This blog is totally independent, unpaid and has only three major objectives.
The first is to inform readers of news and happenings in the e-Health domain, both here in Australia and world-wide.
The second is to provide commentary on e-Health in Australia and to foster improvement where I can.
The third is to encourage discussion of the matters raised in the blog so hopefully readers can get a balanced view of what is really happening and what successes are being achieved.
Quote Of The Year
Timeless Quotes - Sadly The Late Paul Shetler - "Its not Your Health Record it's a Government Record Of Your Health Information"
H. L. Mencken - "For every complex problem there is an answer that is clear, simple, and wrong."
Sunday, April 22, 2007
Useful and Interesting Health IT Links from the Last Week
http://www.govhealthit.com/article98187-04-16-07-Print
Finding Foreman
George Foreman named his five sons George. Will the National Health Information Network be able to pinpoint his health records? Maybe. Maybe not.
BY Nancy Ferris
Published on April 16, 2007
George Foreman — boxer, clergyman and entrepreneur — named his five sons after himself. So when the Nationwide Health Information Network (NHIN) is up and running, how will a doctor find the records for the right George Foreman?
Accurately matching patients with their electronic records is at the heart of the proposed network. But what if doctors search NHIN and find no records for anyone named George Foreman? If few matches are found, users will soon pronounce the network a waste of time and money, and they’ll abandon it.
However, if too many George Foreman records are found, the network could seem equally useless. Just imagine the number of records created over the years for the boxer’s sons and others with the same name who are not related to the more famous Foremans.
In that case, a doctor might be unable to determine which of the many records relate to his or her patient. If the doctor guesses wrong, the patient could end up with treatment that’s ineffective or even harmful. What’s worse in the eyes of many people is that the doctor’s employees could see the records of someone else’s patients.
Alternatively, someone from the doctor’s office could call the patient and ask questions such as, Did you ever live on Maple Street? Did you seek treatment for a broken leg in Grand Rapids? What was your maiden name? But that approach is labor-intensive and hardly seems to fit with the notion of a 21st-century information network. It also isn’t likely to provide enough value in return for the billions of dollars it will cost to create the network.
…..
As always see the sites for the full article. This is a useful listing of the problems you can face without really robust unique identifier approaches and is an especially large problem for Shared EHRs which do not have such technology at their core.
http://www.e-health-insider.com/news/item.cfm?ID=2618
IT and e-health is 'every nurse's business'
17 Apr 2007
IT and e-health is every nurse’s business because it has to be integrated into practice, nursing leader, June Clark, said on the eve of a major discussion at the Royal College of Nursing’s annual congress this week.
The discussion on the theme “Computerised records – what can they offer?” will be available online at the College website. Professor Clark, a former president of the college and chair of the RCN Information in Nursing Forum, told E-Health Insider she hoped as many people as possible in the e-health community would get involved.
She hopes the session will raise awareness on several fronts: “The first is awareness among nurses that e-health and IT and the introduction of IT into the NHS is every nurses’ business because it has to be integrated into nursing practice,” she said.
“The other awareness that I want to get across to this audience and more generally that electronic patient records must have appropriate nursing content, not just medical content.”
…..
Another useful point is being made here – the reason we prefer the term “Health Informatics” rather than “Medical Informatics” - it the Health IT needs to be used by all health professionals if the full benefit is to be achieved.
http://news.zdnet.co.uk/itmanagement/0,1000000308,39286714,00.htm
Parliamentary report urges action on NPfIT
17 Apr 2007 09:26
Public Accounts Committee has published a report that calls for urgent action to reduce the risks of the NHS National Programme for IT.
The success of the NHS National Programme for IT is precarious, with key projects running late and suppliers struggling to deliver, according to a long-awaited report from Parliament's influential Public Accounts Committee.
"There is a question mark hanging over the National Programme for IT (NPfIT), the most far-reaching and expensive health information technology project in history," said committee chair Edward Leigh on 17 April.
…..
The full report can be found here:
http://www.publications.parliament.uk/pa/cm200607/cmselect/cmpubacc/390/390.pdf
There seems little doubt that the huge UK programme has a large number of both good and bad bits. Despite the differences in Health Systems there is always a lot to learn from such reports. Careful reading recommended for those involved in major Health IT projects.
