Sunday, May 06, 2018
The Signs Of Incompetence and Chaos Just Keep Piling Up Around The ADHA, But They Have Really Excelled Themselves This Week!
The bad week began early in the week when all sorts of comments appeared on the blog making it clear that announcements on the Secondary Use of myHR data and the opt-out process were coming soon.
The stage was being set for opt-out to start with events such as an address to the National Press Club on May 24 and so on.
Chief Executive Officer, Australian Digital Health Agency
'Your Health in Your Hands – the Digital Evolution of Health and Care in Australia'
Thursday, 24 May 2018
Arrive from 11.30am, lunch 12 noon, speaker 12.30 concludes 1.30pm
Canberra - 16 National Circuit, Barton ACT 2600
Here is the link:
This was then followed by a blog post from fellow blogger Dr. Edwin Kruys letting us all know – from the inside – that it was soon to be on for one and all.
The Australian Digital Health Agency (ADHA) is ramping up its activities to prepare for the change to opt-out. The large-scale operation will involve extensive stakeholder engagement, a nation-wide communication and advertising campaign and increased support for consumers and clinicians.
For consumers who have not opted out at the end of the defined three-month period later this year, a My Health Record (myHR) will be created. The record will be activated when used for the first time by consumers or clinicians.
ADHA has opened a new call centre, launched a revamped website myhealthrecord.com.au and is now present on Twitter (@MyHealthRec).
Staff levels of the call centre – transferred from the Department of Health to ADHA – will increase from thirty to two hundred and will operate around the clock during the opt-out period.
The record will initially be empty apart from two years worth of retrospective MBS and PBS data. Consumers have the option to remove this data.
Pathology and imaging reports are uploaded into the MyHR one week after the test date. Some sensitive tests, such as HIV, may not be automatically uploaded depending on the various State or Territory legislation.
Clinicians and consumers will have the opportunity to stop the upload of results and other reports if desired. Consumers can restrict access to or remove reports from their MyHR.
There is a great deal more here:
This paragraph – since modified – tells us Secondary use is on the way too!
The MyHR offers clear benefits as clinicians will have increased access to information such as shared health summaries, discharge summaries, prescription and dispense records, pathology reports and diagnostic imaging reports.
However, every digital solution has its pros and cons. It has been decided that the risks associated with the MyHR will not be explicitly discussed on the website.
Behind the scenes however, risk mitigation has been one of the priorities of ADHA. This obviously includes the risk of cyber attacks and public confidence in the security of the data.
Many consumers and clinicians regard secondary use of the MyHR data as a risk. The MyHR will contain a ‘toggle’, giving consumers the option to switch secondary use of their own data on or off.
----- End Extract.
We can assume this is authoritative info given the author:
“Edwin Kruys is a member of the My Health Record expansion program steering group.”
And finally it was all brought together beautifully here:
Lynne Minion | 04 May 2018
Weeks before the anticipated announcement of the My Health Record opt out period, an insider’s leak has claimed the Australian Digital Health Agency has decided to not explicitly inform consumers of the risks associated with My Health Record, such as those relating to cybersecurity and the “secondary use” of the clinical data collected within it.
As the ADHA heads towards the imminent announcement of the three-month window in which Australians will be able to opt out of My Health Record before being signed up to the online health information repository, the agency was caught by surprise today when details emerged in a blog post by GP and member of the steering group for the national expansion of MHR, Dr Edwin Kruys.
Kruys wrote that MHR offers “clear benefits” to healthcare through providing clinicians with greater access to discharge summaries, pathology and diagnostic reports, prescription records and more, but said “every digital solution has its pros and cons” and behind-the-scenes risk mitigation has been one of the priorities of the ADHA. However, he claimed Australians may not be made aware of the risks involved in allowing their private medical information to be shared via the Federal Government’s system.
“It has been decided that the risks associated with the MyHR will not be explicitly discussed on the website,” Kruys wrote.
“This obviously includes the risk of cyber attacks and public confidence in the security of the data.”
The most contentious contribution in the post related to the secondary use of Australians’ health information, the framework of which has yet to be announced by Health Minister Greg Hunt.
Vastly more here:
Additionally the Board has not posted its notes in 5 months and Tim Kelsey was in the US when last heard of on International Digital Health Business.
Worse still the system still seems to need lots of rest – especially when it might be most useful!
Of course, as well, we still have the ongoing issues around the myHR’s compulsion, fitness for purpose, cost, usefulness, reliability, privacy, security and data quality to say nothing of its basically flawed initial design and the open secret that it is intended to monitor GP performance for Government rather that assist clinical care.
Its really sad how so much initial hope has given way to frustration and annoyance.
Posted by Dr David G More MB PhD at Sunday, May 06, 2018