Quote Of The Year

Timeless Quotes - Sadly The Late Paul Shetler - "Its not Your Health Record it's a Government Record Of Your Health Information"

or

H. L. Mencken - "For every complex problem there is an answer that is clear, simple, and wrong."

Wednesday, January 22, 2014

A Very Interesting Review Of Older Individual’s Views On The PCEHR. Very Interesting Indeed!

This appeared a few days ago.

Seniors reluctant to share PCEHR with all health professionals

By Natasha Egan on January 15, 2014 in Consumers, Health & medical, Technology
Most senior Australians are willing to grant their GP, specialists, hospital medical staff and emergency workers full access to their electronic health record but are not inclined to do so for other health professionals or carers, according to a study targeting over-65s in regional Australia.
Education is therefore needed about the importance of all health professionals having a full picture of a patient’s health, says a co-author of the paper, which was recently published in the International Journal of Medical Informatics.
The La Trobe University pilot study on the views of elderly regional Australians of personally controlled electronic health records (PCEHR) involved 80 seniors from Bendigo in Victoria. The bulk of the participants, which were recruited at local Probus clubs catering to active and retired professionals, were aged 60 to 79 (84 per cent) and most were female (62 per cent).
The study found that the vast majority of respondents were in favour of giving their usual GP full access to their PCEHR (95 per cent) and most were also willing to grant full access to specialists (85 per cent), hospital medical staff (79 per cent), and emergency personnel (78 per cent).
Just over half of participants thought family members (53 per cent) should have full access to their eHealth record, however, fewer than that felt it suitable for diagnostic laboratories (48 per cent), pathology staff (46 per cent), allied health professionals (45 per cent), pharmacists (44 per cent), and carers (29 per cent) to have full access to their online health information.
Much more here:
Here are the study recommendations:
“Recommendations
To increase the adoption of the PCEHR among regional dwelling older Australians, the authors have recommended measures including computer access points in GP practices, print-out facilities, reassurance about security, and increased awareness about the benefits of sharing health record content with various health professionals.”
There is further coverage here:

Elderly reluctant to share health records with pharmacists

15 January, 2014
Australians aged over-65 would prefer family members and pathology lab staff to have access to their Personally Controlled Electronic Health Record (PCEHR) than pharmacists, a study reveals.
The research, published in the International Journal of Medical Informatics, found that 95% of elderly Australians said they would be happy to give their GP full access to their PCEHR, while just 44% said pharmacists should have access to the document, the Australian Ageing Agenda reported.
The authors from La Trobe University used a self-administered questionnaire, distributed to members of a community club for active business and professional retirees, to gauge their views on the PCEHR.
More here:
There is an abstract to the actual study found here:
This is a very interesting study showing the barriers that need to be overcome to get decent levels of participation in the PCEHR - if you think that is a good thing.
That 25% or so of this group lack internet access seems to me to be a barrier that will be hard to overcome as will the education of this cohort in computer use.
Well worth a read of the articles above and the full text if you have access.
David.

Tuesday, January 21, 2014

Will There Be Any Improvement In Technology Project Governance Any Time Soon? Not If We Don’t Start Learning From Experience!

This appeared a few days ago.

Australian IT project failures spark new ICT governance standard

Date January 14, 2014 - 1:39PM

Trevor Clarke

65 to 85 per cent of IT projects fail to meet their objectives, run significantly late or cost far more than planned, says Minter Ellison partner Paul Kallenbach. Photo: Stephen Morton
The frequent failure of major IT projects across the country such as the Queensland Health payroll debacle has spurred Standards Australia to release an updated standard for IT governance.
The 24-page long standard was developed by the Standards Australia Technical Committeeand aims to guide leaders during major IT projects.
"The standard was prepared due to continuing failures of major IT projects to deliver expected value. The aim was to bring home the need for action from boards and senior business executives who are responsible for the overall governance of the organisation," said Standards Australia chief executive, Dr Bronwyn Evans.
"If organisations want to obtain maximum value from their investment, governance of IT projects should not be left to the IT department alone."
The new standard replaces a 2010 standard with updated guidance informed by the growth in cloud computing and social media use. It includes a recommended governance framework and encourages the highest levels of leadership to take responsibility for project success.
Over the years, IT market observers have been dismayed at the number of projects that have either failed completely or exceeded their budgets and deadlines.
The Queensland Health payroll disaster is arguably the poster child IT project failure in Australia at the moment. But it is joined by many other high-profile examples. The ATO's Change Program also ran over budget and over time, while a 2011 Victorian Ombudsman's report into 10 projects in the state including the myki card found each failed to meet expectations and added an additional $1.44 billion in costs.
Standards such as this are useful, says Minter Ellison partner Paul Kallenbach, but it's "the application of good IT project governance that has proved challenging".
Lots more here:
There is also coverage here:

