Note: I have excluded (or marked out) any commentary taking significant funding from the Agency or the Department of Health on all this to avoid what amounts to paid propaganda. (e.g. CHF, RACGP, AMA, National Rural Health Alliance etc. where they were simply putting the ADHA line – viz. that the myHR is a wonderfully useful clinical development that will save huge numbers of lives at no risk to anyone – which is plainly untrue) (This signifies probable ADHA Propaganda)
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Note: I have also broadened this section to try to cover all the privacy and security compromising and impacting announcements in the week – along with the myHR. It never seems to stop! Sadly social media platforms get a large run this week.
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Connected care: protecting patient privacy and security
Eve Maler | 21 Mar 2019
After a delay to strengthen privacy and security protections, the expansion of the government’s centralised digital medical records system is complete. The rollout of My Health Record reflects a significant shift towards the digitisation of healthcare and Australia’s vision to make patient records more accessible.
This has resulted in the creation of new opportunities to improve care across a range of health services.
The possibilities, while endless, also open up a range of challenges regarding privacy and consent – challenges which nearly 300,000 Australians aren’t prepared to face, having opted out of the system by November 2018.
Connected but secure
Using digitised services ranging from online health records to remote monitoring tools such as wearables or apps, organisations are seeking to improve patient outcomes.
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Europe takes lead on big tech
The Economist
- 12:00AM March 23, 2019
“The birthday of a new world is at hand.” Ever since Thomas Paine penned those words in 1776, America has seen itself as the land of the new — and Europe as a continent stuck in the past.
Nowhere is that truer than in the tech industry. America is home to 15 of the world’s 20 most valuable tech firms, Europe has one.
Silicon Valley is where the brainiest ideas meet the smartest money. America is also where the debate rages loudly over how to tame the tech giants, so that they act in the public interest. Tech tycoons face roastings by congress for their firms’ privacy lapses. Elizabeth Warren, a senator who is running for president in 2020, wants Facebook to be broken up.
Yet if you want to understand where the world’s most powerful industry is heading, look not to Washington and California, but to Brussels and Berlin. In an inversion of the rule of thumb, while America dithers the European Union is acting.
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Social media giants face regulation as publishers, not just postmen
The big stick of regulation on tech seems to be building up steam.
Mar 22, 2019 — 12.02pm
As vision of the New Zealand Prime Minister consoling members of the Islamic community and showing her country’s support and sorrow for the victims of the Christchurch terrorist attack was broadcast around the work last week, the 38-year old was already being mocked and slandered on social media.
As a sign of respect and unity, Jacinda Ardern wore a black headscarf as she visited the families of the victims of last Friday’s attack by an Australian white supremacist that killed 50 people at two New Zealand mosques.
On YouTube, people peppered a video of Ardern bringing what she described as a “message of love and support and grief of the people of New Zealand” with sexist and xenophobic comments.
Switch to Twitter and the New Zealand leader was described as "disgusting, fraudulent and nasty" – and that's one of the tamer of the misogynistic attacks on the politician who identifies as religiously agnostic.
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Privacy and Security
A study finds that 79 percent of medication-related Android apps share user data, most commonly their device information, browsing history, and email address. Four apps were found to share medical conditions and six sent the user’s drug list. Recipients include social media companies and two private equity firms. The study notes that HealthEngine, Australia’s most popular medical appointment scheduling app, shares user information with personal injury law firms without providing an opt-out option.
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ASX 200 not prepared for attacks
- 12:57PM March 21, 2019
In a worrying sign of Australia’s cyber security preparedness, new research shows more than two thirds of ASX 200 companies have weak or non-existent anti-phishing email defences.
The research, from NASDAQ-listed security automation provider Rapid7, found that even the most mature and well-resourced ASX 200 organisations have trouble sufficiently deploying cybersecurity basics.
It found, on average, ASX 200 organisations expose a public attack surface of 29 servers or devices, with many companies exposing 200 or more.
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21 March 2019
The data downside of those medical apps
Before you use a medical app or recommend one to a patient, consider that you are probably the product and not the consumer.
A study published in the British Medical Journal has found that popular health apps routinely share personal and medical information with third parties, and are hiding that activity from users.
An international team funded by the Sydney Policy Lab at the University of Sydney in partnership with the Australian Communications Consumer Action Network, collected a sample of 24 top-rated or recommended medicines-related apps.
They simulated real-world use from an Australian perspective using dummy profiles, and used a tool designed to detect privacy leaks in Android apps that have been disguised through encryption or encoding.
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Data sharing by popular health apps found to be ‘routine’
It is the type of information a doctor might need: Your age, sex, medical conditions, current symptoms, and a list of any drugs you take.
That is according to a new study, published on Thursday in the British Medical Journal, which found the sharing of user data from health-related mobile apps on the Android platform was routine and yet far from transparent.
