Quote Of The Year

Timeless Quotes - Sadly The Late Paul Shetler - "Its not Your Health Record it's a Government Record Of Your Health Information"

or

H. L. Mencken - "For every complex problem there is an answer that is clear, simple, and wrong."

Wednesday, December 09, 2015

It Is Not Before Time We Are Seeing This Come In. All Data Breaches Should Be Notified To All Those Affected.

This news appeared late last week. First here:

Government reveals proposed data breach notification scheme

Attorney-General’s Department launches public consultation
The government has released the long-awaited exposure draft of legislation to create a mandatory data breach notification scheme.
The introduction of a data breach notification regime formed part of the government’s response to the report of the parliamentary inquiry into the data retention.
The report of that inquiry had recommended the creation of such a scheme.
The government has lived up to its commitment of a public consolation on the scheme. The Attorney-General’s Department is accepting submissions on the exposure draft until 4 March next year.
The scheme as currently drafted would oblige businesses to report a “serious data breach” to the Australian Information Commissioner and notify individuals whose data is affected by a breach.
A “serious breach” involves personal information, credit reporting information, or tax file information being subject to unauthorised access or disclosure and putting those individuals affected at “real risk of serious harm”.
Whether an individual was at risk of “serious harm” would depend on a number of factors, such as whether the information is encrypted (and how hard that encryption would be to break) and the sensitivity of the information.
Lots more here:
and also here:

Government unveils data breach notification bill

Gives industry until March next year to have input.

By Allie Coyne
Dec 3 2015 5:18PM
The government has published an exposure draft of its long-awaited bill for mandatory data breach notifications, specifying what it considers to be a serious breach and how organisations will need to respond.
The exposure draft, which is open for consultation until March 4 next year, comes as the government failed to deliver on its promise to have a scheme up and running by the end of this year.
The bill runs along almost identical lines to the Privacy Alerts bill introduced by Labor in 2013, and again last year. It is understood to have bipartisan support.
It outlines what the government considers to be a serious breach and details the steps an organisation must take to address such an incident.
A serious breach, under the bill, occurs when there is unauthorised access to, disclosure or loss of customer information held by an entity, which as a result generates a real risk of serious harm to individuals involved.
Such information includes personal details, credit reporting information, credit eligibility information, and tax file number information.
An entity must notify customers, the Privacy Commissioner and potentially the media "as soon as practicable after it is aware" or has reasonable grounds to believe a serious data breach has occurred.
More here:
and lastly here - with a lot of external comments:

Delayed Australian data breach notification bill lands

Date December 4, 2015 - 3:26PM

Ben Grubb

Technology editor

Australians will be informed of certain breaches of their personal information under new laws being proposed by the Turnbull government, but only if the company or organisation breached turns over $3 million in revenue a year.
The Attorney-General's Department released on Thursday an exposure draft of the Privacy Amendment (Notification of Serious Data Breaches) Bill 2015, which will require entities to disclose serious breaches of peoples' information.
The government was meant to introduce the bill into parliament before the end of the year but left it until the last sitting day of the year to release an exposure draft before its likely introduction into parliament next year.
If passed, the bill will require companies to disclose a breach within 30 days if it concerns personal information and "there is a real risk of serious harm to any of the individuals" to whom the information relates.
At present, companies, federal government agencies and various other Australian organisations are not required to disclose breaches by law. Nothing stops them, however, from voluntarily disclosing a breach.
Vice chair of the the Australian Privacy Foundation, David Vaile, said that the $3 million threshold of compliance — something that has existed in the Privacy Act for some time — was "a potential problem".
"A backyard data-munging operation can now cause as much damage, and release as much data (but may be less scrupulous or well defended) than any big bank, telco or government agency," he said.
Lots of other comments here:
There is a request for Submissions which concludes March 4 next year.
My simple view is that the opening position is that anyone who chooses to collect personal information from you should let you know if they let it loose to anyone you have not authorised to have access.
What do others think?
David.

Tuesday, December 08, 2015

There Really Seem To Be Some Worrying Process Issues In The Management Of The PCEHR.