IT Governance Standard to benefit consumers and organisations

IT governance is not a readily accessible issue for consumers yet the decisions made by most organisations about information technology (IT) can have great later significance, as is evident in a number of Australian IT project failures. IT supports organisations’ core functions and so IT investment choices and the contribution of IT to business capability and performance often play a significant role for future success.
Standards Australia has published a significant New Standard for IT Governance to support governance leaders in guiding major IT projects. Organisations undertaking significant IT projects will find this the ‘go-to” document when it comes to linking governance and management. Consumers Federation of Australia (CFA) has a representative on the Standards Australia Technical Committee IT-030 IT Governance which was responsible for the development of the standard.
AS/NZS 8016:2013 Governance of IT enabled projects offers a model of engagement between an organisation’s governing body and management.  The objective is to facilitate improved results for business projects that involve investment in new or changed IT capabilities (these projects are often referred to as ‘IT enabled projects’ or ‘IT projects’).
More here:
Here is the link to the Standard.
Here is all that is available for free - the rest will cost you about $100.
AS/NZS 8016:2013
FOREWORD
 This Standard provides guidance to assist those at the highest level of organizations in the effective governance of IT enabled projects; these are projects that deliver IT enabled business capability and outcomes.
IT supports the core functions of most organizations. Investment in IT and the contribution of IT to the business capability and performance of the organization often play a significant role in the achievement of strategic plans.
Governance of IT, including significant investments in IT, is part of sound corporate governance and is needed to meet ASX guidelines. Governance in this context is not IT management but it is supported by the organization’s management system.
The mechanisms employed to govern IT enabled projects should be informed by the organization’s reliance on IT and its strategy, as well as its size and risk appetite. An item relating to an IT crisis on a board agenda could be a sign of weak or immature framework for the governance of the IT enabled project, and often the resulting decision-making will occur in isolation and will address the symptoms rather than the cause.
The guidance provided in this Standard comprises principles and a model. The principles are those defined in AS/NZS ISO/IEC 38500:2010, Corporate governance of information technology, and this Standard offers guidance on the application of the principles to IT enabled projects.
It provides guidance on the way governing bodies can own and lead the governance of IT enabled projects while providing support to those with delegated authority to deliver these projects. This Standard focuses on the governance of projects in which IT is an enabling tool for delivering value to the business. The governing body of an organization will determine what is of value to that organization; however, the value arising from an IT enabled project could include—
(a) competitive advantage through delivery of new services;
(b) improvements in organizational efficiency;
(c) cost reduction;
(d) effective risk management; and
(e) compliance with legislation and regulations.
Governance of IT enabled projects can provide governing bodies with a better understanding of the organization’s risk profile. Mobile devices, ‘apps’ and ‘cloud’ services can be purchased with ease by business management, and often without consulting the management responsible for the business’s IT or without understanding the potential implications for the organization’s IT strategy. Business projects underpinned by these technologies could escape consistent oversight, and decisions could be made that are neither aligned with an overall business strategy for IT nor subject to consistent oversight.
Digital and social media opportunities are currently being discussed in terms of business strategy, as well as in terms of the challenge of calculating and monitoring return on investment. This is a changing world where, if the board does not provide leadership, the consequences will be costly to rectify, and competitive opportunities could be lost.
This Standard does not prescribe or define specific management practices required for IT enabled projects, since these practices are already well defined in other sources. However, by focusing on the principles for governance of projects and behaviours that contribute to project success, this Standard provides guidance that is applicable to all organizations. It is the responsibility of governing bodies to satisfy themselves that the appropriate behaviours and mechanisms are in place within the organization.
----- End Forward.
The sad thing about all this is that most of what is being talked about is Project Governance Management 101 (Involve the Company Executive, ensure project is part of clear business and IT Strategy, have clear Executive Sponsor, have clearly measurable project plan and deliverables and ensure appropriate scope of each work parcel, ensure IT leadership has business nous etc.) and despite all this being very well known we keep seeing huge problems!
Here is a fun discussion of the causes of all these - The slides say it all!

