we like to describe data governance. It was especially so at a MDM-centric conference where people are pretty single-minded about what constitutes “truth.”
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Clinical decision support cuts down antibiotics misuse

July 11, 2012 | By Marla Durben Hirsch
Using an electronic health record's clinical decision support (CDS) system can "substantially" affect the prescribing patterns of antibiotics by primary care practices, according to a new study published in the Journal of the American Medical Informatics Association.
The researchers, from the Medical University of South Carolina, studied 70 adult and pediatric primary care practices in nine states, all using the same EHR system. Nine of the practices were intervention practices using the CDS system; the remaining 61 were control practices. The purpose of the study was to determine if the initiation and daily use of a CDS system for the diagnosis and management of acute respiratory tract infections, which would incorporate diagnosis and treatment information as well as delayed prescription strategies for these infections, would have an impact on the prescribing of antibiotics for these conditions.
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Alignment of e-prescribing incentive programs a step in the right direction

July 11, 2012 | By Marla Durben Hirsch
Well, it isn't perfect, but the Centers for Medicare & Medicaid Services' proposed 2013 fee schedule--set to be published in the Federal Register July 30--does provide some relief for physicians trying to avoid the penalties in the electronic-prescribing (eRx) incentive program by creating two additional hardship exemptions for prescribers also participating in the Medicare and Medicaid EHR Incentive programs.
The eRx incentive program, which began in 2008, uses a combination of incentive payments and payment adjustments to encourage electronic prescribing by eligible professionals. It allows CMS to pay incentives for using e-prescribing systems to prescribe for Medicare patients. The incentives began at 2 percent of allowed charges in 2009 and 2010, dropped to 1 percent in 2011 and 2012, and dropped again to 0.5 percent in 2013.
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EHRs improve hand offs, care coordination in post-acute settings

July 12, 2012 | By Marla Durben Hirsch
Although long term and post acute providers are not part of the Meaningful Use program, their use of electronic health records help improve care transitions of patients, according to health IT expert Bill Russell, M.D., as reported in McKnight's Long Term Care News
Russell, in a release reflecting on a presentation he gave at the American Health Information Management Association's annual Long Term Care and Post Acute Providers Health IT Summit in Baltimore, noted that EHRs can help acute and post acute providers work together and coordinate care.
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AAFP: ‘Worry Free’ Direct Protocols Key to Data Exchange

JUL 10, 2012 4:48pm ET
Use of the Direct Project protocols for secure messaging of protected health information in a ubiquitous and “worry free” environment would represent a major breakthrough for interoperable health data exchange, according to the American Academy of Family Physicians.
AAFP recently sent a comment letter to the Office of the National Coordinator for Health Information Technology in response to a request for information on governance of the Nationwide Health Information Network.
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Federal Regulation of HIT Embedded in New Law

JUL 11, 2012 12:06pm ET
President Obama has signed the Food and Drug Administration Safety and Innovation Act, which includes language to establish federal regulation of the safety and functionality of health information technology applications, including mobile apps. The bill now is Public Law 112-144.
The new law has many changes for the FDA, including updated user fees that pay for regulatory programs, new policies to better manage drug shortages, and mandated establishment of unique medical device identifiers.
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Interactive record systems boost preventive screening rates

July 11, 2012 | By Susan D. Hall
Patients who used an interactive personal health record (IPHR) were twice as likely to be up to date on preventive screenings such as mammograms and colonoscopy as those who did not, according to research from Virginia Commonwealth University.
The study, published in the Annals of Family Medicine, involved eight primary care practices and 4,500 patients. The research came out of the university's Cancer Prevention and Control program at Massey Cancer Center.
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Researchers develop secure protocol for linking data registries

July 11, 2012 | By Dan Bowman
Researchers studying the effectiveness of HPV vaccinations have developed a practical and secure protocol for linking data registries from different organizations, according to a study published this week in the peer-reviewed science journal PLoS ONE. The protocol, which allows for continuous monitoring of vaccine effectiveness, can be applied for examination of other similar efforts, including disease surveillance.
The researchers, based at the Children's Hospital of Eastern Ontario Research Institute in Canada, used cryptographic techniques that enable exact matching of records between different registries via identifiers like health card numbers or birth dates, while maintaining privacy. The computation time for scanning through records for as many as 100,000 patients was at worst, just under 4 hours and at best, slightly less than 3 hours.
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Simulated training improves surgical residents' skills

July 11, 2012 | By Susan D. Hall
Simulated training so improved surgical residents' performance that St. Michael's Hospital in Toronto implemented it before the organization published the results of its pilot program in the July issue of the Annals of Surgery.
In the study from the University of Toronto, 25 surgical residents underwent either conventional residency training for laparoscopic colorectal surgery (removing a tumor from the colon) or followed a new curriculum that included a virtual reality simulator, cognitive training (when and how to operate, how to work as a team) and practice on cadavers.
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DataMotion files patent that could simplify Direct exchange