This appeared a few days ago:

MPs split on 'opt out' eHealth records

Not all members of parliament’s human rights committee sold on already-legislated eHealth changes
Members of the Parliamentary Joint Committee on Human Rights (PJCHR) have been unable to agree on whether some measures contained in legislation revamping Australia’s national eHealth record were justified.
A report issued in October by committee queried a number of aspects of the Health Legislation Amendment (eHealth) Bill 2015.
In its latest report, tabled yesterday in parliament, the committee considered responses from the health minister, Sussan Ley.
The bill was endorsed by a report from the Senate's Community Affairs Legislation Committee, although during that committee's inquiry some privacy advocates indicated their opposition to the legislation.
The legislation implements recommendations from the 2013 review of the Personally Controlled Electronic Health Record (PCEHR), including renaming the record to 'My Health Record'.
The legislation allows the health minister to apply opt-out participation to particular areas.
The changes are intended to enable trials of approaches intended to boost participation in the system, as well as lay the basis for a potential wholesale shift to opt-out.
Trials of an opt-out approach to signups for the national eHealth record will be held in parts of Queensland and NSW, Ley has revealed.
"One of the great criticisms of Labor's model that was that it could not be used unless a patient signed up, rather than an all-inclusive system that simply gives those consumers who do not want their medical history made available the option to opt-out," Ley said in remarks prepared for a National Press Club address in October.
The trials will begin early next year and involve around 1 million people.
Although Ley’s responses to queries from the PJCHR were accepted by some committee members, in the view of others the legislation to enable opt-out is incompatible with the right to privacy.
More here:
Here are the recommendations from the Committee (page 74):
2.1                    The committee considers that the automatic inclusion of the health record of all Australians on the My Health Record register engages and limits the right to privacy in article 17 of the International Covenant on Civil and Political Rights.
2.2                    Some committee members consider that the minister's response has demonstrated that the bill seeks to improve health outcomes and promotes the right to health and so consider the measures are justifiable.
2.3                    Other committee members consider that the minister's response has not adequately addressed the committee's concerns in relation to this right. For the reasons set out above, those committee members consider that the legislation is likely to be incompatible with the right to privacy and recommend, in order to better protect the right to privacy, the legislation be amended:

  • to set out the detail of how and when a health care recipient will  be notified that their records will uploaded onto the My Health Records system; 
  • to require that healthcare recipients be given a reasonable amount of time to decide whether to opt-out of the My Health Records system; 
  •  to provide that healthcare recipients are able erase their record from the register at any time; 
  •  to require that if the minister applies the opt-out model to all healthcare recipients in Australia, the minister must consider the privacy implications of this decision and be satisfied that healthcare recipients in the trials were given an appropriate and informed opportunity to opt-out.

It is going to be very interesting to see if the Minister actually responds to the Departmental ‘stuff up’ of getting legislation passed before the PJCHR actually responded and if we see some amendments in the New Year.
We now know the Legislation is flawed and the Committee,  as a whole, recommends it be fixed.
Over to you Minister.
David.

Monday, December 07, 2015

Weekly Australian Health IT Links – 7th December, 2015.

Here are a few I have come across the last week or so.
Note: Each link is followed by a title and a few paragraphs. For the full article click on the link above title of the article. Note also that full access to some links may require site registration or subscription payment.

General Comment

What an amazing week! We have the Secretary of DoH admitting National e-Health is changing, the legislation for data breaches released and an Audit showing DoH has no idea how to manage information.
And all this in December!
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How the govt is using Medicare data to improve the health system

Health boss details “fascinating and disturbing insights”.

