Quote Of The Year

Timeless Quotes - Sadly The Late Paul Shetler - "Its not Your Health Record it's a Government Record Of Your Health Information"

or

H. L. Mencken - "For every complex problem there is an answer that is clear, simple, and wrong."

Tuesday, April 10, 2012

There Seems To Be Some Movement on The National Authentication System For Health (NASH). What Direction Is a Trifle Unclear.

The following e-mail was sent out by NEHTA last week.
“I would like to announce that the NASH Developer Materials have been released on the Vendor Portal   https://vendors.nehta.gov.au. These materials are provided for test purposes only, and do not allow access to any live data.
To download the Developer pack, please follow the Registration process. The pack can be located under “eHealth Foundations" -> "National Authentication Service for Health". You will have to accept the Terms and Conditions of the Licence Agreement to get access to the materials.
This release consists of the following documents:
1.       Release Notes, including
.         Download location for Secure Message Delivery Specifications
·         Download location for the PKCS11 Standard
2.       Draft Certificate Profiles for HPI-I and HPI-O/CSP
3.       NASH Concept of Operations
4.       Test HPI-O (set of 2 generic certificates)
5.       Draft Token Specifications
6.       Licence Agreement
Please read the initial document first for an overview of the rest of the pack: "NASH Concept of Operations - Release Note".
Please don’t hesitate to contact me  if you have any questions
Kind Regards,
Lxxx Mxxx
Engagement Analyst
nehta - National E-Health Transition Authority
----- End E-Mail.
For some very odd reason there is a very strict License Agreement before the NASH material can be accessed. It utterly bamboozles me just why this would be given the need for everyone to understand NEHRS (formerly PCEHR) security before trusting or using the planned system. This seems to be to be just a nonsense barrier.
I suggest people read carefully before downloading if they are actually planning to deploy, rely on or use the material. As a commentator I will just read and not fiddle so I can’t see how I can get into too much trouble!
At about the same time we had the following appear:

NEHTA's new baby holds key to doctors' access to e-health records system

  • by: Karen Dearne
  • From: Australian IT
  • April 04, 2012 5:03PM
TWO senior National E-Health Transition Authority executives have created a $0 company to act as the registration authority for the National Authentication Service for Health, as part of the Gillard government’s e-health record system.
NEHTA chief executive Peter Fleming and chief financial officer Christopher Hale registered NASH GA Pty Ltd last October, with Mr Hale as director and company secretary, and Mr Fleming as director.
The entity is a wholly owned subsidiary of NEHTA, established with one nil-value ordinary class share; it had a name change in February to E-Health Authentication Services Pty Ltd.
A NEHTA spokesman said the company was established as "a special purpose vehicle to act as the Certification Authority for the NASH", in accordance with Gatekeeper Accreditation (GA) requirements set for public key infrastructure (PKI) systems by the Australian Government Information Management Office.
"In order to protect the investment in the NASH and GA process and create arrangements that provided future flexibility, it was decided to establish a special purpose vehicle under NEHTA that would become the Certification Authority, the shares of which could be transferred to another entity should the role of NEHTA change and the circumstances require," he said.
"The Certification Authority is an integral part of the NASH, and must be 'Gatekeeper Accredited' by AGIMO.
"While the NASH is the authentication service that healthcare providers will use to access the PCEHR, it has been conceived as a broad authentication service to support the health sector, for example, for secure messaging between healthcare providers and future electronic prescribing."
More here:
My reaction to this is essentially amazement and incredulity. What on earth is a company needed for. Surely DoHA (or Medicare who already run a similar service) would have been a much more logical home. Of course it might be that the Directors are wanting - just like NEHTA - to avoid FOI scrutiny. That way the non-use of the apparently voluntary system will remain a state secret!
Another correspondent has suggest it is NEHTA trying to ensure ongoing relevance as a PKI CA rather than being eventually folded up.
I have to say NASH seems to be decaying into farce. Three months out from the NEHRS start we are given an apparently FINAL NASH Concept of Operations with Draft Code and specifications for NASH Tokens (to hold provider authentication credentials) from some two years ago.
It is clearly impossible for NASH to be implemented in any form in the next three months so the system will have to start using Medicare and not NASH authentication. This is a clear manifestation of planning failure (given how long we have known it would be needed) as far as anyone can tell and really suggests to me NEHTA simply is not up to implementing any significant project properly.
As for the task of registering, identifying and providing tokens to the 600,000 people who work in the Health Sector - you have to be joking. It also seems consumers / patients are now out of scope for NASH as far as one can tell.
Additionally it is hard to see a case for starting again with NASH rather than enhancing the authentication service already offered by Medicare that is already in widespread use.
Given NASH has comprehensively failed in the key raison d’ĂȘtre of supporting implementation of the NEHRS time for Strategic Rethink has arrived.
David.