Further perspective can be found in a recent editorial in the MJA entitles "Lessons from the NHS National Programme for IT" written by Professor Enrico Coiera of UNSW. See the following URL:
http://www.mja.com.au/public/issues/186_01_010107/coi11007_fm.html
Report backs electronic health records
April 19, 2007 - 5:39PM
Up to $7 billion could be saved each year if Australia's health providers shared patient data electronically, says a new report.
Commissioned by the Australian Centre for Health Research, the report argues a broadband network of health services should be created to allow patients to be tracked no matter where they go for medical services.
Monash University e-health research unit director Michael Georgeff said about one-quarter of all Australians suffered from a chronic illness and many had complex health needs.
"Chronic illness requires close monitoring and, often, intensive management by a team of health professionals," Professor Georgeff said.
"But because of the way our health system currently operates, one doctor will often not know what tests or medications have been prescribed by another doctor even when they are members of the same team."
…..
The full report can be found at the following URL:
http://www.achr.com.au
I have deep concerns about this report and it claims which will be the subject of a future article. Download it and consider the claims it makes for yourself. (It’s only 19 pages)
David.
Thursday, April 19, 2007
Policy Relating to Comments on the Blog.
In that purpose there is the desire, from me, for accuracy, honesty and openness from all contributors.
Lately there have been a number of anonymous / whistle-blower comments on specific topics.
My view is that I will publish these – as long as they are free of direct personal attack and other objectionable comment on the basis that sunlight is a very good thing in the public policy arena – which is where this blog engages.
I am also more than prepared to publish any contrary views – both anonymously and as named contributions. Such contributions are both welcome and encouraged. Objectivity and truth is what is sought here!
I am also not planning to censor discussion – but I will protect any party from gratuitous personal abuse where possible - , including deleting posts I am informed or see are defamatory, obscene or deeply personally offensive. I will, of course, be the arbiter of that.
I believe in an open and transparent society and that the organs of government that support society should be equally open and transparent.
Would it were so!
David.
ps - I know that this is obvious - but it needed to be said. D.
Tuesday, April 17, 2007
A Few Other Things Regarding the AFR Article on E- Health.
The Australian Financial Review Article of the 13th April, 2007 entitled “National e-health would save $30bn” by Julian Bajkowski makes a few comments I really don’t think should go through to the keeper.
The article states:
“The study has increased pressure on the federal government to abandon a number of failing federal electronic initiatives, including the $128 million HealthConnect project, which has yet to deliver tangible results.”
I would suggest this is wishful thinking as we see the grossly overfunded non-strategic trials which are being still being conducted by HealthConnect SA and HealthConnect Tasmania. It would be good however if this was an outcome and they were canned.
The article states:
“ Doctors, clinicians and hospitals have long sought electronic health and medical records that could be used across Australia's different state health systems.”
This really misses the mark. Most care (95%+) is delivered within a patient’s local area and virtually all care is delivered in the state of a patient’s residence. Doctors would be very keen to see records for their patients able to be used between the local practice, the local hospital and the local investigatory providers. The rest would be a cherry on the icing on the cake I would contend.
The article states:
“But developing the standards has been a battle because of a series of bitter quarrels between technology suppliers and standards bodies.”
This is largely just wrong. Between NEHTA and Standards Australia’s (SA) Health IT working parties there have been tensions and a lack of quality two way communication – but the Health IT industry has, for the most part, very good relations with SA. Relations between the Health IT industry and NEHTA are dodgy, at best, despite anything NEHTA may say.
The article states:
“NeHTA recently recruited the former head of Queensland-based Cooperative Research Centre for the Distributed Systems Technology Centre, Mark Gibson, as its chief technology officer.
The hiring represents a coup as it will ease NeHTA's access to a vast repository of e-health-related intellectual property held in trust by the shareholders of DSTC after the group's funding was terminated by the federal government in 2005.”
While not commenting on this particular appointment directly, I seriously doubt there is much useful intellectual property held in trust by DSTC given the failed and never properly reported HealthConnect trials it was involved in.
I hope these comments assist in understanding where things currently sit.
David.