By Paris Cowan
Dec 4 2015 11:41AM
Federal health secretary Martin Bowles has unveiled some of the practical ways the government is using data to identify the areas of the health system that don’t work and target resources to fixing them.
Addressing an e-health forum in New York yesterday, Bowles revealed his department has begun to analyse Medicare claims data to identify “unwarranted variation” in the types of treatments recommended to different patients with similar ailments.
“We have data on what doctors are actually doing – because their services are claimed on Medicare,” Bowles said.
“For the first time, this data has been used in conjunction with data from our pharmaceutical benefits schedule and public hospitals and this has thrown up some fascinating and disturbing insights.”
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Martin Bowles: using health information to improve care

by Martin Bowles

04.12.2015
Australia’s chief health bureaucrat is excited by the opportunities for technology in healthcare. My Health Record “can improve treatment decisions, reduce adverse events, avoidable hospital admissions and reduce duplication of medical tests”.
It is an exciting time to be a steward of the Australian health system. Our government has committed to reforms across the system: to improve co-ordination of care; efficiency of care; and sustainability of the system to improve health outcomes for all Australians.
I firmly believe data and information technology can provide breakthrough opportunities to enable and support this change. Adopting new treatment technology has never been a problem for health providers and professionals in Australia.
But changing their thinking about data and analytics and how this can help the patient and the system has proven to be more challenging.
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Clinical IT solution at Midland hospital

The West Australian
December 2, 2015, 12:27 pm
Telstra Health says it has implemented an enterprise electronic medical record (EMR) at the new St John of God Midland Public and Private Hospital.
The company said the EMR would ensure the hospital’s digital health solutions matched the state-of-the-art facilities and staff.
The EMR platform is the clinical digital backbone of the new $360 million facility which includes a 307-bed public hospital and a 60-bed private hospital on the same campus in the Perth suburb of Midland, replacing the Swan District Hospital.
Telstra Health’s emerging systems managing director Russel Duncan said the solution was a fully integrated electronic medical record, meeting all the needs of both the public and private hospital environment.
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Telstra Health implements e-records at hospitals; retail exec resigns

Two new Perth hospitals have implemented Telstra Health's e-records, with the system to improve efficiency and data sharing in healthcare.
By Corinne Reichert | December 3, 2015 -- 22:50 GMT (09:50 AEDT) | Topic: Telcos
Telstra Health has successfully implemented an enterprise electronic medical record (EMR) system at the two newest Australian hospitals, which will complement the government's My Health Record System and the hospitals' own administration system.
The e-health record system, announced on Wednesday, has been implemented at the new AU$360 million St John of God Midland Public Hospital as well as the private hospital on the same campus in Midland, Perth.
"We know the importance of integration and interoperability in the success of eHealth solutions," said Russel Duncan, managing director of Telstra Health's Emerging Systems.
"Patients' clinical data at the St John of God Midland Public and Private Hospitals will integrate seamlessly with the hospital's Patient Administration System, the national My Health Record system, and eventually the Western Australia Health Department, helping build a more connected health system and improve productivity and clinical care.
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Telstra Health deploys medical records system for WA hospitals

Telstra Health has implemented an enterprise electronic medical records (EMR) system in a $360 million facility in Western Australia housing two of Australia’s newest hospitals.
The EMR platform has formed the clinical digital backbone of the new facility, in the Perth suburb of Midland, which includes the St John of God Midland Public and Private Hospitals.
The 307-bed public hospital and the 60-bed private hospital are on the same campus.
Telstra says successful implementation of the EMR ensure that the hospitals digital health solutions match the state of the art facilities and staff.
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MPs split on 'opt out' eHealth records

Not all members of parliament’s human rights committee sold on already-legislated eHealth changes
Members of the Parliamentary Joint Committee on Human Rights (PJCHR) have been unable to agree on whether some measures contained in legislation revamping Australia’s national eHealth record were justified.
A report issued in October by committee queried a number of aspects of the Health Legislation Amendment (eHealth) Bill 2015.
In its latest report, tabled yesterday in parliament, the committee considered responses from the health minister, Sussan Ley.
The bill was endorsed by a report from the Senate's Community Affairs Legislation Committee, although during that committee's inquiry some privacy advocates indicated their opposition to the legislation.
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Records Management in Health

Tabled Date: Tuesday 1st December 2015
Report Number: 10
Portfolio: Health
Department: Department of Health
Contact: Fiona Knight, Executive Director – Phone (02) 6203 7511
The audit objective was to assess the effectiveness of the Department of Health’s records management arrangements, including Health’s progress in transitioning to digital records management.
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Your health e-wallet

