I have now heard from two sources there is to be $400M given to NEHTA as part of the selling the Roxon / Rudd Health Reform Plan to the Council of Australian Governments.
It could all be the most made up bit of nonsense ever, but if true one really hopes this time there will be some clear conditions on just how the funds are spent, on what and what is delivered for the funds.
Rumours of extra funding for e-Health certainly must have some basis, given that this area is to be subject of an additional announcement at some point - according to the initial plan that was released a week or two ago.
We shall all see - but if true, you heard it here first. Anonymous tips welcome!
David.
Thursday, March 18, 2010
And You Think NEHTA has Improved Do You? I am Not So Sure!
With all the excitement of the HI Service we have maybe let our attention on other areas NEHTA is meant to be addressing slip.
I was brought back to earth when I found these recent entries in the new publications area.
IHTSDO Update October 2009 10/03/2010
Medicare OTS Information Sheet 04/03/2010
Doctors in Training Dinner- 13th February 2010- Victoria- Sean Holmes 03/03/2010
Connecting Healthcare- 9-10 February 2010- Sydney- Mukesh Haikerwal 03/03/2010
The top one is a three page report on the meetings held by 5 NEHTA staff members for 5 days in Bethesda, Maryland, USA. Not that the location is mentioned as far as I can see. I hear Maryland is a very nice spot to visit for 5 days in early Autumn!
What is worse the meeting was held October 3-9, 2009 and we get a brief report all of at least six months later. Just pathetic. Hardly the level of communication we should see from a publicly funded organisation.
Grab the 3 pages from here:
http://www.nehta.gov.au/component/docman/doc_download/953-ihtsdo-update-october-2009
More amazing is the last presentation from Dr Haikerwal – The NEHTA Clinical Lead.
This is the explanation of the Personal EHR in a few slides:
Extract Begins – Sorry the Format is Hard to Read.
PEHR Explanation: 1
Smart use of data is at the core of a self-improving system
Key: nationally consistent standards
Data:
•Should drive Clinical decision-making
•Measure and improve health outcomes
•Measure and improve performance
•Transparent reporting
•Inform Planning
PEHR Explanation: 2
•All ‘users’ -consumers, health professionals, managers, funders and governments have a part and will benefit
•Access record: generate an audit trail to inform us when and by who record viewed
•Patient does not hold the infra-structure
•They will not be using a USB key
•They do control the access to the data
•This does not change GP/local/hospital records, use or ownership
PEHR Explanation: 3
CORE COMPONENT: HEALTH SUMMARY RECORD: like RACGP’s Maintained at the Patient’s choice of ‘Health Care Home’: Generally by the GP in the Practice setting (or other authorised source).All Providers are part of the System which will provide data that is:
•Technologically current
•secure
•standards driven
•quality assured
Being able to link data:
Consistently
Confidence of users (Providers & Consumers)
Consent and Confidentiality
PEHR Explanation:4
System FOR the patient / citizen at the centre of the information tree
The PEHR is a driver of the change: bold and clear expectations (from the health eco-system)
Our PEHR:
We citizens drive:
What is on it
Who we permit to access it and write to it.
Control access to our own health information
(what information shared and with whom including which health practitioners –trusted source); (add information: self carer alternative self-management (e.g. monitoring BP DM) (respected source)
Where and how health record stored, backed-up retrieved
Integrity of the data and provenance (who wrote the entry) is core
Can base decisions on this with PROVENANCE.
An entry can be added to or removed “in toto” from share not altered
PEHR Explanation:5
Understand and inform that our care is better co-ordinated
•within practices
•between providers
Outcomes and satisfaction enhanced if information about care:
•available at the point of care
•up to date historical information
•timely new interaction information
•accurate
Enabled greater e-Health environment: added functionality indexed allowing exchange of information from various data repositories.
PEHR Explanation:6
Patients controlling access to their own health information may be confronting: can be liberating!
Patients chose to access different practitioners at points in their life may choose not to reveal all the details of their health and health care.
This is regrettable and hampers their care and hinders the efforts of those treating them.
