Quote Of The Year

Timeless Quotes - Sadly The Late Paul Shetler - "Its not Your Health Record it's a Government Record Of Your Health Information"

or

H. L. Mencken - "For every complex problem there is an answer that is clear, simple, and wrong."

Thursday, November 01, 2007

Emergency Prescription Provision for Displaced Persons – Where is Australia Up To?

The following report in Health Data Management prompted me to think how would Australia cope if 500,000 people were evacuated from part of one of our major cities.

Site Offers Rx Info for Wildfire Evacuees

(October 25, 2007) A new emergency prescription history program has been activated and updated to enable physicians to access information for residents displaced by the California wildfires.

The In Case of Emergency Prescription history service and secure Web portal were created earlier this year by several national pharmacy chains and electronic prescription network vendor SureScripts, Alexandria, Va. The program was designed to offer clinicians access to patient pharmacy records during an emergency, building on the KatrinaHealth.org Web site that was created to access electronic medical information for patients affected by Hurricanes Katrina and Rita.

Clinicians using electronic prescribing software certified to work on the SureScripts network can access the drug data via the Rx History icon in the application. Physicians without certified prescribing software can register to access the information at icerx.org. Physicians must have several identifying pieces of information about a patient to access their medication history from the site.

Continue reading here

http://www.healthdatamanagement.com/html/news/NewsStory.cfm?articleId=15951

It would seem that, given there is a record held at Medicare Australia(MA), of all the medications provided under the PBS scheme – which would cover the vast majority of important medications each Australian in taking a similar portal could be developed for Australian GPs who find themselves having to support displaced patients.

Given NEHTA is working with MA to deliver identifiers for both clinical providers and patients there seems to be little barrier to this becoming a reality with a little planning and work.

I wonder will anyone have the wit to ‘just get it done’. A lot of people might be very grateful if we have an event like Cyclone Tracy or Cyclone Larry again!

David.

Wednesday, October 31, 2007

Interesting World of Health IT Conference in Vienna

It seems there was a very lively and information rich Health IT conference in Vienna last week.

The official web site for the conference is located here.

Among the reports that very interesting were the following:

World Health Organization official calls for public health IT investments

By Jack Beaudoin, Editorial Director 10/25/07

VIENNA, AUSTRIA - Healthcare information technology can minimize, not widen, the gap between have and have-nots, said Hussein Gezairy, the World Health Organization director for the Eastern Mediterranean region, at the World of Health IT conference on Wednesday.

That's not to say the status quo of technology distribution can be maintained. In his keynote address, Gezairy said that if public officials work to make technology more widely available - reducing, in effect, the ratio of haves to have-nots - the benefits of healthcare IT will be spread more broadly across the world's population.

"We have to work on this," he said. "Maybe it is time to declare how essential ICT is to health, in the same way WHO declared certain medicines essential."

That's an almost revolutionary idea in public health, where many have maintained that the costs of new computing could reduce the amount of money spent on relatively inexpensive lifesaving medicines. "This argument is not valid at all," Gezairy maintained, later pointing out that the prices of vaccines have dropped precipitously the more they were used, and the same could be true of technology.

…..

Gezairy was quick to point out that many challenges remain to successful ICT uses. These include:

  • Lack of national e-health policies, strategies, plans and legislative frameworks
  • Use of systems is limited to nurses and clerks, not used by many physicians
  • Cost of computer systems compared with cost of medicines is still prohibitive for many countries and institutions
  • Use of ICT for public health is limited at present
  • Many populations live in rural and remote areas with little or no access to specialized health care
  • E-health projects, especially telemedicine, are initiated and managed by non-health authorities.

Throughout his speech, Gezairy reiterated the need to include physicians in healthcare IT planning and deployments.

…..

For the full article continue reading here:

http://www.healthcareitnews.com/story.cms?id=7999

I must say the list of challenges reads like a useful hit list of things that need to be addressed.

Also reported was a talk from the US Health and Human Services Secretary.

http://ehealtheurope.net/news/3160/us_building_momentum_by_accrediting_health_it

US building momentum by accrediting health IT

26 Oct 2007

Accreditation of vendor applications, based on core interoperability standards, is helping to spur adoption of ICT within the United States of America healthcare system.

Initial results suggest the accreditation of electronic patient record systems is leading to financial incentives for their adoption, and helping drive spread of key functionality such as order communications.

Speaking at World of Healthcare IT in Vienna, Dr Mark Leavitt described the approach and progress of the Certification Commission for Healthcare Information Technology (CCHIT), the federally-funded organisation he chairs.

“Every time I travel I feel bad that America is so far behind,” Dr Leavitt told the largely European audience in Vienna. “The level of health IT funding in US is miniscule in comparison to overall health funding. In the US government does not buy health IT systems.”

