Quote Of The Year

Timeless Quotes - Sadly The Late Paul Shetler - "Its not Your Health Record it's a Government Record Of Your Health Information"

or

H. L. Mencken - "For every complex problem there is an answer that is clear, simple, and wrong."

Monday, January 28, 2019

Weekly Australian Health IT Links – 28th January, 2019.

Here are a few I have come across the last week or so. Note: Each link is followed by a title and a few paragraphs. For the full article click on the link above title of the article. Note also that full access to some links may require site registration or subscription payment.

General Comment

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The news seems to have come back with a rush this week, lots on the go. Enjoy the browse.
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Minimum software requirements to improve safety and quality

The RACGP has released new recommendations for clinical software minimum requirements to help support safe and efficient patient care.
21 Jan 2019
The recommendations cover how data is captured and presented, how systems enable communication and data exchange, and how they support follow-up systems and information security.
The recommendations come after the Australian Digital Health Agency (ADHA) approached the RACGP and provided funding to support workshops in order to assist in the development of standards for clinical information systems (CIS).
To produce the recommendations, the RACGP last year hosted three workshops with representatives from the ADHA, the Medical Software Industry Association and software developers.
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Minimum requirements for general practice clinical information systems to improve usability


Running a practice Technology Workplace technologies Improvements through technology Minimum requirements for general practice clinical information systems to improve usability

Summary

Minimum requirements for general practice clinical information systems to improve usability report identifies and details a number of key CIS functions and roles, and provides recommendations focused on improving usability in the collection, management, use and sharing of information. The reports was developed in collaboration with software developers and the Australian Digital Health Agency.


Related document
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Queensland Health continues robot hospital helper roll-out

TESA will be assisting patients and visitors in additional hospitals in the state from next month
George Nott (Computerworld) 24 January, 2019 13:04
Queensland Health is continuing its experimentation with robot assistants, rolling out additional TESA bots to hospitals across the state next month.
Five TESA (The eHealth Service Assistant) robots – which feature humanoid arms, a bank of conversational skills and the ability to interpret and translate 26 languages – are currently on trial in the Princess Alexandra Hospital and the Royal Brisbane and Women's Hospital.
The robots, based on Chinese manufacturer UBTECH’s ‘Cruzr’ model, are being used to guide patients around the hospitals, conduct surveys and entertain children.
“This is our latest adventure in the humanoid robotics’ space and the potential benefits are enormous,” said Queensland Minister for Health and Ambulance Services Steven Miles.
“TESA heralds a new era in the application of robotics and artificial intelligence in public health care,” he added.
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Electronic patient record system EPAS contributed to 149 ‘near misses’ in SA hospitals

Adam Langenberg, Political reporter, The Advertiser
January 25, 2019 9:42am
Subscriber only
The state's electronic patient record system contributed to 149 "near misses" in South Australian hospitals, including medication incidents and medical imaging being mistakenly cancelled, according to an excerpt from an independent report.
The report has made recommendations about the way forward for the state's trouble-plagued records system, but it won't be made public until it is formally considered by Cabinet.
It found there were 149 incidents in the 12 months after the Electronic Patient Administration System went live where it was listed as “a contributing cause” to the incident, however the report finds it is “difficult to make assumptions about causation of incidents being related to EPAS’.
They included medication incidents including it being ordered multiple times, medical imaging accidentally being cancelled and delays in blood test ordering.
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Exclusive: Report savages RACP over registrar exam meltdown

The college was in denial about the possibility of a full-scale IT failure, say consultants
22nd January 2019
0 Comments
An inquiry into the IT meltdown that forced the Royal Australasian College of Physicians to abandon its high-stakes registrar exam halfway through has laid bare in humiliating detail a string of management and system failures.
More than 1200 trainees were forced to re-sit the five-hour divisional written exam last year when an “unknown technical fault” hit the college’s first-ever attempt at computer based testing.
It has taken more than a year, but the findings of an independent inquiry into the fiasco — which left dozens of registrars in tears and their futures in the balance — has finally been handed to college members.
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Failures and blind faith: damning probe exposes medical exam meltdown