PEHR Explanation:7
A person-controlled electronic health record part of the broader e-health environment
Health performance metrics measurement and data enhance :
Health research and planning
Recognise, plan for and combat disease
Need ongoing development of e-Health records by health services
Must join up and integrate information across the care continuum.
General Practice consults: encounter remains on the practice/primary care organisation’s system.
PEHR Explanation:8
Add to the PEHR summary record (from the GPs, hospitals or other trusted sources) at the push of a button (with patient request)
Patient requests information to be stored on their PEHR
Copy resides on PEHR and in the Practice.
Accessed with patient permission by authenticated users
Enhance care co-ordination which is more complex
PEHR Explanation:9
PEHR full and comprehensive summary of patient history e.g. :
- Medications
- Allergies
- encounters with medical and other specialists
- pathology and radiology results and
possible access to images can be through it being used as a portal but it may not be complete if patients so desire.
Health professionals are aware that even today all records may not be complete.
PEHR Explanation:10
For best health care and outcomes available records on PEHR, should be:
- Comprehensive
- accurate and the concept of accurately recording
- up to date (requires data cleaning)
- PROVENANCE of entries is crucial
The veracity of the record as a trusted source must be assured to allow it to be a source of data when making clinical decisions.
The patient area for documentation by the individual, their carer or other authorised representative / advocate is a respected source and clearly annotated as such. It is a vital part of the record providing information to guide care.
End Extract.
I can’t imagine why Dr Haikerwal was provided with such confusing and vague material to present.
I have read this through many times and am still not sure what is being proposed. If interested I suggest a download of the whole presentation.
You can grab it from here:
Connecting Healthcare- 9-10 February 2010- Sydney- Mukesh Haikerwal
It is really time NEHTA came clean and explained just what it is they are on about and just what the plans if any are.
If they are proposing some form of centralised shared record – the blood sport going on between the British Medical Association and the Department of Health should provide some real pause for thought!
See here for links:
http://www.bma.org.uk/about_bma/BMAinthenews.jsp
Summary Care Record
The BMA’s press release outlining concerns with the rollout of the Summary Care Record stimulated significant interest and was covered by The Guardian, The Telegraph, The Times, The Daily Express, The Daily Mail, Sky News and BBC Online. Hamish Meldrum also appeared on Radio 4’s Today programme to discuss the issue further. The BMA and/or its representatives were quoted, mentioned, or interviewed in over 30 other broadcasts across the country regarding this issue.
Lots of excitement and worry.
David.
Wednesday, March 17, 2010
AusHealthIT Man Poll Number 12 – Results - 17 March, 2010
The question was:
Should the Rudd Health Program be Approved by the Council Of Australian Government without Publishing Details of the E-Health Proposal.
You Are Kidding?
25 (56%)
Not Sensibly
9 (20%)
Neutral
0 (0%)
Possibly
5 (11%)
Yup, I Trust Them
5 (11%)
Votes 44.
Comment:
Well, that is pretty clear. No clarity on e-Health, no progress on reform!
Thanks again to all who voted.
David.
Weekly Australian Health IT Links - 17-03-2010.
Here are a few I have come across this week.
Note: Each link is followed by a title and a paragraph or two. For the full article click on the link above title of the article. Note also that full access to some links may require site registration or payment.
General Comment:
There is little doubt the key e-Health event of the last week was the Senate Enquiry into the proposed Health Identifier Service. This has had extensive coverage on the blog with all sorts of positions put. It was impressive that on a Saturday the article published on the topic garnered 170 page view and 11 comments in just one day – an indicator of the level of interest I would suggest.
If you missed this article is here:
http://aushealthit.blogspot.com/2010/03/another-4pm-friday-information-release.html
The release of the report of the Senate Report on March 15, 2010 (Monday) will be fascinating after they will have digested almost 10 hours of testimony and 50+ submissions.
