Quote Of The Year

Quote Of The Year - Paul Shetler - "Its not Your Health Record it's a Government Record Of Your Health Information"

Tuesday, May 22, 2018

Presentation Alert: Tim Kelsey At The National Press Club - Thursday 24th May, 2018.

I am told a live stream will be available from the ADHA web site and from Sky News at 12:30pm - 1:30pm on Thursday.

The ABC will have a repeat (via iView) - but no live broadcast - later on Thursday.

E&OE! If You know different please let us all know!

David.

Here is a link to the announcement:

https://www.myhealthrecord.gov.au/news/your-health-in-your-hands-digital-evolution-health-and-care-in-australia

D.

30 comments:

Bernard Robertson-Dunn said...

Hidden in the depths of myhealthrecord.gov.au

You have to go to the site map, scroll down to About, then News and click on that.

They really are going out of their way to not draw attention to themselves.

https://www.myhealthrecord.gov.au/news/your-health-in-your-hands-digital-evolution-health-and-care-in-australia

"22 May 2018

Presentation by Australian Digital Health Agency CEO Tim Kelsey at the National Press Club, Canberra, Thursday 24 May.

The Australian Digital Health Agency (the Agency) is working with a wide range of partner organisations to inform the Australian public about My Health Record, its security controls, benefits and their rights to opt out.

My Health Record already provides significant benefits for the more than 5.7 million Australians with a record, including fewer adverse drug events, avoided hospital admissions, reduced duplication of diagnostic tests, better coordination of care for people seeing multiple healthcare providers, and better informed treatment decisions.

On Thursday 24 May, at 12.30pm Agency CEO Tim Kelsey will address a National Press Club lunch in Canberra about these and other evolutionary developments in digital health in Australia.

The speech will be live streamed and available to watch online. We will share a link to the live stream before the event starts."

Not a mention of costs or risks.

Anonymous said...

Not surprised Bernard, check their so called developer.digitalhealth site. It is a mess from an information model perspective, looks like it is poorly maintained and offers nothing innovative, just the same specs I use to get from nehta. I am not sure the Information Age has quite reached the ADHA.

Anonymous said...

Thanks Bernard! They sure don't make it easy to follow their stuff... Let's hope there are some clued-up Canberra press on hand to put him through his paces.

Kelsey's conduct has been outrageous

Anonymous said...

What's the betting the link will not work......

Anonymous said...

I'm betting little Timmie won't show up...

Anonymous said...

I can assure you Tim will be in hand to talk. The link will work, out IT department does not go near important business systems

Anonymous said...

yeah, he'll be there... he has to earn his $278 per hour somehow....

Don't forget though he's a busy man, on $539,000 a year plus a $10K pa free trip home to ol Blighty...

It's not often he can make time to come talk to the common people, but when he does, we can only marvel at his brilliance

Anonymous said...

http://www.abc.net.au/radio/programs/am/digital-health-records-could-keep-1000s-out-of-hospital/9794726

Looks like he made it to the ABC after all

Anonymous said...

$539,000 per year.... but I thought his ethos was to think like a taxpayer, act like a patient....

Bernard Robertson-Dunn said...

An observation about what Tim Kelsey said at the Press Club about cancelling/deleting a health record.

He seemed to be suggesting that the data was archived off the system. That may or may not be the case, however the Health Legislation Amendment (Ehealth) Bill 2015
Explanatory Memorandum

https://www.legislation.gov.au/Details/C2015B00163/Explanatory%20Memorandum/Text

says:

"Once they have a My Health Record an individual can cancel their registration. No new information will be collected about individuals if they cancel their registration. Any information collected about that individual up to that point will no longer be shared with participating healthcare providers. If an individual cancels their registration they can choose to participate again at any time.



It is important to distinguish the difference between opt-out and cancellation. Opt-out applies before a My Health Record is created – a healthcare recipient may choose to opt-out, which means a My Health Record will not be created for them and no information will have been compiled. Cancellation applies after a My Health Record is created – a healthcare recipient may choose to cancel their My Health Record after it is created; information about the healthcare recipient will have been compiled between the time the My Health Record was created and cancelled and will be retained by the System Operator but cannot be accessed by any entity."

There is no mention in the document about archiving.

Apart from confirming that there would be no mass communication education program, he didn't say a lot that was in any way new. Same old, same old.

He certainly didn't answer the question "who should opt-out".

Anonymous said...

Kelsey said that there would be no national mailout to households informing people that the Govt was about to create an online medical record for everyone, because there might be "perverse outcomes" and some may be "upset" by the letter.

Imagine how upset some people will be when all sorts of "perverse outcomes" occur due to their health records being exposed in some public fashion or their identities stolen..... and yet they'd never heard anything about this fundamental reversal of our normal expectations about medical confidentiality!