By Kate Aubusson
23 January 2019 — 5:26pm
Investigators have exposed the litany of failures and blind faith that caused a disastrous IT meltdown halfway through a high-stakes medical exam.
An independent inquiry has shed light on the pandemonium that ensued when an “unknown technical fault” shut down the Royal Australian college of Physicians' (RACP) first attempt at a computer-based test.
The chaos on exam day in February 2018 left 1200 trainee doctors distraught, angry and confused after months of study, punishing hospital shifts on minimal sleep and personal sacrifice.
The meltdown was caused by a technical glitch with the computer-based exam timer that overrided a scheduled one-hour break halfway through the five-hour exam, according to the investigation report published last Friday on RACP’s member-only website.
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New degree in cancer keeps doctors up to speed with advances

By Aisha Dow
25 January 2019 — 8:00pm
Researchers at the University of Queensland have developed a test they hope could be "the holy grail" for diagnosing cancer.
In the past, it may have been acceptable for doctors to keep up to date with the latest advances by reading a few journals and attending the occasional conference. But with medicine advancing faster than ever before, is that enough?
Enter a new degree in cancer that is sending GPs, oncologists, pharmacists, nurses, dentists and other medical professionals back to school.
In an Australian first, the University of Melbourne is offering a postgraduate master of cancer sciences to those already trained or experienced in the field.
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Large US study answers the question: Does script tracking even work?

Put it this way, simply having an operational monitoring program 'is not sufficient'
Antony Scholefield
23rd January 2019
Real-time prescription monitoring enjoys rare unified support from doctors, pharmacists and patients, but there is not a huge evidence base for it.
Despite this, Australia is taking steps towards creating a usable system, including the Safe Script trial in Victoria late last year.
But what if prescription tracking doesn’t improve health outcomes and just bombards GPs with useless pop-ups?
One of the largest US studies on the topic was published recently. The researchers looked at prescription monitoring systems and the number of admissions to drug treatment clinics related to prescription misuse in the years after monitoring was introduced to various states.
They found that the software cut admissions among 18-24-year-olds only, by about 5%.
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NZ’s taonga – linked data – underused, says expert

Tuesday, 22 January 2019  
eHealthNews.nz editor Rebecca McBeth
New Zealand leads the world in linked data, but it is being underused, a data expert told attendees at a global artificial intelligence conference in Auckland.
Nicholson Consulting general manager Kylie Reiri was speaking at Hack Aotearoa, held at Auckland Business School on January 18–19.
The conference explored the use of predictive data, robotics and new smart technologies to develop better health and wellbeing outcomes for New Zealanders, with a strong focus on Māori.
Reiri says the Integrated Data Infrastructure is a taonga/treasure that links more than 60 de-identified datasets from across the health and social sector as well as areas such as education, justice and police.
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Tech giants to resuscitate health

  • 12:00AM January 21, 2019
A new generation of healthcare providers, including international technology and retail giants, is expected to ramp up competition in Australia this year, as the digital health sector matures.
It comes as the aged care royal commission, which kicked off last Friday, shines a light on health carer shortfalls, poor record keeping and a lack of support for medical staff — problems digital technologies are designed to address.
But investors and industry insiders have warned Australian digital health companies are being forced offshore by red tape and anachronistic regulation, meaning local patients cannot reap the full rewards of the industry’s know-how, even as the value of the global market soars towards $US200 billion ($280bn).
Healthcare is one of the last major industries to be significantly disrupted by advanced technology, and with Australia’s digital health space maturing, investors are dipping their toes into this emerging industry.
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Fax machines to be redundant in healthcare after June 2019