Instead, he said that the government is trying “to do a few things and catalyse adoption of health IT”. One of them being to accredit vendor systems to a core set of requirements that healthcare funders and providers can have confidence in.

“Our mission is simply to accelerate the adoption of health ICT – make sure the technology is interoperable and robust,” said Dr Leavitt.

Founded by organisations including HIMSS (Healthcare Information and Management Systems Society) and the American Healthcare Information Management Association (AHIMA), CCHIT won a £7.5m contract from the Federal government in October 2005. Initial certification work focused on ambulatory electronic patient record (EPR) systems, with work now underway on inpatient EPRs.

Continue reading the long and interesting article here:

http://ehealtheurope.net/news/3160/us_building_momentum_by_accrediting_health_it

I have a feeling Dr Leavitt might just be being a little hard on himself. While the US does not have a grand strategy involving the expenditure of billions of dollars there does seem to be genuine progress being made in many key areas. I suspect we will see the payoff of all the basic Standards work and so on over the next few years. Time will tell.

Lastly we had the following report of talks by Richards (Granger and Alvarez) from the UK and Canada.

NHS chief chides vendors for promising more than they deliver

By Jack Beaudoin, Editorial Director 10/25/07

VIENNA, Austria - Digitalization of health services in three countries -- England, Canada and the United States -- is progressing and gains are being made, according to officials who spoke at Thursday's World of Health IT conference closing keynote address.

But the two countries that have notched the most progress say the advances have come in spite of vendors and suppliers who are still dragging their heels on interoperability.

"Vendors!" said Richard Granger, who has already announced plans to wind down his role overseeing the English National Health System by the end of the year. "You can't do these projects without them, but many of the products proffered can't do the job."

He complained that, "Vendors go to the ministers and tell them what's possible, and then leave it to me to deal with the realities."

Empty claims of interoperability

Similar sentiments were echoed by Canada Health Infoway chief Richard Alvarez, who said that despite interoperability claims, suppliers are failing to deliver functional compatibility with other systems.

"Vendors continue to say they can do it – but they can't," Alvarez noted. "We don't have a single vendor" that is truly interoperable.

When a conference attendee from Philips said that PACS vendors using DICOM standards provided an exception to such generalizations, Granger dismissed the point out of hand, noting that Fuji Photo Film (UK) Limited had previously challenged the NHS’ interoperability requirements in court and lost.

PACS among successes

He then urged existing PACS suppliers to the NHS to "get their asses into gear" and implement HL7 version 3 standards as required by the programme.

Despite that attitude, Granger said the PACS component of the NHS' initiative has been one of the more successful elements to date because it has been the least disruptive for clinicians.

"If I had to do it again, this is where I would probably start," Granger said.

He said that on or about Dec. 10, the last wet-film radiology system in the country would be decommissioned, giving way to a new PACS. "In about three years, we will have achieved digitization of that particular analog technology," he said -- noting that it will occur almost on the 100th anniversary of the introduction of film radiology in Great Britain.

Continue reading at the URL below:

http://www.healthcareitnews.com/story.cms?id=8000

They must have been a great double act – and amused those listening with their frustrations with the commercial Health IT vendors.

As in all things I am sure there is an element of truth in what they say – but equally there are some Governments (and their senior bureaucrats) whose expectations of what can be done in what time frame for how much can be a little un-realistic.

All in all sounds like a fun (and useful) time was has by all!

David.

Tuesday, October 30, 2007

NEHTA Provides an Annual Report for 2006-7.

NEHTA has just published its 2006-7 Annual Report.

The document can be found here.

It is a glossy 48 page document which provides just three pages describing what has been achieved in the last 12 months.

The achievements are summarised thus (By NEHTA):

NEHTA Outcomes at a Glance

  • The International Health Terminology Standards Development Organisation (IHTSDO) was created with NEHTA’s Karen Gibson as Deputy Chair, and held its first meetings in Chicago and Brisbane.

  • Australia’s National Product Catalogue was released, with over 50 of Australia’s top medical and pharmaceutical product suppliers taking advantage of the improved ability to communicate up-to-the-minute information about their products directly to current and potential customers.

  • A comprehensive examination of key privacy issues and risks relating to the establishment of unique healthcare identifiers (UHI) and the shared electronic health record (SEHR), which included extensive feedback from clinician, consumer and privacy advocate audiences.

  • Significant development of the Australian Medicines Terminology (AMT), including establishing world-first processes for the documentation of editorial rules, and ensuring safe and reliable terminology development and maintenance. NEHTA’s efforts in 2006-07 culminated in the early release of the AMT to enable international feedback during the Brisbane IHTSDO meetings.