Last updated: 2nd December 2015
The big tech companies are gearing up to be the virtual safe-deposit box for personal health records, activity tracking and general wellbeing data such as cholesterol and other blood test results. Apple, Google and Microsoft all have portals that link to fitness trackers and let you record, view and analyse your personal health data. 
The government is also encouraging people to register for its eHealth service that stores health records including medical visits, list of medications, immunisation records and imaging in an online database. You and your local doctor have access to the records for reviewing test results, checking treatment history and important details such as allergies or vaccinations.
Planning a digital health kick? See our fitness tracker reviews comparing Fitbit, Jawbone and more.
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WA health services provider to probe alteration of patient records

The 360 Health and Community Service has launched two investigations into the unauthorised alteration of records for Perth South Coastal Medicare Local patients.
Documents obtained by the ABC show that in 2013, dozens of birth dates for adult mental health patients were changed so as to classify them as children.
The documents are "de-identified data", which means only the date of birth, the gender and the post code are revealed on the sheet.
They were used for quarterly reporting to the Commonwealth.
In many cases birthdates were changed or noted to reduce the age in order to reclassify the patient.
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Latest mental health reforms need to connect with patients

30 November, 2015 Dr Helen Schultz 
Last week, Federal Health Minister Sussan Ley announced a new framework to tackle what has been described a crisis in Australia’s mental health system.
Key opinion leaders in this field, from the AMA to top academics and researchers, have given mixed responses to the announcement. For what it’s worth, this is mine.
When my patients recover they tell me they were grateful I didn’t give up on them. As they became well, they could see at the time they were most unwell they truly believed things would never get better.
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Australian health records fed into big data maw ... because insight

Privacy? They've heard of it

30 Nov 2015 at 22:10, Richard Chirgwin
While it continues to battle public indifference to personally-controlled electronic health records (PCEHRs), the Australian government is quietly looking for bright sparks to put forward ideas on how to use the records for analysis.
The Australian Privacy Foundation has pointed to this tender from the government. In it, Canberra requests a “Framework for secondary uses of My Health Record”.
The outcome of the tender would be a set of standards: “The final Framework will enable the System Operator (currently the Secretary, Department of Health) to make informed decisions about the benefits, risks and costs of options presented for secondary uses of My Health Record system data. Respondents should note that the Department intends to assess expressions of interest and short list submissions to identify organisations who have the experience and expertise required.”
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Health Dept. wants advice on de-identifying My Health Record data

Prepares for unprecedented insight into Australia's wellbeing.

By Paris Cowan
Nov 30 2015 9:27AM
The Department of Health has already started planning what it could do with an influx of information on Australians’ medical histories, just a day after legislation for the switch to opt-out electronic health record was given formal assent.
The government last week successfully passed legislation that will allow it to create electronic health records for all Australians based on Medicare records, unless they choose to opt out of the process.
The My Health Record policy was driven by a slow uptake in the Personally Controlled Electronic Health Record (PCEHR) scheme under the previous government, which mandated that customers register to receive an electronic account.
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E-health provider blames SA govt for tough times

Global Health says it hasn't been paid since April.

By Paris Cowan
Dec 1 2015 10:29AM
Hospital solutions provider Global Health is blaming a difficult year on the South Australian government, as the pair continue to battle it out over the state's use of an old patient administration platform.
Global Health is locked in a Federal Court fight with the state over its refusal to upgrade the CHIRON software used in 12 of South Australia’s 75 public hospitals.
The rural health facilities continue to use the 1980s version of the software, despite Global Health refusing to issue any more licences for the superseded product, which is no longer used by any other customers.
The state government's argument is that compulsory crown licensing provisions in the Copyright Act give it special powers to overrule normal licensing provisions.
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Government unveils data breach notification bill

Gives industry until March next year to have input.