Now released, see here:
http://aushealthit.blogspot.com/2010/03/minority-coalition-report-on-hi-service.html
The other story of the week has been the discovery by and reporting of by the Australian of some less than ideal behaviour on the part of Medicare Australia (MA) employees. This has now been well publicised in the professional press as well and will do considerable harm to the relationships between MA and clinicians if not handled well. To date I sense rather more denial than is useful.
On the broader front we are still to see how the Rudd / Roxon Health Reform plans will play out and how easy it will be to align the ducks (read Premiers).
-----
Hospital networks key to e-health plan: Rudd's health reform
- Karen Dearne
- From: The Australian
- March 09, 2010
KEVIN Rudd's health reform plan is good news for e-health, according to Deloitte partner Adam Powick, lead author of the National E-health Strategy.
E-health barely rated a mention last week, but Mr Powick told The Australian "no government is going to invest in e-health or IT systems without a reform context, and we clearly have that now".
"Mr Rudd talked about the need to deliver better integrated, better co-ordinated care that's more responsive to patient needs, and about putting in place a health system for the 21st century," he said.
"I'd argue very strongly that you can't do either without electronic communications."
-----
Health ID allows people tracking: Democrats
By Renai LeMay, Delimiter.com.au
09 March 2010 09:41 AM
The Australian Democrats party has warned that Health Minister Nicola Roxon's Health Identifiers Bill appears similar to the previous Howard government's ill-fated attempt to replace the Medicare Card with what it called an Access Card, which many saw as an attempt to create a national ID card.
In early February, Health Minister Nicola Roxon introduced legislation into Federal Parliament that would introduce a National Health Identifier to be implemented by the middle of 2010.
The health and social services Access Card project was terminated in November 2007 when Kevin Rudd's Labor government took office, ending several years of debate about whether the card was an attempt to introduce a national ID card similar to the Australia Card — dumped as a project back in 1987.
-----
Privacy dominates Senate e-health inquiry
By Ben Grubb, ZDNet.com.au
12 March 2010 04:05 PM
Over the last two days a Senate inquiry has delved into the government's plans to roll-out a 16-digit national healthcare identifier for the majority of Australians, with the main obstacle many parties saw to implementation still being privacy.
The inquiry will hand in a report next week which will help inform debate in the Senate over the Bill.
Health Minister Nicola Roxon referred the Bill to a Senate Committee late February due to high levels of community interest.
The Australian Privacy Foundation, the Public Interest Advocacy Centre and the Cyberspace Law and Policy Centre in the law faculty at the UNSW all spoke at the inquiry.
-----
Computer bungle threatens medical research
JULIE ROBOTHAM
March 13, 2010
The federal government's distribution of $379 million in health and medical research funding is in turmoil following the failure this week of a computer system meant to log scientists' applications online.
The new system has buckled under the strain of receiving about 3000 applications for prestigious National Health and Medical Research Council project grants, leaving researchers unable to edit the submissions on which their chance of funding and their careers depend.
Les Field, the deputy vice-chancellor of research at the University of NSW, said: ''Researchers repeatedly lost parts of what they had been working on and found it difficult or impossible to make changes or edit their proposals.''
-----
Roxon folds and releases draft health identifier rules
- Karen Dearne
- From: Australian IT
- March 12, 2010
FEDERAL Health Minister Nicola Roxon has buckled and released proposed draft regulations for the Healthcare Identifiers service, after privacy and security experts told a Senate inquiry the HI Bill could not rationally be considered without the accompanying rules that underpin the legislation.
A consultation paper prepared by the Australian Health Ministers’ Advisory Council was also released late Friday afternoon.
But it may be a case of too little, too late, with the regulations providing little new detail, and failing to address problems with the bill including the compulsory nature of the scheme, under which every Australian will be issued a 16-digit unique healthcare identifier from July 1 for improved medical information-sharing across the health sector.
-----
http://www.e-health-insider.com/news/5724/new_csc_deal_hinges_on_morecambe_bay
New CSC deal hinges on Morecambe Bay
11 Mar 2010
A deal to cut hundreds of millions of pounds from the National Programme for IT in the NHS by cutting back the scope of its main electronic patient record software is set to be signed, if CSC can deliver Lorenzo to an acute trust within two weeks.