  • Specifications released to standardise the content of electronic communications in the following areas – pathology requests and results reporting, discharge summaries, referrals between general practitioners and specialists/critical care units and diagnostic procedures and test results reporting.

  • 110 (approximately 90%) work program milestones achieved.

  • 77 public documents produced for review and feedback.

  • Established the National E-Health Standards Catalogue, containing the e-health specifications and standards recommended by NEHTA to date. The Catalogue includes 36 NEHTA-developed specifications, and 75 NEHTA recommended standards or specifications.

These outcomes have been achieved with the following expenditure:

Salaries and wages 8,434,627

Contractors 3,169,354

Consultants 444,620

Depreciation 452,483

Amortisation of leasehold improvements 54,029

Lease expenses 656,877

Operating leases 30,997

Accounting fees 190,560

Audit fees 29,200

With various other expenditure the total spent has been $18,136,972 (Last year $9,741,516)

Thus, since it incorporated NEHTA has spent $27,878,488

A little arithmetic comes up with an interesting figure.

For example, each of the riveting NEHTA 2006/7 deliverables cost us $235,000 overall given that NEHTA has yet to deliver anything that actually does anything.

Here is the list of what has not been done.

1. The SNOMED CT core is developed overseas and there are no final Australian extensions yet available (e.g. Medicines Terminology still in beta as of late September, 2007) from NEHTA – so usable clinical terminology has not been delivered.

2. The planned Identifier Services are not yet available – maybe in 2009.

3. The Business Case for HealthConnect II has now been in development for two years and has a while yet to run (not due until COAG 2008).

4. The detailed privacy documents are not at all detailed or rigorous, and the feedback document is frankly a joke in my view (all of 4 actual pages of self congratulatory comment).

5. No one I am aware of has implemented, tested and proven to actually work a single electronic communications content specification.

6. The Australian Product Catalogue is operated by GS1 / EANNet. As NEHTA itself says “The data stored in the NPC is hosted by EANnet, developed by GS1 Australia. NEHTA will build on the NPC to develop a national approach to public health electronic procurement and business intelligence tools.” NEHTA’s role is largely co-ordination and the reports I receive suggest the scale of achievement claimed by NEHTA remains slightly optimistic (at best). It is clearly still a work in progress.

What we have here is an organisation which has yet to deliver anything much and has a productivity level that means it takes 1.2 man years to produce each document and has cost $27M + over 2 years.

We all deserve better explanations of just why it costs accommodation of less than 100 people costs $650,000+ p.a. and why accountants are being paid $195,000 p.a. to do the accounts.

More ominous is the following – note the report was finalised 19/10/2007

On page23 we find

After Balance Date Events

No matters or circumstances have arisen since the end of the financial period that significantly affected or may significantly affect the operations of the company, the results of those operations, or the state of affairs of the company in future financial years.

Future Developments

Likely developments in the operations of the company and the expected results of those operations in future financial years are in accordance with the principal activity.

I wonder what the Boston Consulting Group report will make of all this – and whether we will ever see it. Sounds like NEHTA is confident there will be no change other than minor tweaks around the edges. That NEHTA is underperforming was confirmed my multiple submissions to the BCG Review.

This report is really a model of self aggrandising obfuscation that I am sure many in the commercial sector wish they could get away with matching. Mercifully they can’t. The pages padded with useless lists and photos of the directors are a true joy to behold!

I really think that after two full years we should have more concrete and tangible outcomes for our almost $30 million.

David.

Monday, October 29, 2007

Shared Electronic Health Records – Coming at Last to the UK!

Finally, it seems to be really coming!

The following appeared a few days ago in e-Health Insider.

Summary Care Record launched in Bolton

24 Oct 2007

The first 48,500 summaries of patient records have been uploaded to the NHS Spine and out-of-hours staff in the Bolton pilot area will start using them over the next few weeks, Connecting for Health announced today.

Bolton in North-west England was the first primary care trust to take part in the NHS Care Records Service Early Adopter Programme. Final staff training is underway at the town’s out-of-hours service which deals with, on average, over 5,500 calls per month from patients who require access to a GP outside of their own surgery’s opening hours.

Connecting for Health (CfH) estimates that - with the current upload figure - around 900 calls per month could be from patients with NHS Summary Care Records (SCR).

Announcing the milestone in the NHS Summary Care Records programme, CfH said: “The records, which contain key medical information, including current medications, allergies and previous bad reactions to medication, have been uploaded from eight GP practices.

Please continue reading here:

http://www.ehiprimarycare.com/news/item.cfm?ID=3145

The importance of this achievement is not to be underestimated. That it has taken almost a decade shows – as I have often said – just how hard a national shared EHR is to implement!

