Thursday, June 20, 2019
There Is A Con Being Perpetrated On The Public Regarding Health Record Access. It Is Not Useful For Most!
This popped up last week:
June 7, 2019
I knew up front that it would be ugly. After two years of treatment, a chronically-ill patient like me generates a lot of records, and I had every reason to expect that they would be disorganized and dense.
Still, when I sat down to tackle the 600-odd PDF that Kaiser Permanente made available, I was pretty intimidated. Yeah, when I say this I can almost hear you thinking “well, duh!” but your warnings couldn’t prepare me emotionally for the document that I got.
In any event, this encounter with my personal data has convinced me that if CMS doesn’t change its strategy, pushing consumer engagement with their online medical record will prove to be a complete waste of time.
Actually, getting my records was actually amazingly easy. I logged into my Kaiser portal and navigated little difficulty to a link I could use to request records for the past two years of treatment. Having been a patient with Kaiser for just over two years this was perfect,
Within 24 hours, Kaiser has sent me a link to the FTP site for which I could download my records, and creating a login for the FTP server was simple. I logged in, clicked to fetch the PDF and voila, there it was. As an aside, this was a stunning exception to Kaiser’s usual foot-dragging and bureaucratic bluster, and my guess is that their Epic system deserves at least some of the credit.
In any event, you’ll be far from surprised to learn that from that point on, things got a little crazy.
First, it was the predictable but unfortunate fact that the document was 643 pages long and completely chaotic. Visit records from various providers were displayed in random order, with encounter information from say, May 2017 followed by documentation from November 2019 then August 2018.
Updates from my primary care doctor were followed by nursing notes from urgent visits, then records from podiatry consults the year earlier. There were pages and pages of repetitive blood pressure readings.
Of course as the #myHR for each patient gradually fills up the threat of a 600 page document will become moot – even if it were actually possible to download the whole record- let alone in any organized form.
For most people it will be impossible to make much sense of what they receive as so much will be disorganized, technical and hardly informative!
This article provides more evidence I reckon as to just how few will find much benefit from the system for the enormous amount we a paying for it. What proportion of the population do you think will actually receive real value from the #myHR and is that enough to justify the system?
Posted by Dr David G More MB PhD at Thursday, June 20, 2019