Monday, April 16, 2007
A Headline To Die For - National e-health would save $30bn – Pity it’s a Wild Unsupported Bit of Speculation.
Regular readers of the blog will wonder why I should be concerned by this claim of such huge net benefits. The reason is very simple. While I firmly believe there are major benefits to be harvested from the deployment and use of e-health – and I believe the literature makes it reasonably clear where they are to be found – such claims are simply unsupportable without very substantial additional evidence.
NEHTA talks of the model they have developed in the following terms:
Modelling approach used for the study
• System Dynamics Model:
- Increasingly preferred (e.g. NHS)
- 900+ variables, 300+ calculation nodes, 25 sectors
• National and international expertise engaged:
- Jurisdiction, consumer and clinician input
• Focuses on major e-health benefits, costs and relationship to demand, quality and safety as e-health initiatives are rolled out over a 10 year period
Additionally they cite a range of published evidence from CITL, RAND etc and claim that from 3400 papers published since 1980 that Adverse Drug Events can be reduced by 50% (or more) by using Computerised Physician Order Entry (CPOE) with effective interactive decision support – among a range of other benefits that have been identified for e-Health.
They also suggest that there are 500,000 years of life to be saved in the Australian Population over 10 years with the implementation of e-Health.
What is conspicuously absent from all the presentations is the ‘how’? We are not told any of the basics that are required to make this credible. Obvious questions are:
What is the strategy, transition and implementation plan to move from where we are now to this 10 year future nirvana? If you don’t have that properly understood, documented and agreed with stakeholders how can you make any sensible comments about possible benefits? This is serious cart before the horse material I believe!
What are the assumptions for the capabilities of the systems to be used in hospitals and ambulatory practice to achieve these benefits? (It should be noted CPOE is notoriously difficult and complex to implement in hospitals – to the extent that – when last I looked – no more than 5% of hospitals globally have such systems in place. They are also not cheap to buy and implement.)
How much will such systems cost and who is going to pay for them?
What is a realistic time frame for replacement of present systems with the new more capable systems assuming they are readily available?
Given the vast majority of patient care is delivered in the private sector just what incentives (from Government) will be required to get the private sector on board?
Do we have the doctors, nurses and pharmacists who are sufficiently well trained and skilled in IT to make the transition to the e-health way of doing things?
Who is going to capably manage and co-ordinate such a huge change management and technology implementation program?
Are the assumptions in the model regarding a Shared EHR strategy correct? Is that ultimately the right approach for Australia? There is certainly a case for a careful review of the options being deployed around the world.
So what do we have here? Essentially what we have is a model without a strategy for architecture, implementation, funding and subsequent benefits management. There is no point putting out a generic claim about a possible scale of benefits without laser like clarity on just what is being proposed – or the economic hard heads in Treasury will shoot you down before you get started. This is where my concern lies. We have a once in a generation chance to propose a major re-investment in e-health for Australia and for it to succeed we need a model of an implementable and stakeholder approved strategy and implementation approach. Without clear and totally credible answers to all the questions I pose above, this initiative will turn out to be an expensive waste of time and effort.
It is vital in all this that those managing this proposed implementation ‘under promise’ and ‘over deliver’. I see no evidence of that approach in all this.
It is all very well for the Financial Review to publish an exciting headline and it is always important not to let the facts get in the way of a good story but I really think a little more digging regarding the reliability of NEHTA’s numbers, the assumptions and risks involved, the underlying strategic assumptions and recognition that things are usually much more complicated than they appear in a proposed, and largely yet to be defined, project of this scale would have been useful.
I look forward to NEHTA’s release of the Strategy and Implementation Plan that the model assesses along with the model and its assumptions. I will not be surprised to find I am once again disappointed and that sadly it all turns out to be largely ‘smoke and mirrors’ which will get us nowhere.
A final point that should be made is that the NEHTA Benefits Case relies on the deployment of clinical decision support (CDS). That, CDS, is sadly not actually part of NEHTA’s work plan as currently published. If it is actually worth so much, focus is needed and fast! Whoops!
We will wait and see!David.