And Now The Rubber Really Hits The Road With the NEHRS. It Will Really Cost If Adopted.

This popped up today.

AMA proposes PCEHR consult items and fees

10th Apr 2012
GPs have been advised to charge each patient up to $210 when preparing a shared health summary for the government’s personally controlled e-health record (PCEHR) system, which will be rolled out from 1 July.
AMA president Dr Steve Hambleton said government had not created any new MBS items, and had not set aside any new funding, to remunerate GPs for the work they would put into creating shared health summaries.
“The public announcements from the government suggest that patients will only get a Medicare rebate if the shared health summary is prepared as part of an existing MBS consultation,” Dr Hambleton said.
“GPs are being asked to do more work in their consultations for no reward.
“We have sought more information and clarification but no formal public response has been forthcoming.”
More here:
The triggering release is here:

AMA sets its own items for managing a shared health summary for the Personally Controlled Electronic Health Record (PCEHR)

The AMA has introduced its own items for preparing and managing a shared health summary for the Personally Controlled Electronic Health Record (PCEHR).
AMA President, Dr Steve Hambleton, said today that the Government had not created new items for doctors’ time and work with patients on the PCEHR and had not allocated any new funding in the Medicare Benefits Schedule (MBS) to cover this new clinical service to be provided by doctors.
“The public announcements from the Government suggest that patients will only get a Medicare rebate if the shared health summary is prepared as part of an existing MBS consultation,” Dr Hambleton said.
“GPs are being asked to do more work in their consultations for no reward.  We have sought more information and clarification but no formal public response has been forthcoming.
“So the AMA has taken the initiative to give doctors and their patients some certainty by setting items that realistically reflect the time, the work and the expertise required to ensure that shared health summaries are thorough, up-to-date, and useful across health care settings.
“The items provide guidance to AMA members on medical fees for this important clinical service for their patients.  It is not a recommended fee.  The AMA encourages its members to set their own fees based on their practice cost experience.
Full details here:
The recommended fees are between $53 and $210 depending on the time taken to set up and then maintain the patient’s NEHR.
At a minimum if we have a set up and then one maintenance consult for the cheapest rate over a year and the adoption reaches about 10% of the population the annual cost is $233.2 Million.
Of course of the 50% figure was reached in 5-10 years we are over the Billion p.a. figure.
I wonder did the geniuses who designed this parallel system show at that level there was value for money to be had. I suspect not.
They will be praying for zero adoption!
Nutty world we live in.
David.

Monday, April 09, 2012

Weekly Australian Health IT Links – 10th April, 2012.

Here are a few I have come across the last week or so.
Note: Each link is followed by a title and a few paragraphs. For the full article click on the link above title of the article. Note also that full access to some links may require site registration or subscription payment.

General Comment

It is now clear that the NEHRS (PCEHR of old) is going to be rejected by a good majority of doctors for reasons of lack of specific rebates to cover costs and a set of medico-legal concerns around use and liability for information content within the NEHRS.
The attempt to shift the responsibility for intra-practice identification of NEHRS users from Government (which would need to fund new and better systems and security) to practitioners is also being rejected wholesale by clinicians.
These areas require a major rethink if any victory is going to be snatched from what will have to be a delayed start-up of any actual NEHRS.
We also have a bit of a blast from the past with iSoft disappearing from the planet and Google having another go at changing the world while ‘just wanting to be trusted’.
We are getting down to the ‘pointy end’ of all this and there is not much time to sort things out.
-----

No shaking e-health record controversy

  • by: Karen Dearne
  • From: Australian IT
  • April 04, 2012 12:00AM
CONTROVERSY still rages around the Gillard government's personally controlled e-health record system as the Senate debate on legislation is on hold until May.
Since the PCEHR Bills were passed in the lower house in late February, consumer advocates have turned to a joint parliamentary inquiry into Cyber-Safety for Seniors as a venue for unresolved concerns over the program.
Last week, Health's chief information officer, Paul Madden, conceded the PCEHR system will be vulnerable to attack from fraudsters at the user's end.
Coalition senators have called for a year's delay in launching the national patient record-sharing system, due to start on July 1.
-----

