Quote Of The Year

Timeless Quotes - Sadly The Late Paul Shetler - "Its not Your Health Record it's a Government Record Of Your Health Information"

or

H. L. Mencken - "For every complex problem there is an answer that is clear, simple, and wrong."

Thursday, May 10, 2018

The Macro View – Health, Financial And Political News Relevant To E-Health And The Health Sector In General.

May 10, 2018 Edition.
Well the Budget has happened this week and we are all now fully in the picture.
There is a summary here and I will provide commentary next week.
https://theconversation.com/infographic-budget-2018-at-a-glance-95649
Good to see we are now in France’s good books but less so with the Chinese!
On the global front the weather seems to becoming increasingly Stormy for Trump as he battles trade with the Chinese and nukes with the North Koreans!
Brexit also seems to be becoming more of a problem….and may be Russia is deciding becoming a global superpower is now rather out of reach now. Good idea!
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Here are a few other things I have noticed.
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Major Issues.

Labor’s identity politics - the left’s blight on the hill

  • The Australian
  • 12:00AM April 30, 2018

Adam Creighton

The Labor Party’s new policy platform provides an opportunity to test the idea that parties of the left are increasingly mouthpieces for the concerns and pieties of the ­educated elite.
A striking analysis by economist Thomas Piketty has shown how the main left-of-centre parties in Britain, the US and France have steadily transformed from being parties of workers to being parties of high education since the 1950s. He didn’t include Australia but Labor’s new 211-page document slated for discussion at Labor’s ­national conference — “a clear statement of Labor’s beliefs, values and program for government” — helps provide the answer here.
Mentions of “intersex” — that’s the “I” in LGBTIQ, in case you didn’t know — occur 63 times, ahead of those more esoteric concerns such as “wealth” (61 times) and “inequality” (47). Whatever intersex means — or is — it’s also far more important than “ownership” (12 mentions), “production” (18) and “distribution” (10).
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Malcolm Turnbull backs Gonski 2.0 'blueprint' for radical overhaul of Australian curriculum

By Michael Koziol
29 April 2018 — 11:20pm
Prime Minister Malcolm Turnbull will push for a radical overhaul of the Australian curriculum after endorsing a blueprint by businessman David Gonski to fix the country's lagging school system.
The Gonski 2.0 plan will transform the school system to assess and reward personal progress, not just standard academic benchmarks. It challenges the Commonwealth, states and territories to ditch their "industrial model of schooling" in favour of a more modern and individual approach.
Gonski 2.0 challenges the Commonwealth, states and territories to ditch their "industrial model of schooling" in favour of a more modern and individual approach.
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Gonski: we need to recommit to improving teacher skills

By David Gonski
1 May 2018 — 4:15pm
Despite consistent growth in funding in Australian school education since 2000 and now the Government’s implementation of needs-based funding, our academic performance has declined compared to other OECD countries.
This suggests Australian school students are falling short of achieving their full learning potential.
It also suggests that unless we are willing to accept more of the same, we need to shift our focus from minimum levels of achievement to the highest achievement possible achieved through the maximum attainable annual growth.
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Bank stress test reveals ratings risks

  • The Australian
  • 11:45AM April 30, 2018

Samantha Bailey

A downturn in the housing sector could put pressure on the ratings of Australia’s big banks, a mortgage stress test has found.
The report, published by Fitch Ratings today, does not expect a sharp correction in the housing market, with the outlook for economic growth and unemployment relatively positive.
But analysts said that a rapidly rising unemployment rate could trigger a housing market downturn.
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30 April 2018

How low can the AMA go?