Sunday, April 15, 2007
Useful and Interesting Health IT Links from the Last Week
http://www.reuters.com/article/healthNews/idUSN1236605720070412
Wal-Mart sees medical clinic boom in retail stores
Thu Apr 12, 2007 4:40PM EDT
ORLANDO, Florida (Reuters) - Wal-Mart Stores Inc. is forecasting more than 6,600 in-store medical clinics will open their doors in the next five years in retailers nationwide, a company official said on Thursday.
"I think it's an indication of how bullish individuals (chief executives of clinics and retailers) are," Alicia Ledlie, senior director for Wal-Mart's health business development, said at a health care retailers convention in Orlando.
With 75 clinics in Wal-Mart stores in 12 states, the company has ended its pilot program and plans a faster roll-out of additional clinics nationwide.
Ledlie said Wal-Mart is considering providing its in-store clinics with a common electronic medical records system so patient care can be tracked from store to store.
She said the system could ultimately be part of a universal electronic medical record system for the country
…...
See the rest of the article at the URL above. This is a really interesting development where the world’s largest retailer is developing both a huge number of medical clinics and, presumably for good commercial reasons, to utilise a sophisticated EHR system to provide seamless care to their customers no matter which store the seek care from. 6,600 clinics is an amazing number of clinics!
Second I noted this report from Europe. The value is in the second and third URLs that permit access to a wide range of information on e-health plans in all 27 member countries of the EU.
http://www.euractiv.com/en/health/report-shows-good-progress-health/article-163098
“Report shows good progress on e-Health
Published: Thursday 12 April 2007
Member states have made good progress in implementing the EU's e-Health strategy but have failed to address education and socio-economic issues falling under their responsibility, a new progress report shows.
An EU report confirmed that good progress has been made across the continent following EU member states' commitment, in the European e-Health action plan to develop a national or regional roadmap for e-Health.
http://ec.europa.eu/information_society/activities/health/docs/policy/200703ehealthera-countries.pdf
"e-Health is increasingly becoming an integral element of national health system objectives. It is seen as a key enabler in wider contexts like improving the quality and efficiency of public services, or speeding up the development towards knowledge driven societies," states the report, drafted by a project entitled Towards the Establishment of a European eHealth Research Area (eHealth ERA).”
…..
A useful listing of European Approaches to E-Health
http://www.ehealth-era.org/database/database.html
The third is a short piece of Australian news.
http://www.computerworld.com.au/index.php?id=523856106&eid=-180
“E-health authority appoints new chair
Sandra Rossi 10/04/2007 10:31:43
Director-general of the Queensland department of health, Uschi Schreiber, has been appointed chair of the National E-Health Transition Authority (NEHTA).
Schreiber will replace the outgoing secretary of the Victorian department of human services, Patricia Faulkner.”
There is but one comment to be made on this appointment. Ms Schreiber needs to be a hands on Chairperson of NEHTA and ask the hard questions about the appropriateness of the current NEHTA strategic directions. This is the core function of the NEHTA Board and especially its chairperson. If she does not do this – and listen to a broad range of voices who are not largely beholden to NEHTA for their income - she runs the risk she will be seen my many in the e-health domain as a dog who is being wagged by an organisational tail!
A good place to research for some had questions might be this very blog.
David.
Thursday, April 12, 2007
Why The Government will Never Fund a Shared EHR – And Probably Shouldn’t.
“Shared Electronic Health Record
NEHTA is working to develop specifications and requirements for a national approach to shared electronic health records. These records will enable authorised healthcare professionals to access an individual's healthcare history, directly sourced from clinical information such as test results, prescriptions and clinician notes. The shared electronic health record will also be able to be accessed by individuals who have received healthcare services.
Specifically, NEHTA will focus on developing:
• Operating concepts for a national approach to establishing and maintaining shared electronic health records;
• Policies, requirements, architecture and standards for a national approach to shared electronic health records; and
• A business case to substantiate and validate the proposed approach.
For the health system within Australia to reap the full benefits from the IT, governments and healthcare providers need to make the case for undertaking further investment including the development of a national system of shared electronic health records. The case for the required level of investment depends on the credible quantification of the costs and benefits of providing such.”
I understand that NEHTA plans to have developed the SEHR business case ready for submission to the Council of Australian Government (COAG) sometime in 2008. I would be prepared to wager a whole days wages they will not get approval to proceed to implementation, but will concede there may be some funding provided to have NEHTA (or someone else) go ahead to develop some more detailed plans and costings.