By Jeff Rowe, Editor, EHRWatch
Roughly speaking, Moore’s Law famously holds that the number of transistors on a chip will double approximately every two years, thereby bolstering processing speeds accordingly.
A recent announcement from DataMotion, which specializes in cloud-based data delivery services, makes us wonder if perhaps someone should take a crack at a similar prediction when it comes to health IT.
The announcement revolves around a provisional patent the company recently filed for a new technology that aims to simplify and expedite email communications of personal health data. According to a company release, the new technology, dubbed the "Method and Apparatus for Securely Communicating Using Public/Private Keys," will simplify the process used by the federal Direct Project to create the digital certificates needed for the secure transfer of health information via email.
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4 strategies to combat healthcare fraud

By Craig Miller, Vice president of health strategy and innovation, General Dynamics Information Technology
The healthcare industry continues to face fraud, and much of it goes unexamined every year.
The GAO estimates that in 2010 more than $70 billion in improper payments were made by the federal government within the Medicare and Medicaid programs alone. According to the National Healthcare Antifraud and Abuse Association, between three and ten percent of all healthcare spending is lost to fraud.
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Stroke Telemedicine: An interview with Séamus Watson

By April Cashin-Garbutt, BA Hons (Cantab)
Stroke is the third largest cause of death in England. (1) It is a condition that requires rapid assessment and treatment to reduce deaths, disability and the risk of having another stroke. (2)
Over recent years, medical and technological advances have transformed our understanding of the brain and given the ability to help patients recover from stroke. In order to capitalise on these advances it is important that the symptoms of stroke are swiftly recognised and the patient is brought straight to A&E in order to be treated by a senior stroke specialist.(3)
I recently spoke with Seamus Watson, Head of Public Health Programmes & Public Health Workforce NHS South of England, regarding the use of Telemedicine in the treatment of Stroke patients. Here is what he said.
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'Most Wired' hospitals named for 2012

By Mike Miliard, Managing Editor
Created 07/10/2012
CHICAGO – The 2012 installment of the "Health Care’s Most Wired" survey finds hospitals nationwide leveraging health information technology in new and envelope-pushing ways.
As they deploy IT to improve care and address inefficiencies, hospitals are also concerned with protecting patient data, optimizing patient flow and improving staff communications, according to Hospitals & Health Networks, which polled some 1,570 hospitals for the survey, conducted in partnership with McKesson, the College of Healthcare Information Management Executives (CHIME) and the American Hospital Association.
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3 truths of health data exchange

By Andrew Fitzpatrick, CEO of WPC
In healthcare, the government mandates data structure for certain types of electronic exchange. Despite overwhelming evidence to the contrary, a mentality persists that standardizing and sharing data entails a difficult process to implement. People are often misguided and intimidated by the perceived complexities of structured data along with the technical obstacles of securely exchanging it with other healthcare entities.
Moreover, prior to more recent legislation, there has been little apparent economic incentive to focus on widespread interoperability unless these entities, largely represented by providers and insurers, agree to collaborate and define a clear strategy to achieve productive data exchange. With the introduction of the Nationwide Health Information Network (NwHIN), followed by the Direct Project and CONNECT software, there is hope that important technical obstacles to expanding the secure exchange of health information have been overcome, making it available to all that can benefit by its use.
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E-referral almost complete in Wales

10 July 2012   Chris Thorne
NHS Wales is approaching the completion of the roll-out of its e-referral system, with more than 90% of GP practices now using it.
The Welsh Clinical Communications Gateway was first implemented 18 months ago and allows clinical messages to be sent securely in an electronic format from the GP to the hospital, replacing patient referral letters.
Dr Martin Murphy, clinical director at NHS Wales Informatics service, told EHI Primary Care that the idea stemmed from work by NHS Scotland, which has implemented the Scottish Care Information Gateway, which is used by over 95% of GPs.
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End game for Davis and CfH announced

9 July 2012   Lyn Whitfield
Katie Davis will step down as managing director for NHS Informatics by 1 September, according to an internal memo circulated to NHS Connecting for Health staff at the end of last week.
The memo, seen by eHealth Insider, says the director responsible for the day to day delivery of NHS programmes and services, Tim Donohoe, will take-over Davis’ role until CfH itself shuts at the end of March 2013.
Davis took over from Christine Connelly, the Department of Health’s director general of informatics and the NHS’ first - and possibly last - chief information officer, when Connelly stepped down in June last year.
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NCQA Preps Specialists for Patient-Centered Medical Homes