Informatics Training for CDC Public Health Advisors

How to Cause Information Technology Disasters
Instructor: William A. Yasnoff, MD, PhD
Teaching method(s): Lecture/discussion
Topics to be covered:
  • Risks of Information Technology
  • Types of Disasters
  • Effective Disaster Strategies: Management
  • Effective Disaster Strategies: Technical
  • Paradigm for Disaster Avoidance
Learning objectives:
By the end of this session, students will:
  • Understand the sources of risk in the development of new information systems
  • Describe at least four management strategies for creating disasters
  • Describe at least four technical strategies for creating disasters
  • Utilize an effective paradigm to minimize likelihood of information technology disasters
Handouts:
  • Instructional Materials
  • Johnston DC: I.R.S. Admits Lag in Modernization; Urges Contract Plan. NY Times 1/31/97, p. A1.
  • Oz E: When Professional Standards are Lax: The CONFIRM Failure and its Lessons. Communications of the ACM 1994;37(10):29-36.
References & suggested readings
  • Ennals R. Executive Guide to Preventing Information Technology Disasters. Berlin: Springer-Verlag, 1995.
----- End Course Outline.
Note the dates of the references - none of this is new news! It just needs people to actually follow what is known about how to avoid these issues. One very good thing to do is make sure political interference and pressure is properly managed!
David.

Monday, January 20, 2014

Weekly Australian Health IT Links – 20th January, 2014.

Here are a few I have come across the last week or so.
Note: Each link is followed by a title and a few paragraphs. For the full article click on the link above title of the article. Note also that full access to some links may require site registration or subscription payment.

General Comment

Again a pretty quiet week with not much apparently going on except ongoing efforts to alienate Indonesia with one wag is now terming the effort ‘Sovereign Blunders’ and a lot of cost cutting ideas being floated by the Commission of Audit.
Sadly if seems the new Australian Standard to assist in preventing major IT disasters might be just a bit late! Maybe things will improve after this is out there.
I wonder how much it costs to get a copy?
-----

Australian IT project failures spark new ICT governance standard

Date January 14, 2014 - 1:39PM

Trevor Clarke

65 to 85 per cent of IT projects fail to meet their objectives, run significantly late or cost far more than planned, says Minter Ellison partner Paul Kallenbach
The frequent failure of major IT projects across the country such as the Queensland Health payroll debacle has spurred Standards Australia to release an updated standard for IT governance.
The 24-page long standard was developed by the Standards Australia Technical Committee and aims to guide leaders during major IT projects.
"The standard was prepared due to continuing failures of major IT projects to deliver expected value. The aim was to bring home the need for action from boards and senior business executives who are responsible for the overall governance of the organisation," said Standards Australia chief executive, Dr Bronwyn Evans.
"If organisations want to obtain maximum value from their investment, governance of IT projects should not be left to the IT department alone."
Here is the release:
-----

IT Governance Standard to benefit consumers and organisations

IT governance is not a readily accessible issue for consumers yet the decisions made by most organisations about information technology (IT) can have great later significance, as is evident in a number of Australian IT project failures. IT supports organisations’ core functions and so IT investment choices and the contribution of IT to business capability and performance often play a significant role for future success.
Standards Australia has published a significant New Standard for IT Governance to support governance leaders in guiding major IT projects. Organisations undertaking significant IT projects will find this the ‘go-to” document when it comes to linking governance and management. Consumers Federation of Australia (CFA) has a representative on the Standards Australia Technical Committee IT-030 IT Governance which was responsible for the development of the standard.
AS/NZS 8016:2013 Governance of IT enabled projects offers a model of engagement between an organisation’s governing body and management. 
-----