Before considering the possibility of SEHR Project success and funding we need to identify what is being proposed. From the most recent NEHTA presentations we see the following:
So from when funding is approved to proceed with the total project – probably in 2008 / 9 at the earliest - we will have the following happening. First two years of set up, certification, planning and procurement of a SEHR provider – to 2011 – and then over the next five years a rollout of an interoperable healthcare provider desktop. Starting in 2013 it is also planned that remote e-consultation will begin.
Can I say that the whole plan has a total air of un-reality and fantastic (in the real sense) wishful thinking about it. Among the realities that need to be faced are the following:
Firstly the present Federal Government has had over a decade to consider a major investment of this sort on Health IT and has not done so – what has suddenly changed that a 2008 proposal would suddenly meet acceptance? The answer is not much. If Government changes at the end of the year then all bets would clearly be off ( and planning would start again most likely ) and if it does not I suspect the 2011 election would see change – and a long and detailed review would be inevitable. Timing thus seems less than optimal at best.
Secondly large scale top down complex IT projects – in mixed health sector funding environments – are likely to be very problematic. The only examples of success in such a strategy are Kaiser Permanente (and a couple of similar managed care entities in the US) and the UK NHS. Both of these projects have proved to be both quite expensive and very difficult to manage. The other successes at a national scale have been in countries like Denmark and the Netherland where a messaging based bottom up relatively simple, standards based and incremental strategy has been successful. The co-operative disseminated model adopted by Infoway in Canada also seems to be progressing reasonably well and is possibly the closest match to the Australian situation.
Thirdly no Government in their right mind would invest in a SEHR project of the type presently proposed without some very substantial pilot and trial implementations at considerable scale. At the very least an implementation of the scale of a smaller state (say South or Western Australia) would be required to provide a credible ‘proof of concept’. This pilot / trial would take at least two years to be planned, implemented and evaluated. Given the abysmal failure of the various HealthConnect pilots – and the consistent withholding from public review of any detailed evaluation reports – success in this pilot endeavour could hardly be guaranteed. To not conduct a rigorous pilot / trial would, of course, be the height of folly and exceptionally high risk. It is not clear where this is planned to be undertaken on the NEHTA timetable shown above.
Fourthly there is a major project risk which is in-escapable in projects of this type. That is the inevitable political interference that is seen with large public projects and the difficulty of preserving direction and focus over many years required to deliver satisfactory outcomes. It is hard to think of any major Federal Government computer systems which have met both financial and planed time-lines. An additional risk, which should not be minimised, is the technical and system integration risk. As anyone with experience of the Health IT field will confirm very often interoperable simply isn’t (despite the use of recognised Standards) and much work is needed to make it so!
Fifthly at present the scale of costs of such a project – extending over at least four to five years – is essentially unknowable until the pilot implementations are complete. Any business case prepared before such information is available is likely to be more wishful thinking than fact. Associated with this issue is the lack of clarity as to what would be invested in and who would be investing in what and who would be paying for what. It seems improbable that such a major infrastructural upgrade will be willingly paid for by the users – i.e. GPs, Specialists, Hospitals and Diagnostic Providers – without some major cost recovery mechanisms being in place that obviates their financial risk.
Sixthly there will be a problems with having Hospitals and GPs / Specialists / Diagnostics in the private sector (they have most of the information that is to be shared.) being co-ordinated and managed in terms of information flows, implementation timetables and investment levels by NEHTA / Government.
Seven, any Shared EHR will inevitably face the privacy, confidentiality and consent issues associated with projects of this type, where the is always lingering public doubt as to just who can access the shared records and what control the patient has over such sharing. A program to convince a sceptical public of the benefits of a project of this sort will be neither brief or cheap.
Eight, right now there is a total lack of a credible business case that actually explains what will be paid for and who will pay. It is all very well to assert that there will be vast benefits from clinical decision support and e-consultation but until all the assumptions regarding the technology(ies) and capabilities to be deployed, what information is shared and what remains on local systems, who will be the users of these new systems, how the transition will be funded and managed and how the required knowledge bases are acquired and maintained credibility is severely stained at best.