Scott Mace, for HealthLeaders Media , July 10, 2012

Public comment wraps up this week on a major effort to extend the patient-centered medical home into specialty practices.
The National Committee for Quality Assurance (NCQA) is accepting public comments on its proposal until this Friday, July 13.
The Specialty Practice Recognition (SPR) 2013 standard will be published next March, but first, NCQA will consider all public comments on the proposal, and conduct pilot testing of the standard at 14 or 15 specialty physician practices, according to Johann Chanin, NCQA director of product development.
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Global OR solutions market to hit $3.1 billion in 2018

July 10, 2012 | By Julie Bird
The global market for integrating more technology into surgical suites is expected to grow to $3.1 billion in 2018, up from $1.86 billion in 2011, according to a market study from GlobalData.
The efficiencies gained by operating-room solutions allow hospitals to schedule more surgeries, thereby increasing revenue, according to a GlobalData announcement, "Operating Room Solutions Market - An Overview." The report says hospitals also save money by trimming OR support staffing.
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Tenn. winds down state health info exchange in favor of Direct

Posted: July 9, 2012 - 2:15 pm ET
The Health Information Partnership for Tennessee, the state's federally funded, statewide health information exchange organization, has started "winding down" its operations, a state official confirmed.
Instead of running a statewide exchange, Tennessee will focus its efforts on promoting the use of the federally developed Direct exchange protocol for peer-to-peer messaging, according to Will Rice, executive director of the Office of eHealth Initiatives, the state agency that coordinated the formation of the not-for-profit HIP TN in 2009.
The new state aim, Rice said, is to ensure that Tennessee providers meet expected information-exchange goals of the Stage 2 meaningful-use criteria of the electronic health-record incentive payment program funded by the American Recovery and Reinvestment Act of 2009.
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PA Pushes Direct Messaging For Health Data Exchanges

Pennsylvania eHealth Collaborative launches grant program that encourages doctors to use secure emails instead of paper and fax to share patient information.
The Pennsylvania eHealth Collaborative has launched a grant program that encourages healthcare providers to use direct messaging to electronically exchange health information over the Internet. The program takes particular aim at providers who lack the resources or technical capacity to purchase advanced technology.
Direct messaging is based on the Direct Project program, begun two years ago to specify a secure, scalable, standards-based way for healthcare participants to send authenticated, encrypted health information directly to known, trusted recipients over the Internet. Overseen by The Office of the National Coordinator for Health Information Technology, this one-way exchange allows any licensed, certified, or regulated healthcare provider to share patient information. AdTech Ad
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EHR Implementation Still Costs Too Much

Even with the federal government's EHR incentives, many hospitals continue to fret about costs, according to recent KPMG poll.
Hospitals have always had problems securing the initial down payment for electronic health record (EHR) implementation; a recently released poll from KPMG suggests that financing such projects remains an ongoing concern that promises to last throughout the implementation phase and beyond.
The recently released results of a May poll that surveyed more than 220 hospital and health system administrators found that while 49% of respondents are more than halfway to completing full EHR implementation, 48% of those polled said they are only somewhat comfortable with the level of budgeting their organization planned for EHR deployment. Nine percent said they weren't comfortable at all with their budget plans, while 18% said they were unsure. On the positive side, 25% said they were very comfortable with the funding they had for their EHR implementation project.
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Tennessee Dissolves its State HIE

JUL 9, 2012 12:01pm ET
Health Information Partnership for Tennessee, the entity responsible for building a statewide health information exchange, is shutting down after the state cancelled its contract in June.
The Tennessee Office of eHealth Initiatives has decided to forgo the HIE and encourage use of the federally developed Direct Project protocols for secure messaging of health information, says Keith Cox, CEO of Health Information Partnership. The Office of eHealth received $11 million in federal stimulus funds for a state HIE and distributed money to the partnership.
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How are you? is very well with award win

9 July 2012   Chris Thorne
Cambridge Healthcare has won HealthInvestor’s Innovation Award for its smartphone enabled web portal that gives patients control of their personal medical records.
'How are you?' was set-up by Dawson King in his attic in April 2011 and has been developed in partnership with the NHS Midlands and East, NHS Connecting for Health and NHS Choices.
The portal has 343 health professionals and 7,432 patients registered across eight regions and is also available in the form of an iPhone application available on iTunes. An Android version is in development.
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Microsoft releases Health Choices app

2 July 2012   Chris Thorne
Health Choices, a smartphone app that provides health guidance and information about NHS services has been released by Microsoft for use on Apple and Android devices.
The app, which was originally released by the company in collaboration with NHS Choices for its Windows Phone last month, gives users access to choice and treatment information from the government’s flagship health website and to Microsoft’s HealthVault platform.
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Mobile health security policies must weigh legal risks as well as privacy