E-health liability to fall to GPs: govt plan

5th Apr 2012
THE health department’s draft conditions of registration for the personally controlled e-health records (PCEHR) system would “deter every medical practice in Australia from participating”, according to AMA secretary general Francis Sullivan.
The draft conditions, obtained by Medical Observer, would require organisations to assume all legal liability and grant department officials unrestricted access to their premises and records.
In a letter to the department, also obtained by MO, Mr Sullivan warned the association would “advise its members not to register” if the conditions remained in their current form.
The proposed conditions would require practices to agree the department had “no liability to [the practice] in respect of any loss, damage, cost, expense, claim [or] proceeding… you might suffer”, while being “responsible for any loss that [the system operator]… may incur”.
-----

Medicolegal fears over e-records

5 April, 2012 Paul Smith
More than 60% of doctors are concerned about the medicolegal risks of using the electronic health record system being rolled out from July.
The survey of 200 AMA members – including GPs and other specialists – also uncovered worries over the administrative impact on practice staff and the financial implications of both preparing for and using personally controlled e-health records (PCEHRs).
-----

GPs wonder who'll pay for e-Health records

DOCTORS claim a government promise to pay them to create patient health records for the new e-Health system from July is not funded.
They also fear they could fall foul of the Health Insurance Act if they claim a Medicare rebate.
Australian Medical Association president Steve Hambleton argues Health Minister Tanya Plibersek's funding pledge amounts to nothing more than "allowing doctors to do this for free".
The contested pledge came last week when Plibersek told the Health-e-Nation conference on the Gold Coast that doctors would be paid a Medicare rebate of up to $101 to set up an e-health record when the government's $500 million Personally Controlled Electronic Health Record scheme starts on July 1.
-----

E-health funds don’t add up

2 April, 2012 Paul Smith  
So is there extra cash for the workload faced by GPs as a result of the impending e-health revolution? The answer is yes, no, maybe and it depends.
They way it was pitched last week, it sounded as though the descriptors for the MBS attendance items would be tweaked to allow doctors to claim them for time spent setting up a shared health summary. Now it appears there is no tweak, no anything.
In her speech, Health Minister Tanya Plibersek said GPs would be able to claim the current items “when creating or adding to a shared health summary on an e-health record which involves taking a patient’s medical history as part of a consultation”.
-----

GPs demand e-health clarity

5th Apr 2012
TWO weeks after Health Minister Tanya Plibersek announced MBS items would be available for doctors working with e-health records, there appears to be still no clear message from the minister or health department about how the new system will work.
The AMA and RACGP have sought urgent clarification on a number of key questions but have each received different answers, some of which contradicted advice provided to MO by the health department last week.

AMA president Dr Steve Hambleton said the government had made it clear it had not budgeted any new money to compensate GPs for the time spent working on the new records, but every other answer was “the same double-talk”.
-----

GPs to ‘absorb’ e-health costs

2 April, 2012 Paul Smith  

There will be no dedicated funding, new Medicare items or revamped item descriptors for GPs creating shared e-health summaries, sparking fears general practice will be left to absorb the costs of making the system work.

The summaries form a key part of the personally controlled electronic health record system being rolled out from July. They will contain patients’ diagnoses, medications, adverse reactions and allergies, and are meant to be used by hospitals, after-hours services and other health professionals.

-----

Doctors worried about PCEHR admin: AMA survey

An Australia-wide survey of specialist and general practice clinicians has found significant concerns about the administrative requirements of the PCEHR. It also uncovered worries about the financial impact the PCEHR will have on clinicians who guide their patients through the PCEHR process.
The survey, conducted online by the AMA, garnered 197 responses. The majority of respondents were GPs, although a total of 18 specialties were represented overall. Responses were also heavily skewed towards clinicians in private practice.
......
The full results of the AMA PCEHR survey can be found here
-----

PCEHR explained in AMA draft guide

4th Apr 2012
THE extent of the change to general practice to be brought by the government’s e-health records system has been outlined, with the release of a 26-page draft guide on use of the new system.
The guide was released today for public comment by the AMA, which compiled it at the request of the National E-Health Transition Authority. It explains how practitioners might use the PCEHR in their day-to-day practice.
AMA president Dr Steve Hambleton said while the system would “put the patient in the driver’s seat for managing their health” it would also have “practical clinical limitations for medical practitioners… in respect of the content, accuracy, and accessibility of the information”.
.....
The Draft AMA Guide to Using the PCEHR is available online (http://ama.com.au/node/7648) for comment until 27 Friday.
-----