Nine, while a simple PowerPoint slide can illustrate the concept of a SEHR the length of time and the level of work required to have even the smallest amount of health information sharable across a national entity (e.g. the UK) shows this is an undertaking of very considerable complexity, which is underestimated at considerable peril. Remember the basic idea has been around in Australia since 2000 / 1 and real progress towards a working outcome has not been impressive to date.
Last it needs to be appreciated that the development of a transition plan to take Australia from a wide variety of partially linked disparate client systems to a reasonable number of certified high quality client systems with rich functionality all supplying appropriate standardised, reliable information to some central SEHR securely and privately will of itself be major and as yet unaddressed and unfunded task.
What should be done instead?
With adjustments to suit our local Commonwealth / State divide it seems to me a national strategy based on locally based health information sharing initiatives on a background of proven Standards and compliance certification has the highest probability of success – especially when combined with an appropriate benefits re-distribution strategy to ensure those who are meeting the costs are rewarded for their efforts.
We could learn from ONCHIT in the US and let three or four contracts to build demonstration systems based on established standards and take the best features of each to develop a scalable bottom up approach that could then be rolled out at relatively low risk. These would be project managed commercially and their outcomes fully evaluated in public.
I am also strongly persuaded of the truth of the argument that real benefits are predominantly derived from advanced (Level IV) system and that the key to real benefits lie in standardised basic information sharing between advanced client systems. Secondary data sharing also needs to be part of the mix to ensure public health and post marketing surveillance of medication side effects (as well as bioterrorism) are effectively addressed. A top down strategy is almost certain to fail in the Australian environment and we would be better to go down a path that involves the determination of client functionality required, development of appropriate certification processes and standards and have the private sector develop and support appropriate systems. There could also possibly with an initially government funded Open Source alternative that could be developed, supported and provided at low (but reasonable) cost and maintained as an exemplar of what is required. This strategy could provide an incentive for commercial system developers to ‘out develop’ the basic system to demonstrate the additional value provided by their offering.
The total funding of any national SEHR at the COAG meeting in 2008, based on the current plans, seems to me to be ‘courageous’ in the extreme. Cooler heads need to prevail and a strategy suitable for Australia in 2008 to 2018 and beyond needs to be developed free from the unsuitable large scale SEHR proposal that seems to currently be dominating NEHTA thinking.
David.
Tuesday, April 10, 2007
NEHTA and ACSQH e-Health conference 20 March 2007
------------
Report:
NEHTA and ACSQH e-Health conference 20 March 2007
By
Professor Teng Liaw
President, Australian College of Health Informatics
From the participant list, this was a clinician and consumer focused conference with representatives from a whole range of disciplines and professions. It was facilitated by Julie McCrossin who was quite consumer-centric and focused on achieving some results. She managed to get some discussion on how best to describe interoperability.
Ian Reinecke described NEHTA’s workplan (see NEHTA website). He pointed out that eHealth was moving too slowly and emphasized a need for a national approach. He saw NEHTA (Autralia) as a “fast follower” as opposed to an “early adopter”. He suggested that there is a rising tide in eHealth, driven by the clinical process and the clinical and consumer communities, which will lift all boats in the process.
Christine Jorm described the Australian Council on Safety and Quality in Healthcare (ACSQH) workplan (projects, education, open disclosure, accreditation) and the need to achieve KPIs within 4 years. She likened QI to the process of testing change; we all have 2 jobs – one to do our work and the other to improve it. She stressed the belief barriers to eHealth.
Julie McCrossin posed the question: Is the Privacy Law the problem?
Peter Sprivulis presented the benefits realization study into the (potential) benefits of national eHealth reform, using a systems dynamics approach and quality dimensions. The model appears to be well developed and potentially useful. However, the data underpinning the predictions appear to be US-centric and not based on Australian information systems or the Australian healthcare system. The other assumption that appears to be controversial is the web-based SEHR, which is still relatively untried and untested. My feeling is that this model will need the data from a few controlled implementations over the next few years to really test its validity.