Fax machines should be consigned to the scrapheap after a national secure messaging system for healthcare becomes functional in mid 2019, doctors have been told.
From June doctors will have access to a digital “Yellow Pages” directory that will allow them to locate and communicate with other healthcare providers via a seamless interoperable secure messaging system, according to the government’s Australian Digital Health Agency (ADHA).
Speaking at a Secure Messaging Industry Collaboration Workshop in Sydney on 27 November 2018, ADHA Chief Operating Officer Bettina McMahon said industry stakeholders such as clinical software providers had committed to implementing a national system that will allow all healthcare providers to communicate quickly, easily and securely with each other by June 2019.
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The five biggest takeaways from CES 2019

By Krishan Sharma
21 January 2019 — 11:10am
The Consumer Electronics Show in Las Vegas has come and gone, but now that the dust has settled and we've had time to digest everything the show had to offer, what are the trends that will shape the year ahead in technology?
Huawei gives us a peek into the smartphone design trend of 2019
If 2018 was the year of the notch, 2019 will be the year of the hole-punch display. That's right, phone makers have finally figured out how they can eliminate bezels — without cutting out a chunk at the top of the screen — by instead carving a small hole into the corner of the screen to accommodate that all-important front-facing camera.
We weren't expecting to see a hole-punch display until the debut of Samsung's Galaxy S10 in a month's time, but Huawei surprised everyone at CES with the Honor View 20 which is the world's first smartphone to feature a hole-punch display.
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Terrified mum sees stranger’s bedroom after logging into remote video baby monitor

A mum switched on her new baby monitor expecting to see her daughter’s room. But what she saw has sparked concerns about hacking.
Phoebe Loomes
news.com.au January 24, 201912:05pm
A mother from Western Australia has been left feeling unsafe after the security of her video baby monitor was compromised.
Edana Day, of Mandurah on the state’s southwest coast, had purchased a brand new Uniden smart baby monitor on Tuesday for the purpose of her FIFO partner being able to stay connected to their daughter.
The device allows parents to log in and view their child through the monitoring camera from remote locations, like around the corner, or across the planet.
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Failed federal biometrics project slammed by auditor

Millions wasted on ACIC project
Rohan Pearce (Computerworld) 21 January, 2019 17:26
Management of a major biometric identification project by CrimTrac and, later the Australian Criminal Intelligence Commission (ACIC), was “deficient in almost every significant respect,” a report into the project has concluded.
Despite $34 million being spent on the Biometric Identification Services (BIS) project, out of a total approved budget of $52 million, not a single deliverable or milestone was met, a report released today by the Australian National Audit Office said.
The ANAO found problems with both contract management and the governance framework for the project.
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Industry coalition calls for changes to govt encryption legislation

Judicial oversight of new surveillance powers and clearly defined limits on agencies’ notices top the list of a raft of changes recommended to the Federal Government for its encryption legislation by a broad coalition of Australia’s telecommunications, IT and Internet industries.
The recommendations come in a submission to the Parliamentary Joint Committee on Intelligence and Security (PJCIS) which is inquiring into the Government’s Assistance and Access Act 2018, which was pushed through the Senate on December 6 last year.
Organisations co-authoring the submission include Communications Alliance, the Australian Industry Group (Ai Group), the Australian Information Industry Association (AIIA), the Australian Mobile Telecommunications Association (AMTA), the Information Technology Professionals Association (ITPA) and Digital Industry Group Inc. (DIGI).
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Telcos, tech industry call for major changes to encryption legislation

Controversy over surveillance legislation continues
Rohan Pearce (Computerworld) 23 January, 2019 10:42
Industry groups representing the telco sector and major tech businesses have called for major changes to controversial surveillance legislation pushed through parliament on the final sitting day of 2018.
The Telecommunications and Other Legislation Amendment (Assistance and Access) Act was intended to be the government’s answer to the increased use of encryption technology by criminal groups.
The most significant part of the legislation creates a system of Technical Assistance Requests (TARs), Technical Assistance Notices (TANs) and Technical Capability Notices (TCNs) that can be issued to communications providers.
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Breaking in through the back door