July 9, 2012 | By Susan D. Hall - Contributing Writer
The proliferation of mobile devices in healthcare requires organizations to not only consider the security and privacy issues related to their use, but also the legal risk associated with information contained on them that becomes part of patients' health records, according to an article published this month in the Journal of the American Health Information Management Association.
Author Lydia Washington, director of practice leadership with AHIMA, pointed out that several federal agencies, like the U.S. Food and Drug Administration, have been involved in monitoring use of healthcare mobile devices, so far. Other groups Washington mentioned were the Federal Communications Commission, the Federal Trade Commission, the Office for Civil Rights and the National Institute of Standards and Technology.
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ONC must go slow on NwHIN governance

July 10, 2012 | By Ken Terry
The healthcare and health IT associations that recently slammed the Office of the National Coordinator for IT's plan to devise a governance structure and rules of the road for the Nationwide Health Information Network (NwHIN) have a point: It does look like the heavy hand of federal regulation coming down on a sector that's still trying to find its footing.
Moreover, the stakeholders should be better represented in this initiative than they would be under ONC's plan. Because health information exchange (HIE) is so important to healthcare providers, both public and private entities should have a lot of input into the governance mechanism and the specifications for data exchange.
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Nearly one-fifth of hospitals plan to replace their LIS

By Mike Miliard, Managing Editor
Created 07/06/2012
BURLINGTON, VT – A new report from CapSite finds that 19 percent of hospitals are dissatisfied with their laboratory information systems (LIS) and are planning to replace them. EHR integration and improved efficiency are atop their wish lists.
The 2012 U.S. Laboratory Information System (LIS) Study is the latest in a series of studies evaluating the HITECH Act's impact on EHR adoption, HIE growth and other health IT usage. The report polled 290 hospitals on the market opportunity, vendor mind share and vendor market share across the U.S.
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Monday, July 09, 2012

Hospitals Face Medical Device Security Challenge

Hospitals patrolling their IT systems for security flaws have another group of assets to consider: medical devices that increasingly use wireless technology.
Concerns over medical device vulnerability have grown as machines such as infusion pumps land on hospital networks. Devices that communicate wirelessly add to worries that critical health systems could be breached.
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Enjoy!
David.

Friday, July 20, 2012

Some May Want To Get Involved In This. Sounds Good To Me To Foster Innovation and So On!

I had this e-mail today:
“I'm writing to you because recently I entered HISA's Student App competition - to come up with an idea for an app, which if voted most popular, will be exhibited at Health Beyond attached to HIC.
My presentation so far has received 25 views - and I'm sure my fellow entrants would appreciate more traffic too. If there's any way you could mention the competition and voting page on your blog, I'd be very grateful. (details are on the HISA website).
My idea is to try and tackle the incidence of STI's like chlamydia amongst young women - a sexual health game called Squiz. I'd love to hear your feedback on the concept and the others put up by my peers.
Kind regards”
Here is the web-site as best I can tell.
I am not sure how to get to the apps. Let me know in a comment.
David.

The DoHA and NEHTA Munchkins Are A Pathetic Collection Of Non-Performing Freeloaders. Why Is the Bug Not Fixed? One Answer - They Could Not Care Less.

Thought I would see if there was anyone home with the NEHRS / PCEHR Program.
Answer is NO.
Ask for you Medicare Services and after what is a week you still get (7.00pm July 20, 2012):
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Error Details
An error has occurred processing your request.
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What on earth do we have here? Incompetence piled on stupidity and a total lack of customer and public focus is my guess. How hard is it to put up an error screen. A 10 year old can do it.
For ½ Billion Dollars - what pathetic incompetent giggle.
David.

This From The Productivity Commission Was Pointed Out A Few Days Ago. Surely No One Would Try Such A Project So Soon After the NEHRS.

This is an extract from Section 10 of the Productivity Commission into Disability and Care Support.
The report - dated August 2011 - is found here:
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Easing the burden of providing and sharing necessary information