GPs have financial concerns over PCEHR

4 April, 2012 Gemma Collins
GPs are more concerned than other health professionals about implementing the PCEHR system and are less likely to advise patients to sign-up for their own e-health record, a survey has found.
A survey of more than 200 doctors including GPs, physicians, surgeons and psychiatrists found that almost 80% of participants were concerned about the administrative requirements of the PCEHR system, and nearly three quarters said they were worried about the financial implications.
And it was GPs who came out as the biggest worriers with 90% having financial and administrative concerns about the new system going live on July 1.
----

NEHTA's new baby holds key to doctors' access to e-health records system

  • by: Karen Dearne
  • From: Australian IT
  • April 04, 2012 5:03PM
TWO senior National E-Health Transition Authority executives have created a $0 company to act as the registration authority for the National Authentication Service for Health, as part of the Gillard government’s e-health record system.
NEHTA chief executive Peter Fleming and chief financial officer Christopher Hale registered NASH GA Pty Ltd last October, with Mr Hale as director and company secretary, and Mr Fleming as director.
The entity is a wholly owned subsidiary of NEHTA, established with one nil-value ordinary class share; it had a name change in February to E-Health Authentication Services Pty Ltd.
A NEHTA spokesman said the company was established as "a special purpose vehicle to act as the Certification Authority for the NASH", in accordance with Gatekeeper Accreditation (GA) requirements set for public key infrastructure (PKI) systems by the Australian Government Information Management Office.
-----

Rural patients to be charged for PCEHR

5 April, 2012 Gemma Collins
The Rural Doctors Association of Australia is recommending that rural doctors charge their patients to cover the cost of implementing their shared e-health records. 
-----

Govt shells out $21m for final leg of e-health record system

The funding will cover the final scope of the project before it goes live on 1 July
The Department of Health and Ageing (DoHA) has allocated $21 million to the National E-Health Transition Authority’s (NEHTA) for the final scope of the national e-health record system.
The final round of funding for the government’s $466.7 million Personally Controlled Electronic Health Record (PCEHR) project has come some four months after it was scheduled for allocation last November.
A spokesperson for the department confirmed the figure and the completion of negotiations but would not comment on why the funding had been delayed.
-----

Upgraded eHealth PIP under consideration: DoHA

Written by Kate McDonald on 29 March 2012.
The Department of Health and Ageing (DoHA) is currently consulting with stakeholders to consider an upgrade to the Practice Incentives Program (PIP) eHealth payments.
While there is no detail as yet and a decision has not been made, a DoHA spokeswoman said “consultation is currently under way to upgrade the current Practice Incentive Program payments to encourage the adoption of upgraded software that will contain PCEHR capability”.
According to Health Minister Tanya Plibersek, the government invested around $85 million in the PIP eHealth incentive in 2010-11, with around 4200 general practices receiving up to $50,000 each.
-----

Nehta to identify e-health clinical gaps

  • by: Karen Dearne
  • From: Australian IT
  • April 04, 2012 10:01AM
THE National E-Health Transition Authority is preparing a healthcare provider functionality "clinical safety case report" for release of the first version of the e-health records infrastructure, which was due for delivery by Accenture last month.
"A clinical safety case report for release 1a is currently being prepared," Nehta says in just-provided answers to Questions on Notice during a February Senate estimates hearing.
"This report does not focus on the live clinical environment; rather it primarily focuses on potential clinical hazards introduced through the delivery of the PCEHR national infrastructure.
"Testing by the software developers is still underway at this stage.
"Ongoing identification and analysis of clinical hazards will continue until it informs the go-live decision for PCEHR release 1b and, importantly, post deployment into the live clinical environment."
-----

Health helpline 'failing dismally'

THE government's $200 million After-Hours GP Helpline is "dismally failing" to reduce pressure on hospital emergency departments and may, in fact, be increasing attendances, a study shows.
The research, published today in the journal, Emergency Medicine Australasia, says many people who don't need to go to hospital are being sent to an emergency department anyway because the nurses and doctors providing advice through the after-hours helpline have to be conservative in their health assessments, says one of the authors, Fremantle emergency doctor Professor Yusuf Nagree.
"When you're on the phone you can't see the patient so you have to err on the side of conservatism," Professor Nagree said.
-----