E-Health Insider understands that a new deal with CSC for the North, Midlands and East of England hinges on the trust-wide go-live of Lorenzo at University Hospitals of Morecambe Bay NHS Trust by the end of March.
This vital deadline looks set to be missed. In an interview with CIO Magazine last week, Andrew Spence, CSC’s UK director of healthcare strategy, was bullish about progress at Morecambe. “We’re ruthlessly focussed on getting things right for Morecambe Bay,” he said.
-----
Apple's future won't be brought to you by the letter 'i'
March 12, 2010
Apple has been dealt a severe blow, having been told that it no longer has a monopoly on the letter ''i'' as a prefix for all its products. A trademarks tribunal has knocked back Apple's bid to stop a small company from trademarking the name DOPi for use on its laptop bags and cases for Apple products.
Apple argued that the DOPi name - iPod spelt backwards - was too similar to the California-based technology company's popular portable music player, which has sold more than 100 million units worldwide.
Apple has long relied on legal muscle to pursue individuals or companies it sees as infringing on its copyright. That came to a halt when the tribunal rejected its claim that consumers might think that they were buying an Apple product.
.....
Despite being helped by a major law firm, Apple overlooked the fact that there were already a large number of products that have the ''i'' prefix before their name - iSkin and iSoft, to name just two - all of which are operating in the same class of electronic goods.
-----
http://www.computerweekly.com/blogs/tony_collins/2010/03/isoft-loses-a-senior-executive.html
iSoft loses a senior executive
From US health IT website Histalk:
"iSoft loses another senior executive from it's flagship business unit. Just confirmed from internal source that Keith Kirtland, UK&I Commercial and Sales Director resigned earlier this month."
The website reports that Kirtland is the fourth sales director in as many years and his departure may affect "overall sales in the UK for this troubled NPfIT supplier".
In response to the report, an iSoft spokesman said this morning:
"Mr Kirtland left for personal reasons. Tony Bowden, formerly of Initiate, has been appointed business development director for the UK and Ireland business."
-----
Part 1: How to save billions in health costs – John Menadue
March 10, 2010 – 12:29 pm
In the first of two Croakey articles looking at how to cut health costs, John Menadue writes:
“Successive governments in Australia have failed to examine and take action to curb rapidly rising costs and inefficiencies in healthcare. To address these problems would involve confronting special interests with their Canberra lobbying power.
The Opposition is now attempting to frighten us over new taxes to fund healthcare.
See point 5:
5. The glacial introduction of e-health. The delivery of health services is a very labour and information intensive activity. The same is true in finance and banking. But whereas the banking sector has revolutionised its information systems, the health sector is still in the horse-and-buggy age. Estimates range from 5% to 10% as the potential savings that could be achieved by efficient and effective implementation of health IT. A 5% improvement would be about $5 b of Australia’s total health spending. Commonwealth Government leadership has been lacking in this area.
-----
NSW first for health identifiers
- Karen Dearne
- From: Australian IT
- March 10, 2010
NSW public hospital patients will be guinea pigs for the countrywide rollout of healthcare identifiers, with an estimated 4.5 million people signed onto the new system by the state within 18 months.
National E-Health Transition Authority chief executive Peter Fleming told a Senate inquiry into the Healthcare Identifiers (HI) Bill that - once the legislation and as yet undisclosed regulatory controls are passed by Parliament - up to 6 million Australians could have Medicare-assigned unique patient numbers, intended to support clinician access to personal health information, within that timeframe.
NSW Health is spearheading NEHTA's work on linking some 20 separate hospital-issued health identifiers to the new unique personal identifiers, off the back of an upgrade of current radiology information and picture archiving and communications systems.
-----
Telstra split hits a wall
- UPDATE: Nicola Berkovic
- From: The Australian
- March 10, 2010
KEVIN Rudd's bill to force the break-up of Telstra looks doomed to fail, with the Coalition and a key cross-bench senator resolving yesterday to vote against it.