AMA The Hill
Posted by Dr Bill Coote
Recently The Australian newspaper made the surprising claim that only 30% of medical practitioners are AMA members. 
In 1962, more than 95% of doctors belonged to the AMA. By 1987 it was 50%. AHPRA reports that in 2016 there were 107,179 registered medical practitioners. The 2016 AMA annual report notes a membership of 29,425. That is 27% of doctors. 
The AMA remains the “go to” medical organisation for politicians and the media. However, the credibility of the AMA depends on maintaining the support of doctors. More prosaically, the AMA depends on members’ annual subscriptions to fund its activities. 
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  • Updated Apr 30 2018 at 12:00 AM

Super guarantee at 12pc leaves poor worse off: Grattan Institute

Raising the superannuation guarantee to 12 per cent would actually leave low-income earners worse off in retirement because of foregone pension payments, new research claims.
The Grattan Institute says the bipartisan policy to lift the rate of compulsory superannuation contributions should be dumped because the vast bulk of benefits are heavily skewed towards the wealthy, while also worsening the budget bottomline.
"Despite what the super lobby claims, the current 9.5 per cent super guarantee – taken together with the age pension and non-super savings – is sufficient to deliver an adequate retirement income for low and middle-income Australians," says a report prepared by the institute's chief executive John Daley and research fellow Brendan Coates.
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We need to arm our kids against the interests of Big Data

By Linda McIver
30 April 2018 — 11:00pm
Hands up if you’ve heard the term Big Data. Keep your hand up if you understand the impact Big Data is having on your life. If your hand is still up, you probably either work for Cambridge Analytica, or you are kidding yourself. The implications of Big Data are so immense that even the data science industry doesn’t yet know everything that’s possible with this technology.
The world is reeling from revelations that, between them, Facebook and Cambridge Analytica have shamelessly exploited the data of millions of users, in an apparently successful attempt not just to profit from our data, but to manipulate our behaviour. While we explicitly agree to hand our data over to Facebook when we sign up, for alarmingly unrestricted purposes, in this case the culprit was actually a harmless-seeming personality quiz. If your friend did the quiz, they ticked a box allowing that quiz to access your information. Back then, Facebook privacy settings gave you no way to opt out of that kind of access.
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  • May 2 2018 at 10:14 AM

Bank of Mum and Dad loans soar 25pc as banks crackdown

Lending by the Bank of Mum and Dad has increased by 25 per cent to about $20 billion in the past 12 months as banks' raise rates, increase minimum deposits and toughen repayment terms and conditions.
And as the RBA governor Philip Lowe and ANZ chief executive Shayne Elliott both warned on Tuesday, loans are only going to get harder to get as costs rise because of the bad behaviour of banks exposed in the banking royal commission.
Bank of Mum and Dad, a term used to describe parent lending to their children for property purchases, is now the tenth largest lender, bigger than ME Bank, AMP Bank and the local operations of global banking giants like Citigroup and HSBC Australia.
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We seem about to conduct an election in cloud cuckoo land

By Ross Gittins
1 May 2018 — 1:53pm
Did you hear the news? It’s a budget miracle. Remember all the worry about debt and deficit? Gone. Not a problem. Disappeared. Or, better word – evaporated.
In recent months, revenue has started pouring into the government’s coffers. According to Chris Richardson, a leading economist from Deloitte Access Economics, the budget’s “rivers of gold” are flowing again. The improvement in the budget has been “humungous”.
And though this year’s budget is still a week away, Treasurer Scott Morrison isn’t denying it.
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Strong support for free health, education and for taxing rich more: poll

By Matt Wade
Updated2 May 2018 — 10:07amfirst published at 9:00am
Support for universal access to health and education is strong in Australia with a new opinion poll showing nine in 10 voters think those services should be provided free of charge.
The Ipsos survey, released days before the federal budget, also found eight in 10 Australians agree the rich should be “taxed more” to support the poor.
The findings were part of a 28-nation survey that probed attitudes to socialist ideas in the 21st century.
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'Low wage growth diminishes our shared prosperity': RBA governor Philip Lowe

By Eryk Bagshaw
1 May 2018 — 8:10pm
Australia's shared sense of prosperity is diminished by sustained low wage growth, Reserve Bank governor Philip Lowe has warned, as the Coalition and Labor prepare to make the issue a key policy test of the May budget. 
Dr Lowe said workers should prepare for wage growth to stay around 2 per cent for some time yet, warning homeowners loaded with debt that there will be a rise in interest rates when conditions begin to return to normal.
In a speech that drew on the central bank's rarely cited ultimate objective of enhancing the "prosperity and welfare of the Australian people," he said he would like "faster progress" but this was not possible in the current climate.
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Gaia sheds an unprecedented light on our own Milky Way