Phone triage is expensive and ineffective

5 April, 2012 Michael Woodhead
Emergency specialists say the government must stop misrepresenting the impact of its $200 million telephone triage lines, as the services have no effect on ED burden and may in fact be making things worse.
A complete review of the healthdirect and After Hours GP Helpline services is needed, according to Professor Yusuf Nagree, professor of emergency medicine at the University of Western Australia, because they are dismally failing in their reported aim of “helping to ease demand on emergency wards and general practice,” he writes in the Internal Medicine Journal.
-----

Hold the line, say emergency staff

Julia Medew
April 5, 2012
A group of emergency doctors says that the phone line, if anything, may be increasing the strain on emergency departments.
A $226 MILLION nurse and GP hotline has not reduced emergency department demand as the federal government hoped and should be reviewed, emergency doctors say.
They also accuse the federal government of ignoring specialist advice in 2005 that the phone line was unlikely to reduce demand for hospitals and of misrepresenting the situation in publicity about the phone line in recent months.
-----

Hotline not easing pressure on EDs

5 April, 2012 Sophie Cousins 
The Federal Government's $226 million after-hours nurse and GP hotline is not reducing pressure on emergency departments, and may be having the opposite effect, emergency doctors claim.
In 2006, the government pledged more than $170 million over five years on a national health call centre, Healthdirect Australia, to be run by nurses who would give free triage advice.
Last year the service was extended to include GP support through the after-hours GP helpline, at a cost of $50 million over three years.
Health Minister Tanya Plibersek last December proclaimed the GP helpline had reduced pressure on EDs by 27%, with 20,000 people avoiding the ED as a result of the service since last July.
-----

Telehealth for aged care homes and pharmacies

4 April, 2012 Michael Woodhead  
Telehealth pilot projects are being offered for aged care homes using the National Broadband Network, and retail pharmacies are also seeking to host telehealth services.
The Federal government is inviting applications for almost $21 million in funding for its NBN-Enabled Telehealth Pilots Program, which aims to connect health providers with people in their homes or in aged care and palliative care facilities.
The pilots are available for areas where both homes and health providers are connected to the National Broadband Network , which is being rolled out in selected areas of Australia over the next three years.
-----

Seamless transfer of information is a revolution

27th Mar 2012
The process of connecting individual GPs to a large public hospital and eventually its private hospital, plus a large clinic full of specialists, has been an extraordinary project. This is the first rollout of the PCEHR, and is funded by the federal government.
Many of my patients have embraced the idea of having their records available to the teaching hospital 1km away from my practice where most of them end up if they require hospitalisation.
There is, however, a registration process involving the patient agreeing to share medical information with the hospital. Once this is in place, I can send an electronic referral in a split second.
-----

ISOFT dies but new CSC approach is born

4 April 2012   Linda Davidson
The iSOFT brand was formally retired last week and the company, now part of CSC’s healthcare group, took the opportunity to unveil a more flexible, agile approach to the use of its products.
Speaking at the opening of a new demonstration suite at the company’s Banbury headquarters, solutions director for NEMEA, Nick Harte, said the products would offer “bridges to a future electronic patient record” or help customers to sweat their existing assets by supplementing them with smart solutions.
This strategic approach was outlined to eHealth Insider by UK managing director Adrian Stevens in November 2010, when he announced that a 75-strong development team had been engaged to work on interoperability, business intelligence, medications management and hosted Synergy [a primary care system].
-----

Computer Sciences Corporation - Special Call

April 4, 2012  |  about: CSC
Operator
Good day, everyone, and welcome to CSC's update call on the NHS. Just a reminder, today's call is being recorded. At this time, I would like to turn the conference over to Mr. Bryan Brady, Vice President of Investor Relations. Please go ahead, sir.
Bryan Brady
Thank you, operator. Good evening, ladies and gentlemen, and welcome to CSC's update on the progress regarding our contractual relationship with the U.K. NHS.
We issued a press release and an 8-K yesterday containing the company's most recent update. And so I hope you've had an opportunity to read those.
-----

Bionic eye to let blind see as Australian team prepares to test brain implant

A TEAM of Australian researchers developing a bionic eye implant for the clinically blind will begin testing its first full system prototype this month.
Monash Vision Group, which leads a team of about 50 researchers on the $15 million project, is on track to have a direct-to-brain bionic eye implant ready for human trials next year.
MVG general manager Jeanette Pritchard said the team had completed successful bench testing on the microchips to be used in the device.
"The really exciting part is that we are taking those chips and putting them into the package that will actually represent something like what will go into the patient," she said.
The microchips would be implanted directly on the surface of a patient's visual cortex, located in the lower portion of the brain.
-----