And, what a battle it has been, however to get this far. Seeing the reports of the first clinical records being sent to the NHS ‘Spine’ made me think back to 1998 and the excitement I felt when I realised the UK Government was actually serious about all this.

The seminal document for me is the document entitled:

Information for Health

An Information Strategy for the Modern NHS 1998-2005

A national strategy for local implementation

The document was written by Frank Burns who was at that time seconded from a major management role in the NHS to a position as Head of IM&T for the NHS, NHS Executive.

You can see from the table of contents – and the title – that Frank really understood Health IT in a way I would suggest simply no one in the present health bureaucracy does in Australia some 10 years later. Parenthetically, he also knew you need a plan!

The main chapter headings were:

1 An information strategy for the modern NHS places the strategy in the context of broader Government policy, and describes the strategic information objectives and targets

2 Supporting patient care sets out how electronic patient and health records will be developed to support the healthcare process

3 Supporting integrated care through NHS-wide standards and infrastructure identifies the national infrastructure that must be in place to support local action

4 Information for improving health and more effective management addresses what must be done to improve the flow and use of information for health improvement, clinical governance, performance management and national service frameworks

5 Meeting public and patients’ needs addresses how the information needs of patients and the general public will be met

6 Making it all happen outlines what needs to happen at national and local levels

7 Implementation programme sets the scene for detailed implementation guidance by discussing resources and local implementation timescales

The full document can be downloaded from here.

Now, almost 10 years later we are seeing all sorts of things flow..partly at least because of the sponsorship of the effort by a rather determined young prime minister who also got it! The forward to the strategy says it all!

Information for Health - Foreword by the Secretary of State for Health

"The challenge for the NHS is to harness the information revolution and use it to benefit patients."

Rt. Hon. Tony Blair,
All Our Tomorrows Conference, Earls Court, London. 2nd July 1998

Following the General Election of 1997 we took over responsibility for the National Health Service and took on the task of modernising it so that it can provide top quality treatment and care in every part of the country. We are determined to ensure that in future the buildings, plant and equipment in the NHS match the excellence of the staff.

Our White Paper The new NHS: Modern • Dependable set out a demanding ten year programme. It is designed to ensure that the NHS provides a universal, prompt, high quality service which is as close to people’s homes as can be achieved safely with current and developing levels of expertise and equipment. Clearly, information technology has a crucial role to play.

Up to now the use of IT in the NHS has not been a success story. Far from it. Lots of money has been wasted. Some important data has not been collected and used. Other data has been collected but not used. There has been too much emphasis on financial data to support an internal market at the expense of IT systems which could directly benefit patients. As a result, clinicians working in the NHS came to see data collection not as a help but as a hindrance to their work.

The Information Strategy we are launching in this report is not intended merely to put that right. It is a radical programme to provide NHS staff with the most modern tools to improve the treatment and care of patients and to be able to narrow inequalities in health by identifying individuals, groups and neighbourhoods whose healthcare needs particular attention. Our new information strategy will help staff do the jobs they came into the NHS to do and to do them better.

Using rapidly developing information technology clinicians will be able to draw on the expertise of others, sometimes over great distances. Test results will be dispatched in a fraction of the time it has taken up to now. Patient’s details will be transmitted between primary care and hospitals rapidly and accurately.

It will be possible to book hospital admissions over the phone at times which suit patients. Analysis of the data will show up any variations in the cost and effectiveness of treatments. Area studies will reveal sources of ill health or inequalities in healthcare.

All this won’t happen overnight. It will involve a lot of work. As with all our proposals for modernising the NHS, it will also involve detailed discussions with staff about what they want the system to provide and how best to provide it. But it has got to be done. A lot of people will have to change the way they work. The NHS can only face the challenges of the new century if it has the most modern information technology and systems in place. Nothing less will do for a service which looks after the health of the nation.

In the immediate future the most important non-clinical priority for the NHS must be to complete the work necessary to cope with the Year 2000 problem and make sure the NHS continues to function and function safely.

The details of this strategy are complex but the overall position is simple. We must grasp the opportunity which new information technology offers to improve both healthcare and health. All NHS organisations will have to play their part in delivering this key component in our programme to modernise and improve the NHS. Senior clinicians and managers throughout the NHS and senior members of professional bodies will have to show leadership and commitment. There are formidable educational, cultural and management challenges to overcome. But they are more than matched by the scale of the benefits the success of this strategy will bring for patients, professionals and the public.

Frank Dobson
Secretary of State for Health

I must say such an introduction to a national e-Health Strategy could almost be written by a new Federal Health Minster in OZ with just the dates changed!