  • The Economist
  • The Australian
  • 12:00AM May 1, 2018
For something so enormous, astronomers know remarkably little about the Milky Way, Earth’s home galaxy. They know its rough dimensions — somewhere between 100,000 and 180,000 light years across. And they know it contains 100 billion stars — or perhaps 200 billion, or maybe even twice that again.
For part of the galaxy, though, things are about to become much clearer. On April 25 the European Space Agency’s Gaia satellite released one of the biggest chunks of data in the history of astronomy. About 1.3 billion stars, perhaps about 1 per cent of the Milky Way’s total, have had their position, brightness and motion measured accurately for the first time.
The result is a stellar atlas of unprecedented size and accuracy, as well as great beauty. Gerry Gilmore, an astronomer at the University of Cambridge and one of Gaia’s scientists, showed an audience in London a slice of space so thick with stars that they looked like grains of icing sugar poured on to a sheet of black paper.
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Illegal cigarettes account for 15pc of the market

  • The Australian
  • 12:00AM May 2, 2018

Adam Creighton

The nation’s 2.4 million smokers are turning to illegal and even ­unhealthier cigarettes to avoid crushing increases in tobacco tax, costing the federal government ­almost $2 billion in lost revenue.
Between 2016 and 2017, tobacco consumption fell 6.1 per cent but the share supplied in the black market climbed to a record 15 per cent from 14 per cent a year earlier, according to a KPMG study.
The analysis found the presence of cigarettes manufactured legally in other countries and smuggled into Australia, as ­opposed to illegal loose-leaf tobacco, had jumped by a third and the number of tobacco seizures at ports exceeded 120, with a total weight of 264 tonnes, for the first time in a decade.
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Stephen Hawking's final theory published

By John von Radowitz
3 May 2018 — 2:39am
London: It may not quite compare with the doughnut-shaped universe theory which Professor Stephen Hawking threatened to steal from Homer in a famous episode of The Simpsons.
But the renowned cosmologist's final published theory, submitted before his death on March 14, provides just as much food for thought.
Hawking's best-selling book "A Brief History of Time" made him a household name, and sought to explain complex science to the masses.
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Thousands worse off in NDIS

  • The Australian
  • 12:00AM May 1, 2018

Rick Morton

The $22 billion NDIS is failing the nation’s most vulnerable people, leaving as many as one in five, many with intellectual and mental disabilities, reporting that the ­flagship scheme has left them worse off.
Flinders University researchers, presiding over the longest and most rigorous study of the Nat­ional Disability Insurance Scheme, have ­declared it is now “unreasonable” to expect the scheme to be delivered on time, while reporting that about half of all participants have had support cut or experienced no change in support under the new system.
As the Coalition prepares to mount a case for funding the program from general government revenue, and ditching the proposed Medicare levy increase to raise $8bn more for the scheme in its first four years, the four-year evaluation report concludes the scheme is struggling to cope with its workload.
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Capital city housing prices hit by first annual drop in five years

  • The Australian
  • 9:52AM May 1, 2018

Elizabeth Redman

The once-heated housing market looks subdued after capital city dwelling values posted their first annual fall in more than five years, according to property researcher CoreLogic.
Sydney, Melbourne and Brisbane housing prices all fell over the past month, while over the past year the only capital city that recorded an improvement in annual performance was Perth, the CoreLogic April home value index found.
The research comes after several months of slowing in the east coast capitals amid a regulatory clampdown on lending and buyer exhaustion.
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  • Updated May 1 2018 at 11:00 PM

The RBA can't lift rates when house prices are falling

House prices are dropping well ahead of a tightening monetary policy cycle, complicating the RBA's efforts to escape rates at "emergency" levels.
Annual property growth dropped below zero for the first time since late 2012, based on CoreLogic's newly-released combined index for the eight capital cities. The measure fell by 0.3 per cent in April and by a similar margin over the 12-month period.
The three-month annualised rate is now at 2.4 per cent, suggesting an acceleration in the negative trend in 2018.  The turnaround has been sharp. Around this time last year, house price inflation across the eight cities was running at more than 11 per cent.
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  • Updated May 1 2018 at 7:50 PM