NBN labelled a waste to set Labor back years

Peter Martin
April 5, 2012
"Kevin's style was to lock himself in a cave ... then emerge as Moses from the mountain" ... president of the Australian Institute of Public Administration Percy Allan. Photo: AP
IT MAY be popular now, but Labor's $36 billion national broadband network is shaping up to be a financial disaster that will set Labor's image back decades, rebranding it the party of waste and extravagance.
That's the view of Percy Allan, president of the Australian Institute of Public Administration and a former head of the NSW Treasury under premiers Wran, Greiner and Fahey.
Releasing a report card on "public policy drift", he told the Herald that Kevin Rudd came to office in 2007 promising "evidence-based" decision-making, but never spelled out what the term meant.
-----

Abbott needs more than an NBN lite

Paul Budde
Published 9:36 AM, 5 Apr 2012 Last update 10:37 AM, 5 Apr 2012
There is still a lot of chest beating going on, but in reality the Coalition’s views have been moving closer to the NBN as it is currently being rolled out.
Over the last few years we have seen that there is more or less bipartisan support for the structural separation of Telstra and for the fixed wireless broadband and satellite networks – in the case of the latter, at least support for the need for such a service. There is also acceptance of the fact that NBN Co is here to stay, albeit perhaps subject to change.
A key remaining difference is that the current NBN is based on the superior and future-proofed FttH infrastructure, while to save costs the Coalition favours an FttN solution, which eventually would also need to be upgraded to FttH but which would be cheaper as an interim solution.
-----

Google unveils 'wearable augmented reality glasses'

  • From: AP
  • April 06, 2012 1:12PM
IF you think texting while walking is dangerous, just wait until everyone starts wearing Google's futuristic, internet-connected glasses.
While wearing a pair, you can see directions to your destination appear literally before your eyes. You can talk to friends over video chat, take a photo or even buy a few things online as you walk around.
These glasses can do anything you now need a smartphone or tablet computer to do, and then some.
Google gave a glimpse of “Project Glass” in a video and blog post this week. Still in an early prototype stage, the glasses open up endless possibilities - as well as challenges to safety, privacy and fashion sensibility.
-----
Enjoy!
David.

AusHealthIT Poll Number 116 – Results – 9th April, 2012.

The question was:
How Do You Believe Funding For The NEHRS / PCEHR Will Be Adjusted In The May 2012 Budget?
Major Boost
-  1 (3%)
Minor Boost
-  2 (7%)
No Change
-  7 (25%)
Minor Cut
-  6 (21%)
Major Cut
-  12 (42%)
Votes: 28
A pretty clear outcome - 10 % of readers think there will be more funding and 63% see a cut.
Enough said.
Again, many thanks to those that voted!
David.

Sunday, April 08, 2012

The Clinical Narrative - Seems It Is A Hot Topic. We Have Not Paid Enough Attention To The Issue.

The following appeared a little while ago.

Are EMRs Killing the Clinical Narrative?

Scott Mace, for HealthLeaders Media , March 20, 2012

Could your new electronic medical record system be missing vital information the old paper-based system captured?
Even the most seasoned technology champion has to stop and ask that question, if for no other reason than the new medical record looks very different than the old one. To put it in classroom terms, today's EMR is often multiple-choice, not essay.
But almost as long as there have been doctors, the preferred way for them to communicate has been through a narrative—a story.
EMRs may introduce gaps in that narrative, says Philip Resnik, professor of linguistics in the Institute for Advanced Computer Studies at the University of Maryland.
Since 1999, Resnik's been studying the limitations of entering clinical information into discrete fields and checkboxes in an EMR. At the recent South by Southwest conference, Resnik described the dilemma clinicians face: to embrace the EMR with all its limitations, or to push ahead for new technologies such as natural language processing that rarely see clinical use today.
Resnik illustrates the problem with a sample narrative of a woman complaining of shortness of breath. In a slide he highlights snippets that are easily entered into EMRs, such as symptoms and actions taken. But he also underscores much text that helps tell the story of the patient's encounter in the ER but doesn't readily map to fields in an EMR.
"The doctors in the ER were trying to figure out whether the shortness of breath in this woman was due exclusively to her failing heart, or was there a problem with pneumonia," Resnik says. "People who have pneumonia do not respond promptly to [BiPAP] treatment. But she responded promptly. This gave them information."
Resnik bets that few point-and-click EMRs have a check box or slider control for how quickly a patient responded to a treatment.
Text fields in EMRs can capture this information, but in a busy exam room, with doctors trying to point, click, and enter EMR data during the exam, while also trying to maintain eye contact with the patient, how much time will be left for text entry?
The dilemma compounds when you realize that any data entered in text fields will resist analysis. Database analysis works best with discrete numbers. So even if we get doctors to enter the portions of their narrative that don't fit in discrete data fields, we've lost the ability to really analyze that data.
Lots more here:
To go a little further have a look here:
This really is a wonderful example of just how hard knowing what is happening to you can be and how representing what is going on is just astonishingly hard.