Lead author Dr Quinn Grundy said health apps were a “booming market”, but one with many privacy failings.
The study follows a recent report from the Wall Street Journal which found several apps, including period tracker Flo Health, were sending sensitive user data – including weight, blood pressure and ovulation status – to Facebook.
“I think many of us would expect that this kind of data should be treated differently,” said Dr Grundy, an assistant professor at the University of Toronto.
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My Health Record: One-on-one information sessions
17 April 2019 ADHA Propaganda
Learn how to link and navigate your My Health Record in this free, one-on-one session.
You are invited to attend a FREE one on one, 20-minute consultation to learn how to use your My Health Record with My Health Record Community Engagement Officer Kirsten Beckingham. Learn how to link and navigate your My Health Record.
Sessions will be running between 9am and 12pm. Bookings are essential, view sessions times and reserve a place online.
Please note, for confidentiality reasons we cannot sign you up to a myGov account or handle your personal information.
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Google fined €1.49 billion for search ad blocks in third EU sanction
Search giant slapped with third fine
Reuters (Computerworld)21 March, 2019 08:59
Google has been fined 1.49 billion euros (US$1.7 billion), its third large European Union antitrust penalty in two years marking the company's decade-long regulatory battle in Europe.
The EU antitrust chief, however, gave a cautious welcome to Google's measures to boost competition and give Android users a choice of browsers and search apps, suggesting the company's regulatory woes may be coming to an end.
The European Commission, which said the fine amounted to 1.29 percent of Google's turnover in 2018, said that the case focused on the company's illegal practises in search advertising brokering from 2006 to 2016.
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Understanding My Health Record and Mental Health
ADHA Propaganda
North Coast Primary Health Network invites you to a dinner event for all health professionals who wish to understand how the My Health Record system is used in the sensitive area of mental health.
Mr Jamie Marshall, Clinical Psychologist, will show you how to save time and streamline business processes while improving continuous care for clients. The session will explain what it means for mental health providers to access client information and maintain and protect patient privacy.
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Diagnostic information in the my health record
Australian Digital Health Agency, Brisbane, Qld, Australia
A design for including diagnostic reports (pathology and diagnostic imaging) in the My Health Record (MHR) was agreed in 2014 by representatives of key Australian medical colleges and peak organisations. A PDF generated by the diagnostic provider, based on the report that the diagnostic provider produces for the requester of the service is required. An accompanying HL7 Clinical Document Architecture (CDA) document is generated by the diagnostic provider, which contains the structured and coded information required for the PDF to be indexed within the MHR1 for subsequent search and retrieval.
Communication of an instruction to not upload reports to MHR was an important part of the model to support circumstances where the patient or requesting clinician did not want information shared with MHR. ‘Do not send reports to My Health Record’ with a check box was agreed to be printed on request forms by requesting software. In 2017 HL7 Australia published a draft HL7 V2 messaging standard2 to include MHR consent within diagnostic order messages.
As at Nov 2018, 171 pathology laboratories (96 private) had connected with MHR with >180,000/week report uploads.3
Samples from three labs indicated the rate of requests to not upload reports as: 434/108,345 (0.4%); 2/9093 (0.02%); and 415/84,718 (0.5%).
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The government wants to free up your bank data. Here's what that means for you
ABC Science
By technology reporter Ariel Bogle
20 March, 2019
Every click, scroll and purchase you make creates data. This information, which often has little physical presence beyond the hum of warehouse data centres, is increasingly valuable.
You're the reason it exists, so shouldn't you control it?
The Consumer Data Right (CDR), which begins to come online mid-year, aims to give Australians more agency to access and control parts of their personal information.
The government calls it a "game changer", but critics fear that without careful consideration, it could have serious privacy implications, among other concerns.
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Telcos block sites in wake of NZ government plea
Telstra, Vodafone, Optus block sites hosting Christchurch attack footage
Australia’s major telcos have temporarily blocked a number of sites hosting footage of Friday’s terror attack in Christchurch.
The action follows a plea from New Zealand’s Department of Internal Affairs for help in stopping the spread of the footage online.
Telstra announced the action on Twitter yesterday evening, adding: “We understand this may inconvenience some legitimate users of these sites, but these are extreme circumstances and we feel this is the right thing to do.”
Vodafone confirmed it had taken similar steps yesterday, with the block involving “dozens of sites known to be still actively hosting footage”. It, too, apologised for any inconvenience but added “we believe it’s the right thing to do in these extreme circumstances to help stop the further distribution of this video”.
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Facebook says no one who watched Christchurch attack livestream reported it
By Ry Crozier on Mar 19, 2019 4:22PM
Says multiple techniques used to weed out copies.
Facebook says that none of the up to 200 people that viewed a live stream of the Christchurch attack on the social media platform reported it.