Suspects might use virtual private networks and manually load messaging apps to get around any blocking of apps, but they’d need to have patience and be tech-savvy to achieve this.
  • 12:00AM January 24, 2019
In the Black Mirror episode Hated in the Nation, a dystopic Britain is confronted with a lack of bees to pollinate plants. Agriculture is jeopardised until a brilliant hi-tech company creates tiny autonomous drone bees to do the job.
But a disgruntled employee uses a coding back door into the bee communication network to reprogram the swarms, which fly off and kill thousands of people by burrowing into their brains.
Back doors are a real-life phenomenon. They let coders and others tunnel into an otherwise secure system. It may be created to fix a flaw quickly. But there’s fear they can be misused.
Federal parliament passed amendments last month to give Australian agencies more tools to access encrypted conversations to help foil terror plots.
End-to-end encryption has delivered us fantastically secure mobile communications — but terrorists, pedophiles and organised criminals also benefit.
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Apple security: Did Australia just poke a hole in the world's iPhones?

By Nellie Bowles
Updated 24 Jan 2019 — 8:27 AM, first published at 8:25 AM
A new law in Australia gives law enforcement authorities the power to compel tech-industry giants like Apple to create tools that would circumvent the encryption built into their products.
The law, the Telecommunications and Other Legislation Amendment (Assistance and Access) Act 2018, applies only to tech products used or sold in Australia.
But its impact could be global: If Apple were to build a so-called back door for iPhones sold in Australia, the authorities in other countries, including the United States, could force the company to use that same tool to assist their investigations.
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Panic attacks tackled in one-week intensive online therapy

23 Jan 2019
Isabelle Dubach
A study by UNSW researchers is evaluating a short, online-based therapy that holds great promise for people who suffer from panic disorder.
Scientists from UNSW Science’s School of Psychology and St. Vincent’s Hospital are leading world-first research to learn more about a novel therapeutic approach for people who suffer from panic attacks. They are conducting a study that seeks to treat people with panic disorder and agoraphobia – the fear of places and situations that might lead to panic attacks – with just one week of therapy.
In the study, the researchers are delivering an adapted version of cognitive behavioural therapy (CBT), an approach already known to be effective for some people with anxiety and depression. Both the concept of delivering CBT online and in intensive format has already been shown to work – but never in combination.
“We know that CBT can be delivered in intensive format over a short amount of time in-person. A few recent studies have already shown that it’s an effective delivery format in panic, OCD and PTSD and specific phobias, like spiders,” says study lead Eileen Stech, a trainee psychologist from UNSW Psychology, who leads the study.
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NSW loses cyber security chief to Human Services

Dr Maria Milosavljevic appointed chief data officer at Department of Human Services
Rohan Pearce (Computerworld) 23 January, 2019 09:31
New South Wales’ government chief information security officer (GCISO) Dr Maria Milosavljevic has left her role for a new position at the Commonwealth’s Department of Human Services.
The state government in Mach 2017 announced that it had managed to lure Milosavljevic from her role as chief innovation officer at AUSTRAC, appointing her to be NSW’s first GCISO.
In the GCISO role, Milosavljevic oversaw the development of a cyber security strategy for the state. The strategy was unveiled in September 2018, with the state government last year pledging $20 million to boost the security of NSW agencies.
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G Medical Innovations Holdings Ltd on track for revenue growth in 2019