By Allie Coyne
Dec 3 2015 5:18PM
The government has published an exposure draft of its long-awaited bill for mandatory data breach notifications, specifying what it considers to be a serious breach and how organisations will need to respond.
The exposure draft, which is open for consultation until March 4 next year, comes as the government failed to deliver on its promise to have a scheme up and running by the end of this year.
The bill runs along almost identical lines to the Privacy Alerts bill introduced by Labor in 2013, and again last year. It is understood to have bipartisan support.
It outlines what the government considers to be a serious breach and details the steps an organisation must take to address such an incident.
-----

Government reveals proposed data breach notification scheme

Attorney-General’s Department launches public consultation
The government has released the long-awaited exposure draft of legislation to create a mandatory data breach notification scheme.
The introduction of a data breach notification regime formed part of the government’s response to the report of the parliamentary inquiry into the data retention.
The report of that inquiry had recommended the creation of such a scheme.
The government has lived up to its commitment of a public consolation on the scheme. The Attorney-General’s Department is accepting submissions on the exposure draft until 4 March next year.
-----

Delayed Australian data breach notification bill lands

Date December 4, 2015 - 3:26PM

Ben Grubb

Technology editor

Australians will be informed of certain breaches of their personal information under new laws being proposed by the Turnbull government, but only if the company or organisation breached turns over $3 million in revenue a year.
The Attorney-General's Department released on Thursday an exposure draft of the Privacy Amendment (Notification of Serious Data Breaches) Bill 2015, which will require entities to disclose serious breaches of peoples' information.
The government was meant to introduce the bill into parliament before the end of the year but left it until the last sitting day of the year to release an exposure draft before its likely introduction into parliament next year.
If passed, the bill will require companies to disclose a breach within 30 days if it concerns personal information and "there is a real risk of serious harm to any of the individuals" to whom the information relates.
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Why IT people can’t build information systems

Posted on by wolandscat

(on their own)

Every so often I remember how we were taught to build information systems and software. One of the steps is called ‘requirements capture’. The IT people are supposed to go and interrogate domain experts, in a step called ‘use case modelling’, obtaining those diamonds of information that will allow them to build the system those experts want.
There’s only one problem with that. In all real domains, the IT people and domain experts have no clue what each 0ther is saying. And yet the IT people still go and build a system. Any system. And that’s why most information systems are a) semantically broken and b) can’t keep up to date with new requirements.
We have known this doesn’t work for 20 years in health (some savvy people knew it for a lot longer). In health, just like any other real domain, you can’t afford to put any of the following in the software:
  • domain content / information models
  • workflows
  • terminology
  • ontology
  • higher-level artefacts such as guidelines (health), business rules etc.
The solution is to find ways of enabling domain experts themselves to build models and descriptions of their domain. Our contribution in openEHR was to provide a way of doing the first, the so-called ‘archetypes’.
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Melbourne, 4 December 2015
MEDIA RELEASE

Precedence Transforms Australian Patient Care with National Coordinated Care Platform

Precedence Health Care expands its contribution to healthcare reform in Australia with the launch of the cdmNet Coordinated Care Platform and Application Services.
The cdmNet Coordinated Care Platform is a full service cloud-based infrastructure for managing a patient’s care across the entire care continuum. It connects everyone on the patient’s care team and brings together a range of digital application services to ensure optimal patient outcomes.
The platform is designed as an “open” architecture to support “plug in” application services and products using desktop, laptop and mobile devices.
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3D Medical expands image data business

Monday, November 30, 2015 by Proactive Investors
3D Medical has signed reselling agreement for medical image data
3D Medical (ASX:3DM) has entered into a reseller agreement with Client Outlook Inc. for the distribution of the eUnity medical image viewing and collaboration platform.
The deal represents an expansion of 3DM’s capability to value-add medical image data on (following a recent merger with Mach7 Technologies), and is expected to precipitate the announcement of first revenues in the next quarter.
Earlier this month 3D Medical and distribution partner Telstra Health validated this business model by announcing the successful implementation of an enterprise-wide Mach7 Technologies Vendor Neutral Archive in Australia.
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NEHTA eHealth Software Developer Community Webinar – Introduction to the national eHealth record system