While assessment will reduce the need for multiple applications to determine eligibility, service providers still need to be provided with details about their clients in order to meet their needs effectively. Similarly, people will still be required to communicate their needs, what they have received and the outcome it has had on them, as well as reveal any changes in their circumstances to multiple different parties. In addition, there will still be instances when paperwork will be required to match people with appropriate goods or services, for example when replacing a major appliance or seeking supported accommodation.
One way to reduce the costs associated with these activities is through allowing for the electronic submission of all forms and applications (although traditional avenues should also still be available). This is already a feature of some schemes and is a low cost way of reducing the impost associated with paperwork, as well as potentially increasing the speed that paperwork is processed.
However, decreasing the current level of administrative duplication requires a greater capacity to share information between different parties, rather than having to provide it to each individually. The idea that the NDIA should create a shared electronic record that service providers (and potentially other government departments) could access — instead of people having to continually fill out forms containing similar information — was widely supported both prior to, and in response to the draft report (for example, sub. 267, p. 4; sub. 181, p. 1; and sub. 9, p. 2; sub. DR968, p. 2; sub. DR932, p. 16; sub. DR800, p. 21). This would substantially reduce the paperwork involved in securing services offered under the NDIS (such as attendant care, respite, transportation etc.). Over time, there is also the potential scope to develop linkages with other government agencies (such as Centrelink) whereby required information relating to someone’s disability could also be accessed (with the individual’s permission).
In addition to the substantial benefits associated with reducing the administrative burden placed on people with a disability and their families, a shared electronic record and central database would also have a number of other broad long-term benefits, including:
  • greater continuity of care. For example, when there are staff changes (such as a new attendant carer) or movement from one service provider to another, an electronic record (with appropriate privacy safeguards) is an effective way of communicating essential information about support needs
  • portability of entitlements. Barriers to geographical mobility for people with a disability would be greatly reduced if there was an electronic record of each client’s assessed need and financial entitlement applicable throughout Australia
  • improved communication and collaboration between allied health professionals and service providers, and better coordination of care
  • ease of billing. With appropriate IT infrastructure linking service providers to the NDIA, the electronic record could also house information about purchases made by people with a disability and expedite payment to service providers (for example something like HICAPS). It would also be useful to ensure that the services provided by specialist disability agencies and the prices they charged, were appropriate
  • aggregate scheme monitoring and facilitating greater understanding of the costs of meeting the needs of people with disability. The ability to interrogate a central database (but still in a way that strictly protects privacy) could provide rich comparative analysis about the costs of different types of disability and the payoff to certain types of interventions (such as early childhood, or home modification rather than attendant care) in terms of future liabilities. It would also greatly improve the ability to anticipate and plan for changes in the overall cost of maintaining a NDIS (chapter 12)
  •  the ability to evaluate the effectiveness of therapies, treatments and aids and appliances based on systematic statistical data.
Expenditure by people managing their own entitlement under self-directed funding would not be recorded in detail on the record at the point of sale (because that would defeat the purpose of self-directed funding and be practically unfeasible). However, their expenditure would still be monitored through acquittal requirements (Such requirements would probably be more comprehensive as people first took up self-directed funding and would decline as they demonstrated proficiency in managing their funds).
The benefits of a shared electronic record, and the system required to deliver them, bear a close resemblance to the Personally Controlled Electronic Health Record (PCEHR) in the Australian Government’s E-health strategy. The Australian Government committed $466 million to developing PCEHRs in 2010-11, has released a Draft Concept of Operations describing how PCEHRs will work (NEHTA 2011) and begun trials across Australia. As many of the challenges involved in this task are relevant (to varying extents) to establishing an electronic disability record (see box 10.6), the experience garnered will be invaluable to the NDIS.
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Box 10.6            Challenges involved in implementing PCEHRs

Many of the challenges involved in implementing PCEHRs will also affect (to varying extents) attempts to establish a electronic disability record. These include:
  • the difficulty involved in finding solutions to some problems. Foremost amongst these are privacy and security issues, how to standardise the data that is input into the system and how to uniquely identify providers and people within the system
  • the difficulty involved in coming to an agreement. There has been substantial growth in the use of IT and E-health technologies across Australia. However the technologies employed have not been coordinated between state health departments or within states (between GPs, specialists and hospitals), resulting in discrete, incompatible information systems. Transitioning from this situation to a unified system requires an agreement as to what the platform should look like — either picking a winner from existing platforms or designing a new one. As the transition from existing systems will be difficult, costly and potentially risky to patients, reaching such an agreement is not straightforward
  •  high set-up costs. In addition to the direct costs, such as hardware, software and training, there are also costs in finding solutions to problems and reaching an agreement about how to transition to a coordinated system. These costs involve consultation, research and pilots.
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This raises the question as to what level of linkage or interaction there should be between the two records. Clearly, it is essential that the electronic disability record should be designed such that it can easily incorporate information from the PCEHR relevant to care and support (and where consent has also been given by the person with a disability). However, there are a number of differences that suggest it is appropriate for the NDIA to independently develop and house an electronic record.
There are important functional differences.
  • In particular, the electronic record will assist core functions of the NDIA, such as: facilitating the financial sustainability of the scheme; building evidence about the effectiveness and cost effectiveness of different services and interventions (chapter 13); helping local area coordinators to monitor the welfare of their clients; and ensuring that appropriate and high quality services are being delivered (section 10.3).
  • The database would be much smaller and more manageable, as its population would include only those eligible for tier three of the NDIS (as opposed to all Australians) and the disability industry is much smaller than the health sector. Also, the types of information recorded in the electronic disability record would tend to be simpler than the type of technical data required for clinical diagnosis and treatment. This would include things like: simple personal details; assessed need; services required, received and the prices paid; client outcomes and other additional notes.
  •  As technological legacy issues are likely to be less of a barrier, there is useful opportunity to develop a universal framework for the electronic record that is appropriate for the disability sector and can evolve according to changing needs.  One option would be to develop a simple and secure web service accessible from any computer or mobile device (similar to current internet banking practices). The NDIS will be accompanied by an expansion of service provision, which allows new entrants to be given receive consistent advice about technological requirements and processes associated with the record. This is complemented by the relatively low use of E-health type technology in the disability sector, reducing the extent of disruptions caused by changes to IT systems or existing practises.
As with, PCEHR, the electronic disability record will require careful and clearly articulated privacy protocols, which should be developed in consultation with the Australian Privacy Commissioner. One important facet of this would be differing levels of access. For example, service providers would only have access to a specified range of information, with active consent from the client. Similarly, accesses to the record by different services providers could potentially be ‘layered’ according to needs or preference of the client. In some cases, a person might not want a provider to have access to the record at all, and in that case, the person would have to provide the required information to service providers in the traditional way. Similarly, protocols will also need to be established for entering data onto the record (privacy issues are discussed further in chapter 12).
Recommendation 10.2