12:12 22 Jan 2019
The mobile and e-health company is set for first production from its facility in Guangzhou, China.
Prizma monitors a full range of vital signs and biometric parameters
G Medical Innovations Holdings Ltd (ASX:GMV) is well positioned for growth in 2019 with catalysts including first production from its facility in China and increased sales revenue from an expanding global presence.
The mobile and e-health company has received all formal certifications from regulatory bodies to utilise its Guangzhou facility in China for production.
Device production is expected to begin this quarter once all final device componentry has been received for the production line.
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25 January 2019
ASX announcement
Alcidion Group Board and Management appointments
Kate Quirke appointed MD, Ray Blight transitions to Non-Executive Chair
Adelaide, South Australia – Alcidion Group Limited (ASX:ALC) has today announced changes to its Board and senior management, as the company embarks on its next stage of growth and following the successful integration of MKM Health and Patientrack into the Alcidion Group in 2018.
Executive Chairman and co-founder, Ray Blight, will transition to the role of Non-Executive Chairman. Kate Quirke, has been appointed Group Managing Director, based in Melbourne. Kate was appointed as Chief Executive Officer and Executive Director of the Alcidion Group in July 2018, following the acquisition of MKM Health and Patientrack. Both appointments are effective immediately.
The company also advises that Duncan Craig has resigned from his position as Chief Financial Officer and Company Secretary for personal reasons, effective 28 February 2019.
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25 January 2019

Restructured MedicalDirector axes jobs

Posted by Jeremy Knibbs
GP patient management software giant MedicalDirector has restructured its business significantly, letting go as many  14 staff members, according to sources.
Staff who left had been variously employed in sales, development, integrations, patient engagement, e-referrals and enterprise contract opportunities.
According to sources, the redundancies mean some departments, which together once consisted of up to 40 employees, have dwindled to between six and eight members.
MedicalDirector has denied these claims, however earlier last week the following post appeared on social media networking site LinkedIn.
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Labor says no evidence for Switkowski claims on NBN sale value

The Australian Labor Party has labelled valuation claims of the national broadband network made by NBN Co chairman Ziggy Switkowski as bizarre and said no evidence has been produced to back up the price tag he has put on the company.
Labor also accused the government of damaging the long-term economics of the national broadband network by its decision to opt for a multi-technology mix rather than the fibre for a majority of premises as in the original plan.
Labor Shadow Communications Minister Michelle Rowland and Shadow Finance Minister Jim Chalmers said in a joint statement that even after 92 days of NBN Co chairman Ziggy Switkowski claiming that the network could still fetch a price of $50 billion once it is fully rolled out in 2020, no evidence had been produced to back his claim.
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NBN Co makes move to sell more 100Mbps-plus services

By Ry Crozier on Jan 21, 2019 3:19PM

Offers temporary $160 rebate.

NBN Co will look to raise the number of 100Mbps-plus users on its network before the end of the financial year with a $160 rebate offered for each customer that retail service providers sign on.
The rebate, announced this afternoon, is only a temporary offer and is set to finish by the end of June this year.
The proportion of - and manner in which - the rebate is passed through to the customer is not prescriptive, though it appears some RSPs will hit the market with temporarily reduced prices.
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‘This could be the end’ for NASA’s Mars Opportunity rover

By Kenneth Chang
26 January 2019 — 12:56pm
NASA's Opportunity rover began its 15th year on Mars this week, although the intrepid robotic explorer may already be dead.
"I haven't given up yet," said Steven W. Squyres, principal investigator for the mission. But he added: "This could be the end. Under the assumption that this is the end, it feels good. I mean that."
The rover — which outlasted all expectations since its landing on Mars in 2004 and helped find convincing geological signs that water once flowed there — fell silent in June when it was enveloped by a global Martian dust storm. In darkness, the solar panels could not generate enough power to keep Opportunity awake.
To be taken out by one of the most ferocious storms on Mars in decades: "That's an honorable death," Squyres said.
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Enjoy!
David.

It Probably Won’t Make Any Difference But The Ante Has Surely Been Upped On The #myHealthRecord. Game On I Believe!