Tech executive leaves Queensland in turmoil after unexpected departure

Paul Smith
The sudden resignation of the executive charged with fixing the Queensland government’s controversy-plagued IT operations is a blow to efforts at ­cleaning the mess that led to the health ­payroll debacle, technology experts say.
Department of Science, IT, Innovation and the Arts executive director of ICT renewal Glenn Walker resigned just nine months after he commenced in the role, ITNews reported on Friday.
The news is a major setback for ­Queensland IT Minister Ian Walker, who wanted Mr Walker to ­implement a ­comprehensive IT plan ­following two highly critical inquiries into its ­technology systems.
The Queensland government in December lodged a statement of claim against IBM in the Supreme Court to seek compensation for the failure of its payroll system, which is expected to cost taxpayers up to $1.2 billion. Mr Walker was responsible for implementing measures that would reduce risks in the state’s tech ­purchasing and implementation, and improve the ­performance of its ­technological ­systems.
-----

Seniors reluctant to share PCEHR with all health professionals

By Natasha Egan on January 15, 2014 in Consumers, Health & medical, Technology
Most senior Australians are willing to grant their GP, specialists, hospital medical staff and emergency workers full access to their electronic health record but are not inclined to do so for other health professionals or carers, according to a study targeting over-65s in regional Australia.
Education is therefore needed about the importance of all health professionals having a full picture of a patient’s health, says a co-author of the paper, which was recently published in the International Journal of Medical Informatics.
The La Trobe University pilot study on the views of elderly regional Australians of personally controlled electronic health records (PCEHR) involved 80 seniors from Bendigo in Victoria. The bulk of the participants, which were recruited at local Probus clubs catering to active and retired professionals, were aged 60 to 79 (84 per cent) and most were female (62 per cent).
-----

Elderly reluctant to share health records with pharmacists

15 January, 2014 Nick O'Donoghue
Australians aged over-65 would prefer family members and pathology lab staff to have access to their Personally Controlled Electronic Health Record (PCEHR) than pharmacists, a study reveals.
The research, published in the International Journal of Medical Informatics, found that 95% of elderly Australians said they would be happy to give their GP full access to their PCEHR, while just 44% said pharmacists should have access to the document, the Australian Ageing Agenda reported.
The authors from La Trobe University used a self-administered questionnaire, distributed to members of a community club for active business and professional retirees, to gauge their views on the PCEHR.
-----

Contact lens glucose sensors a sweet solution for diabetics

  • AP
  • January 17, 2014 11:50AM
GOOGLE has unveiled a contact lens that monitors glucose levels in tears, a potential reprieve for millions of diabetics who have to jab their fingers to draw their own blood as many as 10 times a day.
The prototype, which Google says will take at least five years to reach consumers, is one of several medical devices being designed by companies to make glucose monitoring for diabetic patients more convenient and less invasive than the traditional finger pricks.
The lenses use a minuscule glucose sensor and a wireless transmitter to help those among the world's 382 million diabetics who need insulin keep a close watch on their blood sugar and adjust their dose.
The contact lenses were developed during the past 18 months in the clandestine Google X lab that also came up with a driverless car, Google's Web-surfing eyeglasses and Project Loon, a network of large balloons designed to beam the internet to unwired places.
-----

Australian researchers hail new cost-effective gene sequencing machine

Date January 15, 2014

Julia Medew

Health Editor

Leading Australian researchers say thousands of Australians are set to benefit from the acquisition of new machines that can sequence a whole human genome for about $1000.
The Garvan Institute of Medical Research says it is one of the first in the world to acquire technology capable of sequencing genomes for that price, making it possible to do around 350 genomes a week or 18,000 a year – a "massive increase" on what is currently being done in Australia.
Unlike commercial DNA tests being routinely used already, the Garvan's new Illumina machines will sequence about six billion base pairs in a person's DNA – the complete set of genetic information we inherit from our parents.
-----

New devices and special glass claim to thwart germs on phones, tablets - but do they work?

