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Quote Of The Year - Paul Shetler - "Its not Your Health Record it's a Government Record Of Your Health Information"

Saturday, August 18, 2018

Details For The MyHealth Record Inquiry - For Reference.

My Health Record system

On 15 August 2018, the Senate referred the following matter to the Senate Community Affairs References Committee for inquiry and report:

The My Health Record system, with particular reference to:
  1. the expected benefits of the My Health Record system;
  2. the decision to shift from opt-in to opt-out;
  3. privacy and security, including concerns regarding: 
    1. the vulnerability of the system to unauthorised access, 
    2. the arrangements for third party access by law enforcement, government agencies, researchers and commercial interests, and 
    3. arrangements to exclude third party access arrangements to include any other party, including health or life insurers;
  4. the Government’s administration of the My Health Record system roll-out, including: 
    1. the public information campaign, and 
    2. the prevalence of ‘informed consent’ amongst users;
  5. measures that are necessary to address community privacy concerns in the My Health Record system;
  6. how My Health Record compares to alternative systems of digitising health records internationally; and
  7. any other matters.
Submissions are sought by 14 September 2018. The reporting date is 8 October 2018.

Committee Secretariat contact:

Committee Secretary
Senate Standing Committees on Community Affairs
PO Box 6100
Parliament House
Canberra ACT 2600

Phone: +61 2 6277 3515
Fax: +61 2 6277 5829
community.affairs.sen@aph.gov.au

Here is the link:

https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/MyHealthRecordsystem

If you plan to make a submission this is very useful reading:

https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/How_to_make_a_submission


David

10 comments:

Anonymous said...

The PM this week openings the new Cyber Security Centre had this to say

Mr Turnbull said “cyber criminals” continue to focus on the bank balances and personal data of “some of the most vulnerable members of our community”.

So why risk the MyHR? Or is it simply a lure to trap would be cyber criminal and nation states? Just seems a mad idea to me.

Anonymous said...

In order to address the benefits aspect and the communications value does anyone know if the committee will be releasing the numbers who have elected to optout and the geographical makeup? It would be useful to have some common points that all submission could reference.

Dr David G More MB PhD said...

I am told the Shadow Health Minister is going to be asking for the figures in Parliament next week. We will have to wait and see...

David.

Anonymous said...

Thanks David, always a great source of information. Hopefully we still have a working Parlimentary next week.

Anonymous said...

In case the shadow minister is unsuccessful this might act as a guide

https://www.google.com.au/amp/s/amp.canberratimes.com.au/national/act/one-in-four-australians-to-opt-out-of-my-health-record-survey-finds-20180814-p4zxh8.html

In Canberra the ADHA is becoming known (not in a kind way) as the little engine that couldn’t.

Anonymous said...

@8:26 AM. That makes for interesting data. Certainly a long cry from the boast 2% optout figure. Just to quote from the Canberra times article-

consumer study of more than 2000 Australians, conducted by finder.com.au, revealed 26 per cent of people surveyed plan to opt out of My Health Record before the November 15 deadline.

The survey also found even more people, 28 per cent, had not heard about My Health Record or what it means for them.

Greg Twyford said...

Yes, I also believe that the level of ignorance is the really disturbing part of all this.

Opt-In ditched in the absence of promised public information campaigns. Fanciful evaluations of the Opt-out trials, which remind me of the 'Yes Minister' survey design episode.

Canberra is very 'switched-on' to all things political and governmental, by its very nature. I would really like to see a proper survey of knowledge or understanding of MyHR in Western Sydney, the heartland of multicultural Australia.

My GP moved there some years ago, and I followed him. Recently, the little, english language only, MyHR posters in the medical centre have gone, and he's not participating.

Neither am I, so my trust in his judgement has been re-affirmed.

I'd also love to know if the MyHR debate is getting an airing in the ethnic press and media. I've not noticed anything on SBS. Anyone up to speed on this?

Anonymous said...

Those are some pretty damaging figures for ADHA. Clearing they have been unable to implement government policy. As poor a picture as this figures paint it is not surprising. Implementing policy or legislation is well thought out process developed by government over centuries of learning. The ADHA bounced in with a mindset that this was all wrong and they new best, oddly with no clear experience in implementing Australian Government directives.

After two years we have an organisation that appears to be well above the accepted staff turnover, unable to function and has neglected to maintain or enhance the products and services it was established to do.

The MyHR is proving to be an unwelcomed disaster.

Whatever the enquiry comes up with surely one recommendation must be to remove all SES level staff and perhaps even recreate an NGO so we can attract and retain people of value.

Anonymous said...


I am told the Shadow Health Minister is going to be asking for the figures in Parliament next week. We will have to wait and see...

David.


So I guess that was just another pointless promise from a soon to be pointless health minister. These numbers need to be made public

Anonymous said...

@4:34, you may not have noticed but the politicians have been focusing on their number one priority - themselves