This appeared an hour or two ago:

Shorten backs doctors over My Health liability concerns

1:43pm, Jan 28, 2019
The My Health rollout has been controversial from the beginning.
Labor leader Bill Shorten wants another extension on the deadline for patients to opt out of the controversial MyHealth record as doctors warn it should be out on a back burner for another 12 months.
January 31 is the latest deadline for people to opt out of the government’s troubled My Health Record system. If they fail to do so, millions Australians will have a record created for them.
The government stresses that if you already have a My Health Record, and decide you don’t want one anymore, you can cancel it.
Doctors are warning it must be delayed because it’s not a complete list of patients’ drug records and patient care raising fears of legal liability.
“There’s no doubt there’s a question of liability here. We know that doctors and patients can choose whether or not to upload information. So who is responsible if a mistake is made, for example with a drug reaction or a drug allergy?,” Independent MP Kerryn Phelps said.
“Good medical practice requires an level of perfection. We also know that 25 per cent of hospital beds are not yet enabled to upload information.
Dr Phelps said GPs would continue to rely on more traditional methods of exchanging information until the records are up to speed.
“So the claims that the MyHealth record will actually help to save lives is an overreach at the moment. If doctors can’t trust the information that is on MyHealth records they are not going to trust it,” she said.
In November, Health Minister Greg Hunt extended the opt-out period for the My Health system after pressure from the Senate.
Senators voted to delay the deadline, but before the matter could be voted on by the House of Representatives, Mr Hunt backed the extension on Twitter.
The Morrison Government has previously been pressured into extending the “deadline” from October 15 to November 15 before finally settling on January 31.
“I really wish that Greg Hunt, the minister for health, spent as much time on the MyHealth record and getting that right, as he did on rolling Malcolm Turnbull,” Mr Shorten said.
More here:
It would seem this will be an election issue now Mr Shorten has weighed in – and pretty forcefully!
Game on I reckon. Note the zinger!
David.

Sunday, January 27, 2019

AusHealthIT Poll Number 459 – Results – 27th January, 2019.

Here are the results of the poll.

Is It Right That Health Minister Greg Hunt And The ADHA Are Slipping Through The End To The Opt-Out Period While Most Are On Holidays Or Disengaged?

Yes 5% (6)

No 92% (110)

I Have No Idea 3% (3)

Total votes: 119

What a clear-cut poll. Most see the ADHA as being sneaky and cunning pretty much as usual. Little wonder most have very little trust in this mob.

Any insights on the poll welcome as a comment, as usual.

A more than reasonable turnout of votes for the time of the year!

It must have been an easy question as only 3/119 readers were not sure what the appropriate answer was.

Again, many, many thanks to all those that voted!

David.

I Think Almost No-One Has Noticed Just What Huge Changes Have Been Wrought In The #myHealth Program By Public Annoyance And Outrage!

This press release appeared a few days ago:

You always have a choice with My Health Record

23 January, 2019 - 15:15
Australians can choose to have or cancel a My Health Record at any point in their life.
New laws to strengthen the privacy and security protections within My Health Record mean that from tomorrow, a function has been activated in the My Health Record system that allows a person to permanently delete their record at any time, including any backups.
All records that have previously been cancelled will also be permanently deleted from the system.
If a person changes their mind, they can choose to register for a record to enjoy the benefits of controlling their health information securely in one place to support their health and care.
My Health Record is an online summary of a person’s key health information. It allows them to share and control their health information with doctors, hospitals and other healthcare providers, from anywhere at any time.