RBA governor Philip Lowe warns of impact on households of bank scandals

Reserve Bank of Australia governor Philip Lowe has warned households may find it harder to get home loans and borrowing costs could be higher as a result of the bad behaviour of banks being exposed in the Hayne royal commission.
Warning also that interest rates may rise regardless of any official hikes by the Reserve Bank because of the potentially lasting impact of a rise in US money market rates, Dr Lowe cautioned that local banking scandals might impact the mortgage market.
"It is possible that lending standards in Australia will be tightened further in the context of the current high level of public scrutiny," he told a Reserve Bank board dinner in Adelaide on Tuesday.
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  • Updated May 4 2018 at 11:00 PM

ASPI vs ACRI: China doves and hawks go to war

As relations between the world's two superpowers, the US and China, undergo fundamental change, a local schism over how to deal with a more assertive China – Australia's most important trading partner – has turned into a spiteful fight.
On the eve of an expected budget announcement of a sharp increase in spending by the Malcolm Turnbull-led Coalition government on cyber security, much of it aimed at countering Chinese activities in Australia, open warfare has been declared between two key protagonists, the Canberra-based Australian Strategic Policy Institute (ASPI), and the Sydney-based Australia China Relations Institute (ACRI).
The conflict extends to Australia's China-specialist academics and think tankers, and even bureaucrats, with sharply differing views expressed in open letters about how Australia should approach relations with China. Making the conflict more intense are factors ranging from increased activity by Chinese and US intelligence agencies in Australia, to Prime Minister Malcolm Turnbull's hardening posture, driven by alarm over China's increasing assertiveness and domestic political concerns.
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Economic reckoning is on its way - and we will all have to pay

By Peter Hartcher
5 May 2018 — 12:01am
Australia escaped the wrenching shock of the global financial crisis and drifted into a long complacency instead. Yet the country now seems to have entered a reckoning of its own.
Not an economic one, not yet, at least, but a gathering climax of accountability. One institution after another, one elite after another, is brought under a searching scrutiny. No one - cardinal, cricket captain or capitalist - is immune.
Malcolm Knox wrote of the cycle that led the Australian cricket team to its disgrace, exposed for cheating: "Arrogance rewarded has only ever led to more arrogance." That cycle has been broken, not only for the cricketers but for a widening front of Australian institutions.
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Turnbull agenda ambushed by banks, corporate elite

  • The Australian
  • 12:00AM May 5, 2018

Paul Kelly

Australia suffers from the betrayal of elites. Their arrogance, complacency and denial — with the flawed icons of the Commonwealth Bank and the AMP as representatives of systemic ills — will empower progressive anti-business attitudes for years.
Divisions within corporate Australia, a trust crisis within the financial system and exposure of the flawed culture of company directors is putting at risk the Turnbull government’s tax reform and economic policy on the eve of Scott Morrison’s third budget.
Progressive campaigning will be reinforced by justified community scepticism certain to make acceptance of the Turnbull government’s proposed company tax cuts far more difficult. Efforts to cast the Labor Party as beholden to trade union power are overshadowed by the “guilt by association” brand problem facing Malcolm Turnbull arising from the moral and accountability failures of some of the nation’s most important financial institutions.
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Clients of financial advice need to stay alert

By Daryl Dixon
4 May 2018 — 2:04pm
While following the progress of the banking royal commission may be unsettling, the continuing stream of revelations about malpractice and incidents of dishonesty provides a timely reminder of the need to remain alert and monitor the progress of your savings and investment strategies.
Despite the glaring revelations of clients not receiving the services and benefits they have paid for, regulations and controls governing the sale of products have been greatly tightened. There’s still only lax control over the spruikers of property investments, but purveyors of insurance, superannuation and investment products are required to disclose fees and ongoing changes as well as provide a detailed product disclosure statement to their customers.
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Company directors face pressure to cut board positions

  • The Australian
  • 12:00 AM May 5, 2018

Glenda Korporaal

Directors holding more than three board seats across Australia’s biggest companies are under pressure to sharply scale back their commitments, given the rising tide of regulation and increased workloads in the boardroom.
An analysis of the top 20 listed companies by The Weekend Australian reveals Lindsay Maxsted, Gordon Cairns, Sam Mostyn and Neil Chatfield are among the nation’s busiest professional directors, with multiple board roles and commitments as chairmen.
This week’s report by banking regulator APRA into the Commonwealth Bank’s culture, as well as revelations made at the bank royal commission on the role of boards, has put corporate Australia on notice, according to former Australian Competition & Consumer Commission chairman Graeme Samuel.
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The benefits of financial advice have been oversold