I would guess there is another five years of hard slog before the work started by this initial UK strategy is getting close to being complete – although it should be noted some areas are (e.g. PACS rollout to all English Hospitals) – and it is only then will we really be able to finally evaluate what has been achieved. There are doubtless a huge number of lessons to be learnt at all levels as the major systems are more fully rolled out.

Being an optimist I think a decade from now we will all look back and wonder what all the fuss, pessimism and clinical resistance to change was all about and we will all be wondering what is the best way to get the benefits the UK will be achieving.

These are long journeys. We really need the leadership to start down a path that suits our health system sooner rather than later. I really like the idea of Australia having “A national strategy for local implementation”

David.

Sunday, October 28, 2007

Useful and Interesting Health IT Links from the Last Week – 28/10/2007

Again, in the last week, I have come across a few reports and news items which are worth passing on.

These include first:

Online tool to help women calculate the risk

Natasha Wallace Health Reporter
October 22, 2007

WOMEN aged over 20 will for the first time be able to assess their risk of developing breast cancer with an online calculator designed to also debunk the myths surrounding the disease.

The interactive tool launched in Sydney today by the federal Health Minister, Tony Abbott, asks questions about age, family history of breast and ovarian cancer, genetic factors, height, weight, alcohol intake, menstrual and reproductive history. .

The calculator, developed by the National Breast Cancer Centre, tells women if they are at "low or average risk", "moderately increased risk" or "potentially high risk" of developing breast cancer. It also suggests what might have contributed to that risk.

Women were generally confused about the causes of breast cancer, and one in three wrongly thought alcohol was not a risk factor but a knock to the breast was, Dr Helen Zorbas, the director of the National Breast Cancer Centre, said yesterday.

Dr Zorbas, a breast physician at Royal Prince Alfred Hospital, said the tool would also be useful for GPs but stressed it was not a guarantee against developing breast cancer even if women actively reduced their risks.

"We had some very high-level epidemiologists working on developing algorithms which actually sit behind the workings of this tool, so there's some very high-level science which supports it," Dr Zorbas said.

Continue reading here:

http://www.smh.com.au/news/national/online-tool-to-help-women-calculate-the-risk/2007/10/21/1192940905034.html

The web site can be found at the following URL:

nbcc.org.au

Given that one in eight women will develop this awful disease in their lifetime – knowing where you stand from a properly researched calculator seems like a useful e-Health initiative to me.

Second we have:

Patents bid quietly laid to rest

Karen Dearne | October 23, 2007

THE federal Health Department has quietly halted a controversial Pharmacy Guild bid to patent key aspects of a national medical record sharing network.

In July, the guild assigned its interest to the commonwealth and, in August, the department withdrew the application ahead of a formal determination by the patents body, IP Australia.

A spokesman for the department said a dispute with the guild over a contract for the Better e-Dispensing and e-Claiming project had been resolved through mediation, "in a manner satisfactory to the parties".

The project was established to develop a draft data standard for communications between pharmacies, consumers and government agencies.

The project, which blew out to $4.5 million from the original $3 million, was funded by the Department of Health. The guild-engaged consultancy CR Group for the development work.

Then, in 2002, the guild and CR Group jointly applied for worldwide patents for a "method and system for sharing personal health data".

The patent bid sparked outrage from doctor, consumer and industry groups also collaborating on local e-health initiatives.

If successful, the guild could have charged royalties on government IT systems such as the proposed MediConnect and its replacement, the now-languishing HealthConnect.

Continue reading here:

http://www.australianit.news.com.au/story/0,24897,22630718-5013040,00.html

This really is good news – but frankly it should not have ever got this far. There exists what is termed ‘prior art’ talking about these sort of approaches going back at least a decade before that.

What these people were thinking is very hard to determine – good this silliness has gone forever.

Third we have:

IBA Health closer to $411m UK takeover

October 26, 2007 - 2:15PM

IBA Health Ltd has cleared one of the final hurdles for its $411 million takeover of ailing UK counterpart iSOFT plc, after receiving approval from a British court.

The million-dollar acquisition, making IBA the world's fourth largest e-health group, is now expected to be completed on October 30 when iSOFT is delisted from the London Stock Exchange.

The High Court of Justice for England and Wales still needs to confirm capital reduction before the takeover, but this was expected to take place, IBA said.

Continue reading here:

http://www.smh.com.au/news/breaking-news/iba-health-closer-to-411m-uk-takeover/2007/10/26/1192941311753.html

Given the sudden jump of a little over 8.5% on Friday 26th October in Australia one has to assume the market has decided this is really over (at last)!

The following provides a useful perspective on the iSoft saga from an iSoft perspective.

Chairman reveals his iSoft low point

23 Oct 2007

iSoft chairman, John Weston, has revealed he reached the lowest point in his tenure at the healthcare software company when apparent accounting irregularities came to light.