Key facts and figures

  • 6.45 million Australians currently have a My Health Record.
  • Since July 2018, almost half a million Australians have decided not to wait for a My Health Record to be created for them, and have chosen to have a record created for them.
  • 82% of general practices are now connected to My Health Record.
  • 84% of community pharmacies are now connected to My Health Record. The increase in pharmacy connections has tripled in the past 6 months.
  • 75% of public hospitals are now connected to My Health Record.
New laws passed by Parliament last year strengthen the legislation prohibiting insurers and employers to access or use My Health Record information, or to ask a person to disclose the information, for insurance or employment purposes under any circumstance.
The new laws also legislate the Agency’s existing policy around disclosure to law enforcement agencies - law enforcement agencies cannot access a person’s My Health Record without a warrant or court order.
“I am pleased to have more control and choice over my wellbeing and who has access to this, which has lead me to become more invested in my own health needs. I believe information is power and My Health Record has empowered me to no longer rely on others to manage my personal health information,” said My Health Record user and carer Melissa Williams.
“Having a My Health Record places the control of a person’s healthcare directly into their hands,” said Professor Meredith Makeham, Chief Medical Advisor for the Australian Digital Health Agency.
"After 31 January 2019, a My Health Record will be created for everyone who has not opted out of the system.
“However, January 31 is not a cut-off date for Australians to continue to have a choice about using My Health Record to manage their health and care.
“The new permanent delete functionality means Australians will always have the choice not to have a record and they can remove all of their data from the My Health Record system. At any time in their lives, they can delete their record — and no copy will be kept.”
Here is the link:
Likewise we had a release from the Consumer Health Forum.

My Health Record enshrines choice

24 January 2019 — Media release
A change in the law enabling people to delete permanently their My Health Record, should strengthen public trust in the system, the Consumers Health Forum says.
“This change will reassure those people who were concerned that their decision to opt out of MHR would not prevent their record being accessed by officials at some later time,” the CEO of the Consumers Health Forum, Leanne Wells, said.
“The Australian Digital Health Agency says that from today (24 January), a function has been activated in the My Health Record system that allows a person to permanently delete their record at any time, including any backups and that all records previously cancelled will also be permanently deleted from the system.
“This step comes as Australians have just one more week to decide whether or not to opt out of MHR, one of the most significant developments in our health system for many years.
“MHR will enable all Australians to store and share their own medical information so that it can be promptly accessed by doctors and other health providers, with access and security controls the consumer can set. My Health Record is a step towards more people being actively involved in their care.
“The deadline for people to opt out of MHR is January 31. People who do nothing will be automatically enrolled onto MHR. Those who want no part of MHR can cancel now or at any time in the future. You can also set controls on who may see your health records. For more details go to My Health Record website or help line, 1800 723 471.
“The Consumers Health Forum has for some years strongly supported a secure national health records system because of the potentially great benefits it offers consumers and health providers,” Ms Wells, said.
“About one million people have decided to opt out of MHR as they are entitled to.
“We accept there have been serious questions raised about privacy and security issues.
“However, we believe the changes introduced by the Government should resolve these concerns. The doubts and criticisms about security must be weighed against the long-term benefits of information technology that will bring to health care the advances in services and access already taken for granted in other parts of modern life.
“The MHR will improve efficiency and precision in medicine, providing scope for consumers to have a better-informed role in their own health care and in particular facilitating the care of those with chronic and complex conditions.
“More significant improvements will be needed to the MHR system as we learn from experience but February 1 marks a pivotal day in Australian health care,” Ms Wells said.
The important legislative changes to privacy and security safeguards introduced by the Federal Government late last year include:
·         Cancelled records will be fully deleted from the system and all backups. This feature has not yet been implemented, however the Australian Digital Health Agency (ADHA) has assured us that it will be by January 31.
·         Better privacy protections for 14 to 17-year-olds so that access to records by parents will automatically be withheld and the record-holder would have to consent to their access being allowed. The ADHA has said this provision will be introduced shortly.
·         MHR data can’t be used for insurance or employment purposes.
·         Improved protections for those at risk of domestic violence.
·         Making it clear that the only government agencies that can access the MHR system are the ADHA, the Department of Health and the Chief Executive of Medicare.
·         Ensuring the system cannot be privatised.
·         Enshrining in legislation the principles and governance structure in the Framework to guide the secondary uses of My Health data.
·          Increasing the penalties incurred for inappropriate or unauthorised use.
CHF has compiled a ‘Hub’ for the My Health Record webinar series with information on how it all works, what you might want to consider when making your decision, and where you can find more resources to help you think it through.
State and territory health departments also have further location specific information available on My Health Record. While the number of hospital systems and health providers connected to the system is rapidly increasing, not all of those who are connected are able to access the full range of information held in a person’s record yet.
ENDS
Here is the link:
Also from the RACGP:

New function expected to strengthen public trust in My Health Record

Australians are now able to permanently delete their My Health Record, with planned changes officially coming into effect.
A new My Health Record function will give people the option to permanently delete their record at any time.
Individuals who wanted to opt out of My Health Record could previously only restrict the access of doctors and other officials.
However, the Australian Digital Health Agency (ADHA) has created a new function that enables people to permanently delete their record at any time, including whatever back-ups that may have existed.
Consumers Health Forum of Australia CEO Ms Leanne Wells said the added feature should strengthen public trust in the system.
‘This change will reassure those people who were concerned that their decision to opt out of My Health Record would not prevent their record being accessed by officials at some later time,’ she said.
‘This step comes as Australians have just one more week to decide whether or not to opt out of My Health Record, one of the most significant developments in our health system for many years.’
Aside from allowing the permanent deletion of records, the legislation also prevents law enforcement agencies from accessing records without a warrant or court order.
The new function is a result of legislation passed last November, brought about by extensive lobbying from healthcare professionals – including RACGP President Dr Harry Nespolon.
More here:
However things are still not as good as they might be:

Insurers gaining 'open-ended access' to medical records slammed as 'unfair privacy breach'

By national consumer affairs reporter Amy Bainbridge and the Specialist Reporting Team's Emily Clark
Julie Gilbert has no idea what her insurance company knows about her medical history.

Key points:

  • Australians who declare mental health treatments on insurance applications are often forced to grant access to their medical records
  • Legal advocates argue "open-ended" access is an "unfair breach of consumers' privacy"
  • They want to limit insurers' access to five years worth of records
When she applied for income protection and life insurance, Ms Gilbert declared she had received counselling for sexual abuse she said she suffered as a child.
For the application to proceed, she had to grant the insurer access to her records. Her GP and specialist were then obligated to hand over the records the insurer asked for, but she had no idea just how much information was passed along.
"As far as I know they've actually seen all of my medical records," she said.
"The scary part about it all is I don't know what else they were able to actually access.
"I don't even know who it went to. I don't know if they still have copies of it, whether that has been destroyed, whether it has been passed on and has it actually been dealt with sensitively."
To make matters worse, insurer MLC applied an exclusion to Ms Gilbert's policy, refusing to cover her for any mental illness in the future.
"I was being a responsible person seeking out help and treatment to make sure that I was a productive person, that I could work; I wasn't going to take sick days off. And I got penalised for it," she said.
"It was just counselling sessions with no medication, but it was good to have someone to talk through some of the things that I was experiencing and ways in which to cope with it."
After allegedly suffering sexual abuse in the mid-1980s, asking for help and getting better, Ms Gilbert is furious an insurance company can discriminate against her.
"Gutted. Angry. Upset. I felt like I was being penalised for something that I didn't do to myself, that was out of my control," she said.
Lots more here:
I don’t think most people realise just how far things have moved in six or seven months, and there is more to come with an ANAO Audit of the whole process which one has to imagine will hardly be rich with fulsome praise for a job well done for the ADHA, its Board and CEO.
Bluntly they have jointly attempted a swindle on a startled populace and have been sprung. For something that was meant to be ready to implementation of opt-out, and clearly wasn't,  the flaws and issues identified have called out a total lack of insight, caring, consideration and common sense.
It would still be better to just get rid of this monster and replace if by something that is wanted and needed – as I suspect will happen after a change of Government and a proper review – but for now it is clear those who want out can now get out, completely, and that is a great first step!
They will try to spin the last six months as a huge victory when in reality they have been comprehensively routed, chastised and placed back in their box by a public that are way more sensible than them and have rendered the opt-out date largely symbolic! Any time you want, you can now give these over-reaching bureaucrats the finger and go!
David.