  • The Australian
  • 12:01PM May 4, 2018

John Durie

The mass exodus of the banks from wealth management is a belated acknowledgment that the benefits of financial advice for most Australians are way over blown.
For the 85 per cent of people on PAYE income and with a home loan, the obvious advice is simply to pay off your home loan, put any excess into your super and protect the wealth through insurance tied to your mortgage.
Until you are nearing retirement when some advice makes sense, that’s the end of the story.
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Wealth management closing down sale! Everything must go!



It Seems EMR Systems Are Getting Really Expensive – I Wonder Why So Much?

This appeared last week:

Vic government to spend $124 million on digital patient records

EMR system to cover four health services
Rohan Pearce (Computerworld) 01 May, 2018 12:32
Victoria’s 2018-19 budget will earmark $124 million for the rollout of electronic medical records at three health services, the state government revealed today.
The Victorian government said that the EMR rollout at the Peter MacCallum Cancer Centre, Melbourne Health and Royal Women’s Hospital will see the records linked to the currently operating EMR system at the Royal Children’s Hospital.
The rollout will reduce avoidable errors and duplications as well as help patients receive faster care, the government said. Once implemented, the measure is estimated to save  $34.1 million a year.
Over a 12 month period the EMR system at the Royal Children’s Hospital cut prescribing and administration errors by 27 per cent the government said, boosted the immunisation rates of children in hospital by 4 per cent, and reduced by more than 6700 and 2400 respectively the number of pathology tests and medical imaging examinations.
More here:
There is also coverage here:

Vic govt commits $124m to e-health records

By Justin Hendry on May 1, 2018 10:12AM

Three hospitals receive budget windfall.

The Victorian government has set aside $124 million to bring digital health records to three major Melbourne hospitals.
Minister for Health Jill Hennessy and Special Minister of State Gavin Jennings announced the funding ahead of today’s state budget.
The funding will deliver electronic medical records (EMR) to three health services in Melbourne's Parkville Precinct: the Peter MacCallum Cancer Centre, Melbourne Health and the Royal Women’s Hospital.
It will bring “all of Parkville’s major hospitals onto one system”, giving clinicians access to “a patient’s complete and up-to-date medical record … wherever in the precinct they receive their treatment”, the government said.
The three hospitals will also be linked with an e-health records system already running at the Royal Children’s Hospital, which is provided by US health software vendor Epic and was partially funded with $48 million by the government in 2014.
The government expects the new e-health records system will save $34.1 million each year by providing clinicians with the real-time information “needed to provide the very best care, every step of the way”.
“It means faster care, as doctors will no longer wait for paper records and test results to wind their way through the system, from one department to the next,” it said.
“And fewer unnecessary, duplicated tests, less frustration and waiting for the patient who just wants a diagnosis and a treatment that works.”
More here:
One would imagine this is an extension of the Epic deal with the Royal Children’s Hospital who are physically located nearby.
It all seems sensible other than what seems to be a pretty large cost to me.
Does anyone have any suggestions as to why so expensive?
David.

Wednesday, May 09, 2018

Does Anyone Know What This Is About? It Seems Pretty Obscure To Me.

This appears at Page 36 of the Health Department Budget Papers.
Improving Access to Medicines - e-prescribing for safer medicines
Department of Health






Administered expenses
4.3
4,018
13,720
2,844
400
-
Department of Human Services





Departmental expenses

-
1,669
2,555
591
594
Departmental capital

-
-
1,793
-
-
Total

4,018
15,389
7,192
991
594

This is the only mention of e-prescribing in the 400+ pages! (2 mentions of electronic prescribing)
This seems to be a description (Item 3):