Opposition communications spokesman Tony Smith said the Coalition was "utterly opposed" to the move to force Telstra to separate its wholesale and retail arms by denying it access to the spectrum it needed for its future business.
"Labor's legislation is a deliberate assault on Telstra and its 1.4 million shareholders and 30,000 employees," he said.
"(It) is all about trying to prop up their reckless $43 billion national broadband network, which they embarked upon without a cost-benefit analysis or a business plan."
-----
http://www.smh.com.au/business/breakthrough-puts-doctors-in-picture-20100308-psrv.html
Breakthrough puts doctors in picture
GARRY BARKER
March 9, 2010
JUST when attention is refocusing on the $43 billion national broadband network (NBN), and its proponents are saying how much the healthcare industry will benefit from having 100 megabits per second (Mbps) to handle all their gigabit-sized CT and MRI images, along comes an Australian company with a technology capable of delivering 2D, 3D and 4D (animated 3D) images, in colour, over a 4 Mbps line.
For radiologists, cardiologists, oncologists and other specialists who need instant access to increasingly complex and exact medical images the breakthrough is significant.
Sam Hupert, co-founder and executive director of Promedicus, a Melbourne-based global medical practice management and image handling company that developed the new technology, says: "We have overcome the tyranny of the network."
-----
http://www.medicalobserver.com.au/index.php/news/medicare-staff-fined-for-prying-in-records
Medicare staff fined for prying in records
12th Mar 2010
DOCTORS have voiced alarm at revelations that nearly 1000 Medicare staff have been investigated in the past four years for accessing client records without proper authority.
In a statutory report submitted to the Office of the Privacy Commissioner, Medicare stated that since November 2006, monitoring systems had identified 948 employees who may have accessed confidential client records.
-----
http://www.australiandoctor.com.au/articles/49/0c067b49.asp
Breaches spark privacy fears
11-Mar-2010
By Michael East
There are renewed fears that more investigative powers for Medicare could see abuses of patient confidentiality, following revelations the organisation has investigated almost 1000 employees for suspected security breaches.
Last week Medicare revealed it had investigated 948 cases of confidential client records being accessed by staff since late 2006.
Medicare admitted it had set up a database of records purporting to belong to high-profile celebrities to try to catch staff in the act of accessing unauthorised records.
-----
http://www.afr.com/p/business/technology/wider_reform_sends_health_back_to_H2ZY3U1p1RHAcMzdFJhN3O
Wider reform sends e-health back to triage
Linking the electronic records system to a referendum on health reform may push back its introduction
-----
Doctors ill-prepared for new system
BY MARKUS MANNHEIM, PUBLIC SERVICE REPORTER
09 Mar, 2010 08:42 AM
Doctors are not ready to use a new nationwide records system that assigns all patients a single health number, even though it is scheduled to begin operating in less than four months.
The Senate's Community Affairs Committee will meet today to discuss the Healthcare Identifiers Service, which is designed to allow patient information to be shared more easily among medical workers and researchers.
The service is scheduled to operate from July 1 if Parliament passes the legislation that underpins it. But the Australian Medical Association says the IT network remains unbuilt and most surgeries lack the software needed to use the numbers.
-----
New pathology system for Vic hospitals
By Jacquelyn Holt, ZDNet.com.au
09 March 2010 01:59 PM
Australian e-health provider, LRS Health, has beat larger international competitors to win a five-year deal to provide e-health systems and support for Victoria's largest hospital group, Southern Health.
LRS Health began implementing its MediPath pathology management system in hospitals in October last year, with plans to go live in April. The company will provide 24-hour support for the system.
The system will process around 1.5 million pathology tests Southern Health deals with annually. The group services approximately 32 per cent of metropolitan Melbourne across 40 sites including five major hospitals.
-----
LRS Health wins five-year pathology service contract
- Karen Dearne
- From: The Australian
- March 09, 2010
LOCAL e-health software maker LRS Health has won a minimum five-year contract to supply pathology management services for Victoria's Southern Health, which provides almost one-third of the state's specialist services.
It was selected for its MediPATH system, beating large multinationals such as Cerner and GE.