The Australian Government should, with privacy safeguards, fund and develop a national system for a shared electronic record of the relevant details of NDIA participants, including assessed need, service entitlements, use and cost of specialist disability services, outcomes and other key data items.
----- End Extract
From Section 12 we also see this paragraph or two:
----- Begin Extract.

Links with the eHealth initiatives

The evidence base of the scheme should ideally mesh with eHealth initiatives (for example, the use of common personal identifiers) and interface effectively with the broader health sector. The latter would allow, for example, better information on those people who enter the disability system, but later withdraw. They may subsequently re-enter the mainstream health sector but, under current arrangements, their medical experiences and history can become ‘lost’ in a bureaucratic sense. This issue is examined in greater detail in chapter 10.
Recommendation 12.3


The NDIA should make relevant data, research and analysis publicly available, subject to confidentiality, privacy and ethical safeguards.
----- End Extract
So what we have in this report is suggesting scope expansion of the Health Identifier Service to the Disability Sector and the creation of a whole new Government run system to manage and research those receiving disability services.
I really hope those planning for implementation of these ideas watch very closely how the NEHRS / PCEHR progresses and carefully learn all the lessons possible from what is going on in the Health Sector.
One has a really bad sense of déjà vu with all this!
David.

Thursday, July 19, 2012

The Lack Of Health Sector Wide Knowledge and Understanding Bites NEHTA Hard. Pretty Pathetic Really.

The following popped up today:

States not ready for e-Health system

GENERAL practitioners will have to wait up to three years to receive secure discharge summaries digitally signed by hospital doctors following more delays to the Gillard government's e-health system.
State and territory health departments say they are not ready to use healthcare providers' 16-digit unique identity numbers created for the national system to verify the identity of doctors or other medical staff creating a patient's discharge summary.
Healthcare providers individual identifiers - dubbed HPI-Is - were created and assigned to all registered doctors two years ago as part of the Healthcare Identifiers service launch, which also saw unique 16-digit identifiers allocated to every Australian enrolled on the Medicare database.
Use of local hospital or state health agency identity numbers instead of a uniform national identifier will impact their use for authentication and audit purposes within the personally controlled e-health record system.
The ability to accurately identify individual healthcare providers, health organisations and consumers using the PCEHR system is key to securely exchanging electronic information and reducing the potential for errors - either through assigning records to the wrong patient or sending documents to the wrong doctor.
User verification is supposed to be provided through the not-yet-available National Authentication Service for Health (NASH), which is also supposed to provide an audit trail of all access to a patient's electronic record.
Delivery of the NASH is subject to ongoing negotiations between the contracted supplier, IBM, and the Health department after the PCEHR system launched without it on July 1.
Health chief information officer Paul Madden yesterday called for comment from stakeholders on a proposal to abandon the mandatory requirement to include HPI-Is in discharge summaries in the near to medium term.
Lots more of the saga is found here:
Here is a slightly more technical summary of the issue from NEHTA:
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ISSUE

The current Nehta specification and proposed Australian Technical specification for discharge summaries includes a mandatory requirement for an HPI-I.
Jurisdictions and lead implementation sites have difficulty in obtaining HPI-I’s for their providers, and have been unable to secure funds to store HPI-I’s in their systems.
Jurisdictions have estimated a 1-3 year horizon for the implementation of HPI-I’s.
As a result, it will take a considerable time for discharge summaries to be available in the PCEHR if the HPI-I remains a mandatory requirement.