6 things the Budget means for pharmacists

New fees to open a pharmacy or transfer ownership
9th May 2018
Pharmacists wanting to open a new PBS pharmacy will face increased costs from July 2019 as a result of new fees announced in the federal Budget.
……
Here are six key Budget measures:
  • New fees for pharmacy approvals. From 1 July 2019, pharmacists will pay an application fee when they seek to supply PBS medicines from new or relocated premises. A change-of-ownership fee will also apply.
  • Decreased up-front costs for pharmacies for high-cost medicines. This is one of the government’s most important responses to the King review and was flagged at APP last week. From 1 July, some of the revenue rebates manufacturers pay to the government will be reduced for some high-cost medicines. This will be followed by a trial of special pricing arrangements from July 2019.
  • $28 million over five years to upgrade electronic prescribing software systems and deliver a fully electronic prescription alternative to paper-based scripts.
  • $5 million over three years to continue the awareness campaign aimed at increasing the use of generics and biosimilars.
  • Funding for the National Prescribing Service and the Return of Unwanted Medicines will be cut by $40 million — about 25% — over four years. The funding cut is in return for a new four-year funding agreement. The savings have been promised for other health policy priorities.
  • The $20,000 tax offset for small businesses has been extended for another year.
Full article is here:

I can only guess it refers to this – but why are the funds not in the ADHA allocation and I wonder what it really means?

“Commence policy work with the Department of Health to enable digital paper-free options for all medication management in Australia, which would allow individuals to request their medications online, and all prescribers and pharmacists to have access to electronic prescribing and dispensing.”

Anyone know what the Department and the ADHA are cooking up? Seems like a lot of money for bit of policy work? Any other comments on the ADHA Budget?

David.

Tuesday, May 08, 2018

I Think The Public View On What We Should Do With Our Data Is Shifting Fast And I Believe The Government Is Not On Top Of It.

This appeared last week:

Tom Burton: Canberra creates a brave new data world

By Tom Burton • 03/05/2018
It is hard to overstate the importance of the federal government’s decision to create a consumer right over the data created about them.
Spurred by various inquiries calling for measures to enable consumers to more easily shop around for their financial and utility providers, federal cabinet has created a right designed to give citizens control over the data that is collected about them. The right will enable consumers to send their usage data to a competitor, to get a better deal based on their actual spending, usage and saving patterns.
The new right is predicated on the view there are enormous economic and societal benefits to better understanding the modern world through shared data. Better competition has been called out, but the benefits in collating and integrating administrative and personal data across virtually every sector in the community, are now obvious to everyone.
The Productivity Commission (rightly) convinced Cabinet that to seize these benefits it is imperative to build a national framework that gives citizens confidence in the governance of data and their ability to control the data created about them.
How much actual mobility and better consumer outcomes this will really lead to, is a leap of faith by Canberra’s econocrats. In the much-maligned finance sector, the competition regulators think giving consumers “control” over what in essence is their credit rating, will spur innovation and competition through the fintech sector. How much this reduces the well-documented premiums Australian bank customers pay for core services, is frankly anyone’s guess.

What value data?

Data is often touted as the currency of the so-called gig economy, but as the Facebook-Cambridge Analytica data leakage fiasco reveals, we are really only at the silent movie phase when it comes to considering data, its real value to the economy and society, and how to govern and manage the inevitable sharing of data across the economy and society.
At its highest, data is a slippery concept. Economists and accountants still can’t agree on how to even value it. This means you won’t see on any company’s balance sheet any precise valuation around its data holdings. The entire business model of companies like Uber and AirBnB is based on manipulating data for commercial gain, but yet we have no agreed way of valuing that data. Modern banks derive major returns through their management of transactional and other data, but again there is no dollar value associated with these holdings.
“We are really only at the silent movie phase when it comes to considering data, its real value to the economy and society, and how to manage the inevitable sharing of data.”
Data gains value through its application and linkages and, to date, we haven’t found a way to slot it into commonly understood accounting and economic frameworks. This makes it difficult to measure, for example, how much is the right amount to invest in cyber security. And suggests much of the enormous economic value created through two decades of digitisation is currently built on sand.
Which makes this week’s announcement of a consumer data right very brave, especially for a country that has been a major laggard around digital rights and privacy.