Richard Eccles reported on the various Commonwealth activities with the PIP, BFH subsidies, NEHTA, supporting clinical practice and new ways of doing business e,g, the electronic signature. The Commonwealth’s next steps are to support and promote the NEHTA work, ePrescribing, standards development and the shared EHR. He stressed that the Commonwealth’s role is to build the national infrastructure and a supportive environment for eHealth. The role of the consumer is key and the health professional is encouraged to offer the patient access to the eHealth system. The industry is also encouraged to build standards-based eHealth systems. This presentation highlighted the theory-specification-implementation gap e.g. should the government build a standards-based reference implementation or should it prepare specifications and leave it to the industry a la the many versions of HL7.
Julie McCrossin facilitated a discussion on the relative merits of Google as a source of evidence and information. The optimum information source is a balance of breadth and depth of information. The other point to consider is what the pros and cons of a NEHTA-built SEHR or a Google-managed SEHR?
The Change Management Panel emphasized that Commonwealth funded incentives are important to the change management process, to encourage participation in eHealth initiatives. An example is the incentive to enter data into information systems. A health service reported that they have combined the library and health record department as a strategy to eliminate “silos”. A universal reporting system was mooted. The NSW HealthELink reported on its opt-out system (with a 30-days cooling off period) and that they are about to link 100 GPs. The NT HealthConnect project is still implementing the eDischarge summary. A long term view is important – for example, the current apparent success of the UK NHS has been the result of sustained efforts, some effective and some not, over the last 20 years.
The Consumers Health Forum did a skit to highlight that any health program, eHealth included, is all about communication. Not sure if it is aimed at the lack of open communication by NEHTA with their consumer and clinician stakeholders.
In the Next Steps Panel, I stressed (1) the implementation gap and the need for a well funded national implementation plan with support from the highest political levels; (2) the health component of the eHealth agenda – the need for well-trained and supported clinicians to implement the eHealth program; and (3) the need for built in evaluation to ensure that the eHealth programs actually improve health and health care.
In the “Reflection on the day”, the following points were highlighted:
• It is important to put technology in its place in health care
• The advantage of being a “fast follower”
• The need to apply best practice consistently
• CDSS is an important component of the eHealth agenda
• Change management is important
• The consumer is a key driver of eHealth adoption
• eHealth must enhance the consumers’ trust in their doctor
• Better information is essential
• We must discourage “work arounds”, even with regulation if indicated
• The health sector is very tribal
In summary, while the conference did not discuss anything new, it was an important effort to engage the consumer and clinical stakeholder groups. The most important outcome will be how some of the relevant issues raised will be followed up by the NEHTA and ACSQH specifically and the participants’ organisations generally.
Teng Liaw
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I hope this summary will provide readers with a useful summary of current thinking at the NEHTA and ACSQH centre. I would be very interested in any comments those interested may have.
David.
Monday, April 09, 2007
Useful Health IT Links from the Last Week
First is the site established by HealthCareIT News to cover activities in the National Health Information Network (NHIN) Arena.
The site can be found at:
http://www.nhinwatch.com/index.cms
The site has an impressive range of coverage on the whole area and a lot of current news and resources. Among the areas covered are
• Federal Initiatives
• Privacy and Security
• The Business Case
• NHIN Architecture
• RHIOs
• Voice and Data Networks
• Events
The site requires one time registration for access to a wide range of resources and interesting news including an RSS Feed.
The site describes itself as follows:
“About NHINWatch.com
Brought to you by the editors of Healthcare IT News, NHINWatch.com is the most comprehensive Web site covering the creation of a Nationwide Health Information Network in the United States.
During his tenure as the first National Health Information Technology Coordinator, David J. Brailer, MD, made the development of a NHIN the centerpiece of his plans to bring American healthcare into the 21st century. Based on feedback received from the industry, Dr. Brailer described the network as an Internet-based data exchange that would allow medical providers to share health data to improve care.
But in 2006, Dr. Brailer resigned from his post with many decision about the NHIN yet to be made. Will it require a national database of patient records? Will every patient need a national identifier, or will a federated system of identity management based on existing demographic data and record locator services suffice? How will privacy be protected?
Every day, the editorial team from the industry's leading and most trusted news source, Healthcare IT News, scours the wires for the latest developments. If there's a story on the NHIN, you'll find it here.