Created on Friday, 04 December 2015
NEHTA is pleased to announce the first of a series of webinars designed to help software developers connect their health information systems to the national eHealth record system. The webinar is scheduled for Wednesday 16 December 2015 2:00pm Australian Eastern Daylight Time (1:00pm Australian Eastern Standard Time) and is expected to run for 90 minutes.
Webinar - Introduction to the national eHealth record system for software developers
This first webinar Introduction to the national eHealth record system for software developers is designed for software developers who have not yet connected their products to the national eHealth infrastructure. It will provide an introduction to the national eHealth infrastructure, including all the information that software developers need before they begin planning their implementation.
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75% of Australian Survey Respondents Say Cost Savings and Efficiencies Are Driving Laboratory Changes; Only 29% of Public Laboratory Systems Able to Support the Changes
SYDNEY, Australia – 01 December, 2015 – InterSystems, a global leader in software for health information technology and developer of the InterSystems TrakCare® unified healthcare information system, today announced the results of the InterSystems Australian Laboratory Management Systems Market Survey 2015, which found that current information systems are not equipped to support the changes clinical laboratories are undergoing.
“The nature of the laboratory business is changing dramatically,” said Martin Wilkinson, head of InterSystems’ solutions for the laboratory market. “Industry consolidation, advances in automation, genomic testing, and the increased use of point-of-care testing are driving major shifts in where, when, and how testing takes place.”
Conducted at the 53rd Annual Australasian Association of Clinical Biochemists conference in Sydney, the survey of 60 clinical laboratory professionals found there is pressure to meet demand using fewer resources – to increase efficiency while driving down costs – and the use of automation is rising. When asked what was driving change in their laboratories, 75% of respondents cited cost savings and efficiencies, 63% said automation, and 33%, patient-centred care.
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NBN facing massive copper remediation bill

Updated: leaked documents reveal tenfold increase in cost.

By Allie Coyne
Dec 3 2015 7:23AM
The national broadband network builder is expecting to be hit with a massive bill of $641 million to repair sections of the copper network it bought from Telstra, leaked documents show.
The figure is as much as ten times what the NBN had expected repairing the copper network - which it acquired from Telstra for $11.2 billion - to cost.
The federal government's strategic review of the NBN put the cost of remediating the copper at $2685 per node, but the leaked documents, sighted by iTnews, reveal NBN expects this will in reality sit at $26,115 per node.
The total cost to repair degraded copper connections will come in at $641 million for the 24,544 nodes NBN is scheduled to build before 2019.
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Enjoy!
David.

Sunday, December 06, 2015

The Secretary Of The Department Of Health Announces A Fundamental Change In The National E-Health Strategy.

This report on a speech in New York appeared a day or so ago.

