This appeared last week:
Alliance Friends provide views on My Health Record
Tuesday, 29 June 2021
The Alliance has taken a ‘pulse’ survey of people passionate about rural health to collate their views on the Australian Government’s My Health Record.
The majority of responders among the Alliance Friends group said they were aware of the digital service and many highlighted benefits of the platform, such as helping to overcome the barriers of distance.
CEO Gabrielle O’Kane presented the findings of the survey to the My Health Record Symposium: Progress and Possibilities online event on 17 June 2021. Friends reported benefits such as having access to up-to-date information and health data in an emergency; enabling easy access when travelling; and allowing the sharing of information between rural and remote health professionals.
One respondent said, ‘The record is authoritative, secure and I have confidence in it. It equalises the tyranny of distance – I feel the medical equal of others and just as important. I know if I travelled anywhere that any rural or city hospital/provider could access my life&death information equally’.
More here:
https://www.ruralhealth.org.au/friends/alliance-friends-provide-views-my-health-record
Don’t you love it!. All the benefits that are claimed in paras. 3 and 4 depend on there being the data in the record and we all know how many are near empty of curated and properly reviewed clinical material!
Further on we get the negatives. Hard to use if people bother, security and privacy concerns, lack of cultural sensitivity and so it goes on. And is the final note we see the survey was run by the ADHA.
When will be actually see some real evidence of clinical use and value do you reckon? We are into the second decade of this farce!
David.
2 comments:
Call me cynical but this sounds manufacture- One respondent said, ‘The record is authoritative, secure and I have confidence in it. It equalises the tyranny of distance – I feel the medical equal of others and just as important. I know if I travelled anywhere that any rural or city hospital/provider could access my life&death information equally’.
re: "The record is authoritative..."
This is from the original PCEHR Concept of Operation. AFAIK, the original design has never been modified, even though it was never fully implemented (e.g. there are are no conformant repositories). - Note the last phrase "rather than as the complete and authoritative source of current information."
Key design features of the PCEHR System are explained below
The PCEHR System:
is a source of selected clinical data and documents – in addition to a Shared Health Summary in each PCEHR (which contains basic health data about an individual), clinical documents may be added to that individual’s PCEHR.
And not
a replacement for normal sharing of information between an individual and their healthcare provider – as currently occurs in medical practice, existing medical records are used as the starting point for the discussion about the individual’s health, rather than as the complete and authoritative source of current information.
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