Date January 16, 2014

Ben Grubb

Deputy technology editor

Your smartphone may be your best friend, but it is also probably teeming with germs. According to recent research conducted in Britain, there's a one-in-six chance it has faecal matter on it, most likely put on it after you've visited the toilet (one-third of respondents to an Australian survey admit to using a phone there).
After all, our smartphones, like our hands, can be good surfaces for common bugs - such as golden staph, influenza and the cold virus - to rest on. And if those bugs come into contact with our eyes or mouth, they can potentially lead to sickness.
We wash our hands when we've been to the toilet and before we cook, but we never ever wash our phone.
-----

Administration taps Accenture to take over HealthCare.gov

The Obama administration is granting the consulting firm Accenture a contract worth between $90 million and $100 million for maintenance of the federal Obamacare website HealthCare.gov, two sources familiar with the contract told CBS News.
Accenture will replace the original lead contractor responsible for the site, CGI, whose contract is expiring. The contract leaves the consulting firm responsible for the continued construction and maintenance of the site, with a special emphasis on “back-end” portions of the site that handle the transfer of data from users to insurers.
Accenture will also work with QSSI, the contractor that was appointed in late October to lead efforts to fix HealthCare.gov after its disastrous launch.
-----

Is it wise to let patients read your notes?

16 January, 2014 Paul Smith
Giving patients immediate access to doctors' medical notes following a consultation is being touted as a new standard of care following a US study.
The year-long OpenNotes study involved sending 20,000 patients a secure message following consultations with their GPs inviting them to read the doctor's notes via an online portal.
Jan Walker, from the Beth Israel Deaconess Medical Centre, in Boston, US, said many doctors had been wary of the project, concerned about increased workflow and what she described as an "avalanche" of questions from patients about the information in their medical notes.
-----

Coalition hits the ground reviewing

Written by David Guest
Published: 12 January 2014
Commentary by David Guest
The new Coalition government hits the ground reviewing.
The report on the troubled PCEHR project has been delivered to the Minister but not released. On 16 December 2013 it was announced that Professor John Horvath, former Australian Chief Medical Officer, would review the Medicare Locals. Submissions to the review closed on 20 December.
A number of organisations have already been abolished or absorbed by other Federal Departments. Gone are the Department of Science, the Climate  Commission, the Foreign Aid Agency, AusAid ( Australian Agency for International Development), the Clean Energy Finance Corporation, the Immigration Health Advisory Group and the National Adoption Advisory Group. Federal government support for the Murray Darling Basin Authority and the Marine Parks Authority has been reduced. The funding for the legal aid services (Aboriginal and Torres Strait Islander Legal Services, Community Legal Services and the Family Violence Prevention Legal Services) has been drastically cut.
-----

Breastfeeding mothers get help from Google Glass and Small World

Date January 19, 2014

Lucy Battersby  Julia Medew

New mothers struggling with breastfeeding may soon have the latest technology at their disposal to get expert help at any time of day.
The Melbourne office of an innovation company called Small World is about to conduct a Google Glass trial with the Australian Breastfeeding Association that will effectively allow their telephone counsellors to see through the eyes of mothers while they breastfeed at home.
The company is looking for 10 Victorian women expecting to give birth in February who want to trial the high-tech glasses for six to eight weeks to receive breastfeeding coaching. During that time, participants would receive training through their glasses on the fundamentals of breastfeeding. The gadget will display prompts, allowing mothers to keep their hands free to nurse their baby.
-----

Guest Post: FHIR Ballot Process

Posted on January 16, 2014 by Grahame Grieve
GE have asked for another round of FHIR balloting. See here and here. I don’t have time to commit my thoughts to the blog in a measured way – it’s very hard to comment rationally on this matter, and I don’t have time. So instead, Lloyd McKenzie volunteered this as a guest post:
The FHIR Management Group and the FHIR Governance Board will be making the determination of whether to go back to ballot during one of their face-to-face meetings at the WGM next week.
A few things to keep in mind:
  • All balloters *have* had a two-week chance to review the dispositions of all ballot comments (not just their own) and the specification has been up to date reflecting those changes. Thus far, only one balloter  has indicated an issue with any of the resolutions, and it looks like we can resolve that.
  • In parallel with that opportunity for review by balloters, every page in the specification has undergone QA for style, formatting, etc. So most, if not all, minor readability issues resulting from the changes should now be cleaned up.
  • The DSTU specification is a draft. It will change and will continue to evolve.
Technically, the ballot has more than met the HL7 requirements to pass. The question is whether it would be in the interest of implementers to hold the specification back for another 6 months to go through another round of balloting, subsequent updates, QA and publication. I’m far from convinced that is the case.
-----