In an interview with the Financial Times, Weston recalls his personal nadir in the iSoft saga. In July 2006 he was just six weeks into the job when newly-appointed auditors, Deloitte, discovered what appeared to be accounting irregularities in previous years’ figures.

He jokes with the FT that he will not be joining companies that have just appointed a new finance director, a new set of auditors and a new chairman of audit all at the same time.

Weston reveals that in early board meetings he chaired there were some tensions between executives and non-executives over Lorenzo, the software being developed for the National Programme for IT. In particular, he recalls: “I had some uneasy feelings about the lack of information available about the cost to complete development”.

He quickly learned that delays in the development of iSoft’s Lorenzo system covering three regions of England’s NHS were at the heart of the problems.

Continue reading here.

http://www.e-health-insider.com/news/3142/chairman_reveals_his_isoft_low_point

Fourth we have:

White House order puts HHS in charge of biosurveillance efforts

By Nancy Ferris

A new White House directive orders the Department of Health and Human Services to establish a national biosurveillance system to detect threats to human health and says the system should rely, where possible, on e-health records.

The directive, Homeland Security Presidential Directive 21, covers many aspects of public health and medical preparedness for a naturally occurring or deliberately induced health emergency on a large scale. The directive states that it “will transform our national approach to protecting the health of the American people against all disasters. “

For the most part, the directive gives HHS authority over the response to health emergencies. It appears to come down on the side of HHS in a number of areas where there has been uncertainty over whether HHS or the Department of Homeland Security was in charge. Both DHS and HHS have biosurveillance programs, for example.

Continue reading here:

http://www.govhealthit.com/online/news/350075-1.html

This is an important move and reminds us that in Australia we have the Australian Sentinel Practices Research Network (ASPREN). This system has about a hundred general practices around the county who report weekly the cases of influenza like illnesses, gastroenteritis, shingles and chickenpox. The reporting is done electronically using a web site at the University of Adelaide. It seems to me that while this is a very small start – Australia could be doing a great deal more in this area!

Lastly we have:

Ask and ye shall receive: study

By: Joseph Conn / HITS staff writer

Story posted: October 19, 2007 - 5:59 am EDT

Part one of a two-part series

Many Americans will do their part when asked to allow their heath records to be used for medical research, but the operative phrase is "when asked."

And, for a plurality of those who do volunteer, that means being asked each and ever time their records are to be used, according to a recent study whose author said that it may be the first of its kind, specifically focusing on patient attitudes about healthcare privacy in the area of clinical research.

A pair of preliminary reports and two PowerPoint presentations about the study conducted by veteran privacy researcher Alan Westin, emeritus professor of public law and government with the Department of Political Science at Columbia University, were presented during two days of meetings earlier this month in Washington before the Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule. The committee operates under the Board on Health Sciences Policy of the Institute of Medicine at the National Academies of Science.

Among its goals, the committee is to "consider the needs for privacy of identifiable personal health information and the value of such privacy to patients and the public," according to explanatory material about it on the IOM Web site. The committee is to make recommendations about retaining or changing the status quo and seeking to balance "the needs and benefits of patient privacy ... against the needs, risks and benefits of identifiable health information for various kinds of health research."

Continue reading here:

http://www.modernhealthcare.com/apps/pbcs.dll/article?AID=/20071019/FREE/310190004/1029/FREE

Part 2 of the Article is here:

http://www.modernhealthcare.com/apps/pbcs.dll/article?AID=/20071022/FREE/310220003/1029/FREE

Striking a balance between privacy and health

This is a useful review of public attitudes to the use of health information for research. Reading the two articles and visiting the IOM web site are very worthwhile for those interested in the area.

All in all not a bad start to the week!

More next week.

David.

Thursday, October 25, 2007

The ABC’s Ockham’s Razor Does Health!

The last two weeks aspects of health have been the topic in Ockham’s Razor – the quarter hour chat on matters needing some clarity – on Sundays at 8.45am on ABC Radio National.

Both left me gasping and really should be read (or listened to for the next week or two) by all those wanting some background to the more perfidious side of the ‘Health Industry’.

Sunday 14 October 2007

Listen Now - 14102007 | Download Audio - 14102007

The pharmaceutical industry and doctors' prescribing habits

Professor Christopher Nordin, AO, who is Visiting Professor at the University of Adelaide and a consultant physician at the Royal Adelaide Hospital, discusses the influence the pharmaceutical industry has on doctors' prescribing habits. Read Transcript

Professor Nordin did not address a topic we did not know about – but his last paragraph makes a telling point as does much that precedes it.