The social media company, which is under pressure to change its live streaming practices in the wake of last Friday’s attack, also says it is using several techniques to keep the video off its platform now.
Facebook - and other social media operators - have faced stern criticism and political pressure over the past few days to prevent access to first-person video of the attack on two mosques in the New Zealand city.
The company said yesterday it had either deleted or killed upon upload about 1.5 million copies of the offending video.
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My Health Record update
18 March 2019 ADHA Propaganda
9 out of 10 Australians have a My Health Record and we are seeing a trend of increased usage and adoption from healthcare providers.
We’ve also seen a considerable increase in requests from health professionals who are eager to learn more about the system. The My Health Record Expansion team has been visiting general practices, medical specialists, allied health professionals and pharmacies to ensure providers have the knowledge and resources they need to make use of the numerous benefits the system offers, including improvements in patient outcomes and avoided duplication of services.
We have held and are continuing to hold free workshops which are planned until end June to help practices in our region be ready. We send out My Health Record eNewsletter updates monthly, of which links to previous ones can be found on our website. If you or any providers you work with have any questions regarding My Health Record, please contact the team via myhealthrecord@cesphn.com.au.
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https://www.computerworld.com.au/article/658963/government-turns-uk-example-data-sharing-principles/
Government turns to UK example for data sharing principles
Releases guidelines based on UK’s ‘Five Safes’ while work continues on a legislative data sharing framework
Rohan Pearce (Computerworld)19 March, 2019 11:28
A collection of five principles will guide the sharing and release of data held by public sector agencies while a new legislative framework is developed.
The government today released ‘Sharing Data Safely’: A set of guidelines created by the Office of the National Data Commissioner (ONDC) in collaboration with the Australian Bureau of Statistics.
“There is a growing imperative for public sector data to be used more effectively to improve government service delivery and solve complex policy issues that can’t be addressed when data remains in siloes across government,” a best practice guide (PDF) to applying the principles states. “However, for many data custodians, there may be barriers to sharing data easily.”
Those barriers can include concerns around heightened scrutiny or a decision to apply “unnecessary protections to the data” that may reduce its usefulness.
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Govt embraces Five Safes in new data sharing guidance
By Justin Hendry on Mar 19, 2019 11:17AM
Tries to improve public trust.
The federal government has released new guidance to agencies on how to use and share personal data while protecting the privacy of Australian citizens.
The Data Sharing Safely [pdf] guidelines, published on Tuesday, are intended to help data custodians navigate through the minefield of data sharing risks before releasing government data.
They are aimed at building community trust around government’s handling of data at a time when public scepticism is at an all-time high due in part to the Cambridge Analytica data harvesting scandal.
The guidelines also serve as a stopgap while the government continues to develop sweeping new data sharing laws, which propose making far more public data available for sharing and release.
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ACMA to probe murder footage broadcast on Australian TV
- 19 March 2019
- Written by Sam Varghese
The Australian Communications and Media Authority says it is investigating whether broadcasters breached the rules by some of the material they put to air about the massacre of Muslims in New Zealand on Friday.
The regulator said in a statement that it would look at any content from the streaming video that the killer had put online that was broadcast by Australian TV stations.
Fifty-one worshippers were gunned down in cold blood as they attended the main prayer session of the week at two mosques in Christchurch. A single man, Australian Brenton Tarrant, is charged with the murders.
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Better connections: Your health, your say
The Australian Digital Health Agency is facilitating a national conversation to develop a blueprint for a more modern, digitally connected health system.
A national discussion and collaboration
To enable the vision of a better-connected healthcare system, the Australian Digital Health Agency is facilitating a conversation with industry and jurisdictions to produce a shared vision and standards for long term interoperability in healthcare.
This will result in an agreed series of coordinated standards across jurisdictions and industry to improve workflow, accessibility and outcomes within the healthcare sector.
This will result in an agreed series of coordinated standards across jurisdictions and industry to improve workflow, accessibility and outcomes within the healthcare sector.
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Cover Story: In the rush to lead the world, Australia’s data sharing frameworks are creating more risks
The Australian Government says the national value of open data could be as high as $25 billion per year. Globally, McKinsey puts the value at $3 trillion. It’s little wonder stakeholders are clamouring for their share, attempting to devise systems which enable the transfer and reuse of that data.
However, data sharing is fraught with a risk that varies depending on use cases, content and the interpretation of privacy. That much has been underscored by a series of private sector scandals and failed government data initiatives which, without the necessary checks and balances, have eroded public confidence in institutions’ ability to safely share information whilst maintaining users privacy.
But a cohort of Australian public and private sector stakeholders led by the NSW State Government and the Australian Computer Society has developed an initial a framework for the safe sharing of data among government agencies, researchers and industry in controlled environments, with the expectation it could be developed for broader use cases.