Australian Privacy Act amendments loom large

January 13, 2014
Australian Privacy Act changes smell of SOX
Australian organisations risk financial and reputational damage if they fail to meet the challenges of this year’s Australian Privacy Act changes warns Centrify Regional Director APAC Matt Ramsay. Taking effect from March, the Privacy Amendment (Enhancing Privacy Protection) Act 2012 implements a new set of harmonised privacy principles to regulate the handling of personal information by both Australian businesses and government agencies. Enacted in 2002, the SOX law strengthened compliance standards for US public company boards, management and public accounting firms by requiring top managers to individually certify the accuracy of financial information, applying more severe penalties for fraudulent financial activity.
-----

Austin Health finalist at Victorian Public Healthcare awards for implementation of Health IQ’s Queue Manager

Austin Health was recognised at the 2013 Victorian Public Healthcare awards for its leadership in innovation for optimising healthcare through e-health and communications technology. The project, ‘E-queuing at Austin Health Specialist Clinics’, saw Health IQ’s Queue Manager successfully implemented in their outpatients department and at the Olivia Newton-John Cancer and Wellness Centre.
Queue Manager was first implemented at Austin Health in September 2012 and its significant benefits have already captured the attention of the healthcare community within the few months since.
-----

PC shipments mark 'worst decline in PC market history' with 10 per cent drop in 2013

Date January 13, 2014 - 1:47PM

Aaron Ricadela

Personal computer shipments fell 10 per cent in 2013, marking the worst-ever decline after lacklustre holiday sales underscored how consumers and businesses are shunning machines for mobile devices, two research firms said.
Manufacturers shipped 315.9 million units, returning to 2009 levels and making it the "worst decline in PC market history", researcher Gartner said in a statement late last week. IDC also said shipments had a record decline.
US consumers omitted PCs from their holiday shopping lists while buyers in Asia opted for smartphones and tablets. More computing tasks are moving to websites and applications tailored for wireless gadgets, rather than software installed on laptops and desktops. The annual drop eclipsed the previous record decline of 3.9 per cent in 2012, Gartner said.
-----

Microsoft on the threshold of deleting 'appalling' Windows 8 software

  • Murad Ahmed
  • The Times
  • January 14, 2014 12:52PM
MICROSOFT plans to cut its losses on Windows 8, the latest version of the software that runs the majority of the world's computers, jettisoning the brand in an attempt to appease millions of disgruntled users.
Industry sources believe the world's biggest software company will announce a new operating system, codenamed "Threshold", at an event in April.
It is understood that ultimately Microsoft will call the system Windows 9 - a move, nonetheless, away from the Windows 8 brand that executives believe has become irreparably damaged by poor sales and scathing customer reviews.
The company will also make a number of changes to the system's design and functionality. It will go on sale in 2015, far earlier than many anticipated.
-----
Enjoy!
David.

Sunday, January 19, 2014

In The Oddest Of Places We Discover Just Why The Government Is Pushing The PCEHR So Hard!

I found this as I was checking the Health Department web site for news. From the review date this page is clearly very current. The section that really matters is at the bottom of the article.

eHealth

Reviewed: 13/01/2014

Overview 

Electronic health (eHealth) is the combined use of electronic communication and information technology in the health sector. An eHealth record is an electronic health record that contains a summary of your health information.
Each time you visit your doctor, a hospital or other medical facilities such as imaging and radiology clinics, important information about your health is created and stored in separate files – which may be paper or electronic – at each of these locations. However, even if your health information is stored electronically on a computer at some or all of these places, many of these systems are not connected which makes it difficult to share your health information between your different healthcare professionals.

Personally controlled electronic health record

A personally controlled electronic health record (PCEHR) will enable better access to important health information held in dispersed records across the country. It will allow you to set your own access controls and specify what information can be viewed and by whom. You can also add your own notes, and allow healthcare professionals to view this information and to also add new information to your record. This increases the ease of sharing health information. You can also access it whenever you need to, from wherever you are, using a web-enabled device through the consumer interface portal, even if you are travelling interstate. However, specific ‘applications’ are not being provided for mobile devices such as iPads, tablets and smartphones.
A PCEHR will not be automatically created for you. If you choose not to have one, you will still have the same access to the health system as you currently do. If you choose to have a PCEHR, then you must register in one of the following ways:
  • online at the eHealth website
  • over the phone by calling 1800 723 471 and selecting option one.
  • in person by visiting a Department of Human Services service centre that offers Medicare services
  • in writing by completing a registration application form available from a service centre offering Medicare services, or from the eHealth website. Once the form is completed you need to post it to: Personally Controlled eHealth Record Program, GPO Box 9942, in your capital city.
Your PCEHR will not replace your existing health records, but information can be added when you see a doctor, get a new prescription or visit a specialist. This will build up an overview of your health over time, allowing better access to your health information, better healthcare delivery and greater involvement in your health choices.