BACKGROUND

Nehta and the NCAP have been reviewing the opportunity for a number of quick wins for increasing the clinical utility of the PCEHR through the jurisdictions.  These opportunities have been presented by the NCAP to the Nehta Board.  A key opportunity in most jurisdictions is the implementation of an interface from the hospital discharge summary process into the PCEHR.  Queensland, South Australia, Victoria, NSW, the ACT and the NT have all expressed a desire to move forward with discharge summaries.
Jurisdictions raised the issue of the steps they would have to go through to implement the HPI-I’s into the discharge summary.  A series of workshops, facilitated by the NCAP and attended by jurisdictions, Doha and Nehta concluded that by relaxing the conformance requirement of a mandatory HPI-I on discharges, that jurisdictions would then be able to build the necessary infrastructure to send discharges to the PCEHR. 
It is noted that while the requirement of a HPI-I is relaxed, there remains a mandatory requirement for a Provider Identifier of some nature.  This identifier may be an identifier supplied by the healthcare facility associated with the individual provider.  It may be of any form (e.g. Numeric, Alpha-Numeric, etc).  The identifier must be unique to the facility, for example a concatenation of the local identifier linked with an OID derived from the facility’s HPI-O or ABN.
A clinical impact and safety assessment has concluded that there is no introduced clinical risk by relaxing this conformance point.
----- End Extract
So it seems that no-one at NEHTA has noticed that, as far as most of the States are concerned, use the Health Identifier Service is distinctly optional - and they will get round to it sometime in the rather ill-defined future.
It should be noted that without Individual as well as Provider Identifiers flows of information both to AND FROM the NEHRS / PCEHR are made more problematic. How can an internal hospital system use B2B to request PCEHR records if it does not handle the HI Service?
You can read my comments on feeder systems  being an issue from last year here:
What is not clear to me - reading this - is just how a particular discharge summary - with a local identifier - can be safely merged with a PCEHR record. It is not clear to me if the IHI remains mandatory (looking at the V1.3 specs it seems not) and if all the hospital systems are able to use this identifier.
An obvious question is, of course, if the IHI is not mandatory just why is that and how is that decision justified?
Despite the words from NEHTA Clinical Safety I think this needs some careful development of test cases to make sure any interactions between the Hospitals and the PCEHR occur exactly as expected with a high degree of reliability.
The failure to take a health system wide view - when working with a so called ‘nation system’ - just shows how far out of touch some are.
What exactly are NEHTA playing at with all this?
David.

Wednesday, July 18, 2012

I Am Having A Bad Case Of Cognitive Dissonance With This - The Government Can’t Have It Both Ways.

In the last few days there have been a number of articles on the Government’s desire to access historical web and phone data.

Government defends web spy powers

Date: July 13, 2012

Dylan Welch and Ben Grubb

THE Gillard government has defended a plan to force telcos to store the internet and phone data of all Australians for up to two years, saying it is needed to allow our intelligence and police agencies to effectively target organised criminals and terrorists.
''In this day and age, an age where governments all around the world are grappling with the challenges of terrorism and organised crime, it is important that our relevant agencies have access to the information that they need,'' the assistant Treasurer, David Bradbury, said.
The Coalition, however, has refused to throw its support behind the controversial data-retention scheme, with its legal spokesman, George Brandis, who also sits on the committee reviewing the proposal, only saying he would ''examine the issues carefully''.
His response was sparked by a Fairfax Media report, which stated the scheme was being considered as part of a review of national security legislation by a parliamentary committee.
More here:
At the same time we have an enormous song a dance about how secure and private information flowing back and forth to our NEHRS / PCEHR record is going to be.
While opinions vary there are certainly some experts who are already a little concerned about the general security of the system.
See here for example.

E-health record will be hacked, says AusCERT

Written by Nayantara Mallya, Chillibreeze on Monday, March 12, 2012 10:18
news One of Australia’s top IT security organisations has warned that the Federal Government’s flagship e-health records project is likely to be broken into, with Australians’ medical and identity information to be used for fraud and other criminal activities.
AusCERT, Australia’s Computer Emergency Response Team, which is not associated with the Government, in its submission to an inquiry about the legislation dated in January (PDF), criticised the Government’s Personally Controlled Electronic Health Records (PCEHR) Bill (2011). In its commitment to protecting the privacy and security of Australian Internet users, AusCERT has expressed concern that miscreants could potentially use the PCEHR for identity theft and fraud. The submission was first reported by the AustralianIT.
AusCERT opines that enabling accessibility to personal identifying information in the form of the PCEHR from personal computers over the Internet will only worsen an ongoing problem that will make Australians vulnerable to fraud and identity theft. The submission focuses on the use of untrustworthy end point computers and mobile devices, which when compromised, will enable attackers exert full control over the PCEHR to look at or change its contents with the same privileges as the owner or authorised users.
Vastly more detail here:
So what we have here is the following.
1. The Government wants to be able to get at and track any internet activity we have undertaken in the last 2 years.
2. The PCEHR is claimed to be secure but some are not so sure.
3. You are going to be using the Government ‘hackable’ internet to send your private personal information to and from the PCEHR.
Whether you are comfortable with all this depends on your view about whether ‘the Government is always here to help’ or not. For mine, I would be carefully considering before putting any information in the NEHRS / PCEHR that I seriously wanted to remain private.
As always it is your call, but I just wonder how the claims of great security and a desire from Government to be a legal ‘hacker’ when it feels it needs to be, actually gel together.
David.