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The second item is a really good news story from e-Health Insider.
http://www.e-health-insider.com/news/item.cfm?ID=2590
PACS roll-out milestone hit in London and the South
03 Apr 2007
All NHS hospital trusts across London and the South of England have now received systems to enable them to capture and store digital diagnostic images as part of the health service IT modernisation programme.
NHS Connecting for Health, the agency responsible for NHS IT, yesterday confirmed to E-Health insider that 56 digital picture archiving and communications systems (PACS) have now been installed in the past two years, covering all hospital trusts in the capital and South of England.
Prior to the NHS IT programme 18 trusts in the two regions had already put in PACS systems, taking the total number of installations to 74.
…..
The full article can be read at the site. This is really good news and the reactions of the users of these system reported by e-Health Insider offer considerable hope for other aspects of the Connecting for Health Program in the UK.
The third item is a tale of unintended consequences.
http://www.washingtonpost.com/wp-dyn/content/article/2007/04/04/AR2007040401935.html
“CAD Mammograms Often Find Harmless Spots
By JEFF DONN
The Associated Press
Wednesday, April 4, 2007; 10:56 PM
BOSTON -- A good mammogram reader may do just as well at spotting cancers without expensive new computer systems often used for a second opinion, a new study suggests. Computerized mammography, now used for about a third of the nation's mammograms, too often finds harmless spots that lead to false scares, researchers found. That conflicts with earlier studies showing benefit from the systems.”
…..
It seems clear that while the technology to analyse mammograms is more sensitive than the simple careful visual inspection of the mammogram it also results in many more women needing invasive biopsies and so on – meaning much more worry and anxiety for many women and little, if any benefit. As the article puts it, summarising the New England Journal of Medicine report:
“The researchers in this five-year study _ backed by the federal government and the American Cancer Society _ analyzed mammograms from medical centers in Washington state, Colorado and New Hampshire. Seven of 43 centers used CAD. The mammograms came from 222,135 women and included 2,351 with a cancer diagnosis within a year of their tests.
The researchers found that with computerized mammography, a third more women were called back for suspicious findings and 20 percent more got biopsies than with ordinary mammograms. That might be a good thing, if enough cancers turned up to justify the minor surgeries and anxiety surrounding them.
Yet the computerized method showed no clear capability to turn up more cancer cases than unaided readings: Four cancers were found for every 1,000 mammograms, whatever screening method was used. That means that CAD would give 156 more unneeded callbacks and 14 more biopsies for every additional cancer it finds. And though these extra cancers tend to be early ones that are easier to treat, many would never be threatening anyway.”
…..
The lesson here is that adoption of any technology without understanding the full impact it has on patient outcomes is always risky and that trials of technology need to assess the full impact on patient care – not just an improved number of cases located.
The last report this week is of very considerable concern:
http://www.modernhealthcare.com/apps/pbcs.dll/article?AID=/20070406/FREE/70405006/1029/FREE
“Quality chasm still exists: study
By: Joseph Conn / HITS staff writer
Story posted: April 6, 2007 - 6:00 am EDT
The more things change, well, you know the rest, even without reading the Fourth Annual Patient Safety in American Hospitals Study released this week by hospital report-card compiler HealthGrades.
"I think the bottom line is the quality chasm still exists between the top and bottom hospitals on the 13 quality indicators we compare," said Samantha Collier, the physician senior vice president of medical affairs and chief medical officer of the Golden, Colo.-based research company. "I think there is a significant gap, almost a 40% lower incident rate of these types of errors that we measured in the best performing hospitals to the lowest performing."
…..
The observation of a 40% difference in error rates makes it absolutely clear some hospitals are not trying hard enough. The impact of this being addressed:
“If all hospitals performed at the level of the top 15% in the study, which HealthGrades deems to be "Distinguished Hospitals for Patient Safety," there would have been 206,286 fewer patient safety incidents to Medicare patients, 34,393 fewer deaths and an estimated $1.74 billion would have been saved, according to Collier.”
…..
It would be good if statistics of the sort produced by HealthGrades were available in Australia so the debate on how to fix our hospitals could begin.
The full report can be read here:
http://www.healthgrades.com/media/dms/pdf/PatientSafetyInAmericanHospitalsStudy2007.pdf
A sobering read, as is the very good summary article I have quoted from.
David.