Southern Health has more than 40 sites around Melbourne, including five major hospitals, and MediPATH will process about 1.5 million pathology tests required for patients each year.
-----
Confusion reigns on health ID: Heathcare Idenfiers Bill
- Karen Dearne
- From: The Australian
- March 09, 2010
SOFTWARE makers, doctors, consumer groups and lawyers remain perplexed by the design and context of the Healthcare Identifiers Bill being accorded a rushed Senate inquiry this week.
Despite a seven-day deadline, 39 submissions on the controversial bill were lodged by Friday, with the community affairs committee set to hold eight hours of hearings this week before reporting to parliament on Monday.
The Australian Medical Association, Consumers Health Forum and Medical Software Industry Association support, in principle, a national scheme of unique healthcare identifiers for patients, but doctors, allied providers and healthcare organisations say the lack of detail makes risk assessment difficult.
-----
http://computerworld.co.nz/news.nsf/management/health-it-board-drafts-e-health-plan
Health IT Board drafts e-health plan
Draft strategy for industry comment expected by the end of March
By Randal Jackson | Wellington | Monday, 8 March, 2010
A first draft national IT plan for health will be made available for sector comment on March 31 and is expected to be finalised by June 30.
Graeme Osborne, chairman of the National Health IT Board, says he expects the government’s Shared Services Agency to take the lead in deciding IT directions “with our support”.
Health Minister Tony Ryall wants savings of $700 million over five years by having common back office systems for the country’s 21 district health boards.
-----
Enjoy!
David.
Tuesday, March 16, 2010
What Will Happen Next With the Health Identifier Bill?
As reported in the last 24 hours we now have had the Inquiry and have the Report from the Senate on the Healthcare Identifiers Bills (2010).
See here:
http://aushealthit.blogspot.com/2010/03/senate-recommends-passage-of-hi-service.html
And here:
http://aushealthit.blogspot.com/2010/03/minority-coalition-report-on-hi-service.html
The Bills has already passed the House of Representatives:
http://aushealthit.blogspot.com/2010/03/parliament-house-of-representatives-is.html
While it is clear the Labor Government is happy to pass the Bills in their present form the same is by no means clear as far as the Coalition is concerned.
The Opposition has a pretty strong position in the Senate and these sections of their Minority Report make one feel they may really want some changes (from a principled perspective I believe).
Especially these three areas appear to be of concern to the Opposition. (Quoted from the report).
Stand alone provisions
During the course of the inquiry, the Department of Health and Ageing indicated that this legislation was intended to stand alone as purely establishing the Health Identifiers and not for any future purposes.
The Bill does not achieve this given the various provisions that defer provisions for inclusion in regulation, for example; clauses 9, 21 and 22.
In relation to clause 9 (1) - It is recommended that the classes of healthcare providers be included in the Bill as a schedule.
In relation to Clause 9 (5) - The Bill should prescribe the requirements for assigning a healthcare identifier.
In evidence, Mr Lou Andreatta, Acting First Assistant Secretary, Primary and Ambulatory Care, Department of Health and Ageing said: "The e-health strategy is a sequential strategy. The building blocks need to be in place before we look at what products or functionality can be rolled out in the future. The emphasis has been on getting those building blocks in place – the secure messaging, the identifier service." (Hansard, March 10, 2010 CA22)
These comments are surprising given the staggering amount of funding that have been allocated to e-health since its inception. Indeed, it reaffirms the concerns raised by Coalition Senators during the hearing as to the Department's ability to deliver such a major project.
Furthermore, while implementers may have a clear view of the extent of the intended roll-out, the proposed legislation, with its "building block" strategy, could be used as the basis for the roll-out of further products or functionality. This serves as a warning that, when implemented, this strategy could be used for other purposes.
Parliamentary scrutiny to address ‘function creep’
Under the Healthcare Identifiers Bill, health information may be disclosed for other purposes not detailed in the Bill, where that disclosure is ‘authorised under another law.’ This means that it might be authorised by other commonwealth, state or territory legislation, or even by any regulations or other legislative instruments made under such laws.