I quote

“In this talk I have tended to blame the pharmaceutical companies for their undue influence on prescribing. It could be argued, however, that they are only doing their duty to their shareholders by maximising their profits; it is as much the fault of the medical profession, some say, in allowing itself to be manipulated. I asked a lawyer whether it is the briber or the bribed who commits the offence of bribery. 'Both', he replied. Perhaps that sums it up.”

Well worth a read or listen. The week before we had:

Sunday 07 October 2007

Listen Now - 07102007 | Download Audio - 07102007

Overseas trained doctors

Emeritus Professor of General Practice at the University of Western Australia, Max Kamien, looks at the history of overseas trained doctors (OTD) in Australia and the difficulties they faced, and still face to some extent, to be able to practice medicine in this country. Read Transcript

All I can say is that hearing what was presented I am glad I am not, nor never was, a member of the AMA!

A few selected paragraphs will whet the appetite!

“This anti-German feeling was rekindled in the 1930s when several thousand Jewish doctors fled Nazi Europe. Most went to the United Kingdom and the USA where they were able to practice. A small number came to Australia.

They had a hard time obtaining medical registration.

They arrived on German passports and were classified as 'enemy aliens'.

Although most spoke three or more European languages, English was not one of them.

They were broke.

Anti-Semitism was rife and overtly expressed. The then Director-General of Health and Medical Services in Queensland, Sir Raphael Cilento wrote: 'The Britisher is an individualist ... the Jew has 2000 years of servility behind him. If refugee doctors were permitted to go taking jobs along the Queensland coast, they would create the same situation that caused them to be thrown out of Germany and Austria.'

These doctors could seek requalification at one of the four university medical schools.

Melbourne University demanded they repeat the whole medical course. Gaining admission to University of Queensland was close to impossible. Adelaide and Sydney Universities required at OTD to repeat the last three clinical years.”

And

“Were some of the 1939 'letters to the editor' of the Medical Journal of Australia to be published today, the authors would certainly be prosecuted under the Race Relations Act. This example from a Macquarie Street specialist, Dr Maxwell, illustrates my point.

'Are these refugee aliens trained to our standards? Will they stay in unattractive outback centres? These newcomers will deliberately circumvent the restrictions in some surreptitious un-British way. Impudence implies dishonesty. Can their identity and the authenticity of their diplomas be established? I am sure not.

'I know the technique of these alien people. They will use their un-British European standard of ethics to insinuate themselves in our people's confidence. Our profession will not benefit, nor the public. All will suffer.'

That is an example of the sort of letter that was written.

Even doctors sympathetic to the plight of the Jewish refugee doctors were more than a little condescending. Dr Barrett of Adelaide wrote:

'They should be treated with consideration and courtesy. I, myself, placed one MD (Vienna) as a waiter in a seaside resort and have helped others become partially trained nurses.'

The treatment of the pre- and post-war medical practitioners was not the AMA's finest hour. For those two decades the Australian Medical Association became part of that xenophobic dark heart which periodically rises to the surface of our Australian politic. In 1957 this was obvious to the Minister of Health, Bill Sheahan, when he asked the New South Wales Legislative Assembly:

'What is the use of having a brotherhood of man as an ideal if we are not prepared to consider foreign doctors as human beings?'”

It seems little changes as the reader discovers as more modern times are reviewed and the just appalling self seeking behaviour of the AMA is catalogued.

Of course now – it is all sweetness and light – given that most of the regions and much of the city now relies on the OTD medical workforce

I can confidently predict once all the medical students now being trained become graduates the medico-political powers that be will yet again turn on the OTDs. History provides a racing certainty on that bet.

I wish it were not so – but the way Dr Haneef was treated suggests otherwise.

It is hard not to be deeply ashamed about all this, even though not directly, or even indirectly, involved.

David.

Wednesday, October 24, 2007

At Least Some-one Having a Serious Go at Doing it Right!

The following release appeared a day or so on my e-health alert system:

High-tech hospital a model of move towards electronic health-care delivery

BRAMPTON, Ont. - When the first patients walk through the doors of the new Brampton Civic Hospital in a couple of weeks, they will be entering a centre like no other in Canada - but one that will increasingly become the standard for health-care delivery across the country.


From check-in and lab tests to bedside care and drug dispensing, the $550-million institution that makes up one part of the three-hospital William Osler Health Centre northwest of Toronto is a model of electronic health - or e-health, as it's been dubbed.


Checking in or coming for a test? Electronic kiosks will allow patients to register with a swipe of their health cards, get a map directing them to the correct department and provide the service in eight languages, from English and French to Italian and Hindi. At a nearby "fast-lane" desk, a clerk will check photo identification and issue a hospital bracelet that next year will include a scannable bar code.