Visualize This: An e-Patient’s Medical Life History

There is some recent thought that self-tracking or data gathering is “a manifestation of our profound self-absorption.” Sure, self-tracking is all about ‘me,’ (hence the word ‘self’) but there seems to be an undertone that people are motivated to track their data by vanity or narcissism. This may be true for some people, but there are others who are motivated by true medical necessity – diabetics needing to track their blood sugar, or people suffering from unexplained medical mysteries. I fall into the second group.
For the past 20 years I have had Myasthenia Gravis, an autoimmune disease that causes weakness. For the past 14 years I have been taking Prednisone, a corticosteriod, to suppress my immune system to help reduce my Myasthenia symptoms. Unfortunately prednisone causes a host of side effects. For the past 5 years I have been experiencing gastrointestinal problems (debilitating at times) and increased weakness. I have been to neurologists, a number of gastroenterologists, acupuncturists, and a few primary care doctors, and NONE of these folks were able to really explain what was happening to me or give me concrete advice for improving my condition.
As I was getting ready to see a new doctor, I realized that the best way to tell my story would be to create a medical “life story” timeline that reflected:
  • The course of my autoimmune disease
  • Severity of my gastrointestinal problems
  • Key moments in time when I started and stopped certain medications or took antibiotics
  • Any significant dietary changes
I sketched out the two timelines (autoimmune and gastrointestinal) separately, and then created them electronically using Adobe Illustrator. (I’m an interaction designer by day, so fortunately I had the skills/know-how to create a somewhat legible artifact.) I used a peach color to represent gastrointestinal wellness/symptoms, and a blue color for Myasthenia Gravis.
---- End Extract.
So here is real ‘personal control’ of health information that leaves the conceptual basis of the PCEHR simply in the dust. Same as the material discussed here does.
We are led by people who are barely alive and who somehow think it will all work out because they want it to.
Struth!
David.

Thursday, April 05, 2012

Happy and Safe Easter!

Normal service will resume on Tuesday 10th April, 2012.
Until then enjoy the time off with family and those who matter to you!
David.

CHIK Services Attempts To Mislead On This Blog’s View of DoHA / NEHTA E-Health Planning And Delivery. Pretty Poor I Reckon.

The following was sent to me today as a press release:

Tanya Plibersek makes “watershed” announcement at Health-e-Nation Conference 2012