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The appalling power of social media
Mar 17, 2019 — 6.33pm
I don't want to ever watch those minutes of terror and death but I know millions have and millions more will. This is social media at its most vile and virulent. It allows the instant, global spread of the most appalling deeds and thoughts. It desensitises us to the most grotesque violence and malevolence, first of imagination and then of action.
Brenton Tarrant was a small-town Australian boy who became rightly confident of his ability to ensure everyone around the world would have to pay attention to his views as well as the atrocity in murdering people innocently at worship. That his rambling manifesto on Twitter would become part of the mainstream, that the video of his killings would go viral from the GoPro camera attached to his helmet.
The choreography of this happening in Christchurch in a relatively safe and peaceful New Zealand is the perfect counterpoint to the global reach of the internet into every aspect of our lives. There is no sanctuary possible anywhere, no haven into which it's possible to withdraw.
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Attacks unmask dark sites below the radar
Tim Bradshaw, Martin Coulter and David Bond
Updated Mar 17, 2019 — 7.40pm, first published at 7.10pm
Politicians around the world have once again seized on the failings of big tech companies such as Facebook and YouTube over their inability to contain video footage of Friday’s terror attacks.
Facebook has repeatedly been criticised for Facebook Live, its online broadcasting tool, which has been used to stream live graphic and uncensored footage of police shootings and suicides. YouTube has also been scrutinised for its apparent inability to prevent its own algorithms — that recommend content to users — from bringing to the surface extremist videos and other disturbing content.
The suspected Christchurch shooter broadcast what appeared to be live footage of the attack using Facebook. After initially removing the footage, both Facebook and YouTube moderators battled throughout the day to stop users uploading thousands of copies online.
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Ardern wants to discuss live streaming with Facebook after 1.5m massacre videos removed
By Staff Writer on Mar 18, 2019 6:58AM
Has had contact from Sheryl Sandberg.
New Zealand Prime Minister Jacinda Ardern has said she will take issues surrounding how live streaming on social media is controlled to the top of Facebook as the platform disclosed it had pulled more than a million videos of the deadly mosque attack.
"This is an issue that I will look to be discussing directly with Facebook," Ardern said, adding Sandberg has shared condolences over the shootings in Christchurch on Friday.
The death toll from the Christchurch mass shooting, allegedly carried out by Australian Brenton Tarrant who has now been charged with murder, reached 50 people on Sunday.
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A mass murder of, and for, the Internet
Kevin Roose
Mar 16, 2019 — 8.33pm
Before entering a mosque in Christchurch, New Zealand, the site of one of the deadliest mass murders in the country's history, a gunman paused to endorse a YouTube star in a video that appeared to capture the shooting.
"Remember, lads, subscribe to PewDiePie," he said.
To an untrained eye, this would have seemed like a bizarre detour.
But the people watching the video stream recognized it as something entirely different: a meme.
Like many of the things done before the attack Friday — like the posting of a 74-page manifesto that named a specific internet figure — the PewDiePie endorsement served two purposes.
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PM calls for Facebook, Google, Twitter to suspend live streaming
Updated Mar 17, 2019 — 3.11pm, first published at 2.58pm
Prime Minister Scott Morrison has called for live-streaming to be suspended on social media after Facebook was used to live-stream a disturbing a terrorist attack on a mosque in New Zealand on Friday and new versions of the video and the shooter's manifesto spread across Twitter and YouTube.
Facebook, Google – which owns YouTube – and Twitter have been heavily criticised and have struggled over the weekend to deal with the footage and the terrorist's manifesto being repeatedly reposted.
Facebook was used to live-stream the attack, which was quickly uploaded to YouTube and the gunman's manifesto was put up on Twitter.
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Comments welcome!
David.
3 comments:
PM calls for Facebook, Google, Twitter to suspend live-streaming
These politicians of all flavours just get sadder and more embarrassing every day. What was Scott and Peter thinking of today?
Alan Kohler is promoting Alcidion for his publication The Constant Investor.
I've not heard of the company, but the CVs of principals is, in itself, a part of the long saga - CSC, iSoft, MDIS, HOMER, NEHTA.
Part of the solution, or part of the problem?
Just a general news piece of interest. - https://www.google.com.au/amp/s/m.huffingtonpost.ca/amp/stefanie-ricchio/theranos-elizabeth-holmes-fraud-lessons_a_23699848/
Size is not an limiting factor of a ‘startup’
- the action or process of setting something in motion.
- a newly established business.
An a supporting article - https://www.forbes.com/sites/natalierobehmed/2013/12/16/what-is-a-startup/amp/
What damage has the Government and GOAG done in establishing a startup and its mindset to a problem that needs careful, clear and painstaking thought applied?
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