Here is the official word:
"No issued username or password is required. 30 minutes before the event, a sign-in link will go live to the event page."
Here is the link to use.
https://login.redbackconferencing.com.au/landers/page/3840b6
Enjoy.
David.
12 comments:
I watched it with some colleagues. At the end we looked blankly at each other and three of us in unison said "surely these people can't be serious, can they?"
The matters of consent and data ownership were noticeably abscent.
I am not sure if this was set to paint the stakeholders as being widely apart so that the ADHA can be seen as bringing them together. Bit like th IT hero syndrome.
On the subject of technology was it just me or did we start saying it is not a simple technology problem to then spend the rest answer the problem with technology?
Why that response - interested to know.
Because I did not pickup on anything tangible around gained consent and the rights of consumers as the owners of their data. Unless it happened during a few very brief user and bandwidth issues?
I thought it recovered well, thought the first guy would never end, glad he said “I just take a moment of your time to say a few words” anything more would be a five day test match at the MCG.
Shame the second session was not broadcast.
I did find it amusing that after two years of poo-pooing the previous ten years the stakeholders were very much a driveling force during those ten years.
What was today all about? Please excuse my cynicism but it seemed to me that Tim Kelsey grasped at inter-interoperability as the next big 'hot topical' thing to talk about by having a 'launch' preparatory to more consultation sessions. Haven't we been there before I ask you?
Was that the real purpose of today or was that the more to camouflage the real reason. Tim certainly needed to give his waning credibility a boost. What better way than to entice some respected names to feed their egos and present at his soiree. That way he could demonstrate to his masters how so many important people were on the same page with him.
If that is his tactic then he might consider polishing his act a bit and showing people some respect. I got the sense many did not realise they were part of a webinar or required to make a speech. Still consent is not a consideration for this little man.
Can I remind everyone that we in Australia are following, though rather slowly, in the footsteps of the USA.
in this 2017 report
White House Convenes Interoperability Summit
https://www.himss.org/news/white-house-convenes-interoperability-summit
"On Tuesday, December 12 (2017), the White House held a meeting focused on electronic health record (EHR) interoperability. Hosted by Jared Kushner (Senior Advisor to President Donald J. Trump and Director of the White House Office of American Innovation) and Seema Verma (Administrator of the Centers for Medicare & Medicaid Services, CMS), the meeting brought together several noted health IT experts from across the country, including two members of the HIMSS North America Board of Directors."
Then in March 2018:
Jared Kushner promises ‘whole of government’ approach to interoperability
https://government.diginomica.com/2018/03/14/jared-kushner-promises-whole-government-approach-interoperability/
"For Kushner, achieving interoperability and ensuring access to health data will not only empower patients and reduce waste, fraud and abuse, it will more interoperability to use AI, machine learning and big data to drive greater improvements in how we identify new diseases and treatments. Said Kushner:
Unleashing data will unleash innovation, this is the essence of the Administration’s goals: more decision making in hands of customers, medical data belongs to the patients, a whole-of-government approach that leads to private innovation. We are on the cusp of a technological healthcare revolution centered on patients and the targeted delivery of care."
If yesterday's three ring circus seems eerily similar to what has been going on in the USA, maybe Tim wants to be seen as Australia's answer to America's Jared.
There are significant differences between person and countries. ONC has been setting the current wave for quite a few years. ONC is not burdened by a central government constrained solution that everyone is be nudged (forced) to model for. ONC supports standards development and works with stakeholders around compliance. The USA sort to make significant investments in FHIR without interference.
or to put it another way - Jared leaves Tim for dead.
These would be my questions:
- who owns the data. If the consumer owns it, then how will their rights to access it be put in place - legislation?
- will interoperability be mandated in Australia by a single body? If so, what is the mechanism for doing that? If not then what is the point of this process?
- how do people like Zoran from NSW Health feel about that? Will they comply given they still don't use the national healthcare identifiers in any of their systems.
- who is going to fund vendors to use and update standards? Or will this just be part of doing business?
- what about consent? lots of talk about that during MHR rollout but what about hospitals and GP practices and universities and PHNs and AHSs all using my data all the time without asking me and without me knowing?
Unfortunately none of these topics were covered.
" who owns the data?" The data in myhr is owned by the author. They own the copyright. They alone can change it.
It is a falsehood to say the citizen owns the data. They may have some rights over the record, but not much over the data. A citizen can control access to some of the data (not the SHS or PHS) but they cannot change it (apart from the PHS).
As usual, a lot of this information is buried in the privacy policy:
https://www.myhealthrecord.gov.au/about/privacy-policy
"Correcting information in uploaded documents
If you consider that the health or other personal information we hold about you in a specific document in your My Health Record is not accurate, complete or up-to-date, or if your information has changed, please first contact the healthcare provider who authored the document to correct it.
If a healthcare provider refuses to correct the information you may complain to us or the Office of the Australian Information Commissioner.
We have the power to request a healthcare provider organisation correct personal information contained in a My Health Record and to upload the corrected document to the My Health Record system."
A lot of useful detailed information about myhr is disappearing from the myhealthrecord.gov.au website. It used to explicitly cover copyright, now it doesn't mention the subject.
So much for Tim'e values of Transparency and Trust.
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