The Coalition believes that where other agencies seek access to the Individual Healthcare Identifier (IHI) or any information attached to it, the access to such information should not be granted automatically by virtue of other commonwealth legislation, regulations or state or territory legislation, but only if authorised by express amendments made to the principal Bills. This will ensure that the Commonwealth Parliament retains direct oversight and responsibility for any increase in the entitlement to access information by government agencies.
To that end the Coalition proposes that clause 15 (2)(b) and clause 26 (2)(b) of the Healthcare Identifiers Bill be deleted. On that basis, the provisions of Clause 19 (2) (b) (ii) should be reviewed.
Coalition Senators note that this view is consistent with the Privacy Impact Assessments (PIAs) undertaken into the Bills and the view of the Australian Privacy Foundation.
In evidence, Dr Juanita Fernando, Chair of the Health Subcommittee of the Foundation said the proposed new system was "worse than the current system, because the health identifier is going to provide a way to index all of that ([personal health care) information. So whereas previously I might have breached information security at some hospital somewhere and I then had to find out how I could get that person's individual records from all the various departments – their tax records, their surgical records, their outpatient records and so on and so forth – with the HI I have got the key to all of that information." (Hansard, March 10, 2010 CA2)
Dr Fernando also said: "So it is important that there be penalties or some ways of ensuring that information security breaches are slated home to the people who created the environment in which patient care is operating. The health identifier bill actually indemnifies servants of the Crown. If the health identifier bill is such a robust bill, then it is interesting that servants of the Crown are indemnified…Although the legislation contains penalties for individuals who commit information fraud or who use information for purposes other than those intended by the health identifier bill, because consumers do not have direct access to that health identifier how are they going to know that their information has been breached?"(Hansard, March 19, 2010 CA3).
Patient control of Individual Healthcare Identifier
Under the Bills the allocation of the Individual Healthcare Identifier (IHI) is compulsory. The health care recipient neither requests nor agrees to its provision, and may not even be aware that an IHI has been allocated to them. Moreover, there is nothing in the bills to prevent access to health services being made conditional upon the allocation of a number or its use.
The Coalition appreciates the importance of ensuring that the benefits of modern health care are available to as many citizens as possible. It thus supports the Bill’s intention to provide an IHI to all Australians. However, the Coalition also recognises that to better safeguard privacy, patients should control their health records.
In balancing these concerns the Coalition believes, therefore, that while providing an IHI, Australian citizens should have the right to ‘opt out’ and not be required to possess an IHI or have their IHI linked to the Department, other Departments or functions within those Departments.
However, importantly, the Coalition believes that the provision of healthcare services must not be made conditional (or de-facto conditional) upon possessing an IHI.
The Coalition notes that the Privacy Impact Assessments (PIAs) conducted into the Bills opposed the compulsory provision of an IHI to Australian citizens.
In evidence, Dr Fernando of the Australian Privacy Foundation said: "..this is going to be the most-up-to-date, well-maintained database of Australians' names, addresses and ages that is in existence at the moment. So this is going to be the richest source of data that exists in Australia at the moment." (Hansard, March 10, 2010 CA2)
Dr Roger Clarke, also of the Australian Privacy Foundation, said the database "represents a honey pot. If you are in organised crime or if you are a kid in a back bedroom with considerable skills who is looking for interesting things to break into, you look for the honey pots that have got substantial amounts of data that could be interesting." (Hansard, March 10, 2010 CA4).
----- End Report Extract.
It seems to me what happens next depends on how seriously the opposition takes these problems – and with Mr Abbott (the Opposition Leader) being ‘oppositional’ – one can only guess. At some point I guess the Shadow Health Minister – Mr Dutton also needs to get into the loop.
The second issue is that time is really short. Here are the sitting days available:
http://www.aph.gov.au/Senate/work/sitting/2010/sitting.htm
As I read this if not passed in the next 2 days (Wed and Thu) it is held up till the 3 day Budget session in May and then we have the Winter Recess into July.
