This blog is totally independent, unpaid and has only three major objectives.
The first is to inform readers of news and happenings in the e-Health domain, both here in Australia and world-wide.
The second is to provide commentary on e-Health in Australia and to foster improvement where I can.
The third is to encourage discussion of the matters raised in the blog so hopefully readers can get a balanced view of what is really happening and what successes are being achieved.
Quote Of The Year
Timeless Quotes - Sadly The Late Paul Shetler - "Its not Your Health Record it's a Government Record Of Your Health Information"
or
H. L. Mencken - "For every complex problem there is an answer that is clear, simple, and wrong."
Friday, July 26, 2024
Surely It Is The Height Of Mis-Management That The Country Is Apparently Short Of IV Saline?
Heads should roll I reckon for total incompetence! What idiots are running this show?
David.
6 comments:
Anonymous
said...
That's an understatement David. The reasons they have given are spin +++. What is the real reason?
Incompetence had to be right up there IMVHO - with stupidity a close second! It is very hard to work out just how this could come about - indeed I do really wonder if it is true. Can anyone confirm the facts?
Dynamic Consent Australian Genomics responded to a need to improve the consent process for genomic research studies by coordinating a multi-disciplinary effort to deliver a product inspired by the principles of dynamic consent.
Their pdf "dynamic consent evidence summary", never mentions privacy or safety or protection.
I was wondering what the legal situation is regarding such gathering of genomic information.
If a patient/consumer voluntarily provides their data, what is the legal situation regarding access to the data, linking, sharing etc.
Bernard cannot add anything that is not easily discovered. Have you look at the broader research sector. I am not sure about legislative but there are plenty of guidelines and codes of conduct - ARDC, NAA, AIHW, Australian Research Council ….
6 comments:
That's an understatement David. The reasons they have given are spin +++. What is the real reason?
Incompetence had to be right up there IMVHO - with stupidity a close second! It is very hard to work out just how this could come about - indeed I do really wonder if it is true. Can anyone confirm the facts?
This is what TGA says:
https://www.tga.gov.au/safety/shortages/medicine-shortage-alerts/shortage-intravenous-iv-fluids
One of the reasons was manufacturing issues.
And then there was the shortage of Zactin (Prozac) Tabs which has been resolved
https://www.tga.gov.au/safety/shortages/about-zactin-tabs-shortage
which was also due to manufacturing issues.
Nobody seems to manage the supply of these things. TGA only regulates what can be used, not the availability.
The politics of supply. I sense a series of papers, frameworks for action and a ministers cheque book.
Does anyone know anything about Australian Genomics' online research consent and engagement platform?
https://www.australiangenomics.org.au/tools-and-resources/dynamic-consent-and-ctrl/
Dynamic Consent
Australian Genomics responded to a need to improve the consent process for genomic research studies by coordinating a multi-disciplinary effort to deliver a product inspired by the principles of dynamic consent.
Their pdf "dynamic consent evidence summary", never mentions privacy or safety or protection.
I was wondering what the legal situation is regarding such gathering of genomic information.
If a patient/consumer voluntarily provides their data, what is the legal situation regarding access to the data, linking, sharing etc.
Bernard cannot add anything that is not easily discovered. Have you look at the broader research sector. I am not sure about legislative but there are plenty of guidelines and codes of conduct - ARDC, NAA, AIHW, Australian Research Council ….
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