Anonymous said...

Probably rightly or wrongly trying to avoid past issues - https://www.opendemocracy.net/ournhs/jane-fae/nhs-it-boss-kelsey-wrongly-claims-caredata-leaflet-sent-to-100-of-homes

Seems me with our obligations to file tax returns that a mail of two in everyone myGov account might help, even placing a big banner on myGov with link to the CHF, privacy foundation, and ADHA and others might be a good way to reach a large audience

Bernard Robertson-Dunn said...

Another thing he did was to compare myhr with faxes.

This is dissembling at best.

The alternative is existing, distributed Clinical Systems plus interoperability plus patent portal access (zero cost to the government, small privacy risk, more data) vs a government owned centralised database (larger cost, large privacy risk, summary data).

Anonymous said...

Did I hear correctly? The ADHA has a $100 million budget to publicise the opt-out changes, without any TV advertising or mailouts but Kelsey wasn't quite sure?

What ever are they going to spend it on?

Dr David G More MB PhD said...

That is the figure I thought I heard - $100M Budget.

Tim did try to vague the sum up a bit I felt.

David.

Anonymous said...

Bernard, dissembling indeed! Bigging up little Berrigan which as you say could have been digitally linked up years ago with any number of existing solutions.

It's embarrassing for Australia's digital health chief to stand there are promise all sorts of wonderful things that have actually been available in New Zealand for years...

Here's a recent update (and Waikato area is a lot larger then tiny Berrigan).... https://waikatodhbnewsroom.co.nz/2018/02/09/health-workers-in-the-waikato-dhb-region-will-now-have-one-click-access-to-patient-health-information/

Bernard Robertson-Dunn said...

What works for a small, community with limited medical facilities, probably doesn't scale to 25million.

Myhr has certain benefits for certain people at an acceptable cost. That doesn't make it suitable or cost effective for everyone.

They were obviously all rev'd up for the address with lots of media releases:

https://www.myhealthrecord.gov.au/news/media-release-nation-empowered-through-improved-digital-health-services

They could do with a decent proof reader "This information will empowering clinicians to make timely decisions in consultation with their patients," Ms Verhoeven said.

and

“My Health Record will result is doctors having access to better information, in a more timely fashion, via secure means. Less time chasing up paperwork means more time can be spent treating our patients,” Dr Gannon said.

There goes the comparison with paper again.

And I don't know how they justify the "better information" claim. More information, maybe, but better?

Anonymous said...

$ 100,000,000 for communications? I am sure on a bar napkin that is only $5-6 per head, in reality that is a lot, over the time period that beats Andrew Howard’s burning a million dollars a day.

So where is the communications plan that underpins this spending of public funds?

Anonymous said...

May 24, 2018 3:44 PM, innovative, reuse of existing government resources, low cost, demonstrates good financial management. Not a hope in hell of that happening.

Bernard Robertson-Dunn said...

One key issue Tim raised: efforts to do Health IT/Digital Health over past decades have failed.

He's quite right. However, what he didn't say is how or why myhr is any different, especially when it is built on top of existing health record systems.

He did make comparisons with Austria.

Here's a description of the system from 2015:

https://www.bmgf.gv.at/cms/home/attachments/1/7/2/CH1538/CMS1458292318057/1511_elga_the_electronic_health_record_in_austria.pdf

If he thinks myhr has much in common with Austria's system he has been badly informed.

Austria's health record seems to be a point-of-care system with patient access, not a summary/copy system.

The main features of the ELGA Access Portal are:

Authentication:
The citizen / patient can register by means of the so called Citizen Card, a new technology which is already broadly used in e-Government
[http://www.buergerkarte.at/index.en.php].

In order to access his or her electronic health record, the citizen can either use the personal Citizen Card or a transaction code on the
mobile phone.

Access management:
The citizen can authorize doctors and nurses to access his or her health data in ELGA and define the expiry date of the authorization. This feature of the ELGA portal contributes to patient autonomy and the enforcement of patient’s rights.

Document retrieval:
The patient can retrieve his or her personal health data, print documents and download them to personal devices


There’s also this:
Identification of the health service providers:
The proper set up of a treatment context requires the unambiguous identification of the organisation where the treatment takes place and of the involved physician or nurse alike. The identity management of those who carry out medical treatments is allocated in the Centralised Healthcare Provider Index (C-HPD).

Anonymous said...

Efforts of the ten years have failed? No they have not failed, think where things were ten years ago. All the government and now Tim are doing is flogging a Cassette player in the age of streaming media

Anonymous said...

The ADHA is responsible for a fifth of that failing.

Anonymous said...