Martin Bowles: using health information to improve care

by Martin Bowles

04.12.2015
Australia’s chief health bureaucrat is excited by the opportunities for technology in healthcare. My Health Record “can improve treatment decisions, reduce adverse events, avoidable hospital admissions and reduce duplication of medical tests”.
It is an exciting time to be a steward of the Australian health system. Our government has committed to reforms across the system: to improve co-ordination of care; efficiency of care; and sustainability of the system to improve health outcomes for all Australians.
I firmly believe data and information technology can provide breakthrough opportunities to enable and support this change. Adopting new treatment technology has never been a problem for health providers and professionals in Australia.
But changing their thinking about data and analytics and how this can help the patient and the system has proven to be more challenging.
Right now the Australian government has multiple reform processes under way which will encourage and support such a paradigm shift. When successful they will deliver the greatest improvements in our system in decades. We have reform activities in almost all parts of our system:
  • Primary health care;
  • Medical Benefits Schedule reviews;
  • Mental health;
  • Private health insurance;
  • Pharmaceutical Benefits Schedule;
  • Aged care;
  • Digital health; and
  • Jurisdictional responsibilities.
The results of these reviews will make our very good health system, which is under pressure, much better for patients’ health and also more sustainable. They will put data, analytics, evaluation and research at the centre of our policy thinking and our healthcare system.
A major challenge for achieving change in Australian health care is the complexity of the system. This can lead to duplication of services, gaps in care and poor integration of care. None of which are good for patients.
Adding to the complexity is the nation’s geographic vastness and low population density, which brings with it the challenge of meeting the needs of people living in rural and remote areas. Fragmentation and disconnect exists between:
  • Primary, secondary, and aged care;
  • Between private and public services;
  • Across the different types of care that we might receive; and
  • Between our states and the federal government.
Further challenges faced by the Australian health system are largely driven by:
  • Rising consumer expectations;
  • Costs rising faster than growth in our GDP;
  • Rapid advances in health technologies with associated increases in costs; and
  • An increasing need across the health system to deal with chronic and complex conditions.
The question is how to change it to make it more effective. We are looking at new structures and models for funding and delivering healthcare services. But we are also requiring improved collection, analysis of data and above all exchange of information across the system to drive better system performance and patient outcomes. This applies to individual patient information, and information that can be aggregated to provider, regional and national level.
Changes being made now will greatly improve our analysis of the information available at each level, advance our knowledge and understanding of the health of the nation, and facilitate new ways of delivering better healthcare, in ways never before envisaged.
Our Medicare system and Pharmaceutical Benefits Scheme provide excellent data on use of health care services. But we do not use it to its full potential. This is partly because of the complexity. But it is also because different parts of the system own and protect the Pharmaceutical Benefits Schedule, Medicare benefits, private, and public hospital data and have tended to block, rather than clear the way for, data sharing.
When I was first appointed I naively asked whether I could provide the Pharmaceutical Benefits Schedule and Medical Benefits Schedule data to our states and territories, I was given 100 pages of legal advice around privacy explaining why this was impossible.
When I then said — I want to do this. How could we make it happen? I received just four pages of advice. They now have the data. You need to ask the right question.
So it is possible. It requires the will, and the goodwill. Both of which now exist. It has not been seriously attempted before, but now we at the federal level are starting to share information with the other levels of government in Australia. We’ve still got a way to go.
There is a great deal more here:
Anyone who is interested in Australian e-Health needs to read this speech very closely.
Basically Mr Bowles is hoping that the use of data analytics on the information held in the various Commonwealth data-bases and the PCEHR will allow him to re-model the Australian Health System into a more efficient and less costly health system.
There is a germ of truth in the idea that if you could use information to remove or reduce the variability of clinical practice you could improve both the quality and effectiveness, as well as the cost of healthcare.
This is not a new idea by any means and has been worked at in the UK and US (and in Australia) for many years. (Under names such as evidence based medicine, clinical pathways etc. etc.)
The trick to doing this is have clinicians change their practice to do more of the things with their patients that makes a positive difference and do less of the things that either are ineffective or harmful.
How you do this requires a multipronged strategy - where analytics is just a way to identify and track the problem. One way of actually making a difference is to provide clinical decision support (CDS) at the point of clinical decision making - among a range of other professional development and educational initiatives.
Sadly support of clinical systems and CDS etc. seems to be off the agenda.
To me this is very, very stupid. A National E-Health Strategy needs to be a balanced framework that supports clinicians, software providers and technical staff as well as the central Department and its needs. If this is not the route taken then failure beckons and it is very unlikely the benefits sought will be achieved.
Shows what sort of direction you get when you have inwardly focussed bureaucrats who are disconnected from the real world, and who fail to consult and listen properly.
Pretty sad.
Do read the full article and let us all know - via comments what you think. To assist there is a short summary article found here:

http://www.itnews.com.au/news/how-the-govt-is-using-medicare-data-to-improve-the-health-system-412690
David.

AusHealthIT Poll Number 299 – Results – 6th December, 2015.

Here are the results of the poll.

Do You Believe The PCEHR's Primary Purpose Is To Facilitate Government Data Mining Of Health Information Or To Improve The Quality And Safety Of Care?

Improve Clinical Care 8% (7)

Facilitate Data Mining 76% (68)

Neither 8% (7)

Both 8% (7)

I Have No Idea 1% (1)

Total votes: 90

Again a pretty decisive poll. It seems most readers see analytics as the primary purpose of the PCEHR!

Good to see such a great number of responses!

Again, many, many thanks to all those that voted!

David.