Australia plays catch-up

The new European data right (known as GDPR) begins this month and is light years ahead of anything Australia could possibly design and will have a significant impact on any Australian business with European data holdings or digital processes. The public policy debate in Australia about GDPR has been nought.
Basic digital policy issues, such as cookie management, do not follow, and the right to be forgotten are not even on the regulatory horizon in Australia and, in any case, which regulator has the skills and clear mandate to consider how to apply them?
For a country that does not even have a privacy right, we have just created a whole new statutory right around data that goes to the heart of our modern economy and society. This is not to criticise the data right initiative, but to be realistic about our capabilities to drive a mature and sophisticated whole of economy approach to the many issues it raises.
“Basic digital policy issues, such as cookie management, do not follow, and the right to be forgotten are not even on the regulatory horizon in Australia.”
Legally, the creation of a sophisticated right over the data created about you, is a major regulatory change and will have profound impact on many industries, ranging from e-commerce and marketing to sensitive data areas like health care and public safety. It could also be a significant measure to help break down the global platform dominance that worries many economists (and market incumbents, most notably Rupert Murdoch’s News Corp).
The right will initially apply to the banking, energy and telecommunications sectors, and “will be rolled out to other sectors over time.” What data the right applies to is mired in legal and technical complexity. The sheer volume of structured and unstructured data being generated through digital commerce, not to mention social media and common, everyday events, like catching the train or driving, is huge. And growing exponentially.
And that is before we really fire up our networks with billions of internet-connected beacons and devices, powered up by ultra-fast, low-latency, fixed and wireless broadband.
This data ranges from core “transactional” data to enormous amounts of metadata, including location and time, and a raft of tags, pixels, scripts and personal identifiers. This is more than enough data for experts to agree that advances in computing means that, for at least the next decade, citizens should be wary of any claims of complete anonymity.
Big transactional businesses, like banking and telcos, argue the business intelligence that gets thrown from their systems goes to the heart of their competitive advantage and are very wary of sharing anything but the most elementary account data. Where that line gets drawn, is going to be a major battleground for every serious industry lobbyist in Canberra.
Lots more great stuff here:
This step is intimately tied up with the Government’s attempts to make much more of our data available for use by researchers and commerce to do all sorts of things that will be great for us personally.
The trouble with all this optimism is that right now a large segment of the population is not so sure about data sharing.
Facebook / Cambridge Analytica and the mishandling of de-identified data by the Department of Health have seen to that.
A brief reminder of the second:

Health data governance enforceable undertaking for reidentification of MBS/PBS data

Australia, USA  May 3 2018
In brief
The Australian Information Commissioner has concluded an investigation into the re-identification of Medicare service provider data within the de-identified Medicare Benefits Schedule and Pharmaceutical Benefits Schedule data published by the Commonwealth Department of Health on data.gov.au in 2016. Background and further information about the data published can be found in a LegalTalk Alert which was distributed on 11 May 2017. In the investigation, the Commissioner found that the Department of Health failed to take reasonable steps to protect personal information and to implement practices, procedures and systems to ensure compliance with Australian privacy laws.
The Department of Health provided the Commissioner with an undertaking, which included a requirement to establish an external review and audit into departmental policies and procedures for the release of data based on personal information.
The incident in 2016 has provided a valuable learning experience for Government agencies as they explore how to best realise the value of public data sets. Importantly, the Commissioner observed that the risk of re-identification may require limiting the sharing of some types of data to trusted recipients, and/or using secured environments to share information, rather than simply relying on de-identification techniques.
More here:
More recently we have also had this little exercise sprung on us.

Experts call for GPs to be more educated about data sharing

Call for more initiatives to educate GPs on tech literacy and avoid accidental data sharing
27th April 2018
Medical Director says it's being as “open as possible” about its plan to share GPs' de-identified patient data, after some doctors complained they had signed up without realising.
The company, which provides practice software to 45% of Australia's GPs, is asking for permission to extract information — including prescriptions and immunisation records of all their patients — as part of its latest program update.
Dubbed MD Heart, the scheme will allow GPs who agree to the handover to compare their activity with other doctors.
While it is strictly opt-in, some GPs say they missed the significance of the consent form because it was obscured among the dozens of ‘click-through’ boxes in the installation of Medical Director’s latest edition.
Canberra GP Dr Thinus Van Rensburg took to Twitter to complain that the new feature had been “snuck in without much fanfare or warning.”