Tuesday, July 17, 2012

Please Pour Yourself A Large Steadying Scotch Before Reading. It Will Help The Pain.

The following appeared today.

E-health 'delivering on its rollout commitments' says Paul Madden

FUNDING of $135 million for the National E-Health Transition Authority will support a new work program over the next two years following its delivery of Australia's e-health foundations.

But the health department cannot yet provide any details of NEHTA's forward work plan allocated $67m in the recent budget -- a sum to be matched by the states and territories under Council of Australian Government funding arrangements.

Health chief information officer Paul Madden says NEHTA has "delivered" specifications for all foundation capabilities, including infrastructure and services.

Mr Madden said The Australian was wrong to suggest $1 billion had been spent on the national e-health program since former health minister Nicola Roxon unveiled her personally controlled e-health record vision in mid-2010.

The department insists the PCEHR program has been completed on time and within the original $467m budget, despite the slow launch and lack of many key components.

Mr Madden said $380m in COAG funding for NEHTA's work program during the period included e-health foundations that were "leveraged" for the PCEHR but would have been developed anyway, so this sum should not be included in any accounting of costs.

"The money that's gone to NEHTA historically and NEHTA's e-health activities started well before any announcement of the PCEHR," he said.

"They've been working on a whole range of things that were not necessarily (aimed) towards a specific individual e-health record (the original concept endorsed by COAG) and certainly not the PCEHR.

"These include the Healthcare Identifiers, the Australian Medicines Terminology and secure messaging.

"So, even if we hadn't developed the PCEHR, those expenses would have continued because COAG had decided to develop them."

Separately, the Gillard government has spent $777m on specific PCEHR-related activities since July 2010, including $352m in new forward funding.

Mr Madden said of the $234m allocated in the budget over the next two years, $161.6m was "operational funding for the PCEHR".

"It shouldn't be categorised as development, (our position is) we will operate this system and gain experience with it; there are no functional additions, there's no catch-up (included) -- it's to operate the PCEHR," he said.

This allocation will also finance NEHTA to provide some "specific support and testing arrangements" for PCEHR, on top of the COAG funding for its new work agenda.

Health lowered its targets for the number of consumers registered for a PCEHR in the budget to 500,000 by the end of the current financial year and 1.5 million by the end of 2013-14; originally, it targeted half a million participants by June this year.

Meanwhile, the National Partnership Agreement on E-Health, under which COAG funds NEHTA, expired at the end of last month.

Mr Madden said a new intergovernmental agreement was "still being developed"
There is a lot more here:
(Well worth buying a digital pass for the full gruesome details!)
Let us now consider what was promised two years ago (from a recent blog)
Here is the press release - (I have highlighted the important and not delivered bits in italics):

Personally Controlled Electronic Health Records for All Australians

Australians will be able to check their medical history online through the introduction of personally controlled electronic health records, which will boost patient safety, improve health care delivery, and cut waste and duplication.
11 May 2010
Australians will be able to check their medical history online through the introduction of personally controlled electronic health records, which will boost patient safety, improve health care delivery, and cut waste and duplication.
The $466.7 million investment over the next two years will revolutionise the delivery of healthcare in Australia.
The national e-Health records system will be a key building block of the National Health and Hospitals Network.
This funding will establish a secure system of personally controlled electronic health records that will provide:
  • Summaries of patients’ health information – including medications and immunisations and medical test results;
  • Secure access for patients and health care providers to their e-Health records via the internet regardless of their physical location;
  • Rigorous governance and oversight to maintain privacy; and
  • Health care providers with the national standards, planning and core national infrastructure required to use the national e-Health records system.
The full press release is here:
And later in the same blog Ms Roxon claims:
This extract from a 2010 interview is telling:
MELINDA HOWELLS: Nicola Roxon says half a billion dollars is a big commitment.

NICOLA ROXON: Governments of past have put off making the decision to do this and our focus will be absolutely on these stages and of course there is business plan for the stages that can come after that. This investment, however, will give the momentum to taking electronic health records that step closer to reality in Australia.
Full interview here:
All I can say is that I, for one, struggle to align what was promised and what then happened.

Let us all know if you can explain how all this can all be true.
David.

Monday, July 16, 2012

The PCEHR Is Still Not Fixed!

Logged on at 6:15pm Monday July 16.

Still get this while wanting to see Medicare Services Overview.

-----


Error Details

An error has occurred processing your request.

-----

Hardly what is expected of a 1/2 billion dollar National E-Health System.

What a farce! It just was not ready.

David.

Update 10:30pm 17/07/2012

Guess what? Still not fixed!

D.