Going the way of the dust bin are paper records: all patient information will be logged onto computer, including blood test results and digitized X-rays and other images, which can be called up by authorized clerks, nurses and physicians anywhere in the hospital with the click of a mouse.


The hospital is completely wireless. Computerized monitors at the bedside record a patient's vital signs and allow treatment information to be added by nurses on the spot. And those real-time recordings will be accessible through hand-held devices carried by health providers that permit them to monitor changes, respond to emergency codes or just answer a patient's call for assistance.


"Innovative technology supports our health centre's objectives to increase efficiency, realize savings and focus on patient care," says Judy Middleton, chief information officer for the 479-bed hospital. "It is transforming the future of health-care provision and management."


Even drug dispensing will be computer-controlled. In the basement of the sprawling complex, a monster "drug robot" called PillPick electronically packages prescriptions in sealed baggies, which are then delivered to nursing stations and mobile medication cabinets, called MedCOWS. Each bag is specially ordered for an individual patient for a 24-hour period.


Carol Dueck, a nurse and consultant on the project, says PillPick does not dispense controlled substances such as narcotics, which are kept and packaged elsewhere in the building under strict security measures to ensure they don't go astray.


What PillPick does offer "is 99.9 per cent accuracy in delivery" of prescriptions, says Dueck, noting that the system was chosen because of its high patient safety profile. "It will ensure the right patient is getting the right pill at the right time."


Richard Alvarez, president and CEO of Canada Health Infoway Inc., says Brampton Civic represents the latest addition in a movement towards making e-health a reality across the Canadian medical system.

It's an evolution in Canadian health care that is long overdue, says Alvarez, whose federally funded, non-profit organization is working with provinces and territories to invest in electronic health projects.


"The one big issue is that while technology has really touched all our lives and very many aspects of our lives for the better . . . it's been absolutely absent in health care and it is really time to play catch-up."


Alvarez says Canadians can go to automated teller machines almost anywhere in the world - including "a little village in India" - and access their bank accounts. By contrast, Canadian health-care delivery is stuck in the medical Dark Ages.


Do continue reading here (there is a good deal more):


http://canadianpress.google.com/article/ALeqM5jT-CEMXgRqjCqL2BwKCPzMq_1pAA


This is really great to see. Here we have a brand new hospital being commissioned with technology to make it both safe and efficient right from the beginning. Clearly the process to get all this up and running – given the range and scope of what is being done will be a challenge! The good thing will be that the need for change management will be minimised as the staff will start – from day one - with new systems and new ways of working.


Wouldn’t it be good to see the struggling Royal North Shore Hospital (RNSH) – in Sydney – be offered a clean start in its new facilities (which are being planned right now) of this sort. I am sure that would be one sign that the hospital was not being discriminated against because of the apparent wealth of its potential patient base.


As someone who spent over a decade of my working life at RNSH I am deeply saddened by all that has gone on there in recent times. I know for certain because I worked with many of them and even partially trained some of them) there are many dedicated and caring clinicians working there – and that they have been badly let down by a really deeply flawed and profoundly neglected system.


A pox on both Reba’s and Tony’s houses for letting it get to this!


David.


Tuesday, October 23, 2007

Well, Now What is Needed in Australian e-Health is Confirmed - Let's Roll!

I must say it is always gratifying when something useful falls off the back of a truck!

This arrived this morning and has made my day from one of my favourite deep throats (no names – no pack drill)!

----- Begin Message -----

A copy of the AHIC eHealth Future Directions final briefing paper arrived last week.

The recommendations of the report, which went to the October 4 AHMAC meeting (that is the Australian Health Minister’s Advisory Council (AHMAC)– the peak e-Health body in the country) , are:

1. To develop a comprehensive national eHealth strategy in consultation with the Jurisdictions, industry, community and health services

2. That AHMAC recognises that eHealth is the cost of doing business in the 21st century, hence requiring continued investment

3. That AHMAC recognise that the Jurisdictions already have many of the necessary eHealth components already, and that what is needed is a system of knowledge exchange

4. That a ‘time limited’ implementation function / body be established and funded by AHMAC to integrate eHealth nationally

5. That the core set of components for a Shared Electronic Health Record be operating across Australia by 2012

6. That an implementation plan and resources schedule be developed to deliver the AHMAC eHealth strategy

----- End Message -----

The pain in all this is:

1. Why is the AHIC eHealth Future Directions briefing paper not public already?

2. With a Federal Election called what is the chance of any action?

3. Neither party has an e-health policy election announcement so far – maybe the HISA survey results – when published – can change that!

These recommendations, if implemented properly, will allow me to stop typing about the lack of an e-Health Strategy, Business Case and Implementation Plan, and get on with the blog being a tool to share information on the bleeding edge of Health IT!

I hope this is all true! It is not before time!

David.