So who would trust datamining being done by a large multinational company? If the tech clicks "yes" when prompted during the server upgrade all users, clinical & admin, start contributing. Snuck in without much fanfare and warning #datamining pic.twitter.com/WYIi5W25kB
— Thinus van Rensburg (@tvren) March 20, 2018

More here:
Concern with the apparent free for all with data has led to the GDPR in Europe and similar moves in the US.
This little stuff up has also not helped!

Be alert but not alarmed about mammoth CBA breach, say experts

By Ben Grubb
3 May 2018 — 5:10pm
Commonwealth Bank customers should be “alert but not alarmed” about a mammoth data breach in 2016, which the bank chose to keep private, Australia’s former privacy commissioner, Malcolm Crompton, says.
As the scandal-plagued bank faces the fallout from this latest incident — which has prompted the privacy regulator to re-look at how the bank handled it — privacy experts said even if a similar breach happened again, the bank might not be required to disclose it under new notification laws.
Yet another scandal plagues Australia's largest bank, with the Prime Minister Malcolm Turnbull labeling it an "extraordinary blunder".
Lots more here:
And to cap it off the ADHA is going opt-out to hoover up as much health information as it can as well as unveil some business friendly (you can be sure) Secondary Use rules on the myHR Data.
I really think this is all happening too fast and we all need to slow down, get our breath and, with attitudes to many established institutions changing and trust levels moving (mostly down) it is time for a pause.
None of this is data sharing stuff is super urgent – and I think should be subjected to a lot more scrutiny and decent policy formulation before moving forward (The Productivity Commission’s view noted).
It would be interesting to know what the ADHA thinks of this proposed right to personal data control?
Here is a link:
And what does the Government says to the idea of a Consumer Data Right:

The Australian Government's response

The Australian Government will introduce a Consumer Data Right to allow consumers to access particular data, including transaction, usage, and product data, in a useful digital format. Consumers will also be able to direct a business to transfer that data to a data recipient.
Implementation of the Consumer Data Right will begin in the banking, energy and telecommunications sectors, and will be rolled out to other sectors over time. Before rolling out reforms in a particular sector, the Government will work with that sector and consumers to determine the kind of data consumers require to achieve the intended choice and competition benefits.
The Consumer Data Right will be designed to ensure strong privacy protections and security safeguards. Government and industry will develop appropriate data standards for the protection, access and transfer of data.
To ensure appropriate oversight and regulation of the Consumer Data Right, the Office of the Australian Information Commissioner and the Australian Competition and Consumer Commission will have separate but complementary enforcement roles. The Office of the Australian Information Commissioner will have primary responsibility for individual consumer complaints, and the Australian Competition and Consumer Commission will focus on ensuring the system as a whole operates as intended, including supporting competition and good consumer outcomes. There will be robust information sharing arrangements between the two. Consumers will be able to direct complaints to a single contact point, run by the OAIC, who will handle complaints using a 'no wrong door' approach.
The Consumer Data Right will be introduced primarily through changes to the Competition and Consumer Act 2010.
The Treasurer will lead implementation of the Consumer Data Right.
---- End Extract.
What do you think are the implications and consequences for Health, the Health System and your health data of all this?
Additionally how do you feel about about the National Data Commissioner and their role:
See here:
https://www.itnews.com.au/news/australia-to-get-national-data-commissioner-489988

David.

Postscript:

After this was initially written I noticed this:

Security fears over impending national bank customer database




A massive breach of Commonweath Bank data exposed last week has raised security fears around a new national database of Australian bank customers, as Labor pushes for a delay to part of the scheme's scheduled introduction in less than two months.

The database - set to go live on July 1 - will include the details of every person who has taken out a loan or a credit card, along with their repayment history.

The Mandatory Comprehensive Credit Reporting scheme was a recommendation of the 2014 financial system inquiry and is designed to give lenders access to a deeper, richer set of data to ensure loans are only being approved for people who can afford to repay them.

Lots more here:

https://www.smh.com.au/politics/federal/security-fears-over-impending-national-bank-customer-database-20180504-p4zdd4.html

 So there really is almost daily reporting of additional concerns. Time for a serious review I reckon as people's views change.

D.