This popped up as the silly season got properly underway, and I almost missed it!
Data Integration Partnership Australia (DIPA)
Page last updated: 19 December 2018
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Overview
Data held by Health is a valuable national asset. The use, re-use and sharing of Health data can help us explore the health journeys of Australian citizens. This helps researchers and policy makers to provide better health and wellbeing for all Australians, now and for future generations.
New insights regarding important and complex policy questions can be discovered through data integration and analysis. Health is committed to unlocking the value of health data and better leveraging our infrastructure investments through collaboration across government.
New insights regarding important and complex policy questions can be discovered through data integration and analysis. Health is committed to unlocking the value of health data and better leveraging our infrastructure investments through collaboration across government.
Connected Health Data (CHD) Program
Health, through the DIPA initiative, has established the Connected Health Data (CHD) Program to:
- Build a safe and secure platform for managing data access through Health’s existing Enterprise Data Warehouse (EDW)
- Expand and enhance health and aged care data to unlock the value of this information
- Make health and aged care data assets available more widely within government for policy development, program evaluation and research
Partners
Health is partnering with the Australian Institute of Health and Welfare (AIHW) and the Australian Bureau of Statistics (ABS). Data sets will be added to Health’s EDW with trusted users able to access the data within a secure environment.
Case Studies
Identifying Adverse Events Associated with Medicines
Through the Data Integration Partnership for Australia (DIPA), the Social, Health and Welfare Analytical Unit supported Health to run a pilot project. This analysed Pharmaceutical Benefits Scheme (PBS) data to identify adverse events associated with medicines.
The pilot analysed 684 medicines looking for an association with heart failure as an adverse event. One hundred and twenty-two medicines already known to be associated with heart failure as an adverse event were successfully identified. Five new medicines were shown to be potentially associated with heart failure.
The following link provides a
flyer outlining this work - PDF 607 KB
The pilot analysed 684 medicines looking for an association with heart failure as an adverse event. One hundred and twenty-two medicines already known to be associated with heart failure as an adverse event were successfully identified. Five new medicines were shown to be potentially associated with heart failure.
The following link provides a
flyer outlining this work - PDF 607 KB
National Integrated Health Services Information (NIHSI) Analysis Asset (AA)
Health is working with the Australian Institute of Health and Welfare (AIHW) and state and territory health authorities to add National Integrated Health Services Information (NIHSI) Analysis Asset (AA) data to Health’s Enterprise Data Warehouse. It can be used to derive insights into a wide variety of situations ranging from healthcare in the home and management of chronic disease to the use of opioids.
Here is the link:
http://www.health.gov.au/internet/main/publishing.nsf/Content/Data-Integration-Partnership-Australia
The associated flyer reveals this is not a trivial program.
Here is a quote:
“The Data Integration Partnership for Australia (DIPA) is a three- year $130.8 million investment.”
That is not a small sum I would suggest – like say 1/3-1/2 of the ADHA Budget.
What is missing from all this is that there is no mention of consent, de-identification, privacy and security details and so on.
In other words they are just sucking data-sets from wherever and using them how they choose, with their ‘trusted partners’, in total secrecy from the data subjects!
I bet the plan is, once the opt-out barrier is cleared, is to have all sorts of data sets extracted by the ‘trusted partners’ in secret as is the form to date.
Does anyone disagree and if so we would love to see your working – Secondary Use Framework of myHR Data or not!
David.
5 comments:
Looks to me that it's trying to make the data already held by Health (in ? how many discreet datasets) that's being piped into their "Enterprise Data Warehouse (EDW)" and it's not related to ADHA. Maybe someone hereabouts has peered into the gizzards of the EDW. I just guess it's not a pretty sight, if all they've got out of the DIPA in two years is one extract. It would be interesting to see the staffing allocated by Health to DIPA. I don't think the current PM is as enthusiastic about digital.
"I don't think the current PM is as enthusiastic about digital."
There are no votes in it for him; it's all downside, no upside. It's embarrassing and it won't go away.
On the other side of the coin, after the election, it's fairly likely Kathryn King will be saddled with the MHR. When I met with her about 18 months ago to discuss the MHR she held a fairly simplistic view about all its benefits and couldn't comprehend that it had any significant deficiencies. She only wants to hear the good news. Sadly, she doesn't appreciate the reality that it is a failed IT project which is fast looming up to bite her firmly in the backside.
The EDW was an initiative of Mr Madden. He insisted on best of breed components that don't work well together, are difficult to upgrade (because of inter-dependencies).
It was constructed by Accenture who charged something like $100m for it.
People are finding it a) hard to use and b) hard to find a use for it. The only data that Health has that could be fed into it is MBS and PBS data, which Health holds for the government.
If any myhr data is finding is way into the EDW, it is probably only technical/system usage data, not clinical data.
Bernard,
The MBS and PBS data is identified individual data, and when linked - which may or may not be legal, could create a pretty powerful individual health profile. Sprinkle in some Shared Health Summaries and it is a pretty comprehensive look at the individual.
Just saying - and would we know if it was going on?
David.
There's a lot of unlocking going on.
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