SYDNEY, Australia. Federal Minister for Health, Tanya Plibersek, Archbishop Desmond Tutu, Chair of the Global eHealth Ambassador Program and Jane Halton PSM, Secretary of the Department of Health and Ageing were among a distinguished array of healthcare, government and IT leaders that contributed to the success of the tenth annual Health-e-Nation Conference on the Gold Coast held March 27-29, 2012.
Federal Minister for Health, Tanya Plibersek, Archbishop Desmond Tutu, Chair of the Global eHealth Ambassador Program and Jane Halton PSM, Secretary of the Department of Health and Ageing were among a distinguished array of healthcare, government and IT leaders that contributed to the success of the tenth annual Health-e-Nation Conference on the Gold Coast held March 27-29, 2012.
Minister Plibersek chose the Health-e-Nation Conference to make her first address to an ehealth focused audience. She announced GPs will be able to claim MBS payments for creating and adding patient details to the Personally Controlled Electronic Health Record (PCEHR), and cautioned against expecting miraculous overnight changes to the nation’s ehealth system come July 1, 2012.
“This is a big and exciting project, but I’m determined not to rush it. This isn’t a matter of ‘flicking a switch’ on 1 July and away you go,” she said. “The initial step we’ll take on 1 July has always been about two key things: firstly, delivering the core national ehealth system – the building blocks; and secondly, allowing the first patients to register – and both are on track.”
The Health-e-Nation speech was widely reported in the media, including in The Australian, Pulse IT Magazine and eHealthspace.org, the online “voice of healthcare” news destination and media sponsor of the event. Video of the Minister’s speech is available to members on www.ehealthspace.org
Also speaking at the Health-e-Nation Conference, Jane Halton PSM (Hons), Secretary of the Department of Health and Ageing told the 300-strong audience the job of NEHTA was to build standards and connectivity for the new national ehealth records system to work for everyone.
Writing online Dr George Margelis from Care Innovations said, “I walked out of the [Health-e-Nation] event with a new level of enthusiasm and belief that we really are doing the right thing, and optimism that Australia may well take the world leading position in ehealth and healthcare it so rightly deserved”. AusHealth IT blogger and critic of the government’s ehealth approach, Dr David More, said, "We will look back on [the Health-e-Nation] speech from the Federal Health Minister as a watershed”.
“Several clear messages resonated through all three days of this year’s Health-e-Nation Conference,” said Sally Glass, managing director of CHIK Services, organiser and founder of the annual event. “The strongest being that July 1, the kickoff for the national ehealth records system, is just the beginning of the ehealth journey for Australia, rather than the end point.”
Bureaucracy, and a monolithic system, simply wouldn’t work, she said, comparing such an approach to Australia’s early rail system where different gauges meant inefficiently loading and unloading freight at each state border.
In addition to Minister Plibersek and Ms Halton, the Health-e-Nation program drew on the collective knowledge and passion of various eminent international and local ehealth advocates and experts including:
Archbishop Desmond Tutu, Chair of the Global eHealth Ambassador Program
Professor Ricky Richardson who described himself as a ‘humble paediatrician’ from Great Ormond Street, UK
Dr Jonathan Schaffer, an orthopaedic surgeon and managing director of the eClevelandClinic, USA
David E. Garets, who heads the Health IT Suite for the Advisory Board Company, USA
Ms Claire McCarthy, Director of the Organisational Readiness team at Providence Health and Systems, USA
Dr Mukesh C Haikerwal AO, who among the many ‘hats’ he wears is the national engagement lead at NEHTA
The three day program also included a one day Software Developer Conference and a half day workshop on innovation and change management for vendors and healthcare providers. The full agenda is available from www.health-e-nation.com.au.
“It was a pleasure and a privilege to draw this seminal program together in conjunction with principal sponsors the National eHealth Transition Authority (NEHTA), the Department of Health and Ageing, and the NCAP (National Change and Adoption Partner) team,” said CHIK Services leader Sally Glass.
“In particular I must publicly thank Denis Tebbutt, vendor engagement advisor to NEHTA, for his passion and commitment in making this collaboration happen,” Mrs Glass said.
Extensive coverage including transcripts, videos and stories of the event are available from eHealthspace.org (www.ehealthspace.org), the media sponsor of CHIK’s Health-e-Nation Conference.
The release is found here:
I suggested to the PR Company that put this out that I really did not think this was a fair representation of my views:
Here it the e-mail
---- Begin Quote
“Thanks for this:
Of course what the Minister said was that the program was being slowed and modified much in the way I have been suggesting on the blog for a good while.
By responding to my criticism I think she has indeed won some 'brownie' points - but your rather out of context quote rather conceals my real view.
This rather better captures my view from the blog reporting the speech:
"All I can say is that this is the most sensible speech on e-Health I have heard for a good while. It recognises it is long and hard, sets way more sensible objectives for July 1, and makes it clear this will be years in the making.
Recognition of the e-prescribing services and so on that are already operating is a welcome change indeed.
Minister Plibersek gets high marks indeed in my view for this resetting, recalibration and recognition she needs the GPs to have e-Health work.
Good on her."
The blog from which you quoted made it the same sentiments clear also.
Really a trifle too 'filtered' for me!
David
----- End extract.
What I got back was a ‘don’t you worry about that - people will check with your blog (no link provided) and will get the picture!
Well “not as such” is my view.
The company that issued the release is called ‘Filtered Media’ and that is what that do - spin (or filter) - or so it would seem
These guys claim to ‘Tell your story brilliantly!” and boy do they spin stunningly as well.
Minister Plibersek did a major backflip on how and when National E-Health Records would be delivered and this release attempts - using my words - to suggest that all was right with the world and that their conference had reported of a thrilling outcome - when it was actually a major policy change.
 Those who have read here:
and here:
know that is just nonsense.
Really I can do without little smartarse PR people trying to put words in my mouth! Sally I think you need a much better and non-spinning PR firm!
Maybe a short apology in the form of a comment?
David.