Monday, October 15, 2018
We All Seemed To Have Been Lured Into Some Zombie Like State Of Inertia Regarding The #myHealthRecord.
Earlier today I tweeted this little contribution.
'Does anyone have a clear reason as to just why the Government wants to collect all our private health information in a large Government owned and operated data base and spend $billions doing so with no evidence of clinical benefit?'
Sadly the silence in response was deafening.
The source of my concern is that there has been altogether too much acceptance of the status quo and really a lack of asking the more fundamental questions.
Among these are questions like:
1. What is the evidence we actually need the myHealthRecord System with its very considerable startup and operating costs and rather weak justificatory evidence?
2. If we do need a secondary electronic aggregation of our health information (which inevitably will be partially incomplete and out of data at best) to be held by the Government are we going about it the right way in terms of utility, workflow support and useability?
3. Given we know the myHealthRecord System can never be a trustworthy or complete source of information for either clinicians or patients who and what is it actually for and why has Government spent so much on it?
4. Who would really notice if the system was simply turned off and a new voluntary system was built using modern technology to store the very basic emergency clinical information those individuals wanted to make accessible on line – perhaps curated by their GP?
5. Would it not be better if pathology, imaging and pharmacy providers made available their information directly to the patient and their doctor as appropriate, perhaps via a portal or app provided by their local practice etc.?
6. Would not co-ordination of complex chronic care be provided by local system providers with deep expertise and experience in the area?
7. What would be wrong with private system providers offering health record storage systems for individuals who want them to meet their specific needs for storage and access to their information?
We seem to again be seeing the myHealthRecord hammer as the nail for all Digital Health needs which is just nonsense.
Have we not just been lulled into the sense the very mediocre myHealthRecord exists so let’s use it rather that force change for something really useful and respective of our desire for access and privacy. Of course I suspect we could have better and cheaper outcomes with approaches along the lines mentioned above.
Posted by Dr David G More MB PhD at Monday, October 15, 2018