As we approach the end of the year I’d like to take this opportunity to re-cap on the significant progress made by ADHA and its partners in digital health.
2017/18 has been a challenging year - and what has been achieved is remarkable. The rewards from achieving what we are striving for in the future is exciting, innovative and will benefit all Australians in many dimensions.
The Australian Digital Health Agency was established July 2016 after several years of in action due to delays in its formation and we have now designed and built many of the component “Building Blocks” for Digital Health. These include the Healthcare Identifiers (HI) Service; national infrastructure specifications for eDischarge, eReferral, eSpecialist letters and the Electronic Transfer of Prescriptions; and the National Clinical Terminology and Information Service.
2017 marked the commencement of My Health Record or national eHealth record system change from opt in to opt out, allowing every Australian a opportunity to be part of the black market in identity theft. Consumer conscription has commenced and strenuous efforts are being made to register clinicians, starting in General Medical Practice but noting the need to connect the whole clinical community in due course.
Key target groups who will benefit from more coordinated healthcare and sharing of health information include those with specific needs: older Australians, those with chronic or complex diseases, mothers with newborn babies, Indigenous and Torres Strait Islander people, and Australians living in remote communities.
We are working determinedly to ensure Secure Message Delivery (SMD) is in place, is standards compliant and connects between systems and providers. Any healthcare practitioner is able to connect up the care they provide electronically today using SMD: this gives them an “in” into the system, provides “electronic information” and the same requirements for SMD when met will allow the national eHealth record system to be used. This is very important within GP practice, but much more so in the “out of hospital” and primary care sector – in particular between sectors: most difficulties arise at the interfaces of care. We are supporting the sector in taking up the system.
As we continue to progress broader eHealth initiatives, we will also be working with the hospital sector: in-patient, emergency and out-patient areas in particular. The prescription and dispensing of medications is another known need and therefore a target for the sector. Excellent, clinically driven medications management is key to the national infrastructure and the safety and quality in healthcare agenda.

Anonymous said...

We now look forward to building on the progress made this year. What we have achieved to date has been to bring together multiple IT platforms to read from and write to the national My Health record system in the same way – this is a massive change in use of technology and a great leap in “joining up the dots” in the healthcare sector.
The ADHA focus in 2018/19 is to continue to develop and rollout the national infrastructure and adoption support required for digital health in Australia and to support the health sector’s transition to the effective use of Digital Health. We will also continue to develop specifications and standards for other conforming health sector participants to connect the national eHealth records system.
None of this would be possible without the dedication and collaboration of our partners, core funders and stakeholders. From July 2016 till now, ADHA facilitated or was involved in over 730 meetings, workshops and conferences, communicating with thousands of people from around 500 different stakeholder organisations, individuals and anyone in small towns looking to kill a few hours for cake and tea.
I would like to thank all those who contributed over the year, in workshops, forums, focus groups, reference groups or were just advocates of our work. We look forward to continuing a respectful, responsive, collaborative approach to improve our understanding of our stakeholders’ needs and to support them in contributing to and being part of the national eHealth agenda.
Now the journey continues – to strive for better healthcare, safer health outcomes, and meaningful use of the My Health Record we especially look forward releasing on mass your most personal information to organisation setup to mask insurance and pharmaceutical company real intent.

Anonymous said...

I thought the press cloud talking too went well. Nothing surprising and all to script which is want Tim is paid for, he also believes. I am not sure what people were expecting other than the consistent message. No one is going to say anything else regardless of their own personal views

Dr Ian Colclough said...

@5:21PM Bernard Digital Health is such an all encompassing term that generalisations such as "efforts have failed" are meaningless. I haven't heard the NPC presentation but it is necessary to be more specific by referring to what efforts, what applications, and then expanding on some of the major reasons why they have failed. Perhaps that would be too challenging for Tim to contemplate.

Anonymous said...

Sadly Tim through his action has lost my vote of confidence. I appreciate the need for consistent messaging but that does not mean you have to be a parrot, and even then mimicking old rhetoric from a decade ago. I guess the final straw was this week and reports he would not appear on a radio show because of certain other invitees. That demonstrates weakness and falls short of clear leadership founded on truth.

Anonymous said...

AnonymousMay 25, 2018 7:25 AM. You should write for the ADHA. You certainly paint a rosy picture for the Department of Health’s involvement. Although a sense some sarcasm?

Anonymous said...

I think it’s sarcasm, other than a few changes to reflect ADHA and the use of the term Digital Health. It is a message from NEHTA back in late 2012. Just shows how much of a distraction the PCeHR/MyHR has been, after 6 years nothing mentioned has progressed. You have to wonder what the alternative universe might have accomplished

Anonymous said...

That would be funny if it was not so sad. It could be easy have been a fresh narrative. What would that universe be like? You do not have to look far to see countries that either ditched or avoided approaches like the governments HR opt out system.