Even limited ‘mucking about’ on the part of the Opposition is going to delay things big time it appears as even the smallest change then has to go back to the Reps to be agreed.
We do live in interesting times!
David.
Late Addition:
It looks like the Senate will debate the Bills after May, 11 2010 - 3rd on the agenda after the CPRS and Education Bills. Hard to know how the Service can start on July 1 with this timetable.
D.
Sudden Increase in E-Health Blogging in Australia.
I had always thought I had found a topic so obscure that there would be very little interest in adding to the space.
Seems I was wrong!
We now have Mr Charles Wright blogging away on matters e-Health as well.
See here for all the latest.
http://www.ehealthcentral.com.au/
Incidentally I also noticed there is more related blogging activity happening here:
http://www.thehealthhub.org.au/pg/mod/blog/everyone.php
It is a bit slow at present, but you never know when it might decide to kick along. Maybe a few more HISA people can contribute to kick it along.
I also hear the there are others thinking of joining the space – no names, no packdrill!
Welcome all!
David.
Minority Coalition Report on HI Service Bill.
For completeness, here is are the main points the Opposition made in their Minority Report.
MINORITY REPORT BY COALITION SENATORS
Senate Inquiry into Healthcare Identifiers Bill 2010 and Healthcare Identifiers (Consequential Amendments) Bill 2010
Coalition members of the Committee support the implementation of e-health in Australia and share the concerns of all Committee members in relation to these Bills to underpin that implementation.
These concerns include:
• Protecting the privacy of Australian healthcare consumers;
• 'Function creep', the potential for the use of Healthcare Identifiers to be extended to other purposes;
• The possibility of the scheme not being ready for implementation by July 1, 2010, in less than four months.
However, Coalition members feel very strongly that assurances from the Government alone that these matters have, and will be, addressed are insufficient to allay those concerns.
We contend that the Bills require amendment to ensure that the privacy of healthcare consumers is maintained and that individual Healthcare Identifiers cannot become de facto Australia Cards.
Coalition Committee members contend that stronger Parliamentary scrutiny of this legislation is needed to overcome these very significant concerns.
----- End Executive Summary.
This is found – with details – at the bottom of this report.
http://www.aph.gov.au/senate/committee/clac_ctte/healthcare_identifier/report/report.pdf
It will be interesting to see what is finally passed through the Senate.
David.
Monday, March 15, 2010
Senate Recommends Passage of HI Service Legislation With Some Amendments.
Read the outcome here:
http://www.aph.gov.au/senate/committee/clac_ctte/healthcare_identifier/report/report.pdf
The key is here:
Recommendation 1
1.1 The committee recommends that NEHTA, in partnership with the Department of Health and Ageing and Medicare Australia, take steps to more effectively engage all healthcare stakeholders in the establishment of the Healthcare Identifiers Service. These steps should include at least the following elements:
(a) involvement of key healthcare stakeholder groups, including state and territory governments, private and community health providers, and healthcare consumer groups, in the development of a Healthcare Identifiers Service implementation plan which covers the period from the successful passage of the bills to 30 June 2012;
(b) the publication of this plan for public comment prior to its finalisation; and
(c) the development and implementation of a targeted education and communication strategy which targets both healthcare providers and healthcare consumers, and which clearly lays out the facts behind healthcare identifiers and provides contacts for people to access further detailed information. This strategy should be implemented prior to the Healthcare Identifiers Service coming into effect on 1 July 2010.
It is pretty clear the Committee is not happy with the implementation planning and communication with the public. What a surprise!
It is really pretty sad that the Senate has not taken more seriously the advice of those who point out the lack of implementation skills and privacy understanding of those who contributed.
My view is still that this is a fatally flawed organisation attempting something that is way beyond its competence and that still does not understand what it exists for - serving the Health Sector. We shall see if I am right or wrong - but not soon - given what we will see in the implementation plan is hardly a beginning by 2012.
Passage of this legislation, with the recommendations, might give us a fighting chance of getting it right, but sadly I doubt it. We shall see and will be watching!
David.
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