Caring for someone else

If you are caring for someone who may not be able to create and manage a PCEHR on their own behalf, but it would be beneficial to have their health information in one location, you can apply to be their authorised representative. The PCEHR system will need to verify your legal authority, and once this process has occurred you will be given the same access and controls as the individual. There can also be more than one authorised representative. For more information go to yourhealth.
There are also strong security and privacy safeguards to keep your information safe. For example, you will have a user ID and password to access your PCEHR, and you can also see who has accessed or updated it. If you think that someone has accessed your information inappropriately you can contact the eHealth helpline by calling 1800 723 471.
Healthcare organisations can also register to participate in the eHealth record system and authorise doctors, nurses and other appropriate users within their organisation to view patient records through the secure online provider portal.
For more information go to public learning, or call the eHealth helpline on 1800 723 471
SourcesDepartment of Health and Ageing (General consumer FAQs, The PCEHR Consumer Booklet, Concept of Operations: Relating to the introduction of a Personally Controlled Electronic Health Record System, Personally controlled electronic health records)National eHealth Transition Authority (eHealth records, What is an eHealth record?, What is eHealth?)

Facts and figures

  • The Australian Government’s PCEHR system was launched on 1 July 2012.
  • The estimated net direct benefits of the national PCEHR system are expected to be approximately $11.5 billion over the 2010 - 2025 period. This comprises approximately $9.5 billion in net direct benefits to Australian governments and $2 billion in net direct benefits to the private sector (households, doctors, specialists, allied health clinics, private hospitals and private health insurance providers).
  • The forecast reduced avoidable hospital admissions and doctor visits due to more effective medication management from 2010 - 2025 is approximately $10 billion.
  • The forecast improved continuity of care benefit from 2010 - 2025 is approximately $11.5 billion.
SourceDepartment of Health and Ageing (Expected benefits of the national PCEHR system, Personally controlled electronic health records)
The page is found here:

There are more details on the projections here:

http://www.yourhealth.gov.au/internet/yourhealth/publishing.nsf/Content/pcehr-benefits

It is the facts and figures that caught my eye. I had seen them ages ago but had not picked up what they might mean - especially with the focus on and nature of the benefits being made so clear with the Department re-publishing them so recently. Thanks to a mate for spotting the source!

A few points need to be made.
1. It seems the Government is wanting, and planning to collect,  the vast majority of the planned benefits with very little left for everyone else. It is absolutely clear from this that the PCEHR is not a program designed to benefit patients and clinicians.
2.  The start date of the study (2010) is before the PCEHR was a twinkle in anyone’s eye - so this is almost certainly information based in NEHTA’s IEHR which was very different to the PCEHR.
3. The PCEHR is really not a medication management system - although it may be a medication recording system.
4. The PCEHR as of 2014 is hardly a widely used system so it is likely these forecasts are way too optimistic.
The bottom line here is that the PCEHR is a system being pushed on the public and clinicians for the benefit of the Government on the basis of amazingly rubbery and obsolete figures.
What a farce and what a surprise the Department is still pushing this nonsense after the change of Government. Is there some news here?
David.

AusHealthIT Poll Number 201 – Results – 19th January, 2014.

Minister Dutton Says The PCEHR Review "report provides a comprehensive plan for the future of electronic health records in Australia." Is that credible after a six week process?

For Sure 3% (2)

Maybe 5% (3)

Probably Not 33% (19)

It Is Incredible 55% (32)

I Have No Idea 3% (2)

Total votes: 58

It seems 88% of readers are pretty sure there has not been a credible plan developed in six weeks. I can but agree.

Again